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I reflect on coming to terms with and then living with Rebecca’s mental illness, the difficulties of being a supportive carer as well as a husband and dealing with Rebecca’s changing state of mind. I also discuss some of the challenges that we have dealt with over the years, including family communications and the NHS.
This qualitative study explores therapists’ and participants’ preferences for delivery methods (face-to-face and phone sessions) of a cognitive behavioral therapy-based psychosocial intervention for prenatal anxiety delivered in a tertiary care hospital.
Setting
The research was conducted in a randomized controlled trial in Pakistan, where a shift from face-to-face to phone-based therapy occurred during the coronavirus disease-2019 (COVID-19) pandemic.
Participants
Twenty in-depth interviews and a focus group discussion were conducted with participants and therapists, respectively. Transcripts were analyzed using thematic analysis.
Results
Participants generally preferred face-to-face sessions for rapport building, communication, and comprehension. However, barriers like venue accessibility, childcare, and lack of family support hindered engagement. Telephone sessions were favored for easy scheduling and the comfort of receiving the session at home, but there were challenges associated with phone use, distractions at home, and family members’ limited mental health awareness. A mix of face-to-face and telephone sessions was preferred, with rapport from in-person sessions carrying over to telephone interactions.
Conclusion
This study underscores the need for adaptable intervention delivery strategies that consider cultural norms, logistical challenges, and individual family dynamics. By combining the benefits of both delivery methods, mental health interventions can be optimized to effectively address prenatal anxiety and promote well-being in resource-constrained settings like Pakistan.
The aim of this study was to explore healthcare professionals’ experiences of working with extended home visits for parents.
Background:
It is essential to identify parents, both expectant and with a newborn child, who need support in their parenting abilities at an early stage because children’s health and well-being are affected by their home environment as well as by their parents’ health and social relationships. Home visits represent a cost-effective way of identifying and supporting families with a newborn. Further research is needed to explore healthcare professionals’ experiences working with extended home visits for parents.
Methods:
This was a qualitative interview study focusing on an intervention introduced in the Enhanced Parenting—Extended Home Visits project in Sweden. Data were collected via 13 semi-structured interviews with healthcare professionals who provide the intervention in antenatal care (midwives) and child health care (CHC nurses and family supporters), and a qualitative content analysis was performed.
Findings:
Data analysis resulted in one theme and four categories. The theme – to provide multidimensional adapted professional support, – and the four categories – strengthened collaboration between professionals enriches their work. Home visits provide time for conversation, which promotes continuity of care and relationships with parents; being humble guests in parents’ homes provides insight; and home visits provide the opportunity to strengthen parenting and participation in the family centre. The goals of the Enhanced Parenting—Extended Home Visits project were to strengthen parents’ confidence in their parenting abilities and to build trusting relationships with healthcare professionals. The conclusion of this study, from the participants’ perspective, is that these goals can be achieved with the intervention.
Implications for Practice:
Extended home visits seem to help healthcare professionals provide collaborative, multi-professional support for parents, both expectant and with a newborn child, with unique support needs.
Social workers and other professionals often become involved in the lives of families due to concerns about the safety and wellbeing of children. Interventions that address such concerns by harnessing the protective and nurturing capacity of parents, and other carers, are a vital focus for work with families. However, children are rights-bearing citizens deserving of services and supports in their own right. This chapter therefore argues for a rights-based, relational approach to practice that is inclusive of children. The chapter draws on the United Nations Convention on the Rights of the Child (UNCRC) as a framework for supporting children as rights-bearing citizens with their own agency and decision-making capacity, and argues for relationship-based practice with children and families. The chapter explores how the guiding principles of the UNCRC can inform practice at the level of the individual child, the family, and the community, to increase engagement with, and to improve outcomes for, children. The UNCRC defines a child as any person from birth up to 18 years of age.
This chapter presents a case for actively involving children and young people in the experience of parental cancer, facilitating, and encouraging open and honest communication and age-appropriate provision of information. The voices of children and young people should be listened to and carefully considered. More child friendly spaces are needed. Healthcare practitioners play a crucial role involving children and young people, inviting their questions, getting to know and understand their individual needs and how to respond appropriately to them. Families can benefit from emotional, and family support early in the cancer diagnosis to prevent long term negative effects or issues in the future.
Experiencing a parent or guardian with cancer is extremely difficult for children and adolescents with healthcare professionals and cancer support centres often lacking the specialised knowledge needed to also support these individuals. This practical guide provides a comprehensive and current understanding of the impact of parental cancer on children, young people and families. It offers a longitudinal account of the impact of cancer through the different stages of the illness and explores the impact of culture and international contexts on how families experience parental cancer. The book also crucially focuses on how to support children, young people and families by examining existing interventions. Important chapters on death and bereavement, and on self-care for practitioners also supplement the book. A valuable handbook for healthcare practitioners from a range of specialities working with patients and families affected by cancer, including clinical psychology, counselling, nursing, oncology, palliative care and social work.
