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14 - When the Patient Is a Child

Published online by Cambridge University Press:  05 June 2012

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Summary

As we train to become pediatricians, one of the first things we learn is that children are not small adults. Those who care for young patients should heed this lesson each day. If you are a parent, this concept may seem obvious, but it nonetheless is helpful to remember how important it is, because when your child is ill, you are your child's best advocate. The illness that brings your child to the hospital may be unique to children, or it may be something that can afflict people of any age. One difference is that most adults are capable of understanding their illness, making decisions about their own care, and understanding what is happening to them. Newborn babies and young children are entirely dependent on others for their care and well-being. As they grow older, they begin to acquire a sense of the world around them; they develop an ego or self-awareness and can gradually understand more complex ideas (e.g., what causes illness and how the illness affects them personally).

Decision Making for Children

A patient's competence is one of the most important factors in making informed decisions. It represents his or her ability to understand the situation and possible outcomes and to consider the consequences of each choice he or she makes. In addition, a patient must be able to take this information, put it in the context of his or her values and goals, and then make a voluntary decision.

Type
Chapter
Information
Surviving Health Care
A Manual for Patients and Their Families
, pp. 191 - 205
Publisher: Cambridge University Press
Print publication year: 2010

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References

Gaylin, W, Macklin, R (eds.): Who Speaks for the Child? The Problems of Proxy Consent (New York: Plenum, 1982).Google Scholar
Committee on Bioethics: Informed consent, parental permission, and assent in pediatric practice. Pediatrics 1995, 95:314–317.
Markovitz Barry, P: AAP News 2005, 26:11.
Office of Human Research Protection, Department of Health and Human Services: Protecting Human Research Subjects: Institutional Review Board Guidebook, 1993.
Live Organ Donor Consensus Group: Consensus statement on the live organ donor. JAMA 2000, 284:2919–2926.CrossRef
Friedman, Ross L, Thistlethwaite, JR: the Committee on Bioethics: Minors as living solid-organ donors. Pediatrics 2008, 122:454–461.Google Scholar

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