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Mortality among Institutionalised People with Learning Disabilities in Greece: A 30-Year Survey at the Leros PIKPA Asylum

Published online by Cambridge University Press:  06 August 2018

A. Perakis ,
G. Kolaitis ,
P. Kordoutis ,
M. Kranidioti  and
J. Tsiantis
A. Perakis
Affiliation:
Association for Child and Adolescent Psychosocial Health, Holargos
G. Kolaitis
Affiliation:
Department of Psychological Paediatrics, “Aghia Sophia” Children's Hospital, Athens
P. Kordoutis
Affiliation:
Department of Psychological Paediatrics, “Aghia Sophia” Children's Hospital, Athens
M. Kranidioti
Affiliation:
Child-Psychiatric Hospital of Attica, Athens
J. Tsiantis*
Affiliation:
Medical School, University of Athens, Department of Psychological Paediatrics, “Aghia Sophia” Children's Hospital, Athens, Greece
*
Professor John Tsiantis, Director, Department of Psychological Paediatrics, “Aghia Sophia” Children's Hospital, GR 11527 Athens, Greece
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Extract

The life expectancy of institutionalised people with learning disabilities is shorter than that of the general population. Data on population dynamics in institutions for such people are vital for planning purposes. Mortality can be considered a crude measure of quality of health care. Mortality data on the 914 admissions to the Leros PIKPA asylum for children and young adults with learning disabilities and associated problems in the years 1961–91 were reviewed. The overall crude mortality rate was 59.2 deaths per 1000 person-years. Twenty-two per cent of the deaths occurred within a year after admission. Age-specific mortality rates were particularly high for those aged one to four years, and declined thereafter. Male residents had lower mortality than female residents in almost all of the age groups. Compared with sex- and age-specific mortality data for the general population of Greece, the observed rates were 20–150 times higher but still comparable to those reported for people with more severe learning disabilities in institutions in other countries. Lifetable analysis by length of stay showed that male residents had a statistically significant higher probability of survival than female residents, which could not be attributed to age-related differential mortality. Culture-specific differential admission criteria may account for the observed sex difference.

Type
Research Article
Information
The British Journal of Psychiatry , Volume 167 , Issue S28: The Children of Leros PIKPA , July 1995 , pp. 70 - 77
Copyright
Copyright © 1995 The Royal College of Psychiatrists 

