Book contents
- Pediatric Psychology in Clinical Practice
- Pediatric Psychology in Clinical Practice
- Copyright page
- Dedication
- Contents
- Chapter 1 Introduction to Pediatric Psychological Care
- Chapter 2 Working with Young Children with Medical Concerns
- Chapter 3 Working with School-Age Children with Medical Concerns
- Chapter 4 Working with Adolescents with Medical Concerns
- Chapter 5 Chronic Illness and the Family Unit
- Chapter 6 Psychological Guidelines for Specific Medical Conditions
- Chapter 7 Special Populations in Pediatric Psychology
- Chapter 8 Technological Applications and Pediatric Psychological Care
- Index
- References
Chapter 5 - Chronic Illness and the Family Unit
Published online by Cambridge University Press: 18 January 2020
Book contents
- Pediatric Psychology in Clinical Practice
- Pediatric Psychology in Clinical Practice
- Copyright page
- Dedication
- Contents
- Chapter 1 Introduction to Pediatric Psychological Care
- Chapter 2 Working with Young Children with Medical Concerns
- Chapter 3 Working with School-Age Children with Medical Concerns
- Chapter 4 Working with Adolescents with Medical Concerns
- Chapter 5 Chronic Illness and the Family Unit
- Chapter 6 Psychological Guidelines for Specific Medical Conditions
- Chapter 7 Special Populations in Pediatric Psychology
- Chapter 8 Technological Applications and Pediatric Psychological Care
- Index
- References
Summary
This chapter focuses on increasing awareness about navigating the health care system as a family unit and the impact of health literacy on medical outcomes, as well as techniques to help assess and improve health literacy for families. The reader will then be introduced to a review of the current research literature on risk factors and psychological outcomes associated with having a young member of the family experiencing medical problems. Particular emphasis is given to helping siblings of chronically ill children adjust to the change in family dynamics, as well as strategies for assessing and managing parental stress associated with a child’s chronic illness. Clinicians are also presented with applicable resources that will assist them in ensuring the overall psychological health of the patient’s family members.
- Type
- Chapter
- Information
- Pediatric Psychology in Clinical PracticeEmpirically Supported Interventions, pp. 83 - 100Publisher: Cambridge University PressPrint publication year: 2020
References
Aamotsmo, T. & Bugge, K. (2013). The healthy parent’s role in the family when the other parent is in the palliative phase of cancer: challenges and coping in parenting young children. Palliative and Supportive Care, 12(4), 1–13.Google ScholarPubMed
Barakat, L., Patterson, C., Weinberger, B., Simon, K., Gonzalez, E., & Dampier, C. (2007). A prospective study of the role of coping and family functioning in health outcomes for adolescents with sickle cell disease. Journal of Pediatric Hematology Oncology, 29, 752–760.Google Scholar
Bergman, A., Axberg, V., & Hanson, E. (2017). When a parent dies – a systematic review of the effects of support programs for parentally bereaved children and their caregivers. BMC Palliative Care, 16(39), 1–15.Google Scholar
Boston University. (2018). Health Literacy Tool Shed. Retrieved November 16, 2018, from https://healthliteracy.bu.edu/.Google Scholar
Clemans-Cope, L. & Kenney, G. (2007). Low income parents’ reports of communication problems with health care providers: effects of language and insurance. Public Health Reports, 122(2), 206–216.Google Scholar
Cousino, M. & Hazan, R. (2013). Parenting stress among caregivers of children with chronic illness: a systematic review. Journal of Pediatric Psychology, 38(8), 809–828.CrossRefGoogle ScholarPubMed
Dolgin, M., Somer, E., Zaidel, N., & Zaizov, R. (1997). A structured group intervention for siblings of children with cancer. Journal of Child and Adolescent Group Therapy, 1, 3–18.Google Scholar
Fleary, S. & Heffer, R. (2013). Impact of growing up with a chronically ill sibling on well siblings’ late adolescent functioning. ISRN Family Medicine, 2013, Article ID 737356.Google Scholar
Gan, L., Lum, A., Wakefield, C., Nandakumar, B., & Fardell, J. (2017). School experiences of siblings of children with chronic illness: a systematic literature review. Journal of Pediatric Nursing, 33, 23–32.Google Scholar
