Book contents
- Dementia and Language
- Studies in Interactional Sociolinguistics
- Dementia and Language
- Copyright page
- Contents
- Figures
- Tables
- Contributors
- Transcript notation key
- Part 1 Introduction
- 1 Interaction Research and Dementia
- Part 2 Dementia and Diagnostics
- Part 3 Dementia and Conversational Strategies
- Part 4 Dementia and Epistemics
- Part 5 Communicative Challenges in Everyday Social Life
- Index
- References
1 - Interaction Research and Dementia
from Part 1 - Introduction
Published online by Cambridge University Press: 21 November 2024
Book contents
- Dementia and Language
- Studies in Interactional Sociolinguistics
- Dementia and Language
- Copyright page
- Contents
- Figures
- Tables
- Contributors
- Transcript notation key
- Part 1 Introduction
- 1 Interaction Research and Dementia
- Part 2 Dementia and Diagnostics
- Part 3 Dementia and Conversational Strategies
- Part 4 Dementia and Epistemics
- Part 5 Communicative Challenges in Everyday Social Life
- Index
- References
Summary
In this introductory chapter, we provide a brief overview of some of the main topics related to dementia communication research that are addressed by the different chapters in this edited volume: Dementia and Diagnostics, Dementia and Conversational Strategies, Dementia and Epistemics, and Communicative Challenges in Everyday Social Life. One of the central aims of this volume is to shed more light on how persons with dementia accomplish relevant goals in interaction and also how changes in an individual’s discursive abilities may impact how conversationalists negotiate a world in common and continue to build their social relationships. All contributions for this edited volume draw on the methods of Conversation Analysis (CA), an approach to social interaction that provides a detailed view of the moment-by-moment accomplishment of social life. By exploring interactional practices through the lens of CA, this volume seeks to explore interactions involving people with dementia in a variety of contexts (everyday and institutional), pointing to both the interactional difficulties that often arise, but also the creativity and collaboration within these interactional encounters. A summary of each of the volume’s chapters is also provided.
- Type
- Chapter
- Information
- Dementia and LanguageThe Lived Experience in Interaction, pp. 3 - 22Publisher: Cambridge University PressPrint publication year: 2024
References
Aggarwal, N., Vass, A. A., Minardi, H. A., Ward, R., Garfield, C. and Cybyk, B. (2003) ‘People with dementia and their relatives: personal experiences of Alzheimer’s and of the provision of care.’ Journal of Psychiatric and Mental Health Nursing, 10: 187–197.CrossRefGoogle ScholarPubMed
Albert, S. (2021) Virtual Assistants and Personal Assistants in Homecare Interactions: A Conversation Analytic Case Study (Blog, 20 October). Available: https://saulalbert.net/blog/virtual-assistants-and-personal-assistants-in-homecare-interactions-conversational-user-interfaces-as-assistive-technologies/.Google Scholar
Alzheimer’s Disease International (ADI) (2019) World Alzheimer’s report. Available: www.alzint.org/u/WorldAlzheimerReport2019.pdf.Google Scholar
Alzheimer Europe ( 2018) The Development of Intercultural Care and Support for People with Dementia from Minority Ethnic Groups. Available: www.alzheimer-europe.org/sites/default/files/alzheimer_europe_ethics_report_2018.pdf.Google Scholar
Alzheimer’s Research UK (2023) Dementia Leading Cause of Death in 2022. 12 April. Available: www.alzheimersresearchuk.org/dementia-leading-cause-of-death-in-2022/#:~:text=The%20Office%20for%20National%20Statistics,61%2C250%20(10.4%25)%20in%202021.Google Scholar
