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13 - Using Digital Communication Support in Interaction Involving People with Dementia

Interactional Strategies to Facilitate Participation and Engagement

from Part 5 - Communicative Challenges in Everyday Social Life

Published online by Cambridge University Press:  21 November 2024

Peter Muntigl
Affiliation:
Universiteit Gent, Belgium
Charlotta Plejert
Affiliation:
Linköpings Universitet, Sweden
Danielle Jones
Affiliation:
University of Bradford
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Summary

This chapter explores the challenges faced by individuals with dementia and their caregivers in communication. It focuses on the potential of personalized communication applications on tablet computers to support interactions. While various communication aids have proven valuable in addressing dementia-related communication issues, digital tools like tablet computers are relatively new in this context. The analysis centers on two key aspects of interaction: caregivers’ use of questions and the management of communication support devices. Results reveal that questioning individuals with dementia can be both challenging and rewarding. The chapter emphasizes the importance of awareness regarding potential issues with certain types of questions and the readiness to address difficulties in interaction. Regarding the management of digital applications, the study suggests that aligning with the associations of the person with dementia and being responsive to their contributions may enhance conversation development. The findings underscore the significance of prioritizing conversation over facts and being attuned to the person with dementia’s conversational trajectory to promote their active participation and engagement. Overall, understanding how the management of communication support influences outcomes may enhance the effectiveness of such tools in facilitating meaningful conversations with individuals with dementia.

Type
Chapter
Information
Dementia and Language
The Lived Experience in Interaction
, pp. 292 - 315
Publisher: Cambridge University Press
Print publication year: 2024

