Part II - Practical Perspectives
Published online by Cambridge University Press: 23 February 2017
- Type
- Chapter
- Information
- Empirical BioethicsTheoretical and Practical Perspectives, pp. 123 - 255Publisher: Cambridge University PressPrint publication year: 2016
References
References
Abma, T., Baur, V., Molewijk, B., Widdershoven, G. 2010. Inter-Ethics: Towards an Interactive and Interdependent Bioethics. Bioethics. 24(5):242–255.CrossRefGoogle ScholarPubMed
Abma, T., Molewijk, B., Widdershoven, G. 2009. Good Care in Ongoing Dialogues. Responsive Evaluation and Moral Deliberation. Health Care Analysis. 17(3):217–235.CrossRefGoogle ScholarPubMed
Davies, R., Ives, J., Dunn, M. 2015. A Systematic Review of Empirical Bioethics Methodologies. BMC Medical Ethics. 16.CrossRefGoogle Scholar
Dunn, M., Sheehan, M., Hope, T., Parker, M. 2012. Towards Methodological Innovation in Empirical Ethics in Research. Cambridge Quarterly of Healthcare Ethics. 21(4):466–480.CrossRefGoogle Scholar
Frith, L. 2012. Symbiotic Empirical Ethics: A Practical Methodology. Bioethics. 26(4):198–206.CrossRefGoogle ScholarPubMed
Gutmann, A., Thompson, D. 2004. Why Deliberative Democracy? Princeton, NJ: Princeton University Press.CrossRefGoogle Scholar
Ives, J. 2014. A Method of Reflexive Balancing in a Pragmatic, Interdisciplinary and Reflexive Bioethics. Bioethics. 28(6):302–312.CrossRefGoogle Scholar
Ives, J., Dunn, M. 2010. Who’s Arguing? A Call for Reflexivity in Bioethics. Bioethics. 24(5):256–265.CrossRefGoogle Scholar
Mertz, M., Inthorn, J., Renz, G., Rothenberger, L., Salloch, S., Schildman, J., Wohlke, S., Schicktanz, S. 2014. Research across the Disciplines: A Road Map for Quality Criteria in Empirical Ethics Research. BMC Medical Ethics. 15:17.CrossRefGoogle ScholarPubMed
Molewijk, B., Stiggelbout, A., Otten, W., Dupuis, H., Kievit, J. 2004. Empirical Data and Moral Theory. A Plea for Integrated Empirical Ethics. Medicine, Health Care and Philosophy. 7(1):55–69.CrossRefGoogle ScholarPubMed
Parker, M. 2012. Ethical Problems and Genetics Practice. Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Voskes, Y., Kemper, M., Landeweer, E.G.M., Widdershoven, G.A.M. 2013. Preventing Seclusion in Psychiatry: A Care Ethics Perspective on the First Five Minutes at Admission. Nursing Ethics. Online First, DOI 10.1177/0969733013493217.Google Scholar
Widdershoven, G. 2001. Dialogue in Evaluation: A Hermeneutic Perspective. Evaluation. 7(2):253–263.CrossRefGoogle Scholar
Widdershoven, G., Abma, T., Molewijk, B. 2009a. Empirical ethics as a dialogical practice. Bioethics. 23:236–248.CrossRefGoogle ScholarPubMed
Widdershoven, G., Molewijk, B., Abma, B. 2009b. Improving Care and Ethics: A Plea for Interactive Empirical Ethics. American Journal of Bioethics. 9(6–7):99–101.CrossRefGoogle ScholarPubMed
References
Abma, T.A., Molewijk, B., Widdershoven, G.A.M. 2009a. Good Care in Ongoing Dialogues. Responsive Evaluation and Moral Deliberation. Health Care Analysis. 17(3):217–235.CrossRefGoogle ScholarPubMed
Abma, T., Voskes, Y., Landeweer, E., Emmaneel, R., Scholten, M., Kuijpers, E., Richartz, B., Bijnens, L., Herrmann, G., Widdershoven, G. 2009b. Lerende netwerken. Uitdagingen en oplossingen voor dwangreductie in de praktijk [Learning networks. Challenges and solutions for the reduction of coercion in practice]. Maandblad Geestelijke volksgezondheid. (64)6:571–582.Google Scholar
Beauchamp, T. 2000. Reply to Strong Principlism and Casuistry. Journal of Medical Philosophy. 25(3):342–347.CrossRefGoogle ScholarPubMed
Dunn, M., Sheehan, M., Hope, T., Parker, M. 2012. Towards Methodological Innovation in Empirical Ethics in Research. Cambridge Quarterly of Healthcare Ethics. 21(4):466–480.CrossRefGoogle Scholar
Frith, L. 2012. Symbiotic Empirical Ethics: A Practical Methodology. Bioethics. 26(4):198–206.CrossRefGoogle ScholarPubMed
Greene, J. 2001. Dialogue in Evaluation: A Relational Perspective. Evaluation. 7(2):181–203.CrossRefGoogle Scholar
Guba, E.G., Lincoln, Y.S. 1989. Fourth Generation Evaluation. Beverly Hills, CA: Sage.Google Scholar
Landeweer, E.G.M., Abma, T., Widdershoven, G., 2011. Moral Margins Concerning the Use of Coercion in Psychiatry. Nursing Ethics. 18(3):304–316.CrossRefGoogle ScholarPubMed
Molewijk, B., Frith, L. 2009. Empirical Ethics: Who Is the Don Quixote? Bioethics. 23(4):ii–iv.CrossRefGoogle ScholarPubMed
Molewijk, B., Stiggelbout, A., Otten, W., Dupuis, H., Kievit, J. 2004. Empirical Data and Moral Theory. A Plea for Integrated Empirical Ethics. Medicine Health Care Philosophy. 7(1):55–69.CrossRefGoogle ScholarPubMed
Molewijk, B., Widdershoven, G. 2012. Don’t Solve the Issues! A Plea for ambiguity within Empirical Ethics. Cambridge Quarterly of Healthcare Ethics. 21(4):448–456.CrossRefGoogle ScholarPubMed
Reason, P., Bradbury, H. 2001. Handbook of Action Research: Participative Inquiry and Practice. London: Sage.Google Scholar
Salloch, S., Schildmann, J., Vollmann, J. 2012. Empirical Research in Medical Ethics: How Conceptual Accounts on Normative-Empirical Collaboration May Improve Research Practice. BMC Medical Ethics. 13(5).CrossRefGoogle ScholarPubMed
Schwandt, T.A. 2001. A Postscript on Thinking about Dialogue. Evaluation, 7(2):264–276.CrossRefGoogle Scholar
Solbakk, J.H. 2012. Guest editorial. Embedded Ethics or Fictitious Facts? Cambridge Quarterly of Healthcare Ethics. 21(4):419–425.CrossRefGoogle ScholarPubMed
Voskes, Y., Kemper, M., Landeweer, E.G.M., Widdershoven, G.A.M. 2013. Preventing Seclusion in Psychiatry: A Care Ethics Perspective on the First Five Minutes at Admission. Nursing Ethics. Online First, DOI 10.1177/0969733013493217.Google Scholar
Widdershoven, G. 2001. Dialogue in Evaluation: A Hermeneutic Perspective. Evaluation. 7(2):253–263.CrossRefGoogle Scholar
