Book contents
- Frontmatter
- Contents
- Contributors
- Preface
- A THE FOUNDATION: THEORY AND PRINCIPLES
- 1 Virtues and Goals in Pediatrics
- 2 Contributions of Ethical Theory to Pediatric Ethics: Pediatricians and Parents as Co-fiduciaries of Pediatric Patients
- 3 Using the Best-Interests Standard in Treatment Decisions for Young Children
- 4 The Moral and Legal Status of Children and Parents
- 5 The Ethics of Pediatric Research
- 6 Truth Telling in Pediatrics: What They Don't Know Might Hurt Them
- 7 Pediatric Ethics Committees
- B GENETICS AND THE NEWBORN
- C THERAPIES
- D END OF LIFE
- Index
6 - Truth Telling in Pediatrics: What They Don't Know Might Hurt Them
Published online by Cambridge University Press: 07 May 2010
- Frontmatter
- Contents
- Contributors
- Preface
- A THE FOUNDATION: THEORY AND PRINCIPLES
- 1 Virtues and Goals in Pediatrics
- 2 Contributions of Ethical Theory to Pediatric Ethics: Pediatricians and Parents as Co-fiduciaries of Pediatric Patients
- 3 Using the Best-Interests Standard in Treatment Decisions for Young Children
- 4 The Moral and Legal Status of Children and Parents
- 5 The Ethics of Pediatric Research
- 6 Truth Telling in Pediatrics: What They Don't Know Might Hurt Them
- 7 Pediatric Ethics Committees
- B GENETICS AND THE NEWBORN
- C THERAPIES
- D END OF LIFE
- Index
Summary
INTRODUCTION
Health care professionals are currently trained and practice in an environment where personal health information is considered to belong to the patient, and where honesty and truth telling are considered virtues foundational to the therapeutic relationship. Professional codes of ethics and position statements define practitioners' responsibilities with regard to honesty and disclosure of information, although these concepts require interpretation and contextualization in clinical encounters with patients and families. Truth telling is considered especially important in relationships with children, whose vulnerability creates in us a special obligation to protect and who are in the process of having their character shaped – at least in part – by the adults with whom they interact.
The debate between those who support a consistent practice of telling the truth to children and those who believe this practice will cause them harm is not new. Pernick quotes Dr. Worthington Hooker, who in the 19th century argued that “[a] child can appreciate fair and honest treatment as well as an adult can, and he has as good a right to receive it.” Increasingly clear standards of practice in pediatrics are emerging. For example, the Canadian Paediatric Society holds that children
should be given developmentally appropriate information so that they may understand their situation. However, cultural norms or family values may underlie some parents' reluctance to discuss the child or adolescent's condition, diagnosis or prognosis in his or her presence. While parents' views regarding disclosure are important, the child or adolescent' s desire or need for information should remain paramount.
(emphasis added)- Type
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- Information
- Pediatric Bioethics , pp. 73 - 86Publisher: Cambridge University PressPrint publication year: 2009
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