Although demoralization is common among palliative care patients, it has not yet been examined empirically in the Hong Kong Chinese context. This study aims to examine (1) the prevalence of demoralization among community-dwelling palliative care patients in Hong Kong; (2) the percentage of palliative care patients who are demoralized but not depressed and vice versa; and (3) the association of socio-demographic factors, particularly family support, with demoralization.
Method
A cross-sectional study targeting community-living palliative care patients in Hong Kong was conducted. A total of 54 patients were recruited by a local hospice and interviewed for completing a questionnaire which included measures of demoralization, depression, perceived family support, and demographic information.
Results
The prevalence of demoralization was 64.8%. Although there was overlap between demoralization and depression (52.8% meeting the criteria of both), 7.5% of depressed patients were not demoralized, and 13.2% of demoralized patients were not depressed. Participants who were not single and had more depressive symptoms and less family support had a significantly higher demoralization level.
Significance of results
This is the first study which reports the prevalence of demoralization in Hong Kong. Demoralization was found common in community-living palliative care patients receiving medical social work services in Hong Kong. This study provides evidence of the importance of differentiating the constructs between demoralization and depression. It also provides an implication that those who are married, more depressed, and have the least family support could be the most vulnerable group at risk of demoralization. We recommend that early assessment of demoralization among palliative care patients be considered.
Although most children in Australia and New Zealand enjoy a long life expectancy and high level of wellbeing, paediatric death remains a sad reality for some families, and end-of-life care for children presents an important and challenging area of paediatric nursing practice. Paediatric palliative care begins when a disease is first diagnosed and continues throughout the illness trajectory. It therefore includes, but is not limited to, end-of-life care. Paediatric end-of-life care is the care provided to the child and family towards the end of a child’s life and includes care of the child’s body and support for the family following the child’s death. Although there are distinctions between the two terms, in this chapter they will be used interchangeably. This chapter provides a beginning understanding of some of the common symptoms experienced by, and concerns for, children in end-of-life care and their management, including pain, the management of side-effects of opioids, fatigue, dyspnoea, gastrointestinal disturbances and anxiety. It also discusses communication with dying children and adolescents, and the importance of family communication and support.
There have been over 900,000 deaths from COVID-19, with more than 3 million people bereaved. These deaths are associated with factors leading to poor bereavement outcomes, and distress in frontline-staff
Objectives
to (i)present the rapid implementation of an intervention for bereavement support; (ii)characterize first calls and follow-up.
Methods
We recruited a multidisciplinary team and prepared a structure called “SIB” (Support and Intervention for Bereavement) in a matter of days. There were three steps for the support (Screening, First-line intervention, Second-line intervention (short follow-up). We collected data screening risk factors for complicated grief (CG).
Results
Between March 24th-May 14th (lockdown, March 16th-May 13th), the hotline received nineteen calls for an intervention. The hospital contacts were various, including mortuary. Fifteen relatives were followed, among them thirteen bereaved for ten deaths (on 52 deaths=19.23%). Dead persons were young (m=59.68 years-old, SD=15.25). All contacts reported several risk factors for a CG (no “goodbye” (100%), no funeral rituals (82.35%)). Six relatives were addressed for short follow-up.
Conclusions
The actual pandemic is at high risk for complicated grief and may until 2021. We hope that all hospitals would implement basic bereavement outreach programs to prepare families for the death and to support them afterwards, as well as provide basic support to frontline staff.
Blekinge Family Postvention is a grief facilitator-home-visiting postvention giving early support to families after a suicidal loss since 2015. It helps families overcome shock, pain, anger, guilt, suffering and other extreme emotions caused by suicide. Such situations should be treated not as a disorder. Medication should be used only as a last resort to treat individuals not responding to early family support, followed by individual sessions if needed. Everyone needs to express feelings and thoughts on all aspects of the suddenly interrupted relation. To achieve this, a person experienced in those issues must be leading all of the meetings. The conversations should start during the first days, frequently continuing for at least 3-5 weeks depending on the family needs. Helping the family bear each other and find coping strategies ease their pain, mourning and give them hope instead of prolonged grief. In this way, the family gradually finds new ways to overcome a never-ending negative looping that eventually can cause, e.g. post-traumatic stress disorder and depression. The support to the family after suicide loss should be a governmental matter. Today all work is done voluntarily. The close relatives need debriefing right after the district doctor has stated the death or the police informed the family about suicide. The military, the police, rescue services and healthcare professionals gets debriefing when a rescue operation has failed. This presentation discusses how to organise early family support and the Ellipse project’s interviews with survivors about their experiences of needed or received support if any.