Widdershoven, G., Abma, T., Molewijk, B. 2009a. Empirical Ethics as a Dialogical Practice. Bioethics. 23:236–248.CrossRefGoogle ScholarPubMed
Widdershoven, G., Molewijk, B., Abma, B. 2009b. Improving Care and Ethics: A Plea for Interactive Empirical Ethics. American Journal of Bioethics. 9(6–7):99–101.CrossRefGoogle ScholarPubMed
References
Allen, D.B., Kappy, M., Diekema, D., Fost, N. 2009. Growth-Attenuation Therapy: Principles for Practice. Pediatrics. 123(6):1556–1561.CrossRefGoogle ScholarPubMed
Arras, J.D. 2007. The Way We Reason Now: Reflective Equilibrium in Bioethics. In Steinbeck, B. (ed.), The Oxford Handbook of Bioethics. New York: Oxford University Press.Google Scholar
BBC. 2014. http://bbc.co.uk/dna/mbouch/F2322273?thread=3779612 [Accessed 3 February 2014].Google Scholar
BBC. 2008. http://newsforums.bbc.co.uk/nol/thread.jspa?sortBy=1&threadID=5141&start=75&tstart=0&edition=2&ttl=20070110125922&#paginator [Accessed 16 April 2008].Google Scholar
Beauchamp, T., Childress, J.F. 2013. Principles of Biomedical Ethics (7th ed.). New York: Oxford University Press, online at: www.bbc.co.uk/ouch/opinion/mining_the_disability_market.shtm.Google Scholar
Brosco, J. 2006. Growth Attenuation: A Diminutive Solution to a Daunting Problem. Archives of Pediatrics & Adolescent Medicine. 160(10):1077–1078.CrossRefGoogle Scholar
Brulde, B. 2001. The Goals of Medicine: Towards a Unified Theory. Health Care Analysis. 9:1–13.CrossRefGoogle ScholarPubMed
Daniels, N. 1979. Wide Reflective Equilibrium and Theory Acceptance in Ethics. Journal of Philosophy. 76:256–282.CrossRefGoogle Scholar
DeGrazia, D. 2003. Common Morality, Coherence and the Principles of Biomedical Ethics. Kennedy Inst Ethics J. 13:219–230.CrossRefGoogle ScholarPubMed
van Delden, J., van Thiel, G. 1998. Reflective Equilibrium as a Normative-Empirical Model in Bioethics. In van der Burg, W., van Willigenburg, T. (eds.), Reflective Equilibrium. Dordrecht: Kluwer Academic Publishers. 251–259.Google Scholar
DePaul, M.R. 1993. Balance and Refinement: Beyond Coherence Methods in Moral Inquiry. London/New York: Routledge. 145–146.Google Scholar
Diekema, D., Fost, N. 2010. Ashley Revisited: A Response to the Critics. The American Journal of Bioethics. 10(1):30–44.CrossRefGoogle Scholar
Feder Kittay, E. 2011. Forever Small: The Strange Case of Ashley X. Hypatia. 26(3):610–630.CrossRefGoogle Scholar
van der Graaf, R. 2009. Clarifying Appeals to Dignity in Medical Ethics from a Historical Perspective. Bioethics. 23(3):151–160.CrossRefGoogle ScholarPubMed
The Guardian. 2014. www.theguardian.com/society/2012/mar/15/ashley-treatment-rise-amid-concerns/print [Accessed 16 October 2014].Google Scholar
Gunther, D.F., Diekema, D.S. 2006. Attenuating Growth in Children with Profound Developmental Disability. Archives of Pediatric and Adolescent Medicine. 160(10):1013–1017.CrossRefGoogle ScholarPubMed
Haidt, J. 2001. The Emotional Dog and Its Rational Tail: A Social Intuitionist Approach to Moral Judgment. Psychology Review. 108(4):814–834.CrossRefGoogle ScholarPubMed
Isaacs, D.A., Tobin, B.C., Hamblin, J.D., Slaytor, E.D., Donaghue, K.C.B., Munns, C.B., Kilham, H.A.A.C. 2011. Managing Ethically Questionable Parental Requests: Growth Suppression and Manipulation of Puberty (Review). Journal of Paediatrics and Child Health. 47(9):581–584.CrossRefGoogle Scholar
Ives, J. 2014. A Method of Reflexive Balancing in a Pragmatic, Interdisciplinary and Reflexive Bioethics. Bioethics. 28(6):302–312.CrossRefGoogle Scholar
Ives, J., Draper, H. 2009. Appropriate Methodologies for Empirical Bioethics: It’s All Relative. Bioethics. 23:249–258.CrossRefGoogle ScholarPubMed
Ives, J., Draper, H., Pattinson, H., Williams, C. 2008. Becoming a Father/Refusing Fatherhood: An Empirical Bioethics Approach to Paternal Responsibilities and Rights. Clinical Ethics. 3(2):75–84.CrossRefGoogle Scholar
Khushf, G. 2007. An Agenda for Future Debate on Concepts of Health and Disease. Medicine, Health Care and Philosophy. 10:19–27.CrossRefGoogle ScholarPubMed
Knight, C. 2006. The Method of Reflective Equilibrium: Wide, Radical, Fallible, Plausible. Philosophical Papers. 35(2):205–229.CrossRefGoogle Scholar
MSNBC Message Board. 2008. http://boards.msn.com/MSNBCboards/thread.aspx?BoardID=762&ThreadID=115796&BoardsParam=HIPDelay%3d1 [Accessed 16 April 2008].Google Scholar
MSNBC Message Board. 2007. Message #1861MSNBC Message Board, posted 01/06/07 11:02 PM. http://boards.msn.com/MSNBCboards/thread.aspx?BoardID=762&ThreadID=115796&BoardsParam=HIPDelay%3d1 [Accessed 16 April 2008].Google Scholar
Musschenga, A.W. 2008. Moral Judgement and Moral Reasoning: A Critique of Jonathan Haidt. In Düwell, M. et al. (eds.), The Contingent Nature of Life. Bioethics and the Limits of Human Existence. Dordrecht: Springer. 131–147.CrossRefGoogle Scholar
Nielsen, K. 1982. Grounding Rights and a Method of Reflective Equilibrium. Inquiry. 25:277–306.CrossRefGoogle Scholar
Nordenfelt, N. 2007. The Concepts of Health and Illness Revisited. Medicine, Health Care and Philosophy. 10:5–10.CrossRefGoogle ScholarPubMed
Nordenfelt, N. 2004. The Varieties of Dignity. Health Care Analysis. 12:69–81.CrossRefGoogle ScholarPubMed
Petersson, B. 1998. Wide Reflective Equilibrium and the Justification of Moral Theory. In van der Burg, W., Willigenburg, T. (eds.), Reflective Equilibrium. Dordrecht: Kluwer Academic Publishers. 132.Google Scholar
Rauprich, O. 2008. Common Morality: Comment on Beauchamp and Childress. Theor Med Bioeth. 29:43–71.CrossRefGoogle ScholarPubMed
Rawls, J.A. 1999. Theory of Justice (revised ed.) Cambridge: Harvard University Press. xiii.CrossRefGoogle Scholar
John, J. 2007. Problems with Theory, Problems with Practice: Wide Reflective Equilibrium and Bioethics. South African Journal of Philosophy. 26:204–215.CrossRefGoogle Scholar