Alzheimer’s Society (2023) Types of Dementia. Available www.alzheimers.org.uk/about-dementia/types-dementia. accessGoogle Scholar
Antaki, C. (2011) Applied Conversation Analysis. Intervention and Change in Institutional Talk. Basingstoke: Palgrave Macmillan.Google Scholar
Appell, J., Kertesz, A. and Fisman, M. (1982) ‘A study of language functioning in Alzheimer patients.’ Brain and Language, 17(1): 73–91.CrossRefGoogle ScholarPubMed
Bayles, K. A. (1984) ‘Language and dementia.’ In Holland, A. (ed.) Language Disorders in Adults: Recent Advances. San Diego: College-Hill Press, pp. 209–244.Google Scholar
Bayles, K.A. (2003) ‘Effects of working memory deficits on the communicative functioning of Alzheimer’s dementia patients.’ Journal of Communication Disorders, 36: 209–219.CrossRefGoogle ScholarPubMed
Blair, M., Marczinski, C. A., Davis-Faroque, N. and Kertesz, A. (2007) ‘A longitudinal study of language decline in Alzheimer’s disease and frontotemporal dementia.’ Journal of the International Neuropsychological Society, 13(2): 237–245.CrossRefGoogle ScholarPubMed
Boden, D., and Zimmerman, D. H. (eds.) (1991) Talk and Social Structure: Studies in Ethnomethodology and Conversation Analysis. University of California Press.Google Scholar
Crisp, J. (1999) ‘Towards a partnership in maintaining personhood.’ In Adams, T. and Clarke, C. L. (eds.) Dementia Care. Developing Partnerships in Practice. London: Ballière Tindall, pp. 95–119.Google Scholar
Department of Health (DoH) (2012) Prime Minister’s challenge on dementia: Delivering major improvements in dementia care and research by 2015. Available: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/215101/dh_133176.pdf.Google Scholar
Dooley, J., and Webb, J. (2024) ‘Atypical interactions in healthcare: A state-of-the-art review of conversation-analytic research, with reflections on equity, diversity and inclusion.’ Research on Language and Social Interaction 57(1), 109–126.CrossRefGoogle Scholar
Dooley, J., Bass, N. and McCabe, R. (2018) ‘How do doctors deliver a diagnosis of dementia in memory clinics?’ British Journal of Psychiatry, 212(4): 239–245.CrossRefGoogle ScholarPubMed
Elsey, C., Drew, P., Jones, D., Blackburn, D., Wakefield, S., Harkness, K. and Reuber, M. (2015) ‘Towards diagnostic conversational profiles of patients presenting with dementia or functional memory disorders to memory clinics.’ Patient Education and Counselling, 98(9): 1071–1077.CrossRefGoogle ScholarPubMed
Equality Act 2010 (England, Wales, Scotland). Available: www.legislation.gov.uk/ukpga/2010/15/contents.Google Scholar
Goffman, E. (1967) Interaction Ritual: Essays on Face-to-Face Interaction. New York: Pantheon Books.Google Scholar
Guendouzi, J. A. and Müller, N. (2006) Approaches to Discourse in Dementia. Mahwah, NJ: Lawrence Erlbaum Associates.CrossRefGoogle Scholar
Hamilton, H. E. (1994) Conversations with an Alzheimer’s Patient: An Interactional Sociolinguistic Study. Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Hamilton, H. E. (2008) ‘Language and dementia: Sociolinguistic aspects.’ Annual Review of Applied Linguistics, 28: 91–110.CrossRefGoogle Scholar
Heritage, J. (2012a) ‘Epistemics in Action: Action Formation and Territories of Knowledge.’ Research on Language and Social Interaction, 45(1): 1–29, https://doi.org/10.1080/08351813.2012.646684.CrossRefGoogle Scholar
Heritage, J. (2012b) ‘The epistemic engine: Sequence organization and territories of knowledge.’ Research on Language and Social Interaction, 45(1): 30–52, https://doi.org/10.1080/08351813.2012.646685.CrossRefGoogle Scholar
Heritage, J. and Atkinson, J. M. (1984) ‘Introduction.’ In Atkinson, J. M. and Heritage, J. (eds.) Structures of Social Action: Studies in Conversation Analysis. Cambridge: Cambridge University Press, pp. 1–16.Google Scholar
