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Chapter 5 - Social Consequences of Medication-Resistant Epilepsy

Published online by Cambridge University Press:  20 August 2020

By
Amy Crepeau  and
Joseph I. Sirven
Edited by
John M. Stern ,
Raman Sankar  and
Michael Sperling
John M. Stern
Affiliation:
Geffen School of Medicine at UCLA, Los Angeles, CA
Raman Sankar
Affiliation:
Geffen School of Medicine at UCLA, Los Angeles, CA
Michael Sperling
Affiliation:
Jefferson Hospital for Neurosciences, Philadelphia, PA
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Summary

For persons with epilepsy (PWE) who are refractory to medication, there are many health-related concerns: potential for injury, cognitive impairment, risk of sudden unexpected death in epilepsy (SUDEP). However, the social consequences of seizures that do not respond to medical therapy can have the greatest day-to-day impact.

Type
Chapter
Information
Medication-Resistant Epilepsy
Diagnosis and Treatment
 , pp. 34 - 38
Publisher: Cambridge University Press
Print publication year: 2020

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References

Kobau, R, Luncheon, C, Zack, MM, Shegog, R, Price, PH. Satisfaction with life domains in people with epilepsy. Epilepsy Behav 2012;25:546–551CrossRefGoogle ScholarPubMed
Goffman, E. Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice-Hall, 1963.Google Scholar
Diiorio, CA, Kobau, R, Holden, EW, et al. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy Behav 2004;5:965–975Google Scholar
Viteva, E, Semerdjieva, M. Enacted stigma among patients with epilepsy and intellectual impairment. Epilepsy Behav 2015;42:66–70CrossRefGoogle ScholarPubMed
Leaffer, EB, Hesdorffer, DC, Begley, C. Psychosocial and sociodemographic associates of felt stigma in epilepsy. Epilepsy Behav 2014;37:104–109Google Scholar
Ridsdale, L, Robins, D, Fitzgerald, A, Jeffery, S, McGee, L. Epilepsy in general practice: patients’ psychological symptoms and their perception of stigma. Br J Gen Pract 1996;46:365–366Google Scholar
Sachin, S, Padma, MV, Bhatia, R, et al. Psychosocial impact of epilepsy in women of childbearing age in India. Epileptic Disord 2008;10:282–289Google ScholarPubMed
Begley, CE, Annegers, JF, Lairson, DR, Reynolds, TF. Estimating the cost of epilepsy. Epilepsia 1999;40 Suppl 8:8–13CrossRefGoogle ScholarPubMed
Korchounov, A, Tabatadze, T, Spivak, D, Rossy, W. Epilepsy-related employment prevalence and retirement incidence in the German working population: 1994–2009. Epilepsy Behav 2012;23:162–167Google Scholar
Fisher, RS, Vickrey, BG, Gibson, P, et al. The impact of epilepsy from the patient’s perspective II: views about therapy and health care. Epilepsy Res 2000;41:53–61CrossRefGoogle ScholarPubMed
Salgado, PC, Souza, EA. [Impact of epilepsy at work: evaluation of quality of life]. Arq Neuropsiquiatr 2002;60:442–445CrossRefGoogle ScholarPubMed
Lindsten, H, Stenlund, H, Edlund, C, Forsgren, L. Socioeconomic prognosis after a newly diagnosed unprovoked epileptic seizure in adults: a population-based case-control study. Epilepsia 2002;43:1239–1250Google Scholar
Carroll, D. Employment among young people with epilepsy. Seizure 1992;1:127–131Google Scholar
Gilliam, F, Kuzniecky, R, Faught, E, et al. Patient-validated content of epilepsy-specific quality-of-life measurement. Epilepsia 1997;38:233–236Google Scholar
Consensus conference on driver licensing and epilepsy: American Academy of Neurology, American Epilepsy Society, and Epilepsy Foundation of America. Washington, D.C., May 31–June 2, 1991. Proceedings. Epilepsia 1994;35:662–705Google Scholar
Millingen, KS. Epilepsy and driving. Proc Aust Assoc Neurol 1976;13:67–72Google ScholarPubMed
Drazkowski, JF, Fisher, RS, Sirven, JI, et al. Seizure-related motor vehicle crashes in Arizona before and after reducing the driving restriction from 12 to 3 months. Mayo Clin Proc 2003;78:819–825Google Scholar
Classen, S, Crizzle, AM, Winter, SM, Silver, W, Eisenschenk, S. Evidence-based review on epilepsy and driving. Epilepsy Behav 2012;23:103–112CrossRefGoogle ScholarPubMed
Punia, V, Farooque, P, Chen, W, et al. Epileptic auras and their role in driving safety in people with epilepsy. Epilepsia 2015;56:e182–185CrossRefGoogle ScholarPubMed
Bicalho, MA, Sukys-Claudino, L, Guarnieri, R, Lin, K, Walz, R. Socio-demographic and clinical characteristics of Brazilian patients with epilepsy who drive and their association with traffic accidents. Epilepsy Behav 2012;24:216–220Google Scholar
No, YJ, Lee, SJ, Park, HK, Lee, SA. Factors contributing to driving by people with uncontrolled seizures. Seizure 2011;20:491–493CrossRefGoogle ScholarPubMed
Begley, CE, Durgin, TL. The direct cost of epilepsy in the United States: a systematic review of estimates. Epilepsia 2015;56:1376–1387Google Scholar
van Hout, B, Gagnon, D, Souetre, E, et al. Relationship between seizure frequency and costs and quality of life of outpatients with partial epilepsy in France, Germany, and the United Kingdom. Epilepsia 1997;38:1221–1226CrossRefGoogle ScholarPubMed
Luoni, C, Canevini, MP, Capovilla, G, et al. A prospective study of direct medical costs in a large cohort of consecutively enrolled patients with refractory epilepsy in Italy. Epilepsia 2015;56:1162–1173Google Scholar
Penberthy, LT, Towne, A, Garnett, LK, Perlin, JB, DeLorenzo, RJ. Estimating the economic burden of status epilepticus to the health care system. Seizure 2005;14:46–51Google Scholar
Strzelczyk, A, Knake, S, Oertel, WH, Rosenow, F, Hamer, HM. Inpatient treatment costs of status epilepticus in adults in Germany. Seizure 2013;22:882–885Google Scholar
Stavem, K, Bjornaes, H, Langmoen, IA. Long-term seizures and quality of life after epilepsy surgery compared with matched controls. Neurosurgery 2008;62:326–334; discussion 334–325Google Scholar
Lowe, AJ, David, E, Kilpatrick, CJ, et al. Epilepsy surgery for pathologically proven hippocampal sclerosis provides long-term seizure control and improved quality of life. Epilepsia 2004;45:237–242Google Scholar
Reid, K, Herbert, A, Baker, GA. Epilepsy surgery: patient-perceived long-term costs and benefits. Epilepsy Behav 2004;5:81–87Google Scholar
Sperling, MR, Saykin, AJ, Roberts, FD, French, JA, O’Connor, MJ. Occupational outcome after temporal lobectomy for refractory epilepsy. Neurology 1995;45:970–977Google Scholar
Sirven, JI, Malamut, BL, O’Connor, MJ, Sperling, MR. Temporal lobectomy outcome in older versus younger adults. Neurology 2000;54:2166–2170Google Scholar
Markand, ON, Salanova, V, Whelihan, E, Emsley, CL. Health-related quality of life outcome in medically refractory epilepsy treated with anterior temporal lobectomy. Epilepsia 2000;41:749–759Google Scholar

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