Sayre-McCord, G. 1996. Coherentist Epistemology and Moral Theory. In Sinnot-Armstrong, W., Timmons, M. (eds.), Moral Knowlegde? New Readings in Moral Epistemology. New York/Oxford: Oxford University Press. 137–189.Google Scholar
Stein, G.J. 2010. Ashley’s Case: The Ethics of Arresting Growth of Children with Serious Disability. Journal of Social Work in Disability and Rehabilitation. 9:99–109.CrossRefGoogle Scholar
Strong, C. 2010. Theoretical and Practical Problems with Wide Reflective Equilibrium in Bioethics. Theoretical Medicine and Bioethics. 31:123–140.CrossRefGoogle ScholarPubMed
Swanton, C. 1991. The Role Played by the Method of Wide Reflective Equilibrium in Moral Epistemology. Dialogue. 30:575–589.CrossRefGoogle Scholar
van Thiel, G. 2009. Moral Wisdom in the Balance. Reflective Equilibrium as a Normative Empirical Model for Bioethics. Thesis, Utrecht University, Utrecht.Google Scholar
van Thiel, G., van Delden, J. 2010. Reflective Equilibrium as a Normative Empirical Model. Ethical Perspectives. 17(2):183–202.CrossRefGoogle Scholar
van Thiel, G., van Delden, J. 2009. The Justificatory Power of Moral Experience. Journal of Medical Ethics. 35:234–237.CrossRefGoogle ScholarPubMed
Wilfond, B.S., Miller, P.S., Korfiatis, C., Diekema, D.S., Dudzinski, D.M., Goering, S. 2010. Navigating Growth: Attenuation in Children with Profound Disabilities. Hastings Center Report. 40(6):27–40.CrossRefGoogle ScholarPubMed
References
Abelson, J., Blacksher, E., Li, K., Boesveld, S., Goold, S. 2013. Public Deliberation in Health Policy and Bioethics: Mapping an Emerging, Interdisciplinary Field. Journal of Public Deliberation. 9(1).Google Scholar
Arledge, E. 2004. The Forgetting: A Portrait of Alzheimer’s. USA, PBS Paramount.CrossRefGoogle Scholar
Baren, J.M., Biros, M.H. 2007. The Research on Community Consultation: An Annotated Bibliography. Academic Emergency Medicine. 14(4): 346–352.CrossRefGoogle ScholarPubMed
Bohman, J., Rehg, W. 1997. Deliberative Democracy: Essays on Reason and Politics. Cambridge, MA: The MIT Press.CrossRefGoogle Scholar
Botkin, J.R., Rothwell, E., Anderson, R., Stark, L., Goldenberg, A., Lewis, M., Burbank, M., Wong, B. 2012. Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for Research. Pediatrics. 129(2):231–238.CrossRefGoogle ScholarPubMed
Bravo, G., Dubois, M.F., Wildeman, S.M., Graham, J., Cohen, C.A., Painter, K., Bellemare, S. 2010. Research with Decisionally Incapacitated Older Adults: Practices of Canadian Research Ethics Boards. IRB: Ethics & Human Research. 32(6):1–8.Google ScholarPubMed
Bravo, G., Paquet, M., Dubois, M.F. 2003. Opinions Regarding Who Should Consent to Research on Behalf of an Older Adult Suffering from Dementia. The International Journal of Social Research and Practice. 2:49–65.Google Scholar
Cahill, M., Wichman, A. 2000. Research Involving Persons with Cognitive Impairments: Results of a Survey of Alzheimer Disease Research Centers in the United States. Alzheimer Disease and Associated Disorders. 14(1):20–27.CrossRefGoogle ScholarPubMed
Carman, K.L., Mallery, C., Wang, G., Garfinkel, S., Richmond, J., Gilmore, D., Windham, A., Yang, M., Mangrum, R., Ginsburg, M., Sofaer, S., Fernandez, J., Gold, M., Pathak-Sen, E., Davies, T., Siu, A., Fishkin, J., Rosenberg, M., Fratto, A. 2013. Community Forum Deliberative Methods Demonstration: Evaluating Effectiveness and Eliciting Public Views on Use of Evidence: Executive Summary. AHRQ. Rockville, MD: Agency for Healthcare Research and Quality.Google Scholar
Carpini, M.X.D., Cook, F.L., Jacobs, L.R. 2004. Public Deliberation, Discursive Participation, and Citizen Engagement: A Review of the Empirical Literature. Annual Review of Political Science. 7(1):315–344.CrossRefGoogle Scholar
Carson, L., Hartz-Carp, J. Gastil, J. Levine, P. 2005. Adapting and Combining Deliberative Designs. The Deliberative Democracy Handbook. San Francisco: Jossey-Bass. 20–36.Google Scholar
Chambers, S. 2003. Deliberative Democratic Theory. Annual Review of Political Science. 6(1):307–326.CrossRefGoogle Scholar
Cohen, J. 2007. Deliberative Democracy. Deliberation, Participation and Democracy: Can the People Govern? Rosenberg, S. (ed.). Basingstoke: Palgrave Macmillan. 219–236.CrossRefGoogle Scholar
Crosby, N., Nethercut, D., Gastil, J., Levine, P. 2005. Citizens Juries: Creating a Trustworthy Voice of the People. The Deliberative Democracy Handbook. San Francisco: Josey-Bass. 111–119.Google Scholar
Damschroder, L.J., Pritts, J.L., Neblo, M.A., Kalarickal, R.J., Creswell, J.W., Hayward, R.A. 2007. Patients, Privacy & Trust: Patients’ Willingness to Allow Researchers to Access Their Medical Records. Social Science & Medicine. 64(1):223–235.CrossRefGoogle ScholarPubMed
Elster, J. 1998. Deliberative Democracy. New York: Cambridge University Press.CrossRefGoogle Scholar
Fishkin, J.S. 2006. Beyond Polling Alone: The Quest for an Informed Public. Critical Review. 18(1–3):157–165.CrossRefGoogle Scholar
Fishkin, J.S., Luskin, R.C. 2005. Experimenting with a Democratic Ideal: Deliberative Polling and Public Opinion. Acta Politica. 40(3):284–298.CrossRefGoogle Scholar
Freeman, S. 2000. Deliberative Democracy: A Sympathetic Comment. Philosophy & Public Affairs. 29(4):371–419.CrossRefGoogle Scholar
Gastil, J., Keith, W.M. 2005. A Nation That (Sometimes) Likes to Talk: A Brief History of Public Deliberation in the United States. In The Deliberative Democracy Handbook. Gastil, J., Levine, P. (eds.). San Francisco: Jossey-Bass. 3–17.Google Scholar
Gastil, J., Kelshaw, T. 2000. Public Meetings: A Sampler of Deliberative Forums That Bring Officeholders and Citizens Together. Dayton, OH: Kettering Foundation.Google Scholar
Gong, M.N., Winkel, G., Rhodes, R., Richardson, L.D., Silverstein, J.H. 2010. Surrogate Consent for Research Involving Adults with Impaired Decision Making: Survey of Institutional Review Board Practices. Critical Care Medicine. 38(11):2146–2154.CrossRefGoogle ScholarPubMed
