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State intervention in the lives of people with disabilities: the case for a disability-neutral framework

Published online by Cambridge University Press:  15 February 2017

Eilionóir Flynn*
Affiliation:
Centre for Disability Law and Policy, NUI Galway, Ireland. E-mail: [email protected].
Anna Arstein-Kerslake
Affiliation:
Hallmark Disability Research Initiative and Melbourne Law School, Australia. E-mail: [email protected].

Abstract

People with disabilities continue to experience a disproportionately high level of state intervention in their private lives. Many disabled people's organisations have long sought to challenge this discriminatory approach and, in recent times, have relied upon the provisions of the UN Convention on the Rights of Persons with Disabilities in support of their claims. In this paper, we argue for the abolition of disability-specific legal bases for state intervention in the private lives of adults. We also argue for the introduction of a narrower disability-neutral legislative framework for state intervention in the lives of all adults – based on risk of imminent and serious harm to the individual's life, health or safety, while providing greater respect for the person's legal capacity as expressed through her will and preferences.

Type
Articles
Copyright
Copyright © Cambridge University Press 2017 

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Footnotes

The development of the ideas in this paper was very much a collaborative effort and could not have been achieved without the valuable insights and feedback of many other scholars in this field. We wish to particularly acknowledge the comments of Tina Minkowitz, Elizabeth Kamundia, Mirriam Nthenge, Lucy Series, Michelle Browning, Alex Ruck-Keene and Piers Gooding for their comments on earlier versions of this paper. Alberto Vasquez, Sarah Hofmayer, Charlotte May Simera, Liz Brosnan and John Danaher also gave valuable feedback at a roundtable discussion on a very early draft of this paper. Any errors or inaccuracies are the sole responsibility of the authors.

