People living with dementia are often presumed to have no agency or capacity to act in the social world. They are often excluded from participating in research while research methodologies may not capture their embodied engagement with people and places. Yet, like everyone, people with dementia can express their agency in nuanced ways, for example, through emotions or embodied expression. In the conceptual framework discussed here, nuanced agency is conceived as consisting of non-deliberative elements (embodied, emotional, habituated, reflexive and intersubjective) and deliberative elements (choices or decisions and facilitative). Although people with dementia have been found to benefit from gardens with their sensory appeal, how they experience gardens is not well understood. This critical interpretive synthesis aims to explore how people with dementia experience nuanced forms of agency and citizenship in gardens. A conceptual framework of agency was developed to address the aim and support the analysis. Analysis of the 15 included studies highlighted the value of the conceptual framework in identifying a wider and more granular array of nuanced agency expressed in embodied form and through dialogue. This included expressions of intersubjective and facilitative agency that informed opportunities for people with dementia to experience relational citizenship socially in communal garden settings. These findings suggest an opportunity for researchers to explore the embodied agency of people living with dementia more comprehensively by applying theoretical concepts of agency. Further testing of the framework’s utility for guiding collection and analysis of primary data involving people with dementia in garden settings is recommended.

Although many positive social changes have been achieved over the past 30 years, members of LGBT, Sistergirl and Brotherboy communities continue to encounter negative experiences with health and ageing service provision. In this article, 232 responses from a survey exploring ageing and care concerns and preferences among LGBT, Sistergirl and Brotherboy communities in Australia were analysed using chi square analysis. The largest proportion of participants were aged 55–64 years (26.4%, n = 61), with the majority residing in metropolitan regions (67.7%, n = 154). The three most frequently selected gender identities were cisgender woman (40.1%, n = 93), cisgender man (39.7%, n = 92) and non-binary (11.6%, n = 28). The three most frequently selected sexual orientations were gay (39.2%, n = 91), lesbian (32.0%, n = 77) and queer (17.7%, n = 41). While many concerns demonstrated no age-related differences, concerns regarding physical differences, respect and inclusion, finances and standard of care reflected higher levels of concern among younger participants compared with older participants. Preferences for receiving information reflected a desire for LGBT, Sistergirl and Brotherboy communities-specific resources for options for support from participants approaching retirement, that is, aged 55–64 (x2 (5, n = 178) = 11.08, p = 0.050); less desire for information provided through public health service services among participants aged 65+ (x2 (5, n = 178) = 15.58, p = 0.008); and variation in preferences regarding supports provided by LGBT, Sistergirl and Brotherboy communities. Results suggest that different generations of LGBT, Sistergirl and Brotherboy members may prefer to receive services and information in different ways. Further research is needed to understand how concerns, expectations and preferences are influenced across generations.

Extant literature shows that small conversations with strangers can help improve individuals’ wellbeing while reducing feelings of loneliness. Nevertheless, previous studies on talking to strangers tend to focus on young participants in controlled experimental settings, leaving a gap in understanding older adults’ experiences and their likelihood of adopting talking to strangers as part of their daily healthy ageing practices. Considering the problem of worsened social isolation and loneliness among older people during the Covid-19 pandemic, it is even more important to include them in the promotion of social inclusion through micro-conversations with strangers. To understand older adults’ attitudes and experiences of talking to strangers, this study interviewed 19 older people based on their trial of talking to strangers over a three-month period. Findings reveal that their willingness and confidence varied by age and gender, with retired individuals being more active in engaging with strangers. Time constraints and lack of self-efficacy were identified as barriers, particularly among those still working or with caregiving responsibilities. Rather than personal gains, the act of kindness towards others was emphasised as the key motive. These insights are valuable for policy makers and organisations supporting older people’s wellbeing, highlighting the potential for older individuals to serve as conversation initiators, promoting mutual kindness and wellbeing in communities.

There is a need for new imaginaries of care and social health for people living with dementia at home. Day programmes are one solution for care in the community that requires further theorisation to ensure an empirical base that is useful for guiding policy. In this article we contribute to the theorising of day programmes by using an ethnographic case study of one woman living with dementia at home using a day programme. Data were collected through observations, interviews and artefact analysis. Peg, whose case story is central in this article, was observed over a period of nine months for a total of 61 hours at the day programme, as well as 16 hours of observation at her home and during two community outings. We use a material semiotic approach to thinking about the day programme as a health ‘technology in practice’ to challenge the taken-for-granted ideas of day programmes as neutral, stable, bounded spaces. The case story of Peg is illustrative of how a day programme and its scripts come into relation with an arrangement of family care and life at home with dementia. At times the configuration of this arrangement works to provide a sort of stabilising distribution of care and space to allow Peg and her family to go on in the day-to-day life with dementia. At other times the arrangement creates limits to the care made possible. We argue that how we conceptualise and study day programmes and their relations to home and the broader care infrastructure matters to the possibilities of care they can enact.

