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34 - Sharing of Alzheimer’s Disease Research Data in the Global Alzheimer’s Association Interactive Network

from Section 4 - Imaging and Biomarker Development in Alzheimer’s Disease Drug Discovery

Published online by Cambridge University Press:  03 March 2022

By
Cally Xiao ,
Scott C. Neu  and
Arthur W. Toga
Edited by
Jeffrey Cummings ,
Jefferson Kinney  and
Howard Fillit
Jeffrey Cummings
Affiliation:
University of Nevada, Las Vegas
Jefferson Kinney
Affiliation:
University of Nevada, Las Vegas
Howard Fillit
Affiliation:
Alzheimer’s Drug Discovery Foundation
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Summary

The Global Alzheimer’s Association Interactive Network (GAAIN) connects researchers to data collected by Alzheimer’s disease (AD) and dementia studies from around the world. To date, GAAIN links together 54 data partners, over 500,000 subjects, and over 30,000 data attributes into one navigable network. Studies that participate in GAAIN benefit from increased publicity, exposure, and opportunities for collaboration while keeping data ownership and subject privacy protected. Researchers who use GAAIN can discover new data sets, visualize results of preliminary analyses, and are directed on how to apply for data access. The architecture underlying GAAIN is uniquely designed to address the different needs of both data partners and researchers. GAAIN supports both longitudinal and cross-sectional studies, and it is fully leveraged when researchers aggregate multiple studies across different countries and continents into meta-analyses. Exploration of remote data and analyses can ultimately benefit clinical trials as well as contribute to the global effort to solve AD and dementia-related pathologies.

Keywords

Alzheimer’s diseasedementiaepidemiologydata-sharingbig datameta-analysisstatistics
Type
Chapter
Information
Alzheimer's Disease Drug Development
Research and Development Ecosystem
 , pp. 395 - 403
Publisher: Cambridge University Press
Print publication year: 2022

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