Goold, S.D., Neblo, M.A., Kim, S.Y.H., De Vries, R., Muhlberger, P. 2012. What Is Good Quality Public Deliberation? Hasting Center Report. 42(2):24–26.CrossRefGoogle Scholar
Gregory, J., Hartz-Karp, J., Watson, R. 2008. Using Deliberative Techniques to Engage the Community in Policy Development. Australia and New Zealand Health Policy. 5(1):16.CrossRefGoogle ScholarPubMed
Gutmann, A. 2011. The Ethics of Synthetic Biology: Guiding Principles for Emerging Technologies. Hastings Center Report. 41(4):17–22.CrossRefGoogle ScholarPubMed
Gutmann, A., Thompson, D. 1997. Deliberating about Bioethics. Hastings Center Report. 27(3):38–41.CrossRefGoogle ScholarPubMed
Haidt, J. 2012. The Righteous Mind: Why Good People Are Divided by Politics and Religion. New York: Pantheon Books.Google Scholar
Hoffmann, D.E., Schwartz, J. 1998. Proxy Consent to Participation of the Decisionally Impaired in Medical Research: Maryland’s Policy Initiative. Journal of Health Care Law and Policy. 1(1):123–153.Google Scholar
Institute of Medicine. 2011. Essential Health Benefits: Balancing Coverage and Cost. Washington, DC: Intitute of Medicine of the National Academies.Google Scholar
Karlawish, J.H.T., Knopman, D., Clark, C.M., Morris, J.C., Marson, D., Whitehouse, P.J., Kawas, C. 2002. Informed Consent for Alzheimer’s Disease Clinical Trials: A Survey of Clinical Investigators. IRB: Ethics and Human Research. 24(5):1–5.CrossRefGoogle ScholarPubMed
Karlawish, J., Rubright, J., Casarett, D., Cary, M., ten Have, T., Sankar, P. 2009. Older Adults’ Attitudes toward Enrollment of Non-Competent Subjects Participating in Alzheimer’s Research. American Journal of Psychiatry. 166(2):182–188.CrossRefGoogle ScholarPubMed
Kim, S.Y.H. 2011. The Ethics of Informed Consent in Alzheimer Disease Research. Nature Reviews Neurology. 7:410–414.CrossRefGoogle ScholarPubMed
Kim, S.Y.H., Caine, E.D., Currier, G.W., Leibovici, A., Ryan, J.M. 2001. Assessing the Competence of Persons with Alzheimer’s Disease in Providing Informed Consent for Participation in Research. American Journal of Psychiatry. 158:712–717.CrossRefGoogle ScholarPubMed
Kim, S.Y.H., Kim, H.M., Knopman, D.S., De Vries, R., Damschroder, L., Appelbaum, P.S. 2011. Effect of Public Deliberation on Attitudes toward Surrogate Consent for Dementia Research. Neurology. 77(24):2097–2104.CrossRefGoogle ScholarPubMed
Kim, S.Y.H., Kim, H.M., Langa, K.M., Karlawish, J.H.T., Knopman, D.S., Appelbaum, P.S. 2009. Surrogate Consent for Dementia Research: A National Survey of Older Americans. Neurology. 72:149–155.CrossRefGoogle ScholarPubMed
Kim, S.Y.H., Kim, H.M., McCallum, C., Tariot, P.N. 2005. What Do People at Risk for Alzheimer’s Disease Think about Surrogate Consent for Research? Neurology. 65:1395–1401.CrossRefGoogle ScholarPubMed
Kim, S.Y.H., Kim, H.M., Ryan, K.A., Appelbaum, P.S., Knopman, D.S., Damschroder, L., De Vries, R. 2013. How Important Is ‘Accuracy’ of Surrogate Decision-Making for Research Participation? PLoS ONE. 8(1):e54790.CrossRefGoogle ScholarPubMed
Kim, S.Y.H., Uhlmann, R.A., Appelbaum, P.S., Knopman, D.S., Kim, H.M., Damschroder, L., Beattie, E., Struble, L., De Vries, R. 2010. Deliberative Assessment of Surrogate Consent in Dementia Research. Alzheimer’s and Dementia. 6(4):342–350.CrossRefGoogle ScholarPubMed
Kingdon, J. W. 2002. The reality of public policy making. Ethical Dimensions of Health Policy. Danis, M., Clancy, C. and Churchill, L. R. (eds.). New York: Oxford University Press. 97–116.Google Scholar
Landeweer, E., Molewijk, B., Widdershoven, G. 2016. Moral Improvement through Interactive Research: A Practice Example of Dialogical Empirical Ethics. This volume.CrossRefGoogle Scholar
Levine, P., Fung, A., Gastil, J. 2005. Future Directions for Public Deliberation. Journal of Public Deliberation. 1(1): Article 3, 1–13.Google Scholar
Levine, R.J. 1986. Ethics and Regulation of Clinical Research. New Haven: Yale University Press.Google Scholar
Lukensmeyer, C.J., Goldman, J., Brigham, S., Gastil, J., Levine, P. 2005. A Town Meeting for the Twenty-First Century. In The Deliberative Democracy Handbook. Gastil, J., Levine, P. (eds.). San Francisco: Jossey-Bass. 154–163.Google Scholar
Melville, K., Willingham, T.L., Dedrick, J.R., Gastil, J., Levine, P. 2005. National Issues Forums: A Network of Communities Promoting Public Deliberation. In The Deliberative Democracy Handbook. Gastil, J., Levine, P. (eds.). San Francisco: Jossey-Bass. 35–58.Google Scholar
Mendelberg, T., Delli Carpini, M.X., Huddy, L., Shapiro, R. 2002. The Deliberative Citizen: Theory and Evidence. Research in Micropolitics: Political Decision-Making, Deliberation, and Participation. Greenwich, CT: JAI Press. 151–193.Google Scholar
Mitton, C., Smith, N., Peacock, S., Evoy, B., Abelson, J. 2009. Public Participation in Health Care Priority Setting: A Scoping Review. Health Policy. 91(3):219–228.CrossRefGoogle ScholarPubMed
Neblo, M.A. 2007. Change for the Better? Linking the Mechanisms of Deliberative Opinion Change to Normative Theory. Annu. Meet. Int. Soc. Polit. Psychol. Toronto.Google Scholar
Okonkwo, O., Griffith, H.R., Belue, K., Lanza, S., Zamrini, E.Y., Harrell, L.E., Brockington, J.C., Clark, D., Raman, R., Marson, D.C. 2007. Medical Decision-Making Capacity in Patients with Mild Cognitive Impairment. Neurology. 69(15):1528–1535.CrossRefGoogle ScholarPubMed
Ryfe, D.M. 2005. Does Deliberative Democracy Work? Annual Review of Political Science. 8(1):49–71.CrossRefGoogle Scholar
Saks, E.R., Dunn, L.B., Wimer, J., Gonzales, M., Kim, S.Y.H. 2008. Proxy Consent to Research: The Legal Landscape. Yale Journal of Health Law, Policy, and Ethics. 8(1):37–78.Google ScholarPubMed