References

Arstein-Kerslake, Anna and Flynn, Eilionóir (2017) ‘The Right to Legal Agency: Domination, Disability, and the Protections of Article 12 of the Convention on the Rights of Persons with Disabilities’, International Journal of Law in Context 13(1): 2238.Google Scholar
Bach, Michael and Kerzner, Lana (2010) A New Paradigm for Protecting Autonomy and the Right to Legal Capacity. Ontario: Law Commission of Ontario. Available at: <http://www.lco-cdo.org/disabilities/bach-kerzner.pdf> (accessed 10 February 2012).Google Scholar
Barton, Len (1993) ‘The Struggle for Citizenship: The Case of Disabled People’, Disability, Handicap & Society 8(3): 235248.Google Scholar
Breggin, Peter Roger (1994) Toxic Psychiatry: Why Therapy, Empathy and Love Must Replace the Drugs, Electroshock, and Biochemical Theories of the’ New Psychiatry’. New York: Macmillan.Google Scholar
Brett, Allan S. (1991) ‘Limitations of Listing Specific Medical Interventions in Advance Directives’, Jama 266(6): 825828.Google Scholar
Callaghan, Sascha, Ryan, Christopher and Kerridge, Ian (2013) ‘Risk of Suicide Is Insufficient Warrant for Coercive Treatment for Mental Illness’, International Journal of Law and Psychiatry 36(5): 374385.Google Scholar
Canadian Association for Community Living and the Working Group on Legal Capacity and supported decision making (2014) A Statutory Framework for the Right to Legal Capacity and Supported Decision-Making for Application in Provincial/Territorial Jurisdictions in Canada. Toronto: Canadian Association for Community Living.Google Scholar
Cesaroni, Carla (2001) ‘Releasing Sex Offenders into the Community Through “Circles of Support”: A Means of Reintegrating the “Worst of the Worst”’, Journal of Offender Rehabilitation 34(2): 8598.Google Scholar
Committee on the Rights of Persons with Disabilities (2014) General Comment No. 1 – Article 12: Equal Recognition Before the Law. UN Doc. No. CRPD/C/GC/1, adopted at the 11th Session.Google Scholar
Cunneen, Chris and Libesman, Terry (2000) ‘Postcolonial Trauma: The Contemporary Removal of Indigenous Children and Young People from Their Families in Australia’, Australian Journal of Social Issues 35(2): 99115.Google Scholar
Dawson, John and Szmukler, George (2006) ‘Fusion of Mental Health and Incapacity Legislation’, British Journal of Psychiatry 188(6): 504509.CrossRefGoogle ScholarPubMed
De Jong, Gideon, Schout, Gert and Abma, Tineke (2014) ‘Prevention of Involuntary Admission through Family Group Conferencing: A Qualitative Case Study in Community Mental Health Nursing’, Journal of Advanced Nursing 70(11): 26512662.Google Scholar
Department of Health (2013) Power of Entry Consultation Responses. Available at: <https://www.gov.uk/government/consultations/consultation-on-a-new-adult-safeguarding-power> (accessed 21 July 2015).+(accessed+21+July+2015).>Google Scholar
Dhanda, Amita (2006–2007) ‘Legal Capacity in the Disability Rights Convention: Stranglehold of the Past or Lodestar of the Future?’, Syracuse Journal of International Law and Commerce 34: 429462.Google Scholar
Dunn, Michael C., Clare, Isabel C.H. and Holland, Anthony J. (2008) ‘To Empower or to Protect? Constructing the “Vulnerable Adult” in English Law and Public Policy’, Legal Studies 28(2): 234253.CrossRefGoogle ScholarPubMed
Dyzenhaus, David (1992) ‘John Stuart Mill and the Harm of Pornography’, Ethics 102(3): 534551.Google Scholar
European Agency for Fundamental Rights (2013) Legal Capacity of Persons with Intellectual Disabilities and Persons with Mental Health Problems. Vienna: European Agency for Fundamental Rights.Google Scholar
Flynn, Eilionóir and Arstein-Kerslake, Anna (2014) ‘Legislating Personhood: Realising the Right to Support in Exercising Legal Capacity’, International Journal of Law in Context 10(1): 81104.Google Scholar
Flynn, Eilionóir and Brosnan, Liz (2017) ‘Freedom to Negotiate: A Proposal Extricating Capacity from Consent’, International Journal of Law in Context 13(1): 5876.Google Scholar
Friedman, Marilyn (2008) ‘Pettit's Civic Republicanism and Male Domination’ in Cecile Labord and John Maynor (eds) Republicanism and Political Theory. Oxford: Blackwell Publishers, 246268.Google Scholar
Gleeson, John, Jackson, Henry J., Stavely, Heather and Burnett, Peter (1999) ‘Family Intervention in Early Psychosis’ in Patrick D. McGorry and Henry J. Jackson (eds) Recognition and Management of Early Psychosis: A Preventive Approach. Cambridge: Cambridge University Press, 376406.Google Scholar
Gold, Deborah (1994) ‘“We Don't Call It a ‘Circle’”: The Ethos of a Support Group’, Disability and Society 9(4): 435452.Google Scholar
Goldfarb, Sally F. (2007) ‘Reconceiving Civil Protection Orders for Domestic Violence: Can Law Help End the Abuse without Ending the Relationship’, Cardozo Law Review 29(4): 14871551.Google Scholar
Gooding, Piers and Flynn, Eilionóir (2015) ‘Querying the Call to Introduce Mental Capacity Testing to Mental Health Law: Does the Doctrine of Necessity Provide an Alternative?’, Laws 4(2): 245271.CrossRefGoogle Scholar
Gooding, Piers and O'Mahony, Charles (2016) ‘Laws on Unfitness to Stand Trial and the UN Convention on the Rights of Persons with Disabilities: Comparing Reform in England, Wales, Northern Ireland and Australia’, International Journal of Law, Crime and Justice 44: 122145.Google Scholar
Grimm, Dieter (2007) ‘Proportionality in Canadian and German Constitutional Jurisprudence’, University of Toronto Law Journal 57(2): 383397.Google Scholar
Halpern, Adina and Szmukler, George (1997) ‘Psychiatric Advance Directives: Reconciling Autonomy and Non-Consensual Treatment’, The Psychiatrist 21(6): 323327.Google Scholar
Harcourt, Bernard E. (1999) ‘The Collapse of the Harm Principle’, Journal of Criminal Law and Criminology 90(1): 109194.Google Scholar
