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The EPSILON study of schizophrenia in five European countries

Design and methodology for standardising outcome measures and comparing patterns of care and service costs

Published online by Cambridge University Press:  03 January 2018

Thomas Becker ,
Martin Knapp ,
Helle Charlotte Knudsen ,
Aart Schene ,
Michele Tansella ,
Graham Thornicroft  and
José Luis Vázquez-Barquero
Thomas Becker
Affiliation:
Department of Psychiatry, University of Leipzig, Leipzig
Martin Knapp
Affiliation:
Centre for the Economics of Mental Health, Institute of Psychiatry, King's College London and London School of Economics, London
Helle Charlotte Knudsen
Affiliation:
Institute of Preventive Medicine, Copenhagen
Aart Schene
Affiliation:
Department of Psychiatry, Academic Medical Centre, Amsterdam
Michele Tansella
Affiliation:
Department of Medicine and Public Health, Section of Psychiatry, University of Verona, Verona, Italy
Graham Thornicroft*
Affiliation:
Section of Community Psychiatry (PRiSM), Institute of Psychiatry, London
José Luis Vázquez-Barquero
Affiliation:
Clinical and Social Psychiatry Research Unit, Department of Psychiatry, University of Cantabria, Santander, Spain
*
Professor Graham Thornicroft, Section of Community Psychiatry (PRiSM), Institute of Psychiatry, De Crespigny Park, Denmark Hill, London SE5 8AF
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Abstract

Background

There is a lack of cross-national research on care for people with schizophrenia.

Aims

To produce standardised European versions of five instruments in key areas of mental health service research in five languages, and to compare data from five European countries regarding patients with schizophrenia and mental health care provision and costs.

Method

Five centres, in Amsterdam, Copenhagen, London, Santander and Verona, participated. Instruments assessing needs, service use, informal carer involvement, quality of life, and service satisfaction were subjected to a conversion procedure including translation, back-translation, focus group discussion and reliability assessment. Patients of local mental health services with a Schedules for Clinical Assessment in Neuropsychiatry diagnosis of schizophrenia were interviewed.

Results

Service provision varied between sites; 404 patients were studied. instrument reliability was found to be good.

Conclusions

The instruments developed were reliable across the range of countries, and will facilitate future comparative health service research.

Type
Papers
Information
The British Journal of Psychiatry , Volume 175 , Issue 6 , December 1999 , pp. 514 - 521
Copyright
Copyright © 1999 The Royal College of Psychiatrists 

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Footnotes

Declaration of interest

This study was supported by the European Commission BIOMED-2 Programme.

