Skip to main content Accessibility help

We use cookies to distinguish you from other users and to provide you with a better experience on our websites. Close this message to accept cookies or find out how to manage your cookie settings.

Close cookie message
×
Hostname: page-component-78c5997874-94fs2 Total loading time: 0 Render date: 2024-11-06T02:24:26.520Z Has data issue: false hasContentIssue false

5 - Family-based Interventions

from Section 1 - Evidence-based Cognitive Rehabilitation

Published online by Cambridge University Press:  25 June 2018

By
Shari L. Wade ,
Elizabeth I. LeBlond  and
Emily L. Shultz
Edited by
Gianna Locascio  and
Beth S. Slomine
Gianna Locascio
Affiliation:
NYU Langone Health, New York
Beth S. Slomine
Affiliation:
Kennedy Krieger Institute, Baltimore
Get access

Summary

A summary is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Chapter
Information
Cognitive Rehabilitation for Pediatric Neurological Disorders , pp. 100 - 121
Publisher: Cambridge University Press
Print publication year: 2018

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1.Nickels, K. C., Zaccariello, M. J., Hamiwka, L. D., et al. Cognitive and neurodevelopmental comorbidities in paediatric epilepsy. Nat Rev Neurol 2016;12(8):465–76.CrossRefGoogle ScholarPubMed
2.Annett, R. D., Patel, S. K., Phipps, S. Monitoring and assessment of neuropsychological outcomes as a standard of care in pediatric oncology. Pediatr Blood Cancer 2015;62(S5):S460–513.CrossRefGoogle ScholarPubMed
3.Li, L., Liu, J. The effect of pediatric traumatic brain injury on behavioral outcomes: A systematic review. Dev Med Child Neurol 2013;55(1):37–45.Google Scholar
4.Rashid, M., Goez, H. R., Mabood, N., et al. The impact of pediatric traumatic brain injury (TBI) on family functioning: a systematic review. J Pediatr Rehabil Med 2014;7(3):241.Google Scholar
5.Yeates, K. O. Mild traumatic brain injury and postconcussive symptoms in children and adolescents. J Int Neuropsychol Soc 2010;16(6):953–60.Google Scholar
6.Wade, S. L., Taylor, H. G., Yeates, K. O., et al. Long-term parental and family adaptation following pediatric brain injury. J Pediatr Psychol 2006;31(10):1072–83.Google Scholar
7.Wade, S. L., Taylor, H. G., Drotar, D., et al. Family burden and adaptation during the initial year after traumatic brain injury in children. Pediatrics 1998;102(1 Pt 1): 110–6.CrossRefGoogle ScholarPubMed
8.Hawley, C. A., Ward, A. B., Magnay, A. R., et al. Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Inj 2003;17(1):1–23.CrossRefGoogle ScholarPubMed
9.Narad, M. E., Yeates, K. O., Taylor, H. G., et al. Maternal and paternal distress and coping over time following pediatric traumatic brain injury. J Pediatr Psychol 2016;42(3): 304–14.Google Scholar
10.Wade, S. L., Walz, N. C., Cassedy, A., et al. Caregiver functioning following early childhood TBI: Do moms and dads respond differently? NeuroRehabilitation 2010;27(1):63–72.Google Scholar
11.Wade, S. L., Michaud, L., Brown, T. M. Putting the pieces together: preliminary efficacy of a family problem-solving intervention for children with traumatic brain injury. J Head Trauma Rehabil 2006;21(1):57–67.Google Scholar
12.Bendikas, E. A., Wade, S. L., Cassedy, A., et al. Mothers report more child-rearing disagreements following early brain injury than do fathers. Rehabil Psychol 2011;56(4):374–82.CrossRefGoogle ScholarPubMed
13.Sambuco, M., Brookes, N., Lah, S. Paediatric traumatic brain injury: a review of siblings’ outcome. Brain Inj 2008;22(1):7–17.CrossRefGoogle ScholarPubMed
14.Sambuco, M., Brookes, N., Catroppa, C., et al. Predictors of long-term sibling behavioral outcome and self-esteem following pediatric traumatic brain injury. J Head Trauma Rehabil 2012;27(6):413.Google Scholar
