Governing Medical Knowledge Commons

doi:10.1017/9781316544587

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Cook-Deegan, Robert Ankeny, Rachel A. and Maxson Jones, Kathryn 2017. Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance. Annual Review of Genomics and Human Genetics, Vol. 18, Issue. 1, p. 389.

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Nagle, Frank 2018. The Digital Commons: Tragedy or Opportunity? A Reflection on the 50th Anniversary of Hardin’s Tragedy of the Commons. SSRN Electronic Journal ,

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Edited by Katherine J. Strandburg, New York University School of Law, Brett M. Frischmann, Villanova University, Pennsylvania, Michael J. Madison, University of Pittsburgh School of Law

Publisher:: Cambridge University Press
Online publication date:: October 2017
Print publication year:: 2017
Online ISBN:: 9781316544587
DOI:: https://doi.org/10.1017/9781316544587
Creative Commons:: This content is Open Access and distributed under the terms of the Creative Commons Attribution licence CC-BY-NC-ND 4.0 https://creativecommons.org/creativelicenses

Subjects:: Intellectual Property, Macroeconomics, Medico-Legal, Bioethics and Health Law, Law
Series:: Cambridge Studies on Governing Knowledge Commons

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Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.

‘Governing Medical Knowledge Commons is a very interesting and useful book, and I am delighted to say so! Innovation development is increasingly becoming open and distributed over time. Whether and how the fruits of this openly revealed activity can be collected and efficiently utilized as a commons is a very important next question. Strandburg, Frischmann, and Madison greatly help further progress via this collection of very thoughtful studies on pioneering medical commons models and trials.'

Eric von Hippel - T. Wilson Professor in Management, Sloan School of Management, Massachusetts Institute of Technology

'This volume builds on Elinor Ostrom’s research on the commons. Understanding the institutions that promote cooperation is critical to good governance and improving social welfare. The authors in this volume provide case studies of governance in the medical commons. The insights are pathbreaking and will lead to better policies for medical research. Moreover, the insights here will be synergistic to research in other areas of governance of commons.'

Lee J. Alston - Director of the Ostrom Workshop, Indiana University, Bloomington

'This book makes significant advances on a decades-long research agenda through which Elinor Ostrom and other commons researchers uncovered the reasons behind the often surprising success of community-based management of natural resources. Contributors to this volume demonstrate that their concept of ‘commons as a mode of governance’ goes well beyond standard protections for intellectual property rights to integrate collaborative practice into the very heart of innovation in medical research and treatment. Case studies detail several impressive and diverse examples of this powerful synthesis of research and practice, and the editors conclude with practical lessons for how we might achieve comparable levels of improvement in other areas.'

Michael D. McGinnis - Associate Dean, College of Arts and Sciences, and former Director, Ostrom Workshop, Indiana University, Bloomington

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Governing Medical Knowledge Commons

This Book has been cited by the following publications. This list is generated based on data provided by Crossref.

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Governing Medical Knowledge Commons
pp i-i

Cambridge Studies on Governing Knowledge Commons - Series page
pp ii-ii

Governing Medical Knowledge Commons - Title page
pp iii-iii

Copyright page
pp iv-iv

Contents
pp v-vi

Contributors
pp vii-viii

Knowledge Commons and the Road to Medical Commons
pp 1-8

1 - The Knowledge Commons Framework
pp 9-18

2 - Leviathan in the Commons: Biomedical Data and the State
pp 19-45

3 - Centralization, Fragmentation, and Replication in the Genomic Data Commons
pp 46-73

4 - Genomic Data Commons
pp 74-101

5 - Population Biobanks’ Governance: A Case Study of Knowledge Commons
pp 102-120

6 - The Sentinel Initiative as a Knowledge Commons
pp 121-143

7 - Cancer: From a Kingdom to a Commons
pp 144-165

8 - The Greatest Generational Impact: Open Neuroscience as an Emerging Knowledge Commons
pp 166-191

9 - Better to Give Than to Receive: An Uncommon Commons in Synthetic Biology
pp 192-221

10 - Governance of Biomedical Research Commons to Advance Clinical Translation: Lessons from the Mouse Model Community
pp 222-258

Appendix: Methods for Mouse Patent Landscape and Impact Analysis
pp 249-258

11 - Constructing Interdisciplinary Collaboration: The Oncofertility Consortium as an Emerging Knowledge Commons
pp 259-284

12 - The Application of User Innovation and Knowledge Commons Governance to Mental Health Intervention
pp 285-300

13 - Challenges and Opportunities in Developing and Sharing Solutions by Patients and Caregivers: The Story of a Knowledge Commons for the Patient Innovation Project
pp 301-325

14 - Chronic Disease, New Thinking, and Outlaw Innovation: Patients on the Edge in the Knowledge Commons
pp 326-347

15 - The North American Mitochondrial Disease Consortium: A Developing Knowledge Commons
pp 348-389

16 - The Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR): An Emerging Knowledge Commons
pp 390-420

Governing Knowledge Commons: An Appraisal
pp 421-430

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