Transportation plays a vital role in meeting the daily activity needs of individuals, including older adults. One major gap in the existing ageing and mobility literature is that most studies are situated in the Global North despite Global South cities facing comparatively faster ageing. This article’s primary purpose is to examine the daily lived experiences of transportation use among older adults in Mexico City. Secondarily it explores contextual differences among individuals living in two neighbourhood types – those with high or low access to public transportation networks. We conducted semi-structured interviews with 22 older adults and isolated four central themes that encapsulate their experiences of transportation in Mexico City. The extensive and well-run structured-transit system in central Mexico City was the source of many positive experiences for older adults, especially regarding affordability, high network connectivity and overall sense of safety and comfort. This was true for most participants across neighbourhood types and socio-economic statuses. Conversely, in peripheral neighbourhoods dominated by less-structured transportation modes, negative experiences included complaints about vehicle drivers, crime and safety, comfort and convenience. This article’s contributions are showing (1) consistency with existing Global South literature whereby older adults tend to use public transportation more widely and hold similar complaints related to poor experiences as older adult passengers; (2) that Mexico City exemplifies older adult transportation experiences that are dramatically different from car-dependent societies in the Global North; and (3) how older adults’ experiences with public transportation can vary significantly based on residential location within the city.

For older adults requiring permanent care in nursing homes (or residential aged care facilities), there can be a tendency to feel disconnected from their sense of self. Digital storytelling has the potential to improve relationships and social connectedness, and encourage a sense of self and identity; however, there is little research on the implementation of this practice. A qualitative process evaluation was conducted with a sample of 12 volunteers who delivered a Digital Stories programme. The programme connected volunteers with socially isolated residents of nursing homes with the aim of engaging the residents to reminisce and contribute toward creating a digital story about their lives. The study aimed to understand enablers of and barriers to implementing the programme in nursing homes, from the perspective of volunteers. Thematic analysis resulted in several overarching themes and sub-themes. The enablers of implementation included skills and characteristics of the volunteers (e.g. adaptable to residents’ needs), specific features of the programme (e.g. having a shared goal) and support from the nursing home staff. The barriers to implementation included individual traits of the resident (e.g. low capacity for engagement), limitations associated with the prescribed protocol, and managing perspectives regarding what stories are told. Volunteers also made suggestions for future programme development. Implications for successful future digital storytelling projects include ensuring a manualised approach to the program while allowing for flexibility in delivery, careful recruitment of residents and volunteers, and providing comprehensive training and education to volunteers.

Civic engagement is increasingly relevant for healthy and active ageing and addressing social exclusion among older people. Current research focuses primarily on formal volunteering, overlooking other ways older people contribute to their families and communities. This study addresses these gaps by recognising civic engagement as multi-dimensional – including associational engagement, informal care-giving, formal volunteering, digital engagement and formal/informal political engagement – and exploring activity combinations among older individuals. Using data from the 2016 European Quality of Life Survey (33 European countries), it examines the civic engagement of 9,031 individuals aged 65+. Descriptive analysis maps their multi-dimensional civic engagement, while latent class analysis identifies distinct engagement profiles and explores which activities are combined. It also investigates the socio-structural and social capital resources associated with each profile. Findings reveal that 32 per cent of older individuals are not engaged in civic activities. Among the civically engaged, five profiles emerge, illustrating varied engagement across multiple activities. Many older people (35.8 per cent) combine several civic activities, albeit in different combinations. Informal care-giving can be found in all profiles; and for a large part of the population, it is their only civic activity, while another profile displays older Europeans engaged in several activities simultaneously. Higher levels of socio-structural resources are associated with greater diversity in civic engagement in later life. Interventions and policies therefore must consider the diverse circumstances and preferences of older people and valorise and include all forms of multi-dimensional civic engagement, including informal care-giving, in policy making.

