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This chapter maps the practical, conceptual, and normative gaps that this book seeks to fill. It does so, first, by exploring information subjects’ limited entitlements to access bioinformation about themselves on identity-related grounds, under existing laws and policies in the UK. It observes that while there are various provisions allowing subject access to bioinformation, those explicitly premised on identity interests are currently restricted to genetic information, particularly that concerning genetic parentage. This represents not only narrow protection of potential identity-related interests but also reflects an inadequate conception of these interests, one which risks being both unwarranted exceptionalist and promulgating a geneticised view of identity. Seeking ways to address these shortcomings, the discussion turns to assess whether existing theoretical framings of the relationship between personal bioinformation and identity might be capable of providing a satisfactory conception of identity-related interests in access. This review identifies a number of promising interpretations of this relationship, but it is argued that, taken on their own, many of these lack sufficient explanatory and normative foundations. This chapter concludes by proposing that a cluster of accounts that appeal to the concept of narrative identity offer a fruitful avenue for further investigation.
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