References

American Psychiatric Association (1987) Diagnostic and Statistical Manual of Mental Disorders (3rd edn, revised) (DSM–III–R). Washington, DC: APA.Google Scholar
Becker, T., Leese, M., Oarkson, P., et al (1998) Links between social networks and quality of life: an epidemiologically representative study of psychotic patients in South London. Social Psychiatry and Psychiatric Epidemiology, 33, 299–304.Google Scholar
Beecham, L. & Knapp, M. (1992) Costing psychiatric interventions. In Measuring Mental Health Needs (eds Thornicroft, G., Brewin, C. R. & Wing, J.), pp. 163–183. London: Gaskell.Google Scholar
Dowrick, C., Casey, P., Dalgard, O., et al (1998) Outcomes of Depression International Network (CON). Background, methods and field trials. British Journal of Psychiatry, 172, 359–363.CrossRefGoogle Scholar
Hansson, L., Muus, S., Vinding, H. R., et al (1998) The Nordic Comparative Study on Sectorized Psychiatry: contact rates and use of services for patients with a functional psychosis. Acta Psychiatrica Scandinavica, 97, 315–320.Google Scholar
Henderson, C., Phelan, M., Loftus, L., et al (1999) Comparison of service satisfaction among psychotic patients in south London and south Verona. Acta Psychiatrica Scandinavica, 97, 1 8.Google Scholar
Johnson, S., Ramsay, R., Thonicroft, G., et al (eds) (1997) London's Mental Health. The Report to the King's Fund London Commission. London: King's Fund.Google Scholar
Johnson, S., Salvador-Carulla, L. & the EPCAT group (1998) Description and classification of mental health services: a European perspective. European Psychiatry, 13, 333–341.Google Scholar
Kastrup, M. (1998) Mental health in the city of Copenhagen. Denmark. In Mental Health in our Future (eds Goldberg, D. & Thornicroft, G.), pp. 101–123. Hove: Psychology Press.Google Scholar
Knapp, M. (1998) Making musk out of noise – the cost function approach to evaluation. British Journal of Psychiatry, 173 (suppl. 36), 7–11.Google Scholar
Leese, M., Johnson, S., Slade, M., et al (1998) User perspective on needs and satisfaction with mental health services. PRiSM Psychosis Study 8. British Journal of Psychiatry, 173, 409–415.Google Scholar
Magliano, L., Fadden, G., Madianos, M., et al (1998) Burden on the families of patients with schizophrenia: results of the BIOMED-I study. Social Psychiatry and Psychiatric Epidemiology 33, 405–412.Google Scholar
Okin, R. L. & Pearsall, D. (1993) Patients' perception of their quality of life 11 years after discharge from state hospital. Hospital and Community Psychiatry, 44, 236–240.Google Scholar
Oliver, J., Huxley, P., Bridges, K., et al (1994) Quality of Life and Mental Health Services. London: Routledge.Google Scholar
Phatan, M., Slade, M., Tnornicroft, G., et al (1995) The Camberwell Assessment of Need: the validity and reliability of an instrument to assess the needs of people with severe mental illness. British Journal of Psychiatry, 167, 589–595.Google Scholar
Ruggeri, M. & Dall'Agnola, R. (1993) The development and use of the Verona Expectations for Care Scale (VECS) and the Verona Service Satisfaction Scale (VSSS) for measuring expectations and satisfaction with community-based psychiatric services in patients, relatives and professionals. Psychological Medicine, 23, 511–523.Google Scholar
Ruggeri, M., Biggeri, A., Rucci, P., et al (1998) Multivariate analysis of outcome of mental health care using graphical chain models. The South-Verona Outcome Project 1. Psychological Mediane, 28, 1421–1431.CrossRefGoogle ScholarPubMed
Ruggeri, M., Santolini, N., Stegagno, M., et al (1999) La Qpolità di Vita die Pazienti Psichiatrici. Monograph Supplement 4. Epidemiotogia e Psichiatria Sociale. Roma: II Pensiero Scientifco Editore.Google Scholar
Saintfort, F., Becker, M. & Diamond, R. (1996) Judgements of quality of life of individuals with severe mental disorders. American Journal of Psychiatry 153, 497–502.Google Scholar
Schene, A. H. & van Wijngaarden, B. (1992) The Involvement Evaluation Questionnaire. Amsterdam: Academic Medical Centre/University of Amsterdam.Google Scholar
Schene, A. H., van Wijngaarden, B. & Koeter, M. W. J. (1998a) Family caregiving in schizophrenia: domains and distress. Schizophrenia Bulletin, 24, 609–618.Google Scholar
Schene, A. H., Hoffmann, E. & Goethals, A. L. J. (1998b) Mental health in Amsterdam. In Mental Health in our Future Cities (eds Goldberg, D. & Thornicroft, G.), pp. 33–55. Hove: Psychology Press.Google Scholar
SPSS (1992) SPSS Base System Syntax Reference Guide, Release 7.5. Chicago, IL: SPSS Inc.Google Scholar
Stata Corp (1997) Stata Statistical Software: Release 5.0. College Station, TX: Stata Corporation.Google Scholar
Steiner, D. & Norman, G. (1995) Health Measurement Scales: A Practical Guide to their Development and Use. Oxford: Oxford University Press.Google Scholar
Tansella, M., Amaddeo, F., Burti, L., et al (1998) Community-based mental health care in Verona, Italy. In Mental Health in our Future Cities (eds Goldberg, D. & Thornicroft, G.), pp. 239–262. Hove: Psychology Press.Google Scholar
Thornicroft, G. & Goldberg, D. (1998) London's Mental Health Services. In Menial Health in Our Future Cities (eds Goldberg, D. & Thornicroft, G.). pp. 15–31. Hove: Psychology Press.Google Scholar
Thornicroft, G. & Tansella, M. (1999) The Mental Health Matrix. A Manual to improve Services. Cambridge: Cambridge University Press.Google Scholar
Vázquez-Barquero, J. L., Cuesta, M. J., Castanedo, S. H., et al (1999a) Cantabria First-Episode Schizophrenia Study: three-year follow-up. British Journal of Psychiatry, 174, 141–149.Google Scholar
Vázquez-Barquero, J. L., & Garcia, J. (1999b) Deinstitutionalization and psychiatric reform in Spain. European Archives of Psychiatry and Clinical Neuroscience, 249, 128–135.Google Scholar
Ventura, J., Green, M. F., Shaner, A., et al (1993) Training and quality assurance with the Brief Psychiatric Rating Scale: ‘The drift busters’. International Journal of Methods in Psychiatric Research, 3, 221–244.Google Scholar
Warner, R., De Giralamo, G., Belelli, G., et al (1998) The quality of life of people with schizophrenia in Boulder, Colorado, and Bologna, Italy. Schizophrenia Bulletin, 24, 559–568.Google Scholar
World Health Organization (1992a) The International Classification of Diseases and Related Health Problems (ICD–10). Geneva: WHO.Google Scholar
World Health Organization (1992b) Schedules for Clinical Assessment in Neuropsychiatry (ed. Wing, J. K.). Geneva: WHO.Google Scholar
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