Secko, D.M., Preto, N., Niemeyer, S., Burgess, M.M. 2009. Informed Consent in Biobank Research: A Deliberative Approach to the Debate. Social Science & Medicine. 68(4):781–789.CrossRefGoogle ScholarPubMed
Steiner, J., Bachtiger, A., Sporndli, M., Steenbergen, M. 2004. Deliberative Politics in Action: Cross-National Study of Parliamentary Debates. Cambridge: Cambridge University Press.Google Scholar
Sunstein, C.R. 2007. Group Polarization and 12 Angry Men. Negotiation Journal. 23(4):443–447.CrossRefGoogle Scholar
Sunstein, C.R. 2002. The Law of Group Polarization. Journal of Political Philosophy. 10:175–195.CrossRefGoogle Scholar
Thompson, D.F. 2008. Deliberative Democratic Theory and Empirical Political Science. Annual Review of Political Science. 11(1):497–520.CrossRefGoogle Scholar
De Vries, R.G., Ryan, K.A., Stanczyk, A., Appelbaum, P.S., Damschroder, L., Knopman, D., Kim, S. 2013. Public’s Approach to Surrogate Consent for Dementia Research: Cautious Pragmatism. American Journal of Geriatric Psychiatry. 21:364–372.CrossRefGoogle ScholarPubMed
De Vries, R., Stanczyk, A., Ryan, K., Kim, S.Y.H. 2011. A Framework for Assessing the Quality of Democratic Deliberation: Enhancing Deliberation as a Tool for Bioethics. Journal of Empirical Research on Human Research Ethics. 6(3):3–17.CrossRefGoogle ScholarPubMed
De Vries, R., Stanczyk, A., Wall, I.F., Uhlmann, R., Damschroder, L.J., Kim, S.Y. 2010. Assessing the Quality of Democratic Deliberation: A Case Study of Public Deliberation on the Ethics of Surrogate Consent for Research. Social Science & Medicine. 70(12):1896–1903.CrossRefGoogle ScholarPubMed
Wendler, D., Martinez, R.A., Fairclough, D., Sunderland, T., Emanuel, E. 2002. Views of Potential Subjects toward Proposed Regulations for Clinical Research with Adults Unable to Consent. American Journal of Psychiatry. 159(4):585–591.CrossRefGoogle ScholarPubMed
References
Ackerly, B., True, J. 2008. Reflexivity in Practice: Power and Ethics in Feminist Research on International Relations. International Studies Review. 10(4):693–707.CrossRefGoogle Scholar
Alcoff, L.M. 2006. Visible Identities, Race, Gender, and the Self. New York: Oxford University Press.CrossRefGoogle Scholar
Anstey, K.W. 2002. Are Attempts to Have Hearing-Impaired Children Justifiable? Journal of Medical Ethics. 28:286–288.CrossRefGoogle ScholarPubMed
Baier, A. 1995. Moral Prejudices. Essays on Ethics. Cambridge: Harvard University Press.Google Scholar
Banks, S., Scully, J.L., Shakespeare, T. 2006. Ordinary Ethics: Lay People’s Deliberations on Social Sex Selection. New Genetics and Society. 25:289–303.CrossRefGoogle Scholar
Bartky, S.L. 1990. Femininity and Domination: Studies in the Phenomenology of Oppression. London: Taylor and Francis.Google Scholar
Baylis, F., McLeod, C. 2007. The Stem Cell Debate Continues: The Buying and Selling of Eggs for Research. Journal of Medical Ethics. 33(12):726–731.CrossRefGoogle ScholarPubMed
Borry, P., Schotsmans, P., Dierickx, K. 2005. The Birth of the Empirical Turn in Bioethics. Bioethics. 19:49–71.CrossRefGoogle ScholarPubMed
Brown, M. 2013. No ethical bypass of moral status in stem cell research. Bioethics. 27(1):12–19CrossRefGoogle ScholarPubMed
Carse, A.L., Nelson, H.L. 1996. Rehabilitating Care. Kennedy Institute of Ethics Journal. 6(1):19–35.Google ScholarPubMed
Code, L. 2006. Ecological Knowing: The Politics of Epistemic Location. Oxford: Oxford University Press.CrossRefGoogle Scholar
De Vries, R., Turner, L., Orfali, K., Bosk, C. 2007. The View from Here: Bioethics and the Social Sciences. Oxford: Wiley-Blackwell.Google Scholar
Dickenson, D. 2006. The Lady Vanishes: What’s Missing from the Stem Cell Debate. Journal of Bioethical Inquiry. 3(1–2): 43–54.CrossRefGoogle Scholar
Eckenwiler, E. 2013. Long-Term Care, Globalization, and Justice. Baltimore, MD: Johns Hopkins University Press.Google Scholar
Edwards, R., Mauthner, M. 2012. Ethics and Feminist Research: Theory and Practice. In Ethics in Qualitative Research, Miller, T., Birch, M., Mauthner, M., Jessop, J. (eds.). London: Sage. 14–28.CrossRefGoogle Scholar
Finch, J. 1984. ‘It’s Great to Have Someone to Talk To.’ Ethics and Politics of Interviewing Women. In Social Researching: Politics, Problems, Practice, Bell, C., Roberts, H. (eds.). London: Routledge. 70–87.Google Scholar
Fitzpatrick, P., Scully, J.L. 2010. Introduction to Feminist Bioethics. In Feminist Bioethics: At the Center, on the Margins, Scully, J.L., Baldwin-Ragaven, L.E., Fitzpatrick, P. (eds.). Baltimore, MD: Johns Hopkins University Press. 1–9.Google Scholar
Fricker, M. 2007. Epistemic Injustice: Power and the Ethics of Knowing. Oxford: Oxford University Press.CrossRefGoogle Scholar
Gilligan, C. 1982. In a Different Voice: Psychological Theory and Women’s Development. Cambridge, MA: Harvard University Press.Google Scholar
Harding, S. 1993. Rethinking Standpoint Epistemology: What Is ‘Strong Objectivity’? In Feminist Epistemologies, Alcoff, L., Potter, E. (eds.). London: Routledge. 49–82.Google Scholar
Harding, S. 1991. Whose Science? Whose Knowledge? Ithaca, NY: Cornell University Press.Google Scholar
Harding, S., Norburg, K. 2005. New Feminist Approaches to Social Science Methodologies. An Introduction. Signs. 30:2009–2015.CrossRefGoogle Scholar
Hartsock, N. 1987. The Feminist Standpoint: Developing the Ground for a Specifically Feminist Historical Materialism. In Feminism and Methodology: Social Science Issues, Harding, S. (ed.). Bloomington: Indiana University Press. 157–180.Google Scholar
Hayri, M. 2010. The Moral Contestedness of Selecting ‘Deaf Embryos’. In Arguing about Disability: Philosophical Perspectives, Kristiansen, K., Vehmas, S., Shakespeare, T. (eds.). London: Routledge. 154–168.Google Scholar
Hayri, M. 2004. There Is a Difference between Selecting a Deaf Embryo and Deafening a Hearing Child. Journal of Medical Ethics. 30:510–512.CrossRefGoogle Scholar