Disclosure
DISCLAIMER The E-Lifelong Learning In Prevention of Suicide In Europe (ELLIPSE)-project is co-funded by the European Union’s Programme Erasmus+ (Project ID: 2019-1-SE01-KA203-060571). The EU Commission’s support for this project does not mean that the Com
The term ‘amaphara’, possibly derived from ‘parasites’, burst into South African public culture in the 2010s to refer to petty thieves addicted to a heroin-based drug locally called whoonga/nyaope. Drawing on ethnography and media sources to interrogate the rise of ‘amaphara’, this paper argues that South Africa's heroin epidemic magnifies the attention – criticism but also sympathy – directed toward marginalised black men who have few prospects for social mobility. It locates amaphara in the national context where drug policy is largely punitive and youth unemployment rates are painfully high, but gives particular attention to families’ and communities’ experiences with intimate crimes, especially petty thefts. It further shows that amaphara is a contested term: heroin users are brothers, sons and grandchildren and they gain most of their income not from crime but by undertaking useful piece work in communities.
Based on nationally representative data (N = 8,901), this study investigates the extent to which expectations for intra-family transfers and government assistance in old age impact the probability of saving for retirement among working-age individuals in Thailand. Results show that expectations for financial non-self-reliance and expectations that family support would constitute the most important source of old-age financial security reduce the probability that working-age individuals would save for retirement. Expectations for government support have no impact on average. Given that filial piety is weakening in Thailand, this study suggests that the government encourage pre-retirement savings more strongly.
The objectives of this study are to describe patients’ experiences of family members’ reactions to diagnosis of breast cancer and investigate the role of family support in the management of breast cancer.
Method
The study used the descriptive qualitative method in data collection and analysis. Fifteen participants, who were undergoing either radiotherapy or chemotherapy treatment at a private hospital, consented and participated in the study. Data were content analyzed under two specific themes on family members’ reactions and family support received.
Findings
The findings show that some participants reported negative reactions of some family members, and this affected them negatively. While some participants received support from their families, others did not.
Significance of findings
The findings of our study show the critical role of family support in the management of breast cancer; therefore, family members should be encouraged to give breast cancer patient the necessary support to help them manage their sick role behavior since their illness has no cure.
Purported superior outcomes for treatment of psychosis in low- and middle-income (LMICs) compared with high-income (HICs) countries have not been examined in the context of early intervention services (EIS).
Aims
To compare 2-year clinical outcomes in first-episode psychosis (FEP) treated in EIS in Chennai (LMIC) and Montreal (HIC) using a similar EIS treatment protocol and to identify factors associated with any outcome differences.
Method
Patients with FEP treated in EIS in Chennai (n = 168) and Montreal (n = 165) were compared on change in level of symptoms and rate and duration of positive and negative symptom remission over a 2-year period. Repeated-measures analysis of variance, and logistic and linear regression analyses were conducted.
Results
Four patients died in Chennai compared with none in Montreal. Family support was higher for Chennai patients (F = 14.05, d.f. = 1, P < 0.001, ƞp2 = 0.061) and increased over time at both sites (F = 7.0, d.f. = 1.915, P < 0.001, ƞp2 = 0.03). Negative symptom outcomes were significantly better in Chennai for level of symptoms (time × site interaction F = 7.36, d.f. = 1.49, P = 0.002, ƞp2 = 0.03), duration of remission (mean 16.1 v. 9.78 months, t = −7.35, d.f. = 331, P < 0.001, Cohen's d = 0.80) and the proportion of patients in remission (81.5% v. 60.3%, χ2 = 16.12, d.f. = 1, P < 0.001). The site differences in outcome remained robust after adjusting for inter-site differences in other characteristics. Early remission and family support facilitated better outcome on negative symptoms. No significant differences were observed in positive symptom outcomes.
Conclusions
Patients with FEP treated in EIS in LMIC contexts are likely to show better outcome on negative symptoms compared with those in HIC contexts. Early remission and family support may benefit patients across both contexts.
In this chapter we review the evidence from a three-country study assessing the impact of the 2008 Great Recession on young people making the step into independent adulthood, comparing experiences in the UK, in Germany, and the USA. Drawing on evidence from large scale, longitudinal studies the experiences of young people coming of age in different cultural contexts are described. The findings suggest that the Great Recession was a significant, but not principal influence on young people’s changing life course post-2008. Better to characterize it as a major economic shock that intensified the impact of pre-existing economic and social processes on young people’s lives.
Nonetheless, the recession effects presented new obstacles to entering and sustaining employment within the adult labor market. In particular the increasing precaritization of employment and marginalization of growing sections of the youth population, including graduates, is a major concern.
