11.1 Introduction
The use of fertility treatment and assisted reproductive technology (ART) in the United States and globally is increasing over time.Footnote 1 As of April 2023, the World Health Organization estimates that approximately one in six individuals have faced infertility globally.Footnote 2 Fertility treatment includes the use of drugs to stimulate egg production, in vitro fertilization (IVF), and, for some, the use of gestational surrogacy to aid in childbirth.Footnote 3 Debates have abounded and continue to abound in federal legislatures, state legislatures, and society more broadly about the morality of abortion, contraception, and assisted reproduction, as well as whether governments, public insurers, and private insurers should facilitate access to these medical treatments.Footnote 4 This chapter explains how private health insurance, like public health insurance, can be a catalyst for innovation and societal acceptance. Insurance coverage can be an indication of medically accepted procedures and products, as well as a proxy for ethical views, social views, and employer views on appropriate health care. This is particularly the case in the realm of reproduction, especially in relation to assisted reproduction and abortion.
Fertility treatment is becoming an increasingly routine benefit offered by private employers to their employees through contracts with health insurance providers and fertility benefit providers. Often, the provision of fertility insurance benefits stems from private law, not public law, even when the insurance contracts are entered into and implemented in states with fertility insurance mandates as those state insurance mandates are often preempted by federal law. The chapter proceeds as follows. Section 11.2 will address ART in the United States and the limitations of the few existing state health insurance mandates related to ART. Next, the chapter discusses employer-provided coverage of egg freezing and fertility treatment and the ways in which private law significantly impacts individuals’ decisions related to assisted reproduction. The chapter concludes by considering the relationship between public and private health insurance and the means through which the two may influence each other in ways that lead to expanded insurance coverage of fertility products and procedures.
11.2 Health Insurance and Fertility Exceptionalism
The definition of ART has changed over the years, but this chapter focuses on IVF (the combination of eggs and sperm in the laboratory to create an embryo for implantation), egg freezing or oocyte cryopreservation, and the use of fertility drugs to increase the likelihood of pregnancy or to maximize the availability of eggs.Footnote 5 The World Health Organization, American Society for Reproductive Medicine, and American Medical Association consider infertility a disease.Footnote 6 Yet in the United States, infertility is not treated as a routine matter whose treatment is covered by insurance plans in the same way as other medical occurrences like high cholesterol, heart attacks, organ transplantation, pregnancy, or broken bones. Part of this aversion to the insurance coverage of fertility treatments stems from the same opposition that accompanies IVF, abortion, and contraception: extensive, often conservative hostility to these treatments based on moral or political views.
Insurance coverage is critical to accessing health care in the United States.Footnote 7 The Patient Protection and Affordable Care Act (PPACA) expanded access to health care through reforms such as precluding insurance companies from refusing to cover or requiring higher premiums for individuals with preexisting health conditions, requiring certain employers to provide health insurance coverage meeting minimum essential coverage requirements for their full-time employees or face an “assessable payment,” and the requirement that individuals purchase health insurance or face tax penalties.Footnote 8 The “minimum essential health benefits” that insurance plans must cover under the PPACA do not include ART services.Footnote 9 Today, private, employer-provided health benefits, which are significantly governed by private law, cover nearly 159 million people in the United States.Footnote 10
As a preliminary matter, insurance coverage usually does not occur until a technique is recognized as “established” instead of “experimental.”Footnote 11 Often, this recognition is top-down as private insurance companies often follow the coverage and reimbursement decisions of public insurance programs, namely Medicare.Footnote 12 In 2018, the American Society for Reproductive Medicine (ASRM) announced that “egg freezing,” the colloquial term for “advance oocyte cryopreservation,” was no longer an “experimental” treatment.Footnote 13 Even though the ASRM no longer considers egg freezing as “experimental,” most health insurance programs do not include egg freezing as a covered treatment. While egg freezing is no longer considered “experimental,” its success rates are lower than many individuals likely expect.Footnote 14 Even though it may be covered in certain instances of medically induced infertility such as when individuals become infertile after treatments for various forms of cancer or leukemia, fertility preservation as one waits for a preferred partner or better time in life is often not deemed a covered health insurance procedure in the same way preventive care is.Footnote 15