The agency of a person with young onset dementia (YOD) changes owing to individual symptoms, uncertainty about the speed of progression and the severity of YOD. Dementia usually greatly interrupts life and reduces agency. Previous studies show that some people and families integrate and cope with dementia better than others. This study aimed to find out how YOD changes the agency of the person who has it and what family members’ role is in forming their agency. The data were collected in Finland in semi-structured interviews with 14 people with YOD and 15 family members, about a year after the diagnosis. These two data sets were analysed with a narrative method, actantial analysis. A wide variety of elements, both human and non-human factors, were found to promote and undermine agency. It was found that people with YOD need both integrity and flexibility to reconstruct their own agency. Resources support them in this process of reconstruction, and hinderers interrupt the process. This combination of integrity and flexibility, resources and hinderers, generates how people with YOD recount the future, the aims they set and how they reconstruct their agency. Other people, especially family members, are part of this dynamic process and when their relationship is cohesive, the agency of both parties increases. The participants used ideal and burdensome storylines to narrate factors that supported or interrupted their agency. Based on our findings, narrating one’s situation is, for coping, not only a means but its very basis.

Grandparents are increasingly participating in international migration to resettle with or visit adult children and grandchildren living overseas. In doing so, they make important social, cultural, emotional and financial contributions to transnational families, in particular through providing unpaid childcare and domestic work. This scoping review aims to examine the extent, range and nature of studies on transnational grandparent migration and care-giving to provide an overview of existing research. The review was conducted in August 2022, following Arksey and O’Malley’s scoping review methodology. Of 2,099 sources identified using nine databases, supplemented with manual searching (including grey literature), 65 (qualitative, quantitative and mixed-methods) studies conducted between 2000 and 2022 were deemed relevant for inclusion. A descriptive analysis of study characteristics details the author(s), the (year) and the type of publication; the study population and sample size; the research objectives; the research methods; and the sending and receiving places. A thematic analysis of these studies identified key themes, including study characteristics, typologies of transnational migrant grandparents, their family roles and contributions, the uses of information and communication technologies in supporting migrant grandparents’ transnational lives, benefits gained from migration, challenges faced and strategies employed in response. The article concludes that grandparents make significant contributions to transnational families and host economies, but their roles and challenges are overlooked in national and transnational (supra-national) policies. Future research should explore the ethics of migration programmes aimed towards migrant grandparents as well as effective measures to assist grandparents to age well in transnational mobility.

Research on social robots in dementia care has focused on their effects, for example in relation to the patients’ wellbeing or the care-givers’ working environment. Such approaches to social robots treat them as stable objects with a singular function. Combining social gerontology with social studies of science, the current study offers a new angle by asking: How do patients and care-givers in care homes for older people establish a shared definition of the situation in interactions involving robot animals? Drawing on ethnography and multimodal conversation analysis of 211 minutes of video recordings in two care homes in Sweden, we demonstrate the embodied work by which participants in interactions establish activities with robot animals. In contrast to the ideal of transparency in social robotics, we show that a central affordance of the robots is their vagueness, which allows for their inclusion in playful interactions. Playful framings of the robots highlight their social functions and downplay care-giver–patient asymmetries. However, situations where patients resist a playful frame actualise a dilemma of social inclusion, on the one hand, and the right to not participate in play, on the other. Showing this, the article contributes to knowledge on how people age with technology; in particular, it draws attention to the limits of an ideal of transparency when social robots are included in dementia care.

Understanding how to improve the physical and cognitive accessibility of visitor economy businesses and organisations wanting to offer nature-based outdoor pursuits for people with dementia is key to supporting their inclusion and agency. The aim of this qualitative study was to understand the experiences, needs and preferences of people with dementia participating in nature-based outdoor pursuits in their leisure time. Semi-structured interviews were conducted with 15 people with dementia and 15 family members and subjected to thematic analysis. Four themes related to inclusion for people with dementia and their family members reflected diversity in individual needs and preferences for engaging with nature-based outdoor pursuits, their own adaptations to maintain access including accommodating risk, how cognitive and physical accessibility can be supported by businesses, and which practical and psychosocial barriers prevent inclusion. Learning from people with dementia and their family members has helped bridge the gap to their inclusion in nature-based outdoor pursuits. Their insights will inform the development of such pursuits by businesses and organisations as well as future work into risk decision-making.