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References

Alm, N., Astell, A., Ellis, M., Dye, R., Gowans, G. and Campbell, J. (2004) ‘A cognitive prosthesis and communication support for people with dementia.’ Neuropsychological Rehabilitation, 14(1/2): 117134. doi: 10.1080/09602010343000147.CrossRefGoogle Scholar
Alzheimer’s Society. (2007) Home from Home: A Report Highlighting the Opportunities for Improving Standards of Dementia Care in Care Homes. London: Alzheimer’s Society.Google Scholar
Astell, A. J. and Parsons, M. S. (2010) ‘CIRCA: Technology to prompt reminiscing and conversation between residents in care homes and care staff.’ Gerontechnology 9(2): 6869. doi: 10.4017/gt.2010.09.02.049.00.CrossRefGoogle Scholar
Astell, A. J., Ellis, M. P., Alm, N., Dye, R., Campbell, J. and Gowans, G. (2004) ‘Facilitating communication in dementia with multimedia technology.’ Brain and Language, 91(1): 8081.CrossRefGoogle Scholar
Astell, A. J., Ellis, M. P., Bernardi, L., Alm, N., Dye, R., Gowans, G. and Campbell, J. (2010) ‘Using a touch screen computer to support relationships between people with dementia and caregivers.’ Interacting With Computers, 22(4)(Supportive Interaction: Computer Interventions for Mental Health): 267275. doi:10.1016/j.intcom.2010.03.003.CrossRefGoogle Scholar
Astell, A., Gradisek, J., Bizjak, J., Gjoreski, H., Gams, M., Goljuf, K., Cabrera-Umipierrez, M. F., Montalva, J. J., Karavidopoulou, Y., Panou, M., Toulioue, K., Kaklanise, N., Stavrotheodorose, S., Tzovarase, D., Kaimakamisf, E., Laakso, K., Buchholz, M., Derbring, S., Samuelsson, C., Ekström, A., Garcia, A., Chamorro Matak, J., Smith, S. K., Stephen Potter, S., Tabak, M., Dekker-Van Weering, M., Cossu-Ergecern, F. and Black, B. (2018) ‘IN-LIFE – Independent Living Support Functions for the Elderly: Technology and Pilot Overview.’ In Chatzigiannakis, I., Tobe, Y., Novais, P. and Amft, O. (eds.) Intelligent Environments 2018: Workshop Proceedings of the 14th International Conference on Intelligent Environments. Amsterdam: IOS, pp. 526535. doi:10.3233/978-1-61499-874-7-526.Google Scholar
Azuma, T. and Bayles, K. A. (1997) ‘Memory impairments underlying language difficulties in dementia.’ Topics in Language Disorders, 18(1): 5871.CrossRefGoogle Scholar
Baker, R., Angus, D., Smith-Conway, E., Baker, K., Gallois, C., Smith, A. and Chenery, H. J. (2015) ‘Visualising conversations between care home staff and residents with dementia.’ Ageing and Society, 35(2): 270297.CrossRefGoogle Scholar
Bayles, K. A. (2001) ‘Understanding the neuropsychological syndrome of dementia.’ Seminars in Speech and Language, 42(4): 251260.CrossRefGoogle Scholar
Bayles, K. A. and Tomoeda, C. K. (2014) Cognitive-Communication Disorders of Dementia : Definition, Diagnosis, and Treatment. San Diego, CA : Plural Publishing, Inc.Google Scholar
Beukelman, D. R., Fager, S., Ball, L. and Dietz, A. (2007) ‘AAC for adults with acquired neurological conditions: A review.’ Augmentative and Alternative Communication, 23(3): 230242.CrossRefGoogle ScholarPubMed
Bourgeois, M. S. and Hickey, E. M. (2009) Dementia: From Diagnosis to Management—A Functional Approach. New York: Psychology Press.Google Scholar
Brooker, D. and Duce, L. (2000) ‘Wellbeing and activity in dementia: A comparison of group reminiscence therapy, structured goal-directed group activity and unstructured time.’ Aging & Mental Health, 4(4): 354358.CrossRefGoogle Scholar
Burgio, L. D., Allen-Burge, R., Roth, D. L., Bourgeois, M. S., Dijkstra, K., Gerstle, J., Jackson, E. and Bankester, L. (2001) ‘Come talk with me: Improving communication between nursing assistants and nursing home residents during care routines.’ The Gerontologist, 41(4): 449460.CrossRefGoogle ScholarPubMed
Cook, C., Fay, S. and Rockwood, K. (2009) ‘Verbal repetition in people with mild-to-moderate Alzheimer disease: A descriptive analysis from the VISTA Clinical Trial.’ Alzheimer Disease and Associated Disorders, 23(2): 146151.CrossRefGoogle ScholarPubMed
Ekström, A., Ferm, U. and Samuelsson, C. (2017) ‘Digital communication support and Alzheimer’s disease.’ Dementia, 16(6): 711731.CrossRefGoogle ScholarPubMed
Evans, S., Fear, T., Means, R. and Vallelly, S. (2007) ‘Supporting independence for people with dementia in extra care housing.’ Dementia, 6: 144150.CrossRefGoogle Scholar
Finnema, E., Dröes, R. M., Ribbe, M. and Van Tilburg, W. (2000) ‘The effects of emotion‐oriented approaches in the care for persons suffering from dementia: A review of the literature.’ International Journal of Geriatric Psychiatry, 15(2): 141161.3.0.CO;2-5>CrossRefGoogle ScholarPubMed
Fried-Oken, M., Rowland, C., Daniels, D., Dixon, M., Fuller, B., Mills, C. and Oken, B. (2012) ‘AAC to support conversation in persons with moderate Alzheimer’s disease.’ Augmentative and Alternative Communication, 28(4): 219231.CrossRefGoogle ScholarPubMed
Gowans, G., Campbell, J., Alm, N., Dye, R., Astell, A. and Ellis, M. (2004) ‘Designing a multimedia conversation aid for reminiscence therapy in dementia care environments.’ In CHI’04 Extended Abstracts on Human Factors in Computing Systems. New York: ACM, pp. 825836.CrossRefGoogle Scholar