The Cleveland Clinic characterizes IVF as “one of the most effective assisted reproductive technologies (ARTs) available.”Footnote 16 Since the birth of Louise Brown, the first child in the world born as a result of IVF, on July 27, 1978, over 8 million babies have been born as a result of IVF.Footnote 17 Insurance coverage of fertility treatment is not routine, despite a lengthy effort over the past several decades by many patients, activists, and legislators to normalize medical coverage of fertility treatment.Footnote 18 As of May 2023, the following states have mandated some form of infertility coverage: Arizona, California, Colorado, Connecticut, Delaware, Hawaii, Illinois, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Ohio, Rhode Island, Texas, and West Virginia.Footnote 19 Maine was added to this list on January 1, 2024.Footnote 20 Yet, coverage mandates vary extensively among states.Footnote 21 For example, West Virginia was the first state to include “infertility services” in its list of “basic health services” in 1977, but the statute does not define what “infertility services” that health maintenance organizations (HMOs) are required to cover.Footnote 22 In addition to the lack of statutory definition of “infertility services,” West Virginia enacted its statutory mandate before the birth of Louise Brown.Footnote 23 As a result, it is likely that the drafters of the statute did not anticipate IVF or egg freezing. Montana’s statute mandating insurance coverage also fails to define what “infertility services” are.Footnote 24 After advocacy by various groups, including RESOLVE: The National Infertility Association (RESOLVE) and the Colorado Fertility Advocates, the Colorado Building Families Act went into effect on January 1, 2022 (with a subsequent amendment effective January 1, 2023 “clarifying” the scope of the bill).Footnote 25 The Colorado Building Families Act requires certain insurance plans to cover egg retrieval and embryo transfers, and the Act specifically mentions “using single embryo transfer when recommended and medically appropriate.”Footnote 26 On May 2, 2022, the Governor of Maine approved H.P. 1144 – L.D. 1539 “An Act To Provide Access to Fertility Care.”Footnote 27 Per the Act, effective January 1, 2024, “the Act applies to all policies, contracts and certificates executed, delivered, issued for delivery, continued or renewed in [Maine] on or after January 1, 2024.”Footnote 28
Moreover, many exceptions exist even when fertility coverage is mandated by state statute. For example, the Colorado Building Families Act has a specific exclusion from coverage for certain religious organizations.Footnote 29 Similar exclusions exist in other states’ statutes.Footnote 30 Furthermore, the scope of fertility coverage is limited. While some states’ “fertility coverage” mandates include IVF (and the cryopreservation often combined with IVF), others simply include diagnosis of infertility and, in many instances, appear to cover contraception or medical sterilization as opposed to fertility drugs or procedures that aim to result in childbirth.Footnote 31 Maine’s forthcoming Act allows health plans to enact “reasonable limitations” on their coverage.Footnote 32 Some state health insurance mandates specifically exempt “experimental procedures” from the health benefits that an insurance plan must cover.Footnote 33 Moreover, state insurance mandates often leave out same-sex couples or single individuals.Footnote 34 For example, three states’ statutes cover IVF but require that women’s eggs be fertilized with their husband’s sperm.Footnote 35 Also, “infertility” is sometimes defined in a manner that requires the individual to have tried to naturally conceive unsuccessfully for a specified period of time.Footnote 36 LGBTQ couples and single individuals are thus often left out of state insurance mandates or individual health insurance policies.Footnote 37
Opponents of insurance coverage of fertility treatments also often emphasize how costly they can be, which could in turn increase insurance premiums.Footnote 38 While surveys have limitations, a survey commissioned by RESOLVE, and carried out by Mercer, a consulting company, revealed that 97 percent of surveyed companies said “that adding infertility coverage did not result in a significant increase in medical plan cost.”Footnote 39 Because of costs, various polities like Ontario and Québec have reconsidered the provision of fertility benefits or limited its availability.Footnote 40 Actuarial costs have also motivated insurance companies to reduce costs, which is why insurance companies have incentivized single embryo transfers, for example, so as to minimize the likelihood and significant costs of non-singleton pregnancies and multiple births, which are costlier than singleton pregnancies.Footnote 41 Generally, insurance coverage does not subsidize unfettered access to fertility treatments, so insurance-covered or publicly provided ART often comes with limitations on access to maximize success rates and minimize costs, including age restrictions, restrictions on the number of covered cycles, restrictions on the number of embryos that can be transferred in a single IVF cycle, and restrictions on the marital status of those who may access the treatments.Footnote 42 The restrictions that exist in state insurance mandates as well as insurance policies’ contractual restrictions on access can reduce the costs of ART to health insurance plans.Footnote 43
Many state insurance mandates only apply to employer-sponsored health insurance plans, and grandfathered health plans may be specifically exempted.Footnote 44 Beyond these statutory exemptions, as Professors Blake and McCuskey note in this volume, “[the Employee Retirement Income Security Act of 1974] preemption exempts employers who structure their health plans as ‘self-funded’ plans from compliance.”Footnote 45 Approximately 65 percent of covered workers were in a self-funded health plan in 2022, and 64 percent in 2021.Footnote 46 Due to these coverage exclusions, state insurance mandates for fertility coverage may only apply to 40 to 58 percent of health insurance plans in a state, assuming the state even has a fertility coverage mandate.Footnote 47 Yet, in spite of these statutory exceptions and some public opposition to the provision of fertility benefits, many private employers still opt to provide these benefits through health insurance contracts or contracts with fertility benefit providers.Footnote 48
