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User-led research and evidence in psychiatry

Published online by Cambridge University Press:  02 January 2018

M. van Beinum*
Affiliation:
MRC Social and Public Health Sciences Unit, University of Glasgow, 4 Lilybank Gardens, Glasgow G12 8RZ, UK
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Abstract

Type
Columns
Copyright
Copyright © 2002 The Royal College of Psychiatrists 

The editorial by Faulkner & Thomas (Reference Faulkner and Thomas2002) raises serious issues, as did another recent paper (Reference Bracken and ThomasBracken & Thomas, 2001: see Reference van Beinumvan Beinum, 2001). They present a false dichotomy between (morally good) ‘users’ and (morally irresponsible) researchers, from which flows an unwarranted assumption that somehow psychiatric research rarely has the interests of patients at heart. Their editorial, with its unsubstantiated statements, poor definitions, political banner-waving and lack of understanding of both science and the research process, is the antithesis of considered and evidence-based argument.

There is, however, no doubt that patients and their families should have a substantial voice in helping to set the questions that research attempts to answer, and in establishing mechanisms for ensuring the importance of this process. This does not mean, however, that being a ‘user’ somehow qualifies a person as a top-notch research scientist. Thus, for example, the user-led research quoted by the authors (Reference FaulknerFaulkner, 2000) was deeply flawed, in that it did not address the issue of researcher bias and some of the conclusions bore no relation to the evidence presented. User groups have their own political agendas and are not representative of the body of patients as a whole.

There is a difference between asking socially relevant questions and conducting sound research. Good research is difficult to do and is best done by teams of well-trained research scientists. Arguing, as Faulkner and Thomas do, that psychiatrists and funding bodies should give equal weight to research conducted by groups of users and by professional researchers is a travesty. We do patients (and ourselves, for many of us have been, or will become, users) no favours by confounding good research with political correctness, for there is nothing more unethical or wasteful than poor research on vulnerable patients.

Footnotes

EDITED BY MATTHEW HOTOPF

References

van Beinum, M. (2001) Psychiatrists need different training for 21st century (letter). BMJ, 323, 452.Google Scholar
Bracken, P. & Thomas, P. (2001) Postpsychiatry; a new direction for mental health. BMJ, 322, 724727 Google Scholar
Faulkner, A. (2000) Strategies for Living: A Report of User-Led Research into People's Strategies for Living with Mental Distress. London: Mental Health Foundation.Google Scholar
Faulkner, A. & Thomas, P. (2002) User-led research and evidence-based medicine. British journal of Psychiatry, 180, 13.CrossRefGoogle ScholarPubMed
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