15.Swift, E. E., Taylor, H. G., Kaugars, A. S., et al. Sibling relationships and behavior after pediatric traumatic brain injury. J Dev Behav Pediatr 2003;24(1):24–31.CrossRefGoogle ScholarPubMed
16.Wade, S. L., Zhang, N., Yeates, K. O., et al. Social environmental moderators of long-term functional outcomes of early childhood brain injury. JAMA Pediatrics 2016;170(4):343–9.CrossRefGoogle ScholarPubMed
17.Hooper, L., Huw, Williams W., Sarah, E. W., et al. Caregiver distress, coping and parenting styles in cases of childhood encephalitis. Neuropsychol Rehabil 2007;17(4–5):621–37.CrossRefGoogle ScholarPubMed
18.Aitken, M. E., McCarthy, M. L., Slomine, B. S., et al. Family burden after traumatic brain injury in children. Pediatrics 2009;123(1):199–206.Google Scholar
19.Wade, S. L., Cassedy, A., Walz, N. C., et al. The relationship of parental warm responsiveness and negativity to emerging behavior problems following traumatic brain injury in young children. Dev Neuropsychol 2011;47(1):119–33.Google Scholar
20.Kurowski, B. G., Taylor, H. G., Yeates, K. O., et al. Caregiver ratings of long-term executive dysfunction and attention problems after early childhood traumatic brain injury: Family functioning is important. PM R 2011;3(9):836–45.CrossRefGoogle ScholarPubMed
21.Potter, J. L., Wade, S. L., Walz, N. C., et al. Parenting style is related to executive dysfunction after brain injury in children. Rehabil Psychol 2011;56(4):351–8.Google Scholar
22.Micklewright, J. L., King, T. Z., O’Toole, K., Henrich, C., Floyd, F. J. Parental distress, parenting practices, and child adaptive outcomes following traumatic brain injury. J Int Neuropsychol Soc 2012;18(2): 343–50.Google Scholar
23.Gerring, J. P., Wade, S. L. The essential role of psychosocial risk and protective factors in pediatric traumatic brain injury research. J Neurotrauma 2012;29(4):621–8.Google Scholar
24.Wade, S. L., Zhang, N., Yeates, K. O. Social environmental moderators of long-term functional outcomes of early childhood brain injury. JAMA Pediatrics 2016;170(4):343–9.Google Scholar
25.Ach, E., Gerhardt, C. A., Barrera, M., et al. Family factors associated with academic achievement deficits in pediatric brain tumor survivors. Psychooncology 2013;22(8):1731–7.Google Scholar
26.Singer, G. S., Glang, A., Nixon, C., et al. A comparison of two psychosocial interventions for parents of children with acquired brain injury: An exploratory study. J Head Trauma Rehabil 1994;9(4):38–49.Google Scholar
27.Shilling, V., Morris, C., Thompson‐Coon, J., et al. Peer support for parents of children with chronic disabling conditions: A systematic review of quantitative and qualitative studies. Dev Med Child Neurol 2013;55(7):602–9.CrossRefGoogle ScholarPubMed
28.Wade, S. L., Walz, N. C., Carey, J., et al. Effect on behavior problems of teen online problem-solving for adolescent traumatic brain injury. Pediatrics 2011;128(4):e947–53.CrossRefGoogle ScholarPubMed
29.Wade, S. L., Carey, J., Wolfe, C. R. The efficacy of an online cognitive-behavioral family intervention in improving child behavior and social competence following pediatric brain injury. Rehabil Psychol 2006;51(3):179–89.CrossRefGoogle Scholar
30.Wade, S. L., Carey, J., Wolfe, C. R. An online family intervention to reduce parental distress following pediatric brain injury. J Consult Clin Psychol 2006;74(3):445–54.CrossRefGoogle ScholarPubMed
31.Raj, S. P., Antonini, T. N., Oberjohn, K. S., et al. Web-based parenting skills program for pediatric traumatic brain injury reduces psychological distress among lower-income parents. J Head Trauma Rehabil 2015;30(5):347.Google Scholar
32.Antonini, T. N., Raj, S. P., Oberjohn, K. S., et al. An online positive parenting skills programme for paediatric traumatic brain injury: Feasibility and parental satisfaction. J Telemed Telecare 2012;18(6):333–8.CrossRefGoogle ScholarPubMed
