Skip to main content Accessibility help
×
Hostname: page-component-78c5997874-8bhkd Total loading time: 0 Render date: 2024-11-05T02:04:56.716Z Has data issue: false hasContentIssue false

6 - Outcome measures and research in the community

Published online by Cambridge University Press:  11 August 2009

Michael P. Barnes
Affiliation:
University of Newcastle upon Tyne
Harriet Radermacher
Affiliation:
University of Newcastle upon Tyne
Get access

Summary

Introduction

Measurement and research are key components in the rehabilitative engine. Their ongoing contribution feeds the knowledge base, which not only informs practice and attempts to improve upon it, but also raises the profile of rehabilitation within the medical spectrum, and ultimately wider society. Where it is used as an assessment of efficacy and evaluation, it can justify a need for a specific intervention and monitor progress over time. Such results can satisfy audit criteria, reassure providers and funders of services, as well as aid resource allocation.

As well as being useful, research is essential towards establishing, developing and maintaining effective rehabilitative services. Research and measurement can be carried out in numerous ways and at many different levels. With the steady transition of rehabilitation services into the community, many traditional forms of research and outcome measure are no longer appropriate. It is for this reason that it is necessary to examine the different forms of research and measurement in rehabilitation today, and how they can be applied to the community setting. Some outcome measures have been specifically designed for application in the community, but widescale use is in its infancy. This chapter aims to discuss some of the issues surrounding measurement and research in the community.

Qualitative and quantitative research

The word qualitative implies an emphasis on processes and meanings that are not rigorously examined, or measured (if measured at all), in terms of quantity, amount, intensity, or frequency. Qualitative researchers stress the socially constructed nature of reality, the intimate relationship between the researcher and what is studied, and the situational constraints that shape inquiry … In contrast, quantitative studies emphasise the measurement and analysis of causal relationships between variables, not processes.

(Denzin and Lincoln, 1994)
Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 2003