Hedgecoe, A.M. 2004. Critical Bioethics: Beyond the Social Science Critique of Applied Ethics. Bioethics. 18:120–140.CrossRefGoogle ScholarPubMed
Hekman, S. 1997. Truth and Method: Feminist Standpoint Theory Revisited. Signs. 22(2):341–365.CrossRefGoogle Scholar
Hoeyer, K. 2006. ‘Ethics Wars’: Reflections on the Antagonism between Bioethicists and Social Science Observers of Biomedicine. Human Studies. 29(2):203–227.CrossRefGoogle Scholar
Holland, S., Lebacq, K., Zoloth, J. 2001. The Human Embryonic Stem Cell Debate: Science, Ethics and Public Policy. Cambridge: MIT Press.CrossRefGoogle Scholar
Holm, S., Jonas, M. 2004. Engaging the World: The Use of Empirical Research in Bioethics and the Regulation of Biotechnology. Amsterdam: IOS Press.Google Scholar
Hookway, C. 2010. Some Varieties of Epistemic Injustice: Reflections on Fricker. Episteme. 7:151–163.CrossRefGoogle Scholar
Hughes, C., Cohen, R.L. 2010. Feminists Really Do Count: The Complexity of Feminist Methodologies. International Journal of Social Research Methodology. 13(3):189–196.CrossRefGoogle Scholar
Ives, J. 2014. A Method of Reflexive Balancing in a Pragmatic, Interdisciplinary and Reflexive Bioethics. Bioethics. 28(6):302–312.CrossRefGoogle Scholar
Ives, J., Dunn, M. 2010. Who’s Arguing? A Call for Reflexivity in Bioethics. Bioethics. 24(5):256–265.CrossRefGoogle Scholar
Jaggar, A.M. 2000. Ethics Naturalized: Feminism’s Contribution to Moral Epistemology. Metaphilosophy. 31:452–468.CrossRefGoogle Scholar
Jaggar, A. 1991. Feminist Ethics: Projects, Problems, Prospects. In Feminist Ethics, Card, C. (ed.). Lawrence, KS: University Press of Kansas.Google Scholar
Johnston, T. 2005. In One’s Own Image: Ethics and the Reproduction of Deafness. Journal of Deaf Studies and Deaf Education. 10:426–441.CrossRefGoogle ScholarPubMed
Kittay, E.F. 2008. Ideal Theory and the Exclusion of People with Severe Cognitive Disabilities. In Naturalized Bioethics: Toward Responsible Knowing and Practice, Lindemann, H.N., Verkerk, M., Walker, M.U. (eds.). Cambridge: Cambridge University Press. 218–237.CrossRefGoogle Scholar
Kittay, E.F. 1999. Love’s Labor: Essays on Women, Equality, and Dependency. New York: Routledge.Google Scholar
Kittay, E.F., Feder, E.K. (eds.) 2002. The Subject of Care: Feminist Perspectives on Dependency. Totowa, NJ: Rowman & Littlefield.Google Scholar
Landeweer, E., Molewijk, B., Widdershoven, G. 2016. Moral Improvement through Interactive Research: A Practice Example of Dialogical Empirical Ethics. This volume.CrossRefGoogle Scholar
Lanoix, M. 2013. Labor as Embodied Practice: The Lessons of Care Work. Hypatia. 28(1):85–100.CrossRefGoogle Scholar
Levy, N. 2002. Deafness, Culture and Choice. Journal of Medical Ethics. 28:284–285.CrossRefGoogle ScholarPubMed
Lindemann Nelson, H. 2000. Feminist Bioethics: Where We’ve Been, Where We’re Going. Metaphilosophy. 31(5):492–508.CrossRefGoogle Scholar
Lindemann, H.N., Verkerk, M., Walker, M.U. 2008. Naturalized Bioethics: Toward Responsible Knowing and Practice. Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Mackenzie, C., Scully, J.L. 2007. Moral Imagination, Disability and Embodiment. Journal of Applied Philosophy. 24:335–351.CrossRefGoogle Scholar
Mackenzie, C., Stoljar, N. (eds.) 2000. Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self. New York: Oxford University Press.CrossRefGoogle Scholar
McLaughlin, J. 2003. Feminist Social and Political Theory. Basingstoke: Palgrave Macmillan.CrossRefGoogle Scholar
McMillan, J. 2016. Empirical Bioethics and the Fact/Value Distinction. This volume.CrossRefGoogle Scholar
Pellegrino, E. 1995. The Limitation of Empirical Research in Ethics. The Journal of Clinical Ethics. 6:161–162.CrossRefGoogle ScholarPubMed
Ramazanoglu, C., Holland, J. 2007. Feminist Methodology: Challenges and Choices. London: Sage.Google Scholar
Rehmann-Sutter, C. 2010. ‘It Is Her Problem, Not Ours’: Contributions of Feminist Bioethics to the Mainstream. In Feminist Bioethics: At the Center, on the Margins, Scully, J.L., Baldwin-Ragaven, L., Fitzpatrick, P. (eds.), Baltimore MD: Johns Hopkins University Press. 23–44.Google Scholar
Savulescu, J. 2007. In Defence of Procreative Beneficence. Journal of Medical Ethics. 33:284–288.CrossRefGoogle ScholarPubMed
Savulescu, J. 2002. Deaf Lesbians, ‘Designer Disability’, and the Future of Medicine. BMJ. 325(7367):771–773.CrossRefGoogle ScholarPubMed
Scully, J.L. 2011. ‘Choosing Disability’, Symbolic Law, and the Media. Medical Law International. 11(3):197–212.CrossRefGoogle Scholar
Scully, J.L. 2008. Disability Bioethics: Moral Bodies, Moral Difference. Totowa, NJ: Rowman & Littlefield.Google Scholar
Scully, J.L., Baldwin-Ragaven, L.E. and Fitzpatrick, P. (eds.) 2010. Feminist Bioethics: At the Center, on the Margins. Baltimore: Johns Hopkins University Press.CrossRefGoogle Scholar
Scully, J.L., Banks, S., Song, R. and Haq, J. Experiences of faith group members using new reproductive and genetic technologies: a qualitative interview stud. Human Fertility (in press). http://dx.doi.org/10.1080/14647273.2016.1243816.Google Scholar
Sheehan, M. 2016. Metaethics, Relativism and Empirical Bioethics. This volume.CrossRefGoogle Scholar
Shildrick, M. 2008. The Critical Turn in Feminist Bioethics: The Case of Heart Transplantation. International Journal of Feminist Approaches to Bioethics, 1:28–47.CrossRefGoogle Scholar
Stanley, L., Wise, S. 1993. Breaking Out Again: Feminist Ontology and Epistemology. London: Routledge.Google Scholar
Tong, R. 2013a. Feminist Thought: A More Comprehensive Introduction. Boulder, CO: Westview Press.CrossRefGoogle Scholar
Tong, R. 2013b. International Migrant Eldercare Workers in Italy, Germany and Sweden: A Feminist Critique of Eldercare Policy in the United States. IJFAB. 6:41–59.Google Scholar