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References

Altman, B. M. (1981) Studies of attitudes toward the handicapped: the need for a new direction. Social Problems, 28, 321–337.CrossRefGoogle Scholar
Asberg, K. H. (1989) The need for medical care among mentally retarded adults. A 5-year follow-up and comparison with a general population of the same age. British Journal of Mental Subnormality, 68, 50–57.CrossRefGoogle Scholar
Balakrishnan, T. R. & Wolf, C. L. (1976) Life expectancy of mentally retarded persons in Canadian institutions. American Journal of Mental Deficiency, 90, 650–662.Google Scholar
Blisard, K. S., Martin, C., Brown, G. W., et al (1988) Causes of death of patients in an institution for the developmentally disabled. Journal of Forensic Sciences, 33, 1457–1462.CrossRefGoogle Scholar
Bouras, N., Webb, Y., Clifford, P., et al (1992) A needs survey among patients in Leros asylum. British Journal of Psychiatry, 161, 75–79.CrossRefGoogle ScholarPubMed
Bradley, V. J. (1978) Deinstitutionalization of Developmentally Disabled Persons. Baltimore: University Park Press.Google Scholar
Carter, G. & Jancar, J. (1983) Mortality in the mentally handicapped: a 50 year survey at the Stoke Park group of hospitals (1930–1980). Journal of Mental Deficiency Research, 27, 143–156.Google ScholarPubMed
Chaney, R. H., Eyman, R. K. & Miller, C. R. (1979) Comparison of respiratory mortality in the profoundly mentally retarded and in the less retarded. Journal of Mental Deficiency Research, 23, 1–7.Google ScholarPubMed
Eyman, R. K., Chaney, R. H., Givens, C. A., et al (1986) Medical conditions underlying increasing mortality of institutionalized persons with mental retardation. Mental Retardation, 24, 301–306.Google ScholarPubMed
Eyman, R. K., Borthwick-Duffy, S. A., Call, T. L., et al (1988) Prediction of mortality in community and institutional settings. Journal of Mental Deficiency Research, 32, 203–213.Google ScholarPubMed
Eyman, R. K., Grossman, H. J., Chaney, R. H., et al (1990) The life expectancy of profoundly handicapped people with mental retardation. New England Journal of Medicine, 323, 584–589.CrossRefGoogle ScholarPubMed
Fishbach, M. & Hull, J. (1982) Mental retardation in the province of Manitoba: towards establishing a data base for community planning. Canadian Mental Health, 30, 16–19.Google ScholarPubMed
Forssman, H. & Akesson, H. O. (1970) Mortality of the mentally deficient: a study of 12 903 institutionalized subjects. Journal of Mental Deficiency Research, 14, 276–294.Google Scholar
Fryers, T. (1987) Epidemiological issues in mental retardation. Journal of Mental Deficiency Research, 31, 365–384.Google ScholarPubMed
Gath, A. (1992) A visit to Romania in October 1990 and to Leros in May 1991. Journal of Intellectual Disability Research, 36, 3–5.CrossRefGoogle ScholarPubMed
Haveman, M. J. & Maaskant, M. A. (1989) Defining fragility of the elderly severely mentally handicapped according to mortality risk, morbidity, motor handicaps and social functioning. Journal of Mental Deficiency Research, 33, 389–397.Google ScholarPubMed
Heaton-Ward, W. A. (1968) The life expectation of mentally subnormal patients in hospital. British Journal of Psychiatry, 114, 1591–1592.CrossRefGoogle ScholarPubMed
Jancar, J. (1990) Cancer and mental handicap. British Journal of Psychiatry, 156, 531–533.CrossRefGoogle ScholarPubMed
Jones, L. A. (1979) Census-based prevalence estimates for mental retardation. Mental Retardation, 17, 199–201.Google ScholarPubMed
Katzourakis, G. (1991) The program of Greek psychiatric reform under Regulation (EEC) 815/84: Experiences 1984–1990. In Greek Psychiatric Reform (ed. Ballas, C.), pp. 21–36. Brussels: Commission of the European Communities, Directorate General V, European Social Fund.Google Scholar
Kaveggia, F. F. (1985) Survival analysis of the severely and profoundly mentally retarded. American Journal of Medical Genetics, 21, 213–223.CrossRefGoogle ScholarPubMed
King, D. R., Raynes, V. N. & Tizard, J. (1971) Patterns of Residential Care. Sociological Studies in Institutions for Handicapped Children. London: Routledge and Kegan Paul.Google Scholar
Kramer, M., Person, P. H., Tarjan, G., et al (1957) A method for determination of probabilities of stay, release, and death, for patients admitted to a hospital for the mentally deficient: the experience of Pacific State Hospital during the period 1948–1952. American Journal of Mental Deficiency, 62, 481–495.Google ScholarPubMed
Maynard, A. (1989) Misery of lost souls on holiday island. Health Service Journal, 99, 1213.Google Scholar
McCurley, R., Mackay, D. N. & Scally, B. G. (1972) The life expectancy of the mentally subnormal under community and hospital care. Journal of Mental Deficiency Research, 16, 57–66.Google ScholarPubMed
McLoughlin, I. J. (1988) A study of mortality experiences in a mental-handicap hospital. British Journal of Psychiatry, 153, 645–649.CrossRefGoogle Scholar
Miller, C. & Eyman, R. (1978) Hospital and community mortality rates among the retarded. Journal of Mental Deficiency Research, 22, 137–145.Google ScholarPubMed
Moss, S. C. (1991) Age and functional abilities of people with a mental handicap: evidence from the Wessex mental handicap register. Journal of Mental Deficiency Research, 35, 430–445.Google ScholarPubMed
Munro, J. D. (1986) Epidemiology and the extent of mental retardation. In: Psychiatric Perspectives on Mental Retardation, Vol. 9 (ed. Stavrakaki, C.), pp. 591–624. New York: Guilford Press.Google Scholar
O'Brien, K. F., Tate, K. & Zaharia, E. S. (1991) Mortality in a large southeastern facility for persons with mental retardation. American Journal of Mental Retardation, 95, 397–403.Google Scholar
Primrose, D. A. A. (1966) Natural history of mental deficiency in a hospital group and in the community it serves. Journal of Mental Deficiency Research, 10, 159–189.Google Scholar
Ramsay, R. (1990) Banished to a Greek island. Psychiatric Bulletin, 14, 134–135.CrossRefGoogle Scholar
Richards, B. W. (1969) Age trends in mental deficiency institutions. Journal of Mental Deficiency Research, 13, 171–183.Google ScholarPubMed
Richards, B. W. & Sylvester, P. E. (1969) Mortality trends in mental deficiency institutions. Journal of Mental Deficiency Research, 13, 276–291.Google ScholarPubMed
Richards, B. W. & Siddiqui, A. Q. (1980) Age and mortality trends in residents of an institution for the mentally handicapped. Journal of Mental Deficiency Research, 24, 99–105.Google ScholarPubMed
Roboz, P. (1972) Mortality rate in institutionalized mentally retarded children. Medical Journal of Australia, 1, 218–221.CrossRefGoogle ScholarPubMed
Schor, E. L., Smalky, K. A. & Neff, J. M. (1981) Primary care of previously institutionalized retarded children. Pediatrics, 67, 536–540.CrossRefGoogle ScholarPubMed
Seligman, M. & Darling, R. (1989) Ordinary Families Special Children. A System Approach to Childhood Disabilities. New York: Guilford Press.Google Scholar
Shyrock, H. S. & Siegel, J. S. (1976) The Methods and Materials of Demography. New York: Academic Press.Google Scholar
Tarjan, G., Brooke, C. E., Eyman, R. K., et al (1968) Mortality and cause of death in a hospital for the mentally retarded. American Journal of Public Health, 58, 1891–1900.CrossRefGoogle Scholar
Tarjan, G., Eyman, R. K. & Miller, C. R. (1969) Natural history of mental retardation in a state hospital, revisited. American Journal of Diseases of Children, 117, 609–620.CrossRefGoogle Scholar
Tsiantis, J. & Maratos, O. (1990) Institutional care and rehabilitation for children in Greece. In Psychiatry: A World Perspective, Vol. 4 (eds Stefanis, C. N., et al), pp. 643–649. Amsterdam: Elsevier.Google Scholar
Wolf, L. C. & Wright, R. E. (1987) Changes in life expectancy of mentally retarded persons in Canadian institutions: a 12 year comparison. Journal of Mental Deficiency Research, 31, 41–59.Google ScholarPubMed
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