The literature has shown that, in developing countries, large cash transfers to older people improve the wellbeing of the recipients and their families. While social pensions have recently emerged in East Asia to deliver small cash benefits to older people, there is little consistent evidence of their effects. We examine the effects of the Basic Pension Scheme, a social pension in South Korea, on income and consumption poverty among older adults. We apply a difference-in-differences event study design and other complementary approaches to data covering the full period of program development from 2006 to 2021. The results show that the social pension decreases income poverty but not consumption poverty. While this study analysed the best data currently available, using better-quality data in future research would enable more robust analysis. Further research is also warranted to find how to improve the effectiveness of a non-contributory pension programme as a tool for reducing income and consumption poverty among older adults.

Issues of ‘disability’ and ‘ageing’ are usually approached separately in theorising, activism and policy making. Yet people with disabilities age and many people will experience disability if they live long enough. Human rights approaches to disability enshrined in the UN Convention on the Rights of Persons with Disabilities (CRPD) are not often applied to older people experiencing disability. This article presents findings of a systematic qualitative analysis of reports made by 28 European states to the UN Committee on the Rights of Persons with Disabilities, the independent body that monitors CRPD implementation, focusing particularly on Article 19 CRPD (‘Living independently and being included in the community’). While states’ reports refer to older people or ageing in different contexts, their approach can be characterised as ambivalent. Reports tend to constitute older people experiencing disability as ‘older’ rather than ‘disabled’; they do not demonstrate a thorough engagement with disability experienced in older age, and display a limited focus on people ageing with lifelong disability. Several reports detail exclusions of ‘older people’ from disability supports to live in the community and some exclude impairments associated with ageing from definitions of what ‘disability’ is. The reports provide almost no evidence of consultation with organisations working on ageing. The article concludes that while the CRPD’s potential to contribute to realising rights for older people with disabilities is under-recognised among scholars and non-governmental organisations, the fact that states refer to older people in their reporting under the CRPD provides a starting point for more engagement.

As the population of Aotearoa New Zealand ages, informal family carers will play an increasingly important role in caring for older adults at home. Multi-generational living arrangements are a growing trend, particularly among Māori communities, where caring for older relatives within the family home is widespread. This article uses in-depth, semi-structured interviews with Māori whānau (extended family members) caring for kaumātua (older family members) at home to explore how carers experienced care coordination in the broader care collective. The findings centred on three interconnected factors that described the collective organisation of care: (1) whānau care as normal; (2) whānau care as collective coordination; and (3) whānau carer knowledge and needs as unseen. The findings show that although whānau care of kaumātua is highly valued, ‘structural holes’ within care systems contribute to challenges in care coordination. Despite extensive whānau support for kaumātua, primary carers often felt that their knowledge, preferences and self-care needs remained unseen and not translatable to those outside the everyday care situation. Rather than assuming an artificial binary difference between ‘collective’ and ‘individually oriented’ care contexts and cultures, analysing the cultural norms surrounding whānau care-giving confirms that collective care system members face similar and different challenges to carers with smaller caring capacities.

The ability and knowledge to manage financial tasks may be compromised in old age, especially when the need to navigate the care and social benefit systems increases. Managing financial tasks may consist of a variety of actions of both the older people themselves and their representatives, often family members. This study explored how financial tasks related to the care and everyday life of older people who need long-term care are managed by using the ideas of modalities of agency and distributed agency. We analysed interviews of 19 older persons and their family members with a qualitative case analysis. All the older persons who participated in the study distributed the agency in financial tasks among their family members, but to different levels and for different reasons. We identified three types of distributed agency – inevitable, assimilated and minimal distributed agency – in which the older persons’ knowledge about financial tasks and their ability to manage financial tasks differed. Within these types, the cases differed in terms of the know-how of the family members and the reasons why the older people’s knowledge about financial tasks or their ability to manage their financial tasks were diminished. We conclude that older persons with long-term care needs require help in regard to financial tasks, and the older people’s and their family members’ ability to manage financial tasks could be enhanced by making the benefit systems and online banking more user-friendly and by improving the help from care staff.

