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The potential unintended consequences of Mental Health Act reforms in England and Wales on people with intellectual disability and/or autism: commentary, author response, Tromans et al

Published online by Cambridge University Press:  04 November 2024

Samuel Tromans*
Affiliation:
Department of Population Health Sciences, University of Leicester, UK; and Leicestershire Partnership NHS Trust, Leicester, UK
Indermeet Sawhney
Affiliation:
Faculty of Psychiatry of Intellectual Disability, Royal College of Psychiatrists, London, UK; and Learning Disability Services, Hertfordshire Partnership NHS Foundation Trust, Hatfield, UK
Rohit Shankar
Affiliation:
Faculty of Psychiatry of Intellectual Disability, Royal College of Psychiatrists, London, UK; Peninsula School of Medicine, University of Plymouth, UK; and Cornwall Partnership NHS Foundation Trust, Truro, UK
*
Correspondence: Samuel Tromans. Email: [email protected]
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Abstract

Type
Commentary
Copyright
Copyright © The Author(s), 2024. Published by Cambridge University Press on behalf of Royal College of Psychiatrists

Response

We wish to thank McKinnon and colleagues for their interest in our article, their thoughtful comments and their shared concerns about the potential unintended consequences of removing intellectual disability and/or autism (ID/A) from Section 3 of the Mental Health Act (MHA) in England and Wales.

We share their view that for people with ID/A where there are significant associated risks, they could be rendered vulnerable in the absence of Section 3 safeguards. Accurate clinical diagnosis of mental illness in people with ID/A frequently takes time, and the absence of such legislative safeguards may lead to such diagnoses being made in haste, potentially exposing patients to treatments that are less likely to be efficacious than with more time available to render a more well informed clinical diagnosis.

As they suggest, the proposed changes could lead to a greater number of people with ID/A being imprisoned. Though prison can be a stressful environment for anyone, people with ID/A may experience a greater level of impact on their mental health and well-being for a variety of reasons, including both a lack of prison staff training and reasonable adjustments being made to the prison environment to support them.Reference McCarthy, Chaplin, Underwood, Forrester, Hayward and Sabet1 Furthermore, as described by Allely and Wood Reference Allely and Wood2 in the context of prisoners with autism, they are more vulnerable to bullying, social isolation, sexual victimisation and exploitation by other prisoners; it is reasonable to suspect that prisoners with intellectual disability may be similarly vulnerable. In comparison, in a hospital setting, such people would be supported by healthcare staff with specialist expertise in ID/A, in an environment better suited to the needs of people with either or both of these conditions.

We agree with McKinnon and colleagues that autism and intellectual disability represent distinctly separate conditions that should be considered separately with respect to legislative change within the context of the MHA. They suggest that considering these conditions together indicates an ideological approach to the suggested changes. This is possible, but the conditions also have a historical association, with the first reported cases of people with autism having co-occurring delayed intellectual development.Reference Thurm, Farmer, Salzman, Lord and Bishop3 Furthermore, autism is more prevalent among people with intellectual disability than their peers without intellectual disability,Reference Brugha, Spiers, Bankart, Cooper, McManus and Scott4 though it is important to recognise that people with autism exist across all levels of intellectual functioning, from those with co-occurring profound intellectual disability to highly intelligent individuals. We share the view expressed by McKinnon and colleagues that these two conditions should not be conflated, and instead be treated as separate diagnostic entities. It is important that the evidence pertaining to the proposed changes for both conditions are considered independently of one another.

Data availability

Data availability is not applicable to this article as no new data were created or analysed in this study.

Author contribution

All authors satisfy the ICMJE guidance by substantially contributing to the work.

Funding

This study received no specific grant from any funding agency, or commercial or not-for-profit sectors.

Declaration of interest

I.S. and R.S. are current office bearers in the Royal College of Psychiatrists’ Faculty of the Psychiatry of Intellectual Disability. S.T. has received research support from the National Institute for Health and Care Research, NHS Digital and Wellcome Trust. R.S. has received institutional and research support from LivaNova, GW/Jazz pharma, UCB, Eisai, Veriton Pharma, Averelle and Destin outside the submitted work.

References

McCarthy, J, Chaplin, E, Underwood, L, Forrester, A, Hayward, H, Sabet, J, et al. Characteristics of prisoners with neurodevelopmental disorders and difficulties. J Intellect Disabil Res 2016; 60: 201–6.CrossRefGoogle ScholarPubMed
Allely, CS, Wood, T. ‘Cardboard gangsters’, ‘in crowd’ and ‘no control’: a case study of autism spectrum disorder in the prison environment. J Intellect Disabil Offending Behav 2022; 13: 5776.CrossRefGoogle Scholar
Thurm, A, Farmer, C, Salzman, E, Lord, C, Bishop, S. State of the field: differentiating intellectual disability from autism spectrum disorder. Front Psychiatry 2019; 10: 526.CrossRefGoogle ScholarPubMed
Brugha, TS, Spiers, N, Bankart, J, Cooper, SA, McManus, S, Scott, FJ, et al. Epidemiology of autism in adults across age groups and ability levels. Br J Psychiatry 2016; 209: 498503.CrossRefGoogle ScholarPubMed
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