Hart, Herbert Lionel Adolphus (2012) The Concept of Law. Oxford: Oxford University Press.Google Scholar
Hunter, Rosemary (2007) ‘Consent in Violent Relationships’ in Hunter, Rosemary and Cowan, Sharon (eds) Choice and Consent: Feminist Engagements with Law and Subjectivity. New York: Routledge.Google Scholar
Law Commission (2011) Adult Social Care. London: Stationery Office. Available at: <http://lawcommission.justice.gov.uk/docs/lc326_adult_social_care.pdf> (accessed 21 July 2015).+(accessed+21+July+2015).>Google Scholar
Love, Catherine (2007) ‘Family Group Conferencing: Cultural Origins, Sharing, and Appropriation: A Maori Reflection’ in Burford, Gale and Hudson, Joe (eds) Family Group Conferences: New Directions in Community-Centered Child and Family Practice. New Brunswick and London: Transaction Publishers, 1530.Google Scholar
Mcharg, Aileen (1999) ‘Reconciling Human Rights and the Public Interest: Conceptual Problems and Doctrinal Uncertainty in the Jurisprudence of the European Court of Human Rights’, Modern Law Review 62(5): 671696.CrossRefGoogle Scholar
Mcsherry, Bernadette (2012) ‘Legal Capacity under the Convention on the Rights of Persons with Disabilities’, Journal of Law and Medicine 20: 2227.Google Scholar
Mill, John Stuart (1869) On Liberty. London: Longmans, Green, Reader and Dyer.Google Scholar
Mills, Linda G. (1999) ‘Killing Her Softly: Intimate Abuse and the Violence of State Intervention’, Harvard Law Review 113(2): 550613.Google Scholar
Minkowitz, Tina (2006–2007) ‘The United Nations Convention on the Rights of Persons with Disabilities and the Right to Be Free from Nonconsensual Psychiatric Interventions’, Syracuse Journal of International Law and Commerce 34: 405428.Google Scholar
Minkowitz, Tina (2014) ‘Rethinking Criminal Responsibility from a Critical Disability Perspective: The Abolition of Insanity/Incapacity Acquittals and Unfitness to Plead, and Beyond’, Griffith Law Review: Special Issue – Disability at the Peripheries 23(4): 434466.Google Scholar
Mulgan, Richard G. (1987) Aristotle's Political Theory. Oxford and New York: Clarendon Press.Google Scholar
Neu, Jerome (1971) ‘Plato's Analogy of State and Individual: The Republic and the Organic Theory of the State’, Philosophy 46(177): 238254.Google Scholar
Okin, Susan Moller (2002) ‘“Mistresses of Their Own Destiny”: Group Rights, Gender, and Realistic Rights of Exit’, Ethics 112(2): 205230.CrossRefGoogle Scholar
Owen, Gareth S., David, Anthony S., Hayward, Peter, Richardson, Genevra, Szmukler, George and Hotopf, Matthew (2009) ‘Retrospective Views of Psychiatric In-Patients Regaining Mental Capacity’, British Journal of Psychiatry 195(5): 403407.Google Scholar
Perlin, Michael L. (2013) ‘“Striking for the Guardians and Protectors of the Mind”: The Convention on the Rights of Persons with Mental Disabilities and the Future of Guardianship Law’, Penn State Law Review 117(4): 11591190.Google Scholar
Pettit, Philip (1997) Republicanism: A Theory of Freedom and Government. New York: Oxford University Press.Google Scholar
Pettit, Philip (2012) On the People's Terms: A Republican Theory and Model of Democracy. Cambridge: Cambridge University Press.Google Scholar
Rawls, John (2009) A Theory of Justice. Cambridge, MA: Harvard University Press.Google Scholar
Raz, Joseph (1999) Practical Reason and Norms. Oxford: Oxford University Press.CrossRefGoogle Scholar
Reitman, Oonagh (2005) ‘On Exit’ in Eisenberg, Avigail and Spinner-Halev, Jeff (eds) Minorities within Minorities: Equality, Rights and Diversity. Cambridge: Cambridge University Press, 189208.CrossRefGoogle Scholar
Rousseau, Jean Jacques (2003) On the Social Contract, trans G.D.H Cole. New York: Dover Publications.Google Scholar
Santegoeds, Jolijn (2013) ‘The Eindhoven Model and Family Group Conferencing: An Alternative to Forced Psychiatry’, presented to side event ‘Transforming Communities for Inclusion of Persons with Disabilities’ Conference of State Parties UN CRPD, New York, 17 July 2013. Available at: http://libguides.scu.edu.au/c.php?g=356711&p=2408708 (accessed 5 December 2016).Google Scholar
Schwehr, Belinda (2014) ‘What the Care Act Will Mean for Safeguarding: A Legal View’, Community Care. Available at: <http://www.communitycare.co.uk/2014/03/03/care-act-2014-will-mean-safeguarding-legal-view/> (accessed 20 July 2015).+(accessed+20+July+2015).>Google Scholar
Sehgal, Ashwini, Galbraith, Alison, Chesney, Margaret, Schoenfeld, Patricia, Charles, Gerald and Lo, Bernard (1992) ‘How Strictly Do Dialysis Patients Want Their Advance Directives Followed?’, Jama 267(1): 5963.Google Scholar
Seikkula, Birgitta Alakare and Aaltonen, Jaakko Jukka (2001) ‘Open Dialogue in Psychosis II: A Comparison of Good and Poor Outcome Cases’, Journal of Constructivist Psychology 14(4): 267284.Google Scholar
Seikkula, Jaakko and Olson, Mary E. (2003) ‘The Open Dialogue Approach to Acute Psychosis: Its Poetics and Micropolitics’, Family Process 42(3): 403418.CrossRefGoogle ScholarPubMed
Spandler, Helen, Anderson, Jill and Sapey, Bob (eds) (2015) Madness, Distress and the Politics of Disablement. Bristol: Policy Press. Google Scholar
Spinner-Halev, Jeff (2001) ‘Feminism, Multiculturalism, Oppression, and the State’, Ethics 112(1): 84113.Google Scholar
Thomas, Norma D. (1998) ‘Hoarding: Eccentricity or Pathology: When to Intervene?’, Journal of Gerontological Social Work 29(1): 4555.Google Scholar
Uditsky, Bruce (1993) ‘Natural Pathways to Friendships’ in Amado, A. Novak (ed.) Friendships and Community Connections for People With and Without Developmental Disabilities. Baltimore: Paul H Brooks, 8596.Google Scholar
Williams, John (2002) ‘Public Law Protection of Vulnerable Adults: The Debate Continues, So Does the Abuse’, Journal of Social Work 2(3): 293316.Google Scholar