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Knowing autism: The place of experiential expertise

Published online by Cambridge University Press:  23 July 2019

Elizabeth Pellicano Open the ORCID record for Elizabeth Pellicano [Opens in a new window] ,
Jacquiline den Houting ,
Lee du Plooy  and
Rozanna Lilley
Elizabeth Pellicano
Affiliation:
Department of Educational Studies, Macquarie University, Sydney 2109, Australia. [email protected]@[email protected]@mq.edu.auhttps://researchers.mq.edu.au/en/persons/liz-pellicanohttps://researchers.mq.edu.au/en/persons/rozanna-lilley
Jacquiline den Houting
Affiliation:
Department of Educational Studies, Macquarie University, Sydney 2109, Australia. [email protected]@[email protected]@mq.edu.auhttps://researchers.mq.edu.au/en/persons/liz-pellicanohttps://researchers.mq.edu.au/en/persons/rozanna-lilley
Lee du Plooy
Affiliation:
Department of Educational Studies, Macquarie University, Sydney 2109, Australia. [email protected]@[email protected]@mq.edu.auhttps://researchers.mq.edu.au/en/persons/liz-pellicanohttps://researchers.mq.edu.au/en/persons/rozanna-lilley
Rozanna Lilley
Affiliation:
Department of Educational Studies, Macquarie University, Sydney 2109, Australia. [email protected]@[email protected]@mq.edu.auhttps://researchers.mq.edu.au/en/persons/liz-pellicanohttps://researchers.mq.edu.au/en/persons/rozanna-lilley
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Abstract

Jaswal & Akhtar challenge the notion that autistic people have diminished social motivation, prompted in part by a desire to take autistic testimony seriously. We applaud their analysis and go further to suggest that future research could be enhanced by involving autistic people directly in the research process.

Type
Open Peer Commentary
Information
Behavioral and Brain Sciences , Volume 42 , 2019 , e107
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Copyright
Copyright © Cambridge University Press 2019 

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Footnotes

1.

Liz Pellicano is a psychological scientist who does not identify as autistic; Jacquiline den Houting is an autistic research psychologist; Lee du Plooy is an autistic researcher; and Rozanna Lilley is an anthropologist and education researcher who has a son on the autism spectrum. We comment in particular on the social and ethical issues raised by this target article.

References

Cage, E., Bird, G. & Pellicano, E. (2016) ‘I am who I am’: Reputation concerns in adolescents on the autism spectrum. Research in Autism Spectrum Disorders 25:12–23. Available at: https://doi.org/10.1016/j.rasd.2016.01.010.Google Scholar
Calder, L., Hill, V. & Pellicano, E. (2013) ‘Sometimes I want to play by myself:’ Understanding what friendship means to children with autism in mainstream primary schools. Autism 17(3):296–316. Available at: http://dx.doi.org/10.1177/1362361312467866.Google Scholar
Collins, H. M. & Evans, R. (2002) The third wave of science studies: Studies of expertise and experience. Social Studies of Science 32:235–96.Google Scholar
Cribb, S., Kenny, L. & Pellicano, E. (in press) “I definitely feel more in control of my life”: The perspectives of young autistic people and their parents on emerging adulthood. Autism. First published online February 28, 2019. Available at: https://doi.org/10.1177/1362361319830029.Google Scholar
Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., Leekam, S., Milton, D., Parr, J. R. & Pellicano, E. (2018) Making the future together: Shaping autism research through meaningful participation. Autism. Available at: https://doi.org/10.1177/1362361318786721.Google Scholar
Jack, A. I. & Roepstorff, A. (2002) Introspection and cognitive brain mapping: From stimulus-response to script-report. Trends in Cognitive Sciences 6:333–39.Google Scholar
Milton, D. E. (2014) Autistic expertise: A critical reflection on the production of knowledge in autism studies. Autism 18(7):794–802.Google Scholar
Milton, D. E. M. & Bracher, M. (2013) Autistic speak but are they heard? Medical Sociology 7:61–69.Google Scholar
Nicolaidis, C., Raymaker, D., McDonald, K, Dern, S., Ashkenazy, E., Boisclair, C., Robertson, S. & Baggs, A. (2011) Collaboration strategies in nontraditional community-based participatory research partnerships: Lessons from an academic-community partnership with autistic self-advocates. Progress in Community Health Partnerships: Research, Education, and Action 5:143–50. Available at: https://dx.doi.org/10.1353/cpr.2011.0022.Google Scholar
Orsmond, G. I., Shattuck, P. T., Cooper, B. P., Sterzing, P. R. & Anderson, K. A. (2013) Social participation among young adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders 43:2710–19. Available at: http://dx.doi.org/10.1007/s10803-013-1833-8.Google Scholar
Pellicano, E., Dinsmore, A. & Charman, T. (2014a) What should autism research focus upon? Community views and priorities from the UK. Autism 18:756–70.Google Scholar
Pellicano, E., Hill, V., Croydon, A., Greathead, S., Kenny, L. & Yates, R. with Wac Arts. (2014c) My life at school: Understanding the experiences of children and young people with special educational needs in residential special schools. Office of the Children's Commissioner.Google Scholar
Pellicano, E. & Stears, M. (2011) Bridging autism, science and society: Moving towards an ethically-informed approach to autism research. Autism Research 4:271–82. Available at: http://dx.doi.org/10.1002/aur.201.Google Scholar
Sedgewick, F., Hill, V. & Pellicano, E. (in press) “It's different for girls”: Gender differences in the friendships and conflict of autistic and neurotypical adolescents. Autism. Available at: https://journals.sagepub.com/doi/10.1177/1362361318794930.Google Scholar
Shattuck, P. T., Orsmond, G. I., Wagner, M. & Cooper, B. P. (2011) Participation in social activities among adolescents with an autism spectrum disorder. PLOS ONE 6:e27176.Google Scholar
Taylor, C. (1977) Hegel. Cambridge University Press.Google Scholar