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Health-Related Quality of Life in Children and Adolescents: Subjective Well Being

Published online by Cambridge University Press:  10 January 2013

Tania Gaspar*
Affiliation:
Universidade Técnica de Lisboa (Portugal)
José Pais Ribeiro
Affiliation:
Universidade Nova de Lisboa (Portugal)
Margarida Gaspar de Matos
Affiliation:
Universidade Técnica de Lisboa (Portugal)
Isabel Leal
Affiliation:
Instituto Superior de Psicologia Aplicada de Lisboa (Portugal)
Aristides Ferreira
Affiliation:
ISCTE - Instituto Universitário (Portugal)
*
Corresponding concerning this article should be addressed to Tania Gaspar. Faculdade de Motricidade Humana, Universidade Técnica de Lisboa. Estrada da Costa 1495-688 Cruz Quebrada (Portugal). Phone: + 351-214149152. E-mail: [email protected]

Abstract

The main objective of this study was to build a model, which includes personal and social factors, that helps to highlight factors that promote health-related quality of Life (HRQoL) in children and in adolescents. A sample of 3195 children and adolescents was acquired from 5th and 7th graders from all five Portuguese regions. In this study three independent latent variables were specified – Physical, Psychological and Social and two dependent latent variables were measured: Health behavior and Quality of Life. The integrative model was composed by different components: (1) health-related quality of life, integrated by 8 dimensions from KIDSCREEN-52; (2) health behavior, (3) variables related to physical health; (4) variables related to social health; (5) variables related to psychological health. As results were found strong correlation between psychological dimensions and self-esteem and other factors and a structural equation model was developed. The model presented a RMSEA index of .08. Similarly, adjustment levels for the CFI, NFI and IFI vary above or around .90, which suggests a good adjustment for the hypothesized model. The model presented significant qui-square.This study showed that in all the samples studied, the psychological variables were those that contributed at a superior level to HRQoL.

El objetivo principal de este estudio fue construir un modelo, que incluya los factores personales y sociales, que ayude a resaltar los factores que promueven la salud relacionados con la calidad de vida (CVRS) en niños y adolescentes. Se tomó una muestra de 3.195 niños y adolescentes, alumnos de quinto y séptimo grado de todas las 5 regiones Portuguesas.

En este estudio fueron especificadas tres variables latentes independientes: física, psicológica y social, y se midieron dos variables dependientes: el comportamiento de la salud y la calidad de vida. El modelo de integración estaba compuesto por diferentes componentes: (1) calidad de vida relacionada con la salud, integrado por ocho dimensiones del KIDSCREEN-52, (2) el comportamiento de la salud, (3) las variables relacionadas con la salud física, (4) las variables relacionadas con la salud social, (5) las variables relacionadas con la salud psicológica. Como resultado se encontró una fuerte correlación entre las dimensiones psicológicas y de autoestima y otros factores y se desarrolló un modelo de ecuaciones estructurales. El modelo que se presenta un índice RMSEA de 0,08. De manera similar, los niveles de ajuste de la CFI, NFI y el Fondo varían por encima o alrededor de 0,90, lo que indica un buen ajuste para el modelo de la hipótesis. El modelo presentado tiene una valoración de chi-cuadrado significativo. Este estudio mostró que en todas las muestras estudiadas, las variables psicológicas fueron las que contribuyeron a un nivel superior a la CVRS.

