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The experiences of help-seeking in people with obsessive compulsive disorder: an internet survey

Published online by Cambridge University Press:  12 August 2016

Thanh Mai Vuong
Affiliation:
School of Nursing, Midwifery & Social Work, The University of Manchester, UK
Judith Gellatly*
Affiliation:
School of Nursing, Midwifery & Social Work, The University of Manchester, UK
Karina Lovell
Affiliation:
School of Nursing, Midwifery & Social Work, The University of Manchester, UK
Penny Bee
Affiliation:
School of Nursing, Midwifery & Social Work, The University of Manchester, UK
*
*Author for correspondence: Dr J. Gellatly, School of Nursing, Midwifery & Social Work, The University of Manchester, Oxford Road, Manchester M13 9PL, UK (email: [email protected])

Abstract

Obsessive compulsive disorder (OCD) is a debilitating mental health disorder, with prevalence in adults of around 3.1%. The social and economic consequences of OCD are high for patients and their families. It is unlikely to improve without treatment. Help-seeking for treatment is often delayed and studies have found an average treatment gap of up to 17 years. This study aimed to explore the factors that influenced how, when and why people sought help and to identify any issues that they faced during help-seeking. Individuals experiencing OCD were invited to complete a web-based survey hosted on a national OCD charity website over a 3-month period. Eighty-eight individuals took part. Most had sought help from their general practitioner (GP), while others accessed websites and private services. Lack of awareness and understanding by health professionals was reported as a problem, as was the speed of referral or getting the right treatment. There is a need for further training and education for health professionals and GPs. Education and awareness campaigns for the general public, with more focus on how help can be sought, and on the different types of OCD may contribute to improving recognition of symptoms and accessing timely help.

Type
Original Research
Copyright
Copyright © British Association for Behavioural and Cognitive Psychotherapies 2016 

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References

Recommended follow-up reading

Cathey, AJ, Wetterneck, CT (2013). Stigma and disclosure of intrusive thoughts about sexual themes. Journal of Obsessive-Compulsive and Related Disorders 2, 439443.Google Scholar
Coles, ME, Coleman, SL (2010). Barriers to treatment seeking for anxiety disorders: initial data on the role of mental health literacy. Depression and Anxiety 27, 6371.CrossRefGoogle ScholarPubMed
Glazier, K, Wetterneck, C, Singh, S, Williams, M (2015). Stigma and shame as barriers to treatment for obsessive-compulsive and related disorders. Journal of Depression and Anxiety 4, 191.Google Scholar