33.Antonini, T. N., Raj, S. P., Oberjohn, K. S., et al. A pilot randomized trial of an online parenting skills program for pediatric traumatic brain injury: Improvements in parenting and child behavior. Behav Ther 2014;45(4):455–68.Google Scholar
34.Wade, S. L., Walz, N. C., Carey, J., et al. A randomized trial of teen online problem solving: Efficacy in improving caregiver outcomes after brain injury. Health Psychol 2012;31(6):767–76.Google Scholar
35.Glang, A., McLaughlin, K., Schroeder, S. Using interactive multimedia to teach parent advocacy skills: An exploratory study. J Head Trauma Rehabil 2007;22(3):198–205.Google Scholar
36.Sahler, O. Z., Fairclough, D. L., Phipps, S., et al. Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: Report of a multisite randomized trial. J Consult Clin Psychol 2005;73(2):272–83.Google Scholar
37.Sahler, O. Z., Dolgin, M. J., Phipps, S., et al. Specificity of problem-solving skills training in mothers of children newly diagnosed with cancer: Results of a multisite randomized clinical trial. J Clin Oncol 2013;31(10):1329–35.Google Scholar
38.Mullins, L. L., Fedele, D. A., Chaffin, M., et al. A clinic-based interdisciplinary intervention for mothers of children newly diagnosed with cancer: A pilot study. J Pediatr Psychol 2012;37(10):1104–15.Google Scholar
39.Fedele, D. A., Hullmann, S. E., Chaffin, M., et al. Impact of a parent-based interdisciplinary intervention for mothers on adjustment in children newly diagnosed with cancer. J Pediatr Psychol 2013;38(5):531–40.Google Scholar
40.Narad, M. E., Minich, N., Taylor, H. G., et al. Effects of a web-based intervention on family functioning following pediatric traumatic brain injury. J Dev Behav Pediatr 2015;36(9): 700–7.Google Scholar
41.Wade, S. L., Kurowski, B. G., Kirkwood, M. W., et al. Online problem-solving therapy after traumatic brain injury: A randomized controlled trial. Pediatrics 2015;135(2):e495.Google Scholar
42.Kurowski, B. G., Wade, S. L., Kirkwood, M. W., et al. Long-term benefits of an early online problem-solving intervention for executive dysfunction after traumatic brain injury in children: A randomized clinical trial. JAMA Pediatrics 2014;168(6):523–31.Google Scholar
43.Wade, S. L., Taylor, H. G., Cassedy, A., et al. Long-term behavioral outcomes after a randomized, clinical trial of counselor-assisted problem solving for adolescents with complicated mild-to-severe traumatic brain injury. J Neurotrauma 2015;32(13):967–75.CrossRefGoogle ScholarPubMed
44.Tlustos, S. J., Kirkwood, M. W., Taylor, G. H., et al. A randomized problem-solving trial for adolescent brain injury: Changes in social competence. Rehabil Psychol 2016;61(4):347–57.Google Scholar
45.Wade, S. L., Karver, C. L., Taylor, H. G., et al. Counselor-assisted problem solving improves caregiver efficacy following adolescent brain injury. Rehabil Psychol 2014;59(1):1–9.Google Scholar
46.Petranovich, C. L., Wade, S. L., Taylor, H. G., et al. Long-term caregiver mental health outcomes following a predominately online intervention for adolescents with complicated mild to severe traumatic brain injury. J Pediatr Psychol 2015;40(7):680–8.Google Scholar
47.Nezu, A. M., Nezu, C. M., D’Zurilla, T. J. Solving Life’s Problems: A 5-Step Guide to Enhanced Well-Being. New York, NY: Springer, 2007.Google Scholar
48.Ylvisaker, M., Feeney, T. Collaborative Brain Injury Intervention: Positive Everyday Routines. San Diego, CA: Singular Publishing Group, Inc, 1998.Google Scholar
49.Gan, C., Gargaro, J., Kreutzer, J. S., et al. Development and preliminary evaluation of a structured family system intervention for adolescents with brain injury and their families. Brain Inj 2010;24(4):651–63.Google Scholar
50.Gan, C., Ballantyne, M. Brain injury family intervention for adolescents: A solution-focused approach. NeuroRehabilitation 2016;38(3):231.CrossRefGoogle ScholarPubMed