Type
Research Article
Copyright
Copyright © Cambridge University Press 2012

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References

Albery, I., & Messer, D. (2005). Comparative optimism about health and nonhealth events in 8 and 9 years old children. Health Psychology, 24, 316320. http://dx.doi.org/10.1037/0278-6133.24.3.316CrossRefGoogle Scholar
Bentler, P. (1990). Comparative fit indexes in structural models. Psychological Bulletin, 107, 238246. http://dx.doi.org/10.1037//0033-2909.107.2.238CrossRefGoogle ScholarPubMed
Bentler, P., & Hu, P. (1999). Cutoff criteria for fit indexes in covariance structure analysis. conventional criteria versus new alternatives. Structural Equation Modeling 6, 155. http://dx.doi.org/10.1080/10705519909540118Google Scholar
Boosman, K., Meulen, M., Geert, P., & Jackson, S. (2002). Measuring young children's perceptions of support, control and maintenance in their social networks. Social Development, 11, 386408. http://dx.doi.org/10.1111/1467-9507.00206CrossRefGoogle Scholar
Bronfenbrenner, U. (2001). Human development, Bioecological Theory of. In Smelser, N. J. & Baltes, P. B. (Eds.), International encyclopedia of the social and behavioral sciences (pp. 69636970). Oxford, England: Elsevier. http://dx.doi.org/10.1016/B0-08-043076-7/00359-4Google Scholar
Bronfenbrenner, U. (2005). Making human beings human: Bioecological perspectives on human development. Thousand Oaks, CA: Sage.Google Scholar
Byrne, B. M. (1998). Structural equation modelling with LISREL, PRELIS, and SIMPUS: Basic concepts, applications, and programming. Mahwah, NJ: Lawrence Erlbaum.Google Scholar
Carver, C., & Scheier, M. (2002). Optimism. In Snyder, C. & Lopez, S. (Eds.), Handbook of Positive Psychology (pp. 39). London, England: Oxford University Press.Google Scholar
Chipuer, H., Bramston, P., & Pretty, G. (2003). Determinants of subjective quality of life among rural adolescents: A developmental perspective. Social Indicators Research, 61, 7995. http://dx.doi.org/10.1023/A:1021271831731Google Scholar
Costa, E., & Leal, I. (2006). Estratégias de coping em estudantes do Ensino Superior [Coping Strategies in High School Students]. Análise Psicológica, 2, 189199.Google Scholar
Coventry, W., Gillespie, N., Heath, A., & Martin, N. (2004). Perceived social support in a large community sample: Age and sex differences. Social Psychiatry and Psychiatric Epidemiology, 39, 625636. http://dx.doi.org/10.1007/s00127-004-0795-8CrossRefGoogle Scholar
Cummins, R. (2005). Moving from the quality of life to a theory. Journal of intellectual Disability Research, 49, 699706. http://dx.doi.org/10.1111/j.1365-2788.2005.00738.xCrossRefGoogle ScholarPubMed
Currie, C., Samdal, O., Boyce, W., & Smith, R. (2001). HBSC, a WHO cross national study: Research protocol for the 2001/2002 survey. Copenhagen, Denmark: World Health Organization.Google Scholar
Eccles, J. & Gootman, J. (Eds.). (2002). Community programs to promote youth development. Washington, DC: National Academy Press.Google Scholar
Eiser, C., & Morse, R. (2001). A review of measure of quality of life in children with chronic illness. Archives of Disease Childhood, 84, 205211. http://dx.doi.org/10.1136/adc.84.3.205CrossRefGoogle ScholarPubMed
Ethgen, O., Vanparijs, P., Delhalle, S., Rosant, S., Bruyére, O., & Reginster, I. (2004). Social support and health-related quality of life in hip and knee osteoarthritis. Quality of Life Research, 13, 321330. http://dx.doi.org/10.1023/B:QURE.0000018492.40262.d1Google Scholar
Fleming, M. C., & Nellis, J. G. (2000). Principles of applied statistics. London, England: Thomson.Google Scholar
Fonseca, M., Santos, R., Tap, P., & Vasconcelos, M. (2004 February). Análise da auto-estima em função da situação socio-económica, do sexo e da idade [Analysis of self-esteem depending on the situation socio-economic, gender and age]. InActs of 5th National Congress of Health Psychology. Lisboa, Portugal: Fundação Calouste Gulbenkian.Google Scholar
Gaspar, T., & Matos, G. (2009). Adolescent's lifestyles, ethnicity and socioeconomic status in Portugal. Cognition, Brain and Behavior 13, 4957.Google Scholar
Gaspar, T., & Matos, M. (Ed.) (2008). Versão portuguesa dos instrumentos KIDSCREE -52: Instrumentos de Qualidade de Vida para Crianças e Adolescentes [Portuguese Version of KIDSCREEN Instruments of Quality of Life in Children and Adolescents]. Lisbon, Portugal: Faculdade Motricidade Humana.Google Scholar