Tong, R. 1997. Feminist Approaches to Bioethics: Theoretical Reflections and Practical Applications. Boulder, CO: Westview Press.Google Scholar
Tronto, J. 1993. Moral Boundaries: A Political Argument for an Ethic of Care. New York: Routledge.Google Scholar
Turner, L. 2009. Anthropological and sociological critiques of bioethics. Bioethical Inquiry. 6:83–98.CrossRefGoogle Scholar
Twine, R. 2010. Broadening the Feminism in Feminist Bioethics. In Naturalized Bioethics: Toward Responsible Knowing and Practice, Lindemann, H.N., Verkerk, M., Walker, M.U. (eds.). Cambridge: Cambridge University Press. 45–59.Google Scholar
Twine, R. 2005. Constructing Critical Bioethics by Deconstruction Culture/Nature Dualism. Medicine, Health Care and Philosophy. 8(3):285–295.CrossRefGoogle ScholarPubMed
Walker, M.U. 1998. Moral Understandings: A Feminist Study in Ethics. New York: Oxford University Press.Google Scholar
Walker, M.U. 2010. Groningen Naturalism in Bioethics. In Naturalized Bioethics: Toward Responsible Knowing and Practice, Lindemann, H.N., Verkerk, M., Walker, M.U. (eds.). Cambridge: Cambridge University Press. 1–20.Google Scholar
Wilkinson, S. 1998. Focus Groups in Feminist Research: Power, Interaction, and the Co-Construction of Meaning. Women’s Studies International Forum, 21(1):111–125.CrossRefGoogle Scholar
Wylie, A. 2003. Why Standpoint Matters. In Science and Other Cultures. Issues in Philosophies of Science and Technology, Figueroa, R., Harding, S. (eds.). Oxford and New York: Routledge. 26–48.Google Scholar
Young, I.M. 2005. On Female Body Experience: ‘Throwing Like a Girl’ and Other Essays. Oxford: Oxford University Press.CrossRefGoogle Scholar
Zussman, R. 2000. The Contributions of Sociology to Medical Ethics. Hastings Center Report. 30:7–11.CrossRefGoogle ScholarPubMed
References
Alderson, P., Farsides, B., Williams, C. 2002. Examing Ethics in Practice: Health Service Professionals’ Evaluations of In-Hospital Ethics Seminars. Nursing Ethics. 9:508–521.CrossRefGoogle Scholar
Brosnan, C., Cribb, A, Williams, C., Wainwright, S. 2013. Neuroscientists’ Everyday Experiences of Ethics: The Interplay of Regulatory, Professional, Personal and Tangible Ethical Spheres. Sociology of Health and Illness. 35:1133–1148.CrossRefGoogle ScholarPubMed
Ehrich, K., Farsides, B., Williams, C., Scott, R. 2011. Constructing an Ethical framework for Embryo Donation to Research: Is It Time for a Restricted Consent Policy? Human Fertility. 14:115–121.CrossRefGoogle ScholarPubMed
Farsides, B., Williams, C., Alderson, P. 2004. Aiming towards ‘Moral Equilibrium’: Health Care Professionals’ Views on Working within the Morally Contested Field of Antenatal Screening. Journal of Medical Ethics. 30:505–509.CrossRefGoogle ScholarPubMed
Franklin, S. 2013. Biological Relatives: IVF, Stem Cells and the Future of Kinship. London: Duke University Press.CrossRefGoogle Scholar
Landeweer, E., Molewijk, B., Widdershoven, G. 2016. Moral Improvement through Interactive Research: A Practice Example of Dialogical Empirical Ethics. This volume.CrossRefGoogle Scholar
Pickerskill, M. 2013. From ‘Implications’ to ‘Dimensions’: Science, Medicine and Ethics in Society. Health Care Analysis. 13:31–42.CrossRefGoogle Scholar
Scott, R., Williams, C., Ehrich, K., Farsides, B. 2012. Donation of ‘Spare’ Fresh or Frozen Embryos to Research: Who Decides that an Embryo Is ‘Spare’ and How Can We Enhance the Quality and Protect the Validity of Consent? Medical Law Review. 20:255–303.CrossRefGoogle ScholarPubMed
Wainwright, S., Williams, C., Michael, M., Farsides, B., Cribb, A. 2006. Ethical Boundary Work in the Embryonic Stem Cell Laboratory. Sociology of Health and Illness. 28:732–748.CrossRefGoogle ScholarPubMed
Williams, C., Alderson, P., Farsides, B. 2005. Multidisciplinary Research: Culture Clash or the Best of All Worlds? In Reflecting upon Research: The Perils, Pitfalls and Pleasures of Doing Social Science, Hallowell, N., Lawson, J., Gregory, S. (eds.). London: Open University Press. 91–94.Google Scholar
Williams, C., Wainwright, S. 2013. Bioethics. In Key Concepts in Medical Sociology, Gabe, J., Monaghan, L. (eds.). London: Sage. 140–143.Google Scholar
References
Alderson, P. 1990. Choosing for Children: Parents’ Consent to Surgery. Oxford University Press.Google Scholar
Alvey, J. 1999. A Short History of Economics as a Moral Science. Journal of Markets and Morality. 2(1):53–73.Google Scholar
Anspach, R. 1993. Deciding Who Lives: Fateful Choices in the Intensive-Care Nursery. Berkeley: University of California Press.CrossRefGoogle Scholar
Archard, D. 2011. Why Moral Philosophers Are Not and Should Not Be Moral Experts. Bioethics. 29(3):119–127.CrossRefGoogle Scholar
Ashcroft, R. 2008. Fair Process and the Redundancy of Bioethics: A Polemic. Public Health Ethics. 1(1):3–9.CrossRefGoogle Scholar
Bennett, R., Cribb, A. 2003. The Relevance of Empirical Research to Bioethics: Reviewing the Debate. In Scratching the Surface of Bioethics, Hayry, M., Takala, T. (eds.). Amsterdam: Rodopi. 9–18.CrossRefGoogle Scholar
Bosk, C. 1992. All God’s Mistakes: Genetic Counselling in a Pediatric Hospital. Chicago: University of Chicago Press.Google Scholar
Brody, B. 1993. Assessing Empirical Research in Bioethics. Theoretical Medicine. 14:211–219.CrossRefGoogle ScholarPubMed
Caplan, A. 1982. Mechanics on Duty: The Limitations of a Technical Definition of Moral Expertise for Work in Applied Ethics. Canadian Journal of Philosophy. 8:1–18.Google Scholar
De Vries, R., Turner, L., Orfali, K., & Bosk, C. 2006. Sociology of Health and Illness, vol. 28, no. 6.Google Scholar
Draper, H., Ives, J. 2007. An Empirical Approach to Bioethics: Social Science ‘of’, ‘for’ and ‘in’ Bioethics Research. Cognition, Brain & Behavior. XI(2):319–330.Google Scholar