References

Abramowitz, J, Taylor, S, McKay, D (2009). Obsessive-compulsive disorder. Lancet 374, 491499.Google Scholar
Baer, L, Minichiello, WE (2008). Reasons for inadequate utilization of cognitive-behavioral therapy for obsessive–compulsive disorder. Journal of Clinical Psychiatry 69, 676.CrossRefGoogle ScholarPubMed
Belloch, A, Del Valle, G, Morillo, C, Carrio, C, Cabedo, E (2009). To seek advice or not to seek advice about the problem: The help-seeking dilemma for obsessive-compulsive disorder. Social Psychiatry and Psychiatric Epidemiology 44, 257264.Google Scholar
Benuto, LT, Thaler, NS, Leany, BD (2014). Guide to psychological assessment with Asians. Springer.CrossRefGoogle Scholar
Braun, V, Clarke, V (2006). Using thematic analysis in psychology. Qualitative Research in Psychology 3, 77101.Google Scholar
Caraveo-Anduaga, J, Bermudez, E (2004). The epidemiology of obsessive-compulsive disorder in Mexico City. Salud Mental 27, 16.Google Scholar
Christensen, H, Hadzi-Pavlovic, D, Andrews, G, Mattick, R (1987). Behaviour therapy and tricyclic medication in the treatment of obsessive-compulsive disorder: a quantitative review. Journal of Consulting and Clinical Psychology 55, 701–711.Google Scholar
Easton, M (2014). The truth behind the rise in sex crimes (http://www.bbc.co.uk/news/uk-27147864)Google Scholar
Fontenelle, LF, Hasler, G (2008). The analytical epidemiology of obsessive-compulsive disorder: risk factors and correlates. Progress in Neuro-Psychopharmacology & Biological Psychiatry 32, 115.Google Scholar
Glazier, K, Calixte, RM, Rothschild, R, Pinto, A (2013). High rates of OCD symptom misidentification by mental health professionals. Annals of Clinical Psychiatry 25, 201209.Google Scholar
Goodman, WK, Price, LH, Rasmussen, SA, Mazure, C, Fleischmann, RL, Hill, CL, Heninger, GR, Charney, DS (1989). The Yale-Brown Obsessive Compulsive Scale: 1. Development, use and reliability. Archives of General Psychiatry 46, 10061011.Google Scholar
Goodwin, R, Koenen, KC, Hellman, F, Guardino, M, Struening, E (2002). Help-seeking and access to mental health treatment for obsessive-compulsive disorder. Acta Psychiatrica Scandinavica 106, 143149.Google Scholar
Kelly, J, Winterman, D (2011). OCD, bipolar, schizophrenic and the misuse of mental health terms (http://www.bbc.co.uk/news/magazine-15213824).Google Scholar
Kessler, RC, Üstün, TB (2004). The World Mental Health (WMH) survey initiative version of the World Health Organization (WHO) composite international diagnostic interview (CIDI). International Journal of Methods in Psychiatric Research 13, 93121.Google Scholar
Kohn, R, Saxena, S, Levav, I, Saraceno, B (2004). The treatment gap in mental health care. Bulletin of the World Health Organization 82, 858866.Google ScholarPubMed
Koran, LM, Ringold, AL, Elliott, MA (2000). Olanzapine augmentation for treatment-resistant obsessive compulsive disorder. Journal of Clinical Psychiatry 61, 514517.Google Scholar
Layard, R, Banerjee, S, Bell, S, Clark, D, Field, S, Knapp, M, Meacher, M, Naylor, C, Parsonage, M, Scott, S, Strang, J, Thornicroft, G, Wesseley, S (2012). How mental illness loses out in the NHS. Report by the Centre of Economic Performance’s Mental Health Policy Group, The London School of Economics and Political Sciences, London.Google Scholar
Livingston, JD, Cianfrone, M, Korf-Uzan, K, Coniglio, C (2014). Another time point, a different story: one year effects of a social media intervention on the attitudes of young people towards mental health issues. Social Psychiatry and Psychiatric Epidemiology 49, 985990.Google Scholar
Lovell, K, Bee, P (2008). Implementing the NICE OCD/BDD guidelines. Psychology and Psychotherapy: Theory, Research and Practice 81, 365376.CrossRefGoogle ScholarPubMed
Marques, L, LeBlanc, NJ, Weingarden, HM, Timpano, KR, Jenike, M, Wilhelm, S (2010). Barriers to treatment and service utilization in an internet sample of individuals with obsessive–compulsive symptoms. Depression and Anxiety 27, 470475.Google Scholar
Meltzer, H, Gill, B, Petticrew, M, Hinds, K (1995). OCPS Surveys of Psychiatric Morbidity in Great Britain, Report 1: The prevalence of psychiatric morbidity among adults living in private households. London: HMSO.Google Scholar
Moulding, R, Aardema, F, O'Connor, KP (2014). Repugnant obsessions: a review of the phenomenology, theoretical models, and treatment of sexual and aggressive obsessional themes in OCD. Journal of Obsessive-Compulsive and Related Disorders 3, 161168.CrossRefGoogle Scholar
NICE (2005). Obsessive-compulsive disorder: core interventions in the treatment of obsessive-compulsive disorder and body dysmorphic disorder (Clinical Guideline 31). London: National Institute for Health and Clinical Excellence.Google Scholar
Sax, LJ, Gilmartin, SK, Bryant, AN (2003). Assessing response rates and nonresponse bias in web and paper surveys. Research in Higher Education 44, 409432.CrossRefGoogle Scholar
Simonds, LM, Thorpe, SJ (2003). Attitudes toward obsessive-compulsive disorders. Social Psychiatry and Psychiatric Epidemiology 38, 331336.Google Scholar
Subramaniam, M, Abdin, E, Vaingankar, J, Chong, S (2012). Obsessive-compulsive disorder: Prevalence, correlates, help-seeking and quality of life in a multiracial Asian population. Social Psychiatry and Psychiatric Epidemiology 47, 2035–43.CrossRefGoogle Scholar
Torres, AR, Prince, MJ, Bebbington, PE, Bhugra, D, Brugha, TS, Farrell, M, Jenkins R Lewis, G, Meltzer, H (2006). Obsessive-compulsive disorder: prevalence, comorbidity, impact, and help-seeking in the British National Psychiatric Morbidity Survey of 2000. American Journal of Psychiatry 163, 19781985.Google Scholar
Vanin, JR (1990). Obsessive-compulsive disorder: Suffering in silence. Journal of American College Health 39, 4748.Google Scholar
Veale, D, Roberts, A (2014). Obsessive-compulsive disorder. British Medical Journal 348, 2183–2183.Google Scholar
Wise, J (2014). Only half of patients referred for talking therapies enter treatment. British Medical Journal 348, 4.Google Scholar
Zohar, J (2007). OCD: towards DSM-V. International Journal of Psychiatry in Clinical Practice 11, 14.Google Scholar
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