Gaspar, T., Matos, M., Ribeiro, J., & Leal, I. (2006). Qualidade de vida e bem-estar em crianças e adolescentes [Quality of life and well-being in children and adolescentes]. Revista Brasileira de Terapias Cognitivas, 2(2), 4760Google Scholar
Gaspar, T., Matos, M., Ribeiro, J., Leal, I., & Ferreira, A. (2009). Health-related quality of life in children and adolescents and associated factors. Journal of Cognitive and Behavioral Psychotherapies, 9, 3348.Google Scholar
Gaspar, T., Matos, M., Ribeiro, J. L., Leal, I., Erhart, M., & Ravens-Sieberer, U. (2010). Kidscreen-52: Quality of life in children and adolescents. Journal of Children and Adolescents Psychology, 1, 4964.Google Scholar
Gaspar, T., Ribeiro, J., Leal, I., Matos, M., & Ferreira, A. (2009). Optimismo em crianças e adolescentes: Adaptação do LOT-R[Optimism in children and adolescents: LOT-RAdaptation]. Revista Psicologia: Reflexão e Crítica, 22, 317324. http://dx.doi.org/10.1590/S0102-79722009000300015Google Scholar
Gaspar, T., Ribeiro, J., Matos, M., Leal, I., & Ferreira, A. (2009). Psychometric properties of a brief version of the Escala de Satisfação com o Suporte Social for Children and Adolescents. The Spanish Journal of Psychology, 12, 360372.CrossRefGoogle Scholar
Haapasalo, I, Valimaa, R, & Kannas, L. (2010). How comprehensive school students perceive their psychosocial school environment. Scandinavian Journal of Educational Research, 54, 133150. http://dx.doi.org/10.1080/00313831003637915Google Scholar
Harding, L. (2001). Children's quality of life assessments:A review of genetic and health-related quality of life measures completed by children and adolescents. Clinical Psychology and Psychotherapy, 8, 7996. http://dx.doi.org/10.1002/cpp.275Google Scholar
Harter, S. (1985). Manual for the self-perception profile for children. Denver, CO: University of Denver Press.Google Scholar
Helgeson, V. (2003). Social support and quality of life. Quality of Life Research, 12, 2531. http://dx.doi.org/10.1023/A:1023509117524CrossRefGoogle ScholarPubMed
Helseth, S., & Lund, T. (2005). Assessing health-related quality of life in adolescents: Some psychometric properties of the first Norwegian version of KINDL. Scandinavian Journal Caring Sience, 19, 102109. http://dx.doi.org/10.1111/j.1471-6712.2005.00326.xGoogle Scholar
Jackson, M., Pratt, M., Hunsberger, B., & Pancer, S. (2005). Optimism as a mediator of the relation between perceived parental authoritativeness and adjustment among adolescents: Finding the sunny side of the street. Social Development, 14, 273304. http://dx.doi.org/10.1111/j.1467-9507.2005.00302.xCrossRefGoogle Scholar
Joreskog, K., & Sorbom, D (Eds) (2001). LISREL 8: User's reference guide. Lincolnwood, IL: Scientific Software International.Google Scholar
Kanna'Iaupuni, S., Donato, K., Thompson-Colón, T., & Stainback, M. (2005). Counting on Kin: Social network, social support and children health status. Social Forces, 83, 11371164.CrossRefGoogle Scholar
Kelloniemi, H., Ek, E., & Laitinen, J. (2005). Optimism, dietary habits, body mass index and smoking among young Finnish adults. Appetite, 45, 169176. http://dx.doi.org/10.1016/j.appet.2005.05.001CrossRefGoogle ScholarPubMed
Koot, H. (2002). Challenges in child and adolescent quality of life research. Acta Paediatrics, 91, 265266. http://dx.doi.org/10.1111/j.1651-2227.2002.tb01712.xCrossRefGoogle ScholarPubMed
Levin, K. A, & Currie, C. (2010) Family structure, mother-child communication, father-child communication, and adolescent life satisfaction: A cross-sectional multilevel analysis. Health Education, 110, 152158. http://dx.doi.org/10.1108/09654281011038831Google Scholar
Marinho, M. L., & Caballo, V. (2002). Comportamento anti-social infantil e seu impacto para a competência social [Anti-social behavior in childhood and its impact in social competence]. Psicologia, Saúde e Doenças, 3, 141147.Google Scholar
Martins, M., Peixoto, F., Mata, L., & Monteiro, V. (1995). Escala de auto-conceito para crianças e adolescentes de Susan Harter [Self-perception profile for children and adolescents from Susan Harter]. In Almeida, L. S., Simões, M. R., & Gonçalves, M. M. (Eds.), Provas Psicológicas em Portugal [Psychological Tests in Portugal]. (pp. 7989) Braga, Portugal: Associação dos Psicólogos Portugueses.Google Scholar
Matos, M., & Aventura Social Team. (2006a). Qualidade de vida em crianças e adolescentes: Projecto Europeu KIDSCREE, relatório do estudo Português. [Quality of Life in Children and Adolescents – European KIDSCREEN Project. Portuguese Report] Retrieved from www.fmh.utl.pt/aventurasocialGoogle Scholar