Houck, C., Rodrigue, J., & Lobato, D. (2007). Parent–adolescent communication and psychological symptoms among adolescents with chronically ill parents. Journal of Pediatric Psychology, 32(1), 596–604.Google Scholar
Incledon, E., Williams, L., Hazell, T., Heard, T. Flowers, A., & Hisock, H. (2015). A review of factors associated with mental health in siblings of children with chronic illness. Journal of Child Health Care, 19(2), 182–194.Google Scholar
Kramer, R. (1984). Living with childhood cancer: impact on the healthy siblings. Oncology Nursing Forum, 11, 44–51.Google Scholar
Kratz, L., Uding, N., Trahms, C., Villareale, N., & Kieckhefer, G. (2009). Managing childhood chronic illness: parent perspectives and implications for parent–provider relationships. Families, Systems & Health 27(4), 303–313.Google Scholar
Labay, L. & Walco, G. (2004). Brief report: empathy and psychological adjustment in siblings of children with cancer. Journal of Pediatric Psychology, 29(4), 309–314.Google Scholar
Meltzer, L. & Mindell, J. (2006). Impact of a child’s chronic illness on maternal sleep and daytime functioning. JAMA Internal Medicine, 166(16), 1749–1755.Google Scholar
Minuchin, S., Montalvo, B., Guerney, B., Rosman, B., & Schumer, F. (1967). Families of the Slums. New York: Basic Books.Google Scholar
Mullins, L., Fuemmeler, B., Hoff, A., Chaney, J., Van Pelt, J., & Ewing, C. (2004). The relationship of parental overprotection and perceived child vulnerability to depressive symptomotology in children with type 1 diabetes mellitus: the moderating influence of parenting stress. Children’s Health Care, 33, 21–34.Google Scholar
NeedyMeds.org. (2018). Retreats, Camps and Recreational Programs for Chronic/Serious/Life Threatening Illnesses – Children. Retrieved November 12, 2018, from www.needymeds.org/camps.taf?_function=list_disease&disease_id=345&disease=Chronic/Serious/Life%20Threatening%20Illnesses-Children.Google Scholar
Phillips, F. (2014). Adolescents living with a parent with advanced cancer: a review of the literature. Psycho-Oncology, 23, 1323–1339.CrossRefGoogle Scholar
Russell, K., Adams, P., Moore, C., Convery, M., Shea, S., & Rauch, P. (2014). Marjorie E. Korf Parenting at a Challenging Time Program. Toolkit to Help Educators Support Children of Parents with Serious Illness. Retrieved November 17, 2018, from www.mghpact.org/assets/media/documents/MGH-Cancer-Educator-Toolkit.pdf.Google Scholar
SeriousFun Children’s Network. (n.d.). Our Camps & Programs. Retrieved November 12, 2018, from www.seriousfunnetwork.org/camps-and-programs.Google Scholar
Sharpe, D. & Rossiter, L. (2002). Siblings of children with a chronic illness: a meta-analysis. Journal of Pediatric Psychology, 27(8), 699–710.Google Scholar
Sheehan, S., Drauker, C., Christ, G., Mayo, M., & Parish, S. (2014). Telling adolescents a parent is dying. Journal of Palliative Medicine, 17(5), 512–520.Google Scholar
Sibling Support Project. (n.d.) Sibling Support Project. Retrieved November 13, 2018, from www.siblingsupport.org/.Google Scholar
Streisand, R., Braniecki, S., Tercyak, K., & Kazak, A. (2001). Childhood illness-related parenting stress: the Pediatric Inventory for Parents. Journal of Pediatric Psychology, 26(3), 155–162.Google Scholar
Sudore, R. & Schillinger, D. (2009). Interventions to improve care for patients with limited health literacy. Journal of Clinical Outcomes Management, 16(1), 20–29.Google ScholarPubMed
Yin, H., Johnson, M., Mendelson, A., Abrams, M., & Dreyer, B. (2009). The health literacy of parents in the United States: a nationally representative study. Pediatrics, 124(3), S289–S298.Google Scholar
Serious Fun Children’s Network, www.seriousfunnetwork.org/camps-and-programsGoogle Scholar
Sibling Support Project, Resources for Siblings of Patients with Various Health Concerns, www.siblingsupport.org/Google Scholar
Marjorie E. Korff PACT Program: Parenting at a Challenging Time, www.mghpact.org/assets/media/documents/MGH-Cancer-Educator-Toolkit.pdfGoogle Scholar
Vadasy, P. & Meyer, D. (1996). Living with a Brother or Sister with Special Needs: A Book for Sibs. Seattle: Washington University Press.Google Scholar
Cline, F. & Greene, L. (2007). Parenting Children with Health Issues. Golden, CO: Love and Logic Institute.Google Scholar
Abrams, M. & Dreyer, B. (2008). Plain Language Pediatrics: Health Literacy Strategy and Communication Resources for Common Pediatric Topics. Elk Grove Village, IL: American Academy of Pediatrics.Google Scholar