Guendouzi, J. and Davis, B. H. (2014) ‘Dementia discourse and pragmatics.’ In Davis, B. H., Guendouzi, J. and Morón, R. G. (eds.) Pragmatics in Dementia Discourse. Newcastle upon Tyne: Cambridge Scholars Publishing, pp. 128.Google Scholar
Heritage, J. (1984) Garfinkel and Ethnomethodology. Cambridge, MA: Polity Press.Google Scholar
Higginbotham, D. J., Shane, H., Russell, S. and Caves, K. (2007) ‘Access to AAC: Present, past, and future.’ Augmentative and Alternative Communication, 23(3): 243257.CrossRefGoogle ScholarPubMed
Hitch, D., Swan, J., Pattison, R. and Stefaniak, R. (2017) ‘Use of touchscreen tablet technology by people with dementia in homes: A scoping review.’ Journal of Rehabilitation and Assistive Technologies Engineering, 4. doi: 10.1177/2055668317733382.CrossRefGoogle ScholarPubMed
Hoey, E. M. (2020) ‘Waiting to inhale: On sniffing in conversation.’ Research on Language and Social Interaction, 53(1): 118139.CrossRefGoogle Scholar
Hydén, L-C. (2018) Entangled Narratives. Collaborative Storytelling and the Re-imagining of Dementia. Oxford: Oxford University Press.Google Scholar
Jansson, G. (2016) ‘“You’re doing everything just fine”: Praise in residential care settings.’ Discourse Studies, 18(1): 6486. doi: 10.1177/1461445615613186.CrossRefGoogle Scholar
Johansson, M. (2015) Cognitive Impairment and Its Consequences in Everyday Life. Doctoral dissertation, Linköping University Electronic Press.CrossRefGoogle Scholar
Murphy, J. and Boa, S. (2012) ‘Using the WHO-ICF with talking mats to enable adults with long-term communication difficulties to participate in goal setting.’ Augmentative and Alternative Communication, 28: 5260.CrossRefGoogle ScholarPubMed
Murphy, J., Oliver, T. M. and Cox, S. (2010) ‘Talking mats and involvement in decision making for people with dementia and family carers’. Full report, Joseph Rowntree Foundation. www.talkingmats.com/wp-content/uploads/2013/09/Dementia-and-Decision-Making-full-report2.pdf.Google Scholar
Örulv, L. and Nikku, N. (2007) ‘Dignity work in dementia care: Sketching a microethical analysis.’ Dementia, 6: 507525.CrossRefGoogle Scholar
Perkins, L., Whitworth, A. and Lesser, R. (1998) ‘Conversing in dementia: A conversation analytic approach.’ Journal of Neurolinguistics, 11(1–2): 3353.CrossRefGoogle Scholar
Prince, M. and Jackson, J. (2009) World Alzheimer’s report. www.alz.co.uk/research/world-report/.Google Scholar
Sacks, H. (1992) Lectures on Conversation, Vol. I and II. Oxford: Blackwell.Google Scholar
Sacks, H., Schegloff, E. A. and Jefferson, G. (1974) ‘A simplest systematics for the organization of turn-taking for conversation.’ Language, 50(4): 696735.CrossRefGoogle Scholar
Schegloff, E. A. (2007Sequence Organization in Interaction: Volume 1: A Primer in Conversation Analysis (Vol. 1). Cambridge: Cambridge University Press.Google Scholar
Searson, R., Hendry, A. M., Ramachandran, R., Burns, A. and Purandare, N. (2008) ‘Activities enjoyed by patients with dementia together with their spouses and psychological morbidity in carers.’ Aging and Mental Health, 12(2): 276282.CrossRefGoogle ScholarPubMed
Small, J. A. and Perry, J. (2005) ‘Do you remember? How caregivers question their spouses who have Alzheimer’s disease and the impact on communication.’ Journal of Speech, Language, and Hearing Research, 48(1): 125136.CrossRefGoogle Scholar
Small, J. A., Gutman, G., Makela, S. and Hillhouse, B. (2003) ‘Effectiveness of communication strategies used by caregivers of persons with Alzheimer’s disease during activities of daily living.’ Journal of Speech, Language, and Hearing Research, 46(2): 353367.CrossRefGoogle ScholarPubMed
Smith, S. and Astell, A. J. (2018) ‘Technology-supported group activity to promote communication in dementia: A protocol for a within-participants study.’ Technologies, 6(1): 33. doi: 10.3390/technologies6010033.CrossRefGoogle Scholar
Swan, K., Hopper, M., Wenke, R., Jackson, C., Till, T. and Conway, E. (2018) ‘Speech-language pathologist interventions for communication in moderate–severe dementia: A systematic review.’ American Journal of Speech-Language Pathology, 27(2): 836852.CrossRefGoogle ScholarPubMed
Upton, P., Jones, T., Jutla, K. and Brooker, D. (2011) Evaluation of the impact of touch screen technology on people with dementia and their carers within care home settings. Department of Health West Midlands, University of Worcester. http://79.170.44.96/lifestorynetwork.org.uk/wp-content/uploads/downloads/2012/11/evaluation-of-the-impact-of-the-use-of-touchscreen-technology-with-people-with-dementia-.pdfGoogle Scholar
Wray, A. (2010) ‘“We’ve had a wonderful, wonderful thing”: Formulaic interaction when an expert has dementia.’ Dementia, 9(4): 517534.CrossRefGoogle Scholar
Yasuda, K., Kuwabara, K., Kuwahara, N., Abe, S. and Tetsutani, N. (2009) ‘Effectiveness of personalised reminiscence photo videos for individuals with dementia.’ Neuropsychological Rehabilitation, 19(4): 603619.CrossRefGoogle ScholarPubMed

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