11.3 Employer-Sponsored Private Coverage of Fertility Treatment
There is a significant body of literature that focuses on the disparities that exist in access to fertility treatments.Footnote 49 These disparities in access to ART include a lack of access to ART and use of it based on race, income, and geographic location.Footnote 50 Lack of insurance coverage for fertility treatments exacerbates these disparities. While targeted toward infertile couples, ART has become more appealing to varied groups including those who are not medically infertile, but who use it to reproduce and create families. While there have been a few programs to aid low-income individuals without insurance coverage who are experiencing infertility, assisted reproduction generally requires hefty out-of-pocket spending in the absence of subsidies.Footnote 51 This renders the actions of individual employers, who decide what nonessential health benefits like fertility coverage will be available to their employees through private health insurance contracts, especially significant to ART accessibility in the United States. Where employer-provided coverage of fertility treatment exists, even in the absence of mandated coverage, disparities still exist.Footnote 52
Competition among employers to attract the most attractive employees can lead to expanded benefits packages for employees as can state insurance mandates.Footnote 53 There are significant disparities in what is covered by employee plans. For example, 24 to 42 percent of surveyed large employers cover IVF, and 23 to 38 percent of the largest employers cover intrauterine insemination.Footnote 54 Yet, those plans did not always cover egg freezing, which the technology sector has been a leader in covering for its employees.Footnote 55 Among companies with over 500 employees, as of 2020, 27 percent of those employers offer IVF coverage, up from 24 percent in 2015, and 11 percent offer egg freezing, an increase from 2015, when only 5 percent of those companies covered egg freezing.Footnote 56 Moreover, fertility providers sometimes provide lists on their websites of local companies providing fertility coverage in their employee benefits packages.Footnote 57 These provider lists are in addition to many “crowdsourced” methods, of identifying employers who provide fertility insurance benefits, like Reddit threads and TikTok videos.Footnote 58
Some are critical of employer subsidization of egg freezing by noting that it implies that women are expected to delay childbirth and increase labor productivity.Footnote 59 Yet, there is no requirement that individuals avail themselves of these employee benefits. Moreover, as those who study the coupling of health insurance and employment note, individuals often move from employer to employer.Footnote 60 Therefore, one could take advantage of one employer’s health benefits and move to another employer. Additionally, providing fertility benefits could be beneficial to employers from the perspective of employee retention. A FertilityIQ survey found that “61% of employees who received fertility coverage from an employer said they felt more loyal and committed to the company … [and] 88% of women who had IVF treatment fully paid for by their employer chose to return to that employer after maternity leave, compared to around 50% of the regular population without fertility benefits.”Footnote 61 Similarly, 62 percent of surveyed companies found that offering infertility coverage aided them in “staying competitive and attracting and retaining talent.”Footnote 62
Employer-provided fertility benefits offer a subsidy to those who otherwise may not have the funds on hand to finance assisted reproduction. Thus, employer-sponsored reproduction can save these individuals from the fates of many others who pursue assisted reproduction, which includes depleting their savings, taking out loans, or having no means to pay at all.Footnote 63 For example, a cycle of IVF without fertility drugs is estimated to cost between US$12,000 and US$17,000; the cost with fertility drugs raises the estimated cost to US$25,000.Footnote 64 Egg retrieval and freezing is estimated to cost between US$15,000 and US$25,000.Footnote 65 Storing frozen eggs can cost up to US$800 per year, and storing banked sperm costs between US$100 and US$500 per year.Footnote 66
In the wake of health care reform, economic downturns, and social change, the disadvantages of having health insurance and other leave inextricably connected to employment and marriage have become more apparent.Footnote 67 Subsidized access to fertility treatments is often provided through a third-party provider, as opposed to the standard employee health insurance plan.Footnote 68 For example, shortly after Elon Musk’s purchase of Twitter, news coverage focused on how Twitter’s layoffs stymied employee access to Carrot, a fertility benefits provider.Footnote 69 One individual who was fired from Twitter stated that “… she would have left the company [a year earlier] if it weren’t for the fertility treatment benefit, and she was promised health benefits would continue a year after any takeover. In the end, she had one week.”Footnote 70 Thus, the disadvantages of employer-sponsored health insurance coverage may also accompany employer-sponsored fertility benefits.
