Book contents
- Beyond Autonomy
- Cambridge Bioethics and Law
- Beyond Autonomy
- Copyright page
- Contents
- Tables
- Contributors
- Acknowledgements
- Introduction
- Part I Exploring Problems of Respect for Autonomy in Bioethics, Law and Society
- Part II The Search for Alternative or Complementary Concepts Surrounding Autonomy
- Part III Beyond Autonomy: Turning to the Community to Protect the Individual
- 9 Duties of Shared Membership in Research Ethics
- 10 Engaging Communities in Human Research in the Global South
- 11 Reducing Shared Vulnerabilities to Data Misuse
- Index
- Books in the Series
10 - Engaging Communities in Human Research in the Global South
from Part III - Beyond Autonomy: Turning to the Community to Protect the Individual
Published online by Cambridge University Press: 20 September 2019
- Beyond Autonomy
- Cambridge Bioethics and Law
- Beyond Autonomy
- Copyright page
- Contents
- Tables
- Contributors
- Acknowledgements
- Introduction
- Part I Exploring Problems of Respect for Autonomy in Bioethics, Law and Society
- Part II The Search for Alternative or Complementary Concepts Surrounding Autonomy
- Part III Beyond Autonomy: Turning to the Community to Protect the Individual
- 9 Duties of Shared Membership in Research Ethics
- 10 Engaging Communities in Human Research in the Global South
- 11 Reducing Shared Vulnerabilities to Data Misuse
- Index
- Books in the Series
Summary
The relative inaccessibility of effective treatments for common conditions that plague people in the least developed countries (LDCs)1 has perpetuated the ongoing global health disparity. Such well-documented impact has highlighted, among other problems, the inequitable production of health knowledge relevant to addressing disease burdens in these regions. People in LDCs suffer from the greatest burden of disease and disability, but that burden has received the least medical research attention. One study examined twenty-six poverty-related diseases that are responsible for 13.8 per cent of the global disease burden. It found that these conditions only received 1.34 per cent of global health-related R&D expenditure.2 Researchers and pharmaceutical companies in developed countries mostly focus on the priorities of wealthy regions.3 Due to high costs and other geo-political factors, many impoverished nations have not been able to invest in the necessary infrastructure for clinical research, perpetuating the knowledge gap among regions.
- Type
- Chapter
- Information
- Beyond AutonomyLimits and Alternatives to Informed Consent in Research Ethics and Law, pp. 168 - 182Publisher: Cambridge University PressPrint publication year: 2019