Heritage, J. and Clayman, S. (2011) Talk in Action: Interactions, Identities, and Institutions. Hoboken: John Wiley and Sons.Google Scholar
Hydén, L. C. and Örulv, L. (2009) ‘Narrative and identity in Alzheimer’s disease: A case study.’ Journal of Aging Studies, 23(4): 205–214.CrossRefGoogle Scholar
Hydén, L. C., Lindemann, H. and Brockmeier, J. (2014) Beyond Loss. Dementia, Identity, Personhood. New York: Oxford University Press.CrossRefGoogle Scholar
Ingebrand, E. (2023) Dementia and Learning: The Use of Tablet Computers in Joint Activities. Doctoral dissertation, Department of Culture and Society, Linköping University, Sweden. Available: https://liu.diva-portal.org/smash/record.jsf?pid=diva2%3A1754837&dswid=-7156.CrossRefGoogle Scholar
Jones, D. (2006) ‘Please can I come home: Conversations with an Alzheimer’s patient.’ BA (Hons) dissertation, Department of Sociology, University of York, UK.Google Scholar
Jones, D. (2012) ‘Conversations with a person with Alzheimer’s disease: A conversation analytic study.’ Unpublished Ph.D. dissertation. University of York, UK.Google Scholar
Jones, D. (2015) ‘A family living with Alzheimer’s disease: The communicative challenges.’ Dementia: The International Journal of Social Research and Practice, 14(5): 555–573.CrossRefGoogle ScholarPubMed
Jones, D., Drew, P., Elsey, C., Blackburn, D., Wakefield, S., Harkness, K. and Reuber, M. (2016) ‘Conversational assessment in memory clinic encounters: Interactional profiling for differentiating dementia from functional memory disorders.’ Aging and Mental Health, 20(5): 500–509.CrossRefGoogle ScholarPubMed
Jones, D., Wilkinson, R., Jackson, C. and Drew, P. (2020) ‘Variation and interactional non-standardization in neuropsychological tests: The case of the Addenbrooke’s cognitive examination.’ Qualitative Health Research, 30(3): 458–470.CrossRefGoogle ScholarPubMed
Kindell, J., Sage, K., Keady, J. and Wilkinson, R. (2013) ‘Adapting to conversation with semantic dementia: Using enactment as a compensatory strategy in everyday social interaction.’ International Journal of Language and Communication Disorder, 48(5): 497–507.CrossRefGoogle ScholarPubMed
Kitwood, T. (1988) ‘The technical, the personal, and the framing of dementia.’ Social Behaviour, 3: 161–179.Google Scholar
Kitwood, T. (1990) ‘The dialectics of dementia: With particular reference to Alzheimer’s disease.’ Ageing and Society, 10: 177–196.CrossRefGoogle Scholar
Kitwood, T. (1997) Dementia Reconsidered – the Person Comes First. Buckingham: Open University Press.Google Scholar
Labov, W. and Fanshel, D. (1977) Therapeutic Discourse: Psychotherapy as Conversation. New York: Academic Press.Google Scholar
Landmark, A. (2021) ‘Couples living with dementia managing conflicting knowledge claims.’ Discourse Studies, 23(2): 191–212.CrossRefGoogle Scholar
Levinson, S. (2006) ‘On the human “interaction engine”.’ In Enfield, N.J. and Levinson, S.C. (eds.) Roots of Human Sociality: Culture, Cognition and Interaction. Oxford: Berg Publishers, pp. 39–69.Google Scholar
Lindholm, C. (2015) ‘Parallel realities: the interactional management of confabulation in dementia care encounters.’ Research on Language and Social Interaction, 48(2): 176–199.CrossRefGoogle Scholar
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L. (2002) ‘Assessing quality of life in older adults with cognitive impairment.’ Psychosomatic Medicine, 64: 510–519.CrossRefGoogle ScholarPubMed
Majlesi, A. R., and Plejert, C. (2018) ‘Embodiment in tests of cognitive functioning: A study of an interpreter-mediated dementia evaluation.’ Dementia, 17(2): 138–163, https://doi.org/10.1177/1471301216635341.CrossRefGoogle ScholarPubMed
Mikesell, L. (2009) ‘Conversational practices of a frontotemporal dementia patient and his interlocutors.’ Research on Language and Social Interaction, 42(2): 135–162.CrossRefGoogle Scholar