Matos, M., & Aventura Social Team (2006b). A saúde dos adolescentes Portugueses – Hoje e em 8 anos – Relatório preliminar do estudo HBSC 2006. [Portuguese Adolescents Health – HBSC Study 2006 preliminary report]. Retrieved from www.fmh.utl.pt/aventurasocialGoogle Scholar
Matos, M., Dadds, M., & Barrett, P. (2006). Family-school issues and the mental health of adolescents: Post hoc analysis from the Portuguese National health behavior in school aged children survey. Journal of Family Studies, 12, 261274. http://dx.doi.org/10.5172/jfs.327.12.2.261CrossRefGoogle Scholar
Mccullough, G., Huebner, E., & Laughlin, J. (2000). Life events, self-concept, and adolescents' positive subjective well-being. Psychology in the Schools, 37, 281290. http://dx.doi.org/10.1002/(SICI)1520-6807(200005)37:3<281::AID-PITS8>3.0.CO;2-23.0.CO;2-2>CrossRefGoogle Scholar
Peterson, C., & Steen, T. (2002). Optimistic explanatory style. In Snyder, C. & Lopez, S. (Eds.), Handbook of Positive Psychology (pp. 244256). London, England: Oxford University Press.Google Scholar
Plancherel, B., Bolognini, M., & Halfon, O. (1998). Coping strategies in early and mid-adolescence: Differences according to age and gender in community sample. European Psychologist, 3, 192201. http://dx.doi.org/10.1027/1016-9040.3.3.192Google Scholar
Ravens-Sieberer, U., Gosch, A., Abel, T., Auquier, P., Bellach, B., Bruil, J., … & European KIDSCREEN Group (2001). Quality of life in children and adolescents: A European public health perspective. Social and Preventive Medicine, 46, 294302. http://dx.doi.org/10.1007/BF01321080CrossRefGoogle ScholarPubMed
Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Duer, W., … & European KIDSCREEN Group. (2005). KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Review of Pharmacoeconomics & Outcomes Research, 5(3), 353364. http://dx.doi.org/10.1586/14737167.5.3.353Google Scholar
Ribeiro, J. (1999). Escala de Satisfação com o Suporte Social (ESSS). Análise Psicológica, 3, 547558.Google Scholar
Ribeiro, J. (2002). Qualidade de vida e doença oncológica Ribeiro, J. (1994). A importância da qualidade de vida para a psicologia da saúde [The importance of quality of life to health psychology]. Análise Psicológica, 2–3, 179191.Google Scholar
Scheier, M., Carver, C., & Bridges, M. (1994). Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self-esteem): A revaluation of the Life Orientation Test. Journal of Personality and Social Psychology, 67, 10631078. http://dx.doi.org/10.1037//0022-3514.67.6.1063Google Scholar
Schumacker, R. E., & Lomax, R. G. (1996). A beginner's guide to structural equation modeling. USA, New Jersey: Lawrence Erlbaum Associates.Google Scholar
Taylor, S., Kemeny, M., Reed, G., Bower, J., & Gruenewald, T. (2000). Psychological resources, Positive illusions and health. American Psychologist, 51, 99109. http://dx.doi.org/10.1037//0003-066X.55.1.99Google Scholar
The KIDSCREEN Group Europe. (2006). The KIDSCREE questionnaires: Quality of life questionnaires for children and adolescents. Lengerich, Germany: Pabst Science Publishers.Google Scholar
Tuijl, C., Branje, S., Dubas, J., Vermulst, A., & Aken, M. (2005). Parent-offspring similarity in personality and adolescents'problem behavior. European Journal of Personality, 19, 5168.Google Scholar
UNICEF (2007). Child poverty in perspective: An overview of child well-being in rich countries, Report Card 7. Florence, Italy: UNICEF Innocenti Research Centre Retrieved from http://www.unicef-irc.org/publications/pdf/rc7_eng.pdfGoogle Scholar
West, P. (1997). Health inequalities in the early years: Is there equalisation in youth? Social Scientific Medicine, 44, 833858. http://dx.doi.org/10.1016/S0277-9536(96)00188-8CrossRefGoogle ScholarPubMed
World Health Organization (1994). World Health Organization Constitution. Geneve, Switzerland: Author.Google Scholar
World Health Organization Quality of Life Assessment Group (1994). Development of the WHOQOL: Rationale and current status. International Journal of Mental Health, 23, 2456CrossRefGoogle Scholar
Wrosch, C., & Scheier, M. (2003). Personality and quality of life: The importance of optimism and goal adjustment. Quality of Life Research, 12, 5972.CrossRefGoogle ScholarPubMed
Zambon, A., Morgan, A., Vereecken, C., Columbini, S., Boyce, W., Mazur, J. … &, Cavallo, F. (2010) The contribution of clubs participation to adolescent health: Evidence from 6 countries. Journal of Epidemiology & Community Health, 64, 8995. http://dx.doi.org/10.1136/jech.2009.088443Google Scholar