The focus of this volume is on private law, but there is a relationship between private health coverage and public health coverage. Lessons and practices are often exchanged between private and public health insurance companies. Private health insurance drug formularies generally cover, at a minimum, for example, drugs covered by public health insurance programs. There are many entities in the federal government that provide health care and health insurance, including Medicare, the Federal Employees Health Insurance Benefit Plan, TRICARE, the Indian Health Service, and the US Department of Veterans Affairs. While private law may not aid those individuals directly, the innovations of private health insurance can directly influence public health programs. For example, while Utah does not have a fertility insurance mandate, the Centers for Medicare and Medicaid Services approved Utah’s 2020 application for a waiver to permit the state to “provide in vitro fertilization services and genetic testing for Medicaid eligible individuals who have one of the following conditions: Cystic fibrosis, spinal muscular atrophy, Morquio syndrome, myotonic dystrophy, or sickle cell anemia.”Footnote 71 A subsequent five-year waiver renewal application was approved until June 30, 2027.Footnote 72
Despite the lack of a federal mandate for health insurance reform to include fertility preservation, there is a notable federal exception: certain wounded servicemembers. Despite years of debate about whether Congress should mandate coverage of fertility treatment for federal civilian employees, specifically, and the public, more broadly, in 2016, Congress authorized the Department of Defense to expand coverage of or directly provide ART services to certain categories of veterans and enlisted personnel, namely those with service-related injuries.Footnote 73 Some veterans with service-related conditions that have resulted in infertility are eligible for ART services, yet those ART services do not cover donor gametes, gestational surrogacy, or unmarried individuals.Footnote 74 Former Secretary of Defense, Ashton Carter, was “inspired during visits to Silicon Valley” to create Initiative #35, “Egg and Sperm Cryopreservation,” that would permit deploying service members to freeze their gametes before deploying although ultimately Initiative #35 was never funded.Footnote 75 In the meantime, members of Congress continue to introduce legislation to expand access to ART for servicemembers although the provisions are routinely curtailed by conservative opposition.Footnote 76 Additionally, military family advocate groups use their own money to subsidize ART access for active-duty Special Forces personnel.Footnote 77 In the summer of 2023, two lawsuits were filed against the Department of Defense and Department of Veterans Affairs on behalf of current and retired servicemembers who were excluded from ART coverage based on the agencies’ restrictive policies.Footnote 78 In January 2024, Judge Caproni issued a 90-day stay of some of the claims in the New York case in order to give the Department of Defense and Department of Veterans Affairs time to finalize changes to their IVF health insurance coverage policies.Footnote 79 These policy changes are expected to increase the number of individuals who could access covered IVF treatments by modifying the requirement that those accessing covered IVF services be in an opposite-sex marriage as well as permitting the use of donor gametes in certain instances. Private health insurance programs can influence public health insurance programs and mitigate conservative political views in a way that expands access to fertility treatments.
11.4 Conclusion
Insurance coverage can have a substantial role in normalizing a treatment, especially in the realm of reproductive innovation. Moreover, views about “necessity” can change. The routine health insurance coverage of childbirth expenses is something that started and evolved over approximately the past thirty years.Footnote 80 Similarly, in October 2023, the American Society of Reproductive Medicine issued a “new, more inclusive” definition of infertility that specifically includes individuals “regardless of relationship status or sexual orientation.” It is possible that the new definition of infertility may be incorporated into future legislation or private insurance contracts.Footnote 81 Private health insurance or other subsidized coverage can constitute significant action, especially when legislators are actively avoiding a topic by failing to introduce or consider legislation or policies that could further it. Private coverage of fertility treatment aids in the normalization of ART in the United States, which may ultimately overcome moral and political opposition to the use of and funding of assisted reproduction more broadly in the United States.