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Barnes, C. (1992). Qualitative research: valuable or irrelevant. Disability Handicap and Society 7, 115–24CrossRefGoogle Scholar
Bogdan, R. and Biklen, S. (1982). Qualitative Research for Education: an Introduction to Theory and Methods. Boston, MA: Allyn and Bacon
Branfield, F. (1998). What are you doing here? ‘Non-disabled’ people and the disability movement: a response to Robert F. Drake. Disability and Society 13, 143–4CrossRefGoogle Scholar
Britten, N. (1995). Qualitative interviews in medical research. British Medical Journal 311, 251–3CrossRefGoogle ScholarPubMed
Bruster, S., Jarman, B., Bosanquet, N. et al. (1994). National survey of hospital patients. British Medical Journal 309, 1542–6CrossRefGoogle ScholarPubMed
Condeluci, A., Ferris, L. L. and Bogdan, A. (1992). Outcome and value: the survivor perspective. Journal of Head Trauma Rehabilitation 7, 37–45CrossRefGoogle Scholar
Cummins, R. A. (1993). The Comprehensive Quality of Life Scale – Adult, 4th edn (ComQol – A4). Melbourne: School of Psychology, Deakin University
Cummins, R. A. (1997). Assessing quality of life. In Quality of Life for People with Disabilities, 2nd edn, ed. R. Brown, pp. 116–50. Cheltenham: Stanley Thornes
Denzin, N. K. and Lincoln, Y. S. (1994). Introduction: entering the field of qualitative research. In Handbook of Qualitative Research, ed. N. Denzin and Y. Lincoln, pp. 1–17. Thousand Oaks, CA: Sage
Dijkers, M. P. J. M., Whiteneck, G. G. and El-Jaroudi, R. (2000). Measures of social outcomes in disability research. Archives of Physical Medicine and Rehabilitation 81 (Suppl. 2), S63–80CrossRefGoogle Scholar
Duckett, P. S. (1998). What are you doing here? ‘Non disabled’ people and the disability movement: a response to Fran Branfield. Disability and Society 13, 625–8CrossRefGoogle Scholar
Ferris, L. (1992). The Outcome Rating Scale: a Survivor Perspective. Pittsburgh, PA: United Cerebral Palsy
Fielding, N. and Schreier, M. (2001). Introduction: on the compatibility between qualitative and quantitative research methods. Forum: Qualitative Social Research 2 (1)Google Scholar
Jones, J. and Hunter, D. (1995). Consensus methods for medical and health services research. British Medical Journal 311, 376–80CrossRefGoogle ScholarPubMed
Jones, R. (1995). Why do qualitative research?British Medical Journal 311, 2CrossRefGoogle ScholarPubMed
Keen, J. and Packwood, T. (1995). Case study evaluation. British Medical Journal 311, 444–6CrossRefGoogle Scholar
Kitzinger, J. (1995). Introducing focus groups. British Medical Journal 311, 299–302CrossRefGoogle Scholar
Mays, N. and Pope, C. (1995a). Rigour and qualitative research. British Medical Journal 311, 109–12CrossRefGoogle Scholar
Mays, N. and Pope, C. (1995b). Observational methods in health care settings. British Medical Journal 311, 182–4CrossRefGoogle Scholar
McColl, M. A., Davies, D. and Carlson, P. (1999). Transitions to independent living after ABI. Brain Injury 13, 311–30CrossRefGoogle ScholarPubMed
Miller, W. L. and Crabtree, B. F. (1994). Clinical research. In Handbook of Qualitative Research, ed. N. Denzin and Y. Lincoln, pp. 340–52. Thousand Oaks, CA: Sage
Moore, M., Beazley, S. and Maelzer, J. (1998). Researching Disability Issues. Buckingham: Open University Press
Nyein, K., Turner-Stokes, L. and Robinson, I. (1999). The Northwick Park Care Needs Assessment (NPCNA): a measure of community care needs: sensitivity to change during rehabilitation. Clinical Rehabilitation 13, 482–91CrossRefGoogle ScholarPubMed
Pandyan, A. D., Johnson, G. R., Price, C. I. M. et al. (1999). A review of the properties and limitations of the Ashworth and modified Ashworth Scales. Clinical Rehabilitation 13, 373–83CrossRefGoogle ScholarPubMed
Papastrat, L. A. (1992). Outcome and value following brain injury: A financial provider's perspective. Journal of Head Trauma Rehabilitation 7, 11–23CrossRefGoogle Scholar
Pope, C. and Mays, N. (1995). Reaching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research. British Medical Journal 311, 42–5CrossRefGoogle ScholarPubMed
Pound, P. and Ebrahim, S. (1995). National survey of hospital patients. British Medical Journal 310, 938–9Google Scholar
Semlyen, J. K., Summers, S. J. and Barnes, M. P. (1998). Traumatic brain injury: efficacy of multidisciplinary rehabilitation. Archives of Physical Medicine and Rehabililitation 79, 678–83CrossRefGoogle ScholarPubMed
Stilwell, P., Stilwell, J., Hawley, C. and Davies, C. (1998). Measuring outcome in community-based rehabilitation services for people who have suffered traumatic brain injury: the Community Outcome Scale. Clinical Rehabilitation 12, 521–31CrossRefGoogle ScholarPubMed
Turner-Stokes, L. and Turner-Stokes, T. (1997). The use of standardised outcome measures in rehabilitation centres in the UK. Clinical Rehabilitation 11, 306–13CrossRefGoogle Scholar
Turner-Stokes, L., Nyein, K. and Halliwell, D. (1999). The Northwick Park Care Needs Assessment (NPCNA): a directly costable outcome measure in rehabilitation. Clinical Rehabilitation 13, 253–67CrossRefGoogle ScholarPubMed
Tyerman, A. (1999). Outcome measurement in a community head injury service. Neuropsychological Rehabilitation 9, 481–91CrossRefGoogle Scholar
Wade, D. T. (1992). Measurement in Neurological Rehabilitation. Oxford: Oxford University Press
Whiteneck, G. G. (1994). Measuring what matters: key rehabilitation outcomes. Archives of Physical Medicine and Rehabilitation 75, 1073–6CrossRefGoogle ScholarPubMed
Whiteneck, G. G., Charlifue, S. W., Gerhart, K. A. et al. (1992). Quantifying handicap: a new measure of long-term rehabilitation outcomes. Archives of Physical Medicine and Rehabilitation 73, 519–26Google ScholarPubMed
Willer, B., Ottenbacher, K. J. and Coad, M. L. (1994). The Community Integration Questionnaire: a comparative examination. American Journal of Physical Medicine and Rehabilitation 73, 103–11CrossRefGoogle ScholarPubMed
World Health Organization (1980). International Classification of Impairments, Disabilities and Handicaps: a Manual of Classification Relating to the Consequences of Disease. Geneva: WHO.
Wood, R. L. and Worthington, A. D. (1999). Outcome in community rehabilitation: measuring the social impact of disability. Neuropsychological Rehabilitation 9, 505–16CrossRefGoogle Scholar

Save book to Kindle

To save this book to your Kindle, first ensure [email protected] is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×