Mikesell, L. (2010) ‘Repetitional responses in frontotemporal dementia discourse: Asserting agency or demonstrating confusion?’ Discourse Studies, 12(4): 465–500.CrossRefGoogle Scholar
Mishler, E. G. (1984) The Discourse of Medicine: Dialectics of Medical Interviews. Norwood, NJ: Ablex Publishing Corporation.Google Scholar
Mirheidari, B., Blackburn, D., Walker, T., Reuber, M. and Christensen, H. (2019) ‘Dementia detection using automatic analysis of conversations.’ Computer Speech & Language, 53: 65–79.CrossRefGoogle Scholar
Mondada, L. (2018) ‘Multiple temporalities of language and body in interaction: Challenges for transcribing multimodality.’ Research on Language and Social Interaction, 51(2): 85–106. https://doi.org/10.1080/08351813.2018.1413878.CrossRefGoogle Scholar
Müller, N. and Guendouzi, J. A. (2005) ‘Order and disorder in conversation: Encounters with dementia of the Alzheimer’s type.’ Clinical Linguistics & Phonetics, 19(5):393–404.CrossRefGoogle ScholarPubMed
Müller, N. and Wilson, B. T. (2008) ‘Collaborative role construction in a conversation with dementia: An application of systemic functional linguistics.’ Clinical Linguistics & Phonetics, 22(10–11): 767–774.CrossRefGoogle Scholar
Neumann, P. J., Kuntz, K. M., Leon, J., Araki, S. S., Hermann, R. C., Hsu, M. and Weinstein, M. C. (1999) ‘Health utilities in Alzheimer’s disease: a cross-sectional study of patients and caregivers.’ Medical Care, 37(1): 27–32.CrossRefGoogle ScholarPubMed
Nilsson, E. (2018) Facing dementia as a we: Investigating couples’ challenges and communicative strategies for managing dementia. Linköping University, Doctoral Dissertation. Available: http://liu.diva-portal.org/smash/get/diva2:1201944/FULLTEXT01.pdf.Google Scholar
Nilsson, E. (2022) ‘Framing dementia experiences in a positive light: Conversational practices in one couple living with dementia.’ Dementia, 21(3): 830–850.CrossRefGoogle Scholar
Örulv, L. and Hydén, L. C. (2006) ‘Confabulation: Sense-making, self-making and world-making in dementia.’ Discourse Studies, 8(5): 647–678.CrossRefGoogle Scholar
Österholm, J. and Samuelsson, C. (2015) ‘Orally positioning persons with dementia in assessment meetings.’ Ageing & Society, 35(2): 367–388, https://doi.org/10.1017/S0144686X13000755.CrossRefGoogle Scholar
Perkins, L., Whitworth, A. and Lesser, R. (1998) ‘Conversing in dementia: A conversation analytic approach.’ Journal of Neurolinguistics, 11(1–2): 33–53.CrossRefGoogle Scholar
Pilnick, A., Trusson, D., Beeke, S., O’Brien, R., Goldberg, S. and Harwood, R. H. (2018) ‘Using conversation analysis to inform role play and simulated interaction in communications skills training for healthcare professionals.’ BMC Medical Education, 18, https://bmcmededuc.biomedcentral.com/articles/10.1186/s12909-018-1381-1.CrossRefGoogle ScholarPubMed
Pomerantz, A. (1980) ‘Telling my side: “Limited access” as a “fishing” device.’ Sociological Inquiry, 50(3–4): 186–198, https://doi.org/10.1111/j.1475-682X.1980.tb00020.x.CrossRefGoogle Scholar
O’Reilly, M. and Lester, J. (2019) ‘Applied conversation analysis for counselling and psychotherapy researchers.’ Counselling & Psychotherapy Research, 19: 97–101.CrossRefGoogle Scholar
Ripich, D., Vertes, D., Whitehouse, P., Fulton, S. and Ekelman, B. (1991) ‘Turn-taking and speech act patterns in the discourse of senile dementia of the Alzheimer’s type patients.’ Brain and Language, 40: 330–343.CrossRefGoogle ScholarPubMed
Sabat, S. (1991a) The Experience of Alzheimer’s Disease: Life Through a Tangled Veil. Oxford: Blackwell.Google Scholar
Sabat, S. (1991b) ‘Turn-taking, turn-giving and Alzheimer’s disease: A case study in conversation.’ Georgetown Journal of Language and Linguistics, 2: 161–175.Google Scholar
