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Conscience des déficits dans le cadre de la maladie d’Alzheimer : représentations et vécu des professionnels soignants

Published online by Cambridge University Press:  07 March 2024

Julie Vignolo Open the ORCID record for Julie Vignolo [Opens in a new window] ,
Jean-Pierre Jacus ,
Thierry Darnaud  and
Christine Vanessa Cuervo-Lombard Open the ORCID record for Christine Vanessa Cuervo-Lombard [Opens in a new window]
Julie Vignolo*
Affiliation:
Master 2 en Psychologie Clinique et Gérontologie. LCPI : Laboratoire Cliniques Psychopathologique et Interculturelle EA4591, Université Toulouse 2 Jean-Jaurès, 5 Allée Antonio Machado, 31058, Toulouse, France
Jean-Pierre Jacus
Affiliation:
Doctorat. LCPI : Laboratoire Cliniques Psychopathologique et Interculturelle EA4591, Université Toulouse 2 Jean-Jaurès, 5 Allée Antonio Machado, 31058, Toulouse, France
Thierry Darnaud
Affiliation:
HDR. LCPI : Laboratoire Cliniques Psychopathologique et Interculturelle EA4591, Université Toulouse 2 Jean-Jaurès, 5 Allée Antonio Machado, 31058, Toulouse, France
Christine Vanessa Cuervo-Lombard
Affiliation:
HDR. CERPPS : Centre d’Études et de Recherche en Psychopathologie et Psychologie de la Santé EA7411, Université Toulouse 2 Jean-Jaurès, Allée Antonio Machado, 31058, Toulouse, France
*
Auteur de correspondance: Julie Vignolo; Email: Julie.vignolo@univ-tlse2.fr
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Résumé

La qualité des soins apportés aux personnes vivant avec la maladie d’Alzheimer (MA) dépend en partie de la capacité des professionnels à déterminer le degré de conscience de la maladie chez les patients. La présente recherche s’est intéressée aux représentations des soignants concernant la conscience des troubles chez les résidents d’établissements de soins de longue durée présentant un diagnostic de MA. Le pouvoir prédicteur de l’anosognosie sur le fardeau soignant a également été examiné. L’anosognosie des troubles de la construction (r = 0,40, p = 0,0164) et de l’initiation (r = 0,32, p = 0,052) était corrélée au fardeau soignant. Les professionnels se représentaient les résidents comme ayant une conscience altérée de leurs capacités, même en l’absence d’anosognosie. Les scores réels d’anosognosie ne prédisaient pas les estimations soignantes, hormis le score global sous forme de tendance (χ2 = 3,38, p = 0,066). Les soignants surestimaient pourtant les performances cognitives des résidents, telles que mesurées au moyen du protocole Misawareness (prédictions aidants/performances réelles : DC = 12,32, p < 0,0001).

Abstract

Abstract

The quality of care provided to people living with Alzheimer’s Disease (AD) depends, in part, on the ability of professionals to identify the extent of awareness in patients. The present research focused on professional caregivers’ representations concerning patients’ awareness of disorders in residents of long-term care institutions diagnosed with AD. The predictive power of anosognosia on healthcare professionals’ burden was also investigated. Anosognosia for construction and initiation impairments (r= 0.40, p = 0.0164; r = 0.32, p = 0.052) was correlated with caregivers’ burden. Professionals tended to form representations of patients as being unaware of their condition, including in the absence of anosognosia. Indeed, anosognosia scores did not predict professionals’ estimates, except for the overall anosognosia score (χ2 = 3.38, p = 0.066). However, caregivers overestimated patients’ cognitive performances, as measured via the Misawareness protocol (caregiver predictions/actual performances: DC = 12.32, p <0.0001).

Keywords

conscienceanosognosiemaladie d’Alzheimerrelation d’aideaidants formelsvieillissementawarenessanosognosiaAlzheimer’s Diseasecaregivingprofessional caregiversaging
Type
Article
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 43 , Issue 4 , December 2024 , pp. 499 - 506
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Copyright
© Canadian Association on Gerontology 2024

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Footnotes

Remerciements

Nous tenons à remercier Mme Coraline Lethimonnier pour son aide durant l’analyse statistique.

References

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