Driver, J. 2013. Moral Expertise, Judgment, Practice and Analysis. Social Philosophy and Policy. 30(1–2):280–296.CrossRefGoogle Scholar
Dunn, M., Gurtin-Broadbent, Z., Wheeler, J., Ives, J. 2008. Jack of All Trades, Master of None? Challenges Facing Junior Academic Researchers in Bioethics. Clinical Ethics. 3(4):160–163.CrossRefGoogle Scholar
Edwards, K., Deans, Z. 2016. Empirical Bioethics and the Role of the Ethicist in Policy Making: Politics, Authority and Expertise. This volume.CrossRefGoogle Scholar
Farsides, B., Williams, C. 2016. Lessons from Experience: Establishing and Running Interdisciplinary Mixed-Method Bioethics Research. This volume.CrossRefGoogle Scholar
Frith, L. 2012. Symbiotic empirical Ethics: A Practical Methodology. Bioethics. 26(4):198–206.CrossRefGoogle ScholarPubMed
Frith, L. 2009. Process and Consensus – Ethical Decision-Making in the Infertility Clinic: A Qualitative Study. Journal of Medical Ethics. 35(11):662–667.CrossRefGoogle ScholarPubMed
Gesang, B. 2010. Are Moral Philosophers Moral Experts? Bioethics. 24(4):153–159.CrossRefGoogle ScholarPubMed
Green, R.M. 1990. Methods in Bioethics. Journal of Medicine and Philosophy. 15(2):179–197.CrossRefGoogle ScholarPubMed
Greenhalgh, T., et al. 2016. An Open Letter to the BMJ Editors on Qualitative Research. BMJ. 2016(352):i563.CrossRefGoogle Scholar
Haimes, E., Williams, R. 2007. Sociology, Ethics, and the Priority of the Particular: Learning from a Case Study of Genetic Deliberations. The British Journal of Sociology. 58(3)457–476.CrossRefGoogle ScholarPubMed
Herrera, C. 2008. Is It Time for Bioethics to Go Empirical? Bioethics. 22(3):137–146.CrossRefGoogle ScholarPubMed
Ives, J. 2014. A Method of Reflexive Balancing in a Pragmatic, Interdisciplinary and Reflexive Bioethics. Bioethics. 28(6):302–312.CrossRefGoogle Scholar
Ives, J., Draper, H. 2009. Appropriate Methodologies for Empirical Bioethics: It’s All Relative. Bioethics. 23:249–258.CrossRefGoogle ScholarPubMed
Kong, W.-M., et al. 2011. Include Medical Ethics in the Research Excellence Framework. BMJ. 343:d3968.CrossRefGoogle ScholarPubMed
Krishnan, A. 2009. What Are Academic Disciplines? ESRC NCRM Working Paper series 03/09.Google Scholar
Levitt, M. 2004. Complementarity Rather than Integration (a Response to Integrated Empirical Ethics). Medicine, Health Care and Philosophy. 7:81–83.CrossRefGoogle Scholar
Lewens, T. 2004. Is Something Wrong with Bioethics? Studies in History and Philosophy of Biological and Biomedical Sciences. 35:121–123.CrossRefGoogle Scholar
Lillehammer, H. 2004. Who Needs Bioethicists? Studies in History and Philosophy of Biological and Biomedical Sciences. 35:131–144.CrossRefGoogle Scholar
Maxwell, J. 1996. Qualitative Research Design: An interactive approach. Thousand Oaks: Sage.Google Scholar
McMillan, J. 2016. Empirical Bioethics and the Fact/Value Distinction. This volume.CrossRefGoogle Scholar
Mertz, M., Inthorn, J., Renz, G., Rothenberger, L., Salloch, S., Schildman, J., Wohlke, S., Schicktanz, S. 2014. Research across the Disciplines: A Road Map for Quality Criteria in Empirical Ethics Research. BMC Medical Ethics. 15:17.CrossRefGoogle ScholarPubMed
Miller, V. 2013. Publishing in Empirical Bioethics: Challenges and Opportunities. Online presentation http://cctst.uc.edu/sites/default/files/files/Miller%202_22%20PM%20Publishing%20in%20Bioethics%202_19_13%20UPDATED(1).pdf.Google Scholar
Moher, et al. 2009. Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement. BMJ. 339:b2535 DOI 10.1136/bmj.b2535.CrossRefGoogle ScholarPubMed
Molewijk, B., Frith, L. 2009. Empirical Ethics: Who Is the Don Quixote? Bioethics. 23(4):ii–iv.CrossRefGoogle ScholarPubMed
Molewijk, B., Stiggelbout, A.M., Otten, W., Dupuis, H.M., Kievit, J. 2004. Empirical Data and Moral Theory: A Plea for Integrated Empirical Ethics. Medicine, Health Care and Philosophy. 7:55–69.CrossRefGoogle ScholarPubMed
Murphy, E., Dingwall, R., Greatbatch, D., Parker, S., Watson, P. 1998. Qualitative Research Methods in Health Technology Assessment: A Review of the Literature. Health Technology Assessment. 2:(16).CrossRefGoogle ScholarPubMed
Pierce, S.J. 1991. Subject Areas, Disciplines, and the Concept of Authority. Library and Information Science Research. 13(1):21–35.Google Scholar
Research Councils UK. 2014. Applications across Research Council Remits, www.rcuk.ac.uk/funding/fundingagreement/ [Accessed April 2014].Google Scholar
Salloch, et al. 2012. Empirical Research in Medical Ethics: How Conceptual Accounts on Normative-Empirical Collaboration May Improve Research Practice. BMC Medical Ethics. 13:5.CrossRefGoogle ScholarPubMed
Spencer, L., Ritchie, J., Lewis, J., Dillon, L. 2003. Quality in Qualitative Evaluation: A Framework for Assessing Research Evidence. The Cabinet Office, ISBN: 07715 04465 8.Google Scholar
Stiggelbout, A.M., Molewijk, A., Otten, W., Timmermans, D., van Bockel, J., Kievit, J. 2004. Ideas of Patient Autonomy in Clinical Decision Making: A Study on the Development of a Scale to Assess Patients’ and Physicians’ Views. Journal of Medical Ethics. 30:268–274.CrossRefGoogle Scholar
Strathern, M. 2005. Anthropology and Interdisciplinarity. Arts and Humanities in Higher Education. 4(2):130.CrossRefGoogle Scholar
Tong, A., Sainsbury, P., Craig, J. 2007. Consolidated Criteria for Reporting Qualitative Research (COREQ): A 32-Item Checklist for Interviews and Focus Groups. International Journal for Quality in Health Care. 19(6):349–357.CrossRefGoogle ScholarPubMed
Weisz, G. 1990. Social Science Perspectives on Medical Ethics. Dordrecht: Kluwer.CrossRefGoogle Scholar
Wenger, E.C. 2006. Communities of Practice: A Brief Introduction. http://wenger-trayner.com/theory/.Google Scholar
White, K. 2002. An Introduction to the Sociology of Health and Illness. London: Sage.CrossRefGoogle Scholar