Sabat, S. R. and Harré, R. (1992) ‘The construction and deconstruction of self in Alzheimer’s disease.’ Ageing and Society, 12: 443–461.CrossRefGoogle Scholar
Sacks, H. (1995) Lectures on Conversation, Volumes 1 & 2. Edited by Jefferson, G.. Oxford: Wiley-Blackwell.CrossRefGoogle Scholar
Schegloff, E. A. (2006) ‘Interaction: The infrastructure for social institutions, the natural ecological niche for language, and the arena in which culture is enacted.’ In Enfield, N. J. and Levinson, S.C. (eds.) Roots of Human Sociality: Culture, Cognition and Interaction. Oxford: Berg Publishers, pp. 70–96.Google Scholar
Schrauf, R. W. (2020) ‘Epistemic responsibility – labored, loosened, and lost: Staging Alzheimer’s disease.’ Journal of Pragmatics, 168: 56–68.CrossRefGoogle ScholarPubMed
Sidnell, J. (2012) ‘Basic conversation analytic methods.’ In Sidnell, J. and Stivers, T. (eds.) The Handbook of Conversation Analysis. Chichester: Wiley-Blackwell, pp. 77–99.CrossRefGoogle Scholar
Sidnell, J. and Stivers, T. (eds.) (2013) The Handbook of Conversation Analysis. Oxford: Wiley-Blackwell.Google Scholar
Smith, M. S. (2010) ‘Exploring the moral basis of frontotemporal dementia through social action.’ In Mates, A. W., Mikesell, L. and Smith, M. S. (eds.) Language, Interaction and Frontotemporal Dementia: Reverse Engineering the Social Mind. London: Equinox, pp. 49–83.Google Scholar
Stevanovic, M. and Peräkylä, A. (2014) ‘Three orders in the organization of human action: On the interface between knowledge, power, and emotion in interaction and social relations.’ Language in Society, 43(2): 185–207, https://doi.org/10.1017/S0047404514000037.CrossRefGoogle Scholar
Stevanovic, M. and Svennevig, J. (2015) ‘Introduction: Epistemics and deontics in conversational directives.’ Journal of Pragmatics, 78: 1–6, https://doi.org/10.1016/j.pragma.2015.01.008.CrossRefGoogle Scholar
Stokoe, E. (2011) ‘Simulated interaction and communication skills training: The “conversation-analytic role-play method”.’ In Antaki, C. (ed.) Applied Conversation Analysis. Basingstoke: Palgrave Macmillan, pp. 119–139.CrossRefGoogle Scholar
Sweeting, H. and Gilhooly, M. (1997) ‘Dementia and the phenomenon of social death.’ Sociology of Health & Illness, 19(1): 93–117.CrossRefGoogle Scholar
Temple, V., Sabat, S. and Kroger, R. (1999) ‘Intact use of politeness in the discourse of Alzheimer’s sufferers.’ Language & Communication, 19: 163–180.CrossRefGoogle Scholar
Tsekleves, E. and Keady, J. (2021) Design for People Living with Dementia: Interactions and Innovations. Abingdon: Routledge.CrossRefGoogle Scholar
United Nations Convention on the Rights of Persons with Disabilities. Available: www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html.Google Scholar
Watson, C. M., Chenery, H. J. and Carter, M. S. (1999) ‘An analysis of trouble and repair in the natural conversations of people with dementia of the Alzheimer’s type.’ Aphasiology, 13(3): 195–218.CrossRefGoogle Scholar
Webb, J., Lindholm, C. and Williams, V. (2020) ‘Interactional strategies for progressing through quizzes in dementia settings.’ Discourse Studies, 22(4): 503–522, https://doi.org/10.1177/1461445620914673.CrossRefGoogle Scholar
Wilkinson, R. (2019) ‘Atypical interaction: Conversation analysis and communicative impairments.’ Research on Language and Social Interaction, 52(3): 281–299, https://doi.org/10.1080/08351813.2019.1631045.CrossRefGoogle Scholar
Wilson, B. T., Müller, N. and Damico, J. S. (2007) ‘The use of conversational laughter by an individual with dementia.’ Clinical Linguistics & Phonetics, 21(11–12): 1001–1006.CrossRefGoogle ScholarPubMed
World Health Organization (WHO) (2023) Dementia: Fact Sheet. Available: www.who.int/news-room/fact-sheets/detail/dementia.Google Scholar