Skip to main content Accessibility help
×
Hostname: page-component-78c5997874-94fs2 Total loading time: 0 Render date: 2024-11-03T01:42:54.600Z Has data issue: false hasContentIssue false

10 - Public discourses on human genetic databases

from Part II - Social concerns

Published online by Cambridge University Press:  05 August 2012

Matti Häyry
Affiliation:
University of Manchester
Vilhjálmur Árnason
Affiliation:
University of Iceland, Reykjavik
Gardar Árnason
Affiliation:
University of Central Lancashire, Preston
Get access

Summary

Introduction

The establishment of human genetic databases in different societies has brought along scholarly and public debates about the principles and implications underlying such biotechnological ventures. While raising a number of similar issues and concerns, such as the usage and security of the data stored in a database, protection of individual privacy and confidentiality, forms of consent required for genetic donation, questions of ownership, etc., the extent and nature of these debates as well as the responses given by the general public and professional groupings have varied from one context to another. Insights into these debates appear to be crucial for understanding and interpreting the formation of public opinion that has relevance both for the decision-making process related to the planning of such databases as well as to the legitimacy of the decisions.

The current chapter aims to examine particular discourses and framings applied by different actors in the domestic debates on national genome projects and their significance with respect to the public acceptance of these projects, particularly in the initial phase of their implementation. According to the definition proposed by Robert Entman, framing can be understood ‘as a discursive strategy of communication in which some aspects of a perceived reality are selected and given more salience in communication in order to promote particular problem definition, causal interpretation, moral evaluation and/or suggested treatment’.

Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 2007

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Save book to Kindle

To save this book to your Kindle, first ensure [email protected] is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×