Frailty is a common but complex phenomenon that is approached from theoretical and professional perspectives but rarely from the perspectives of older people and their essential stakeholders. Different or opposing perspectives on frailty at personal, organisational, and community levels can negatively affect care for frail older people. This systematic integrative review synthesises the perspectives on frailty of older people, health/social care professionals, informal caregivers, managers and policymakers, using thematic analysis. We use the Joanna Briggs Institute–Critical Appraisal Checklist to appraise the quality of 52 qualitative and mixed-method studies drawn from the PubMed/MEDLINE, CINAHL, PsycINFO, Embase, and Web of Science databases (inception–December 2023). Of these, 33 include the perspectives of older people, 27 of health/social care professionals, four of managers, and six of informal caregivers. Structuring the perspectives along six themes – ‘the multi-dimensional nature of frailty’, ‘the dynamics of frailty’, ‘the complexity of frailty’, ‘frailty in relation to age’, ‘frailty in relation to health’ and ‘frailty in relation to dependence’ – revealed substantive similarities in the conceptualisation of frailty between older people and professionals, e.g. regarding frailty’s dynamic and multi-dimensional nature. However, older people and professionals differ in their interpretations of frailty: older people take a personal view, while professionals take a more practical view. The identified discrepancies in perspectives may affect care relationships and care for frail older people. Therefore, we advocate a systems approach that incorporates multiple perspectives to form a comprehensive view of frailty and allows for a situation-specific shared understanding of frailty in older people.

Growing numbers of people help and support family members, friends or others due to long-term health problems, disability or older age–related needs. While care-giving can bring fulfilment and meaning to peoples’ lives, it can negatively affect individuals’ financial wellbeing. Much of the evidence in this area is quantitative, while the subjective, in-depth experience of how unpaid care decisions affect financial wellbeing remains relatively underexplored. This scoping review explores what is known about how unpaid carers experience and understand the financial consequences of providing care. It identified 35 studies containing qualitative evidence and, through thematic analysis, identified four overarching themes: (1) direct and indirect costs of caring; (2) social, cultural and institutional care and work decision-making; (3) the unequal cost of caring; and (4) personal finance and carer wellbeing. Findings indicate that unpaid caring affects financial wellbeing in multiple, overlapping ways. The financial consequences are experienced unequally, with systems, circumstances and contexts serving to exacerbate or reduce these negative effects. Crucially, our analysis reveals the paucity of qualitative research specifically focused on unpaid carers’ financial wellbeing. There is a significant gap in the literature regarding whether, and how, individuals understand the future financial implications of unpaid care-giving, or whether longer-term financial consequences are considered when making decisions about care. Future research designed to address this gap, with greater emphasis on the personal, social and structural influences on care-related financial decision-making, could offer important insights for developing policies and practices aimed at improving the financial wellbeing of carers as they age.

Gender and age are central organising principles of social relations, with socially constructed gendered and age-based norms influencing patterns of social behaviour, power and inequality. Despite recent literature highlighting the importance of subjective measures of equality, including as a significant predictor of wellbeing, there is a gap in studies focused on subjective equality in research on ageing. Drawing on an equality ranking exercise and life herstory interviews with 20 older-aged women (65+) in Aotearoa New Zealand, this article focuses on the intersectionality of age and gender, analysing the ways in which participants constructed their experiences of equality over the lifecourse from their standpoint as older-aged women. The analysis reveals a significant rise in subjective equality from childhood to older age, with more varied responses in childhood and a convergence of responses from adolescence onwards. Participants’ constructions of equality differed: age was the dominant construct of equality women ascribed to their childhood years, while gender inequality came to the fore during their teenage years. In early to mid-adulthood, women found ways to navigate gendered inequality in various life domains, while in older adulthood equality was constructed as freedom and life satisfaction. This trajectory suggests that the frames individuals use to make sense of equality and their personal experiences are not fixed; they are fluid and shift throughout the lifecourse.

This study contributes to an emerging body of research that combines new mobilities and gerontological perspectives. Most previous studies on older adults’ mobilities have analysed data collected at a single point in time and there is a need for studies that explore the meanings of movement and non-movement over time, especially in relation to unexpected life events. This work explores the meanings of older adults’ abruptly changing everyday (im)mobilities before and during the Covid-19 pandemic. It draws from qualitative interviews conducted with 11 older adults in a Finnish suburb in autumn 2019 and spring 2020, and focuses on grocery shopping, which most of the participants did themselves before the pandemic, but not during it. The findings provide insight into how meanings of everyday (im)mobilities are formed as older individuals (re)negotiate their relationships with their changing places of ageing. The participants’ views of their disrupted everyday mobilities were shaped by active person–place engagements. On one hand, the findings highlight that individuals are not at the mercy of their circumstances; they possess agency that can enable maintaining a sense of self and independence even in restricted mobility situations. On the other hand, the findings reveal relationalities that explain why sudden mobility loss often leads to diminished wellbeing. The relational nature of the meanings of (im)mobility implies that there is no one-size-fits-all approach to supporting older adults who face mobility difficulties while ageing in their homes. It is crucial to recognise the diversity of older adults and to support their individual lifestyles.