In this chapter, we argue that the timing of societal events in an individual’s life plays a major role in shaping that life through interacting developmental processes at multiple levels. We focus on classic research by Elder showing how two such events in historical proximity dramatically altered the lives of California children who were born at opposite ends of the 1920s, 1920–21 and 1928–29, the Great Depression of the 1930s followed by World War II (1941–45) and the Korean War (1950–53). We employ insights from both Elder’s cohort historical life course approach and developmental science including recent work on developmental neuroscience to understand the life-long impact of exposure to events that occur at different times in life, and the mechanisms through which these exposures may influence development, as well as experiences that may provide turning points in development.
This work proposes a conceptual model of psychological adjustment of native and immigrant adolescents who live in Spain. Psychological adjustment was expected to mediate between perceived family support and adolescents’ school adjustment and problem behaviors. Spanish adolescents (n = 156) and immigrant adolescents (n = 137) filled out a self-report questionnaire regarding their perceived family support, psychological adjustment (i.e., self-esteem and life satisfaction), school adjustment, and problem behaviors. Structural Equation Modeling (SEM) was used to examine the relational patterns among these variables. The specific model –with psychological adjustment mediating between family support and school adjustment (z = 2.70, β = .21, p = .007 for Spanish adolescents, and z = 2.42, β = .16, p = .015 for immigrant adolescents), and school adjustment mediating between psychological adjustment and problem behaviors (z = –2.51, β = –.14, p = .012 for Spanish adolescents, and z = –2.01, β = –.11, p = .044 for immigrant adolescents) was confirmed for both samples. An implication of this study is the relevance of adolescents’ family support to their well-being, and the mediating role of psychological adjustment between family support and school adjustment.
This program development report describes the birth of ‘Wondering From the Womb’, a self-determined antenatal yarning resource created through a culturally respectful action research project undertaken in rural Victoria with Indigenous and non-Indigenous community members and professionals. The qualitative reviews completed within Community involved 40 participants who shared their wisdom and experiences regarding antenatal health, parenting and child-rearing practise and connection to Country. The resulting yarning resource, written from the perspective of a baby in the womb, has encouraged curiosity and wonder about what antenates can teach adults and community members regarding their life, learning and healing. Future uses for such a resource are identified with an aim to continue self-determined, culturally respectful service delivery for Indigenous babies, children and families across the Loddon Mallee region.
Despite ‘troubled lives’ increasingly coming under the gaze of (powerful) others, our understanding of the issues at hand seems somewhat detached from the experiences of those subject to policy intervention. Due to the deficit model that presents ‘problem families’ as pathological, the voices of those that experience multiple disadvantages and severe material hardship are rarely heard, or, at worst, silenced. Within the context of hardening public attitudes that increasingly vilify the poor, understanding the connection between the personal and public is both timely and valuable. Drawing upon qualitative research, this paper seeks to listen to the voices of young people who currently reside within a ‘troubled family’. Through an exploration of how young people perceive their biographies, their status as ‘troubled’ or troublesome’, their relationships with significant others and their thoughts and feelings towards the future, we are able to recapture and reclaim contemporary depictions of ‘troubled lives’. Uncovering such lived experiences can also act as a springboard through which to explore how young lives (are likely to) unfold when interpreted against the background of restricted opportunities and social censure.
To examine whether women’s knowledge of pregnancy-related risks and family support received during pregnancy are associated with adherence to maternal iron–folic acid (IFA) supplementation.
Design
Secondary data analysis of the 2002–03, 2007 and 2012 Indonesia Demographic and Health Survey. Analysis of the association between factors associated with adherence (consuming ≥90 IFA tablets), including the women’s knowledge and family support, was performed using multivariate logistic regression.
Setting
National household survey.
Subjects
Women (n 19 133) who had given birth within 2 years prior to the interview date.
Results
Knowledge of pregnancy-related risks was associated with increased adherence to IFA supplementation (adjusted OR=1·8; 95 % CI 1·6, 2·0), as was full family (particularly husband’s) support (adjusted OR=1·9; 95 % CI 1·6, 2·3). Adequate antenatal care (ANC) visits (i.e. four or more) was associated with increased adherence (adjusted OR=2·2; 95 % CI 2·0, 2·4). However, ANC providers missed opportunities to distribute tablets and information, as among women with adequate ANC visits, 15 % reported never having received/bought any IFA tablets and 30 % had no knowledge of pregnancy-related risks. A significant interaction was observed between family support and the women’s educational level in predicting adherence. Family support significantly increased the adherence among women with <9 years of education.
Conclusions
Improving women’s knowledge of pregnancy-related risks and involving family members, particularly the husband and importantly for less-educated women, improved adherence to IFA supplementation. ANC visit opportunities must be optimized to provide women with sufficient numbers of IFA tablets along with health information (especially on pregnancy-related risks) and partner support counselling.