51.Eyberg, S. Parent–child interaction therapy: Integration of traditional and behavioral concerns. Child Fam Behav Ther. 1988;10(1):33–46.Google Scholar
52.Wiggins, T. L., Sofronoff, K., Sanders, M. R.. Pathways Triple P-positive parenting program: Effects on parent–child relationships and child behavior problems. Fam Process 2009;48(4):517–30.Google Scholar
53.WebsterStratton, C., Jamila Reid M., Stoolmiller, M. Preventing conduct problems and improving school readiness: evaluation of the Incredible Years Teacher and Child Training Programs in high-risk schools. J Child Psychol Psychiatry 2008;49(5):471–88.Google Scholar
54.Woods, D. T., Catroppa, C., Giallo, R., et al. Feasibility and consumer satisfaction ratings following an intervention for families who have a child with acquired brain injury. NeuroRehabilitation 2012;30(3):189.Google Scholar
55.Brown, F. L., Whittingham, K., McKinlay, L., et al. Efficacy of stepping stones triple P plus a stress management adjunct for parents of children with an acquired brain injury: The protocol of a randomised controlled trial. Brain Impair 2013;14(2):253–69.Google Scholar
56.Brown, F. L., Whittingham, K., Boyd, R. N., et al. Improving child and parenting outcomes following paediatric acquired brain injury: A randomised controlled trial of Stepping Stones Triple P plus Acceptance and Commitment Therapy. J Child Psychol Psychiatry 2014;55(10):1172–83.CrossRefGoogle ScholarPubMed
57.Brown, F. L., Whittingham, K., Boyd, R. N., et al. Does Stepping Stones Triple P plus Acceptance and Commitment Therapy improve parent, couple, and family adjustment following paediatric acquired brain injury? A randomised controlled trial. Behav Res Ther 2015;73:58–66.CrossRefGoogle ScholarPubMed
58.Cohen, M. L., Heaton, S. C., Ginn, N., et al. Parent-child interaction therapy as a family-oriented approach to behavioral management following pediatric traumatic brain injury: A case report. J Pediatr Psychol 2012;37(3):251.CrossRefGoogle ScholarPubMed
59.Hayes, S. C., Strosahl, K. D., Wilson, K. G. Acceptance and Commitment Therapy: An Experiential Approach to Behavior Change. New York: Guilford Publications. 1999.Google Scholar
60.Glueckauf, R. L., Fritz, S. P., Ecklund-Johnson, E. P., et al. Videoconferencing-based family counseling for rural teenagers with epilepsy: Phase 1 findings. Rehabil Psychol 2002;47(1):49–72.Google Scholar
61.Nelson, E. L., Bui, T. N., Velasquez, S. E. Telepsychology: Research and practice overview. Child Adolesc Psychiatr Clin N Am 2011;20(1):67–79.Google Scholar
62.Rayner, M., Muscara, F., Dimovski, A., et al. Take A Breath: Study protocol for a randomized controlled trial of an online group intervention to reduce traumatic stress in parents of children with a life threatening illness or injury. BMC Psychiatr 2016;16(1):169.Google Scholar
63.Wade, S. L., Oberjohn, K., Conaway, K., et al. Live coaching of parenting skills using the internet: Implications for clinical practice. Prof Psychol Res Pract 2011;42:487–93.Google Scholar
64.Faul, M., Xu, L., Wald, M. M., et al. Traumatic Brain Injury in the United States: Emergency Department Visits, Hospitalizations and Deaths 2002–2006. 2010. www.cdc.gov/traumaticbraininjury/pdf/blue_book.pdf. (Accessed December 12, 2016.)Google Scholar
65.Slomine, B. S., McCarthy, M. L., Ding, R., et al. Health care utilization and needs after pediatric traumatic brain injury. Pediatrics 2006;117(4):E663–E74.CrossRefGoogle ScholarPubMed
66.Karver, C. L., Kurowski, B., Semple, E. A., et al. Utilization of behavioral therapy services long-term after traumatic brain injury in young children. Arch Phys Med Rehabil 2014;95(8):1556–63.Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure [email protected] is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×