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Family Perceptions and Coping Strategies in Cases of Intersexuality: Understanding their Significance

Published online by Cambridge University Press:  10 April 2014

Medeiros Rocha Santos Moara de  and
Cristina Cavalcanti Ferreira de Araujo Tereza
Medeiros Rocha Santos Moara de*
Affiliation:
Universidade de Brasília (Brazil)
Cristina Cavalcanti Ferreira de Araujo Tereza*
Affiliation:
Universidade de Brasília (Brazil)
*
Correspondence concerning this article should be addressed to Moara de Medeiros Rocha Santos, Doutora em Psicologia pela Universidade de Brasília (Brazil). E-mail: [email protected]
Tereza Cristina Cavalcanti Ferreira de Araujo, Profª Drª do Instituto de Psicologia da Universidade de Brasília (Brazil). Phone: (61).3273.0838 Fax: (61).3349.0183. Email: [email protected]
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Abstract

Considering that the intersexual condition has a negative impact on the individual, their family, and society, health professionals and researchers have dedicated themselves to studying and assisting families faced with such an experience. The purpose of this study is to describe and understand the perceptions of primary caregivers regarding intersexuality and its developmental aspects. Six mothers and one grandmother of school age children were interviewed. The data indicated that living with the stigma of intersexuality can mean a permanent state of crisis within the family system. Issues such as guilt about the child's suffering and questions related to the choice of gender follow the family from the moment of diagnosis. It is suggested that the therapeutic follow-up should foster the necessary conditions for the family group to be organized as a model of competence, replacing the model of guilt.

Considerando que la condición intersexual tiene un impacto negativo en el individuo, su familia y la sociedad, los profesionales e investigadores de la salud se han dedicado a estudiar y ayudar a las familias que afrontan tal experiencia. El objetivo de este estudio es describir y entender las percepciones de los cuidadores primarios con respecto a la intersexualidad y sus aspectos evolutivos. Se entrevistaron a seis madres y una abuela de niños en edad escolar. Los datos indicaron que vivir con el estigma de la intersexualidad puede significar un estado permanente de crisis en el sistema familiar. Problemas tales como la culpa por el sufrimiento del niño y las preguntas relacionadas con la elección del género acompañarán a la familia desde el momento del diagnóstico. Se sugiere que el seguimiento terapéutico promocione las condiciones para la organización del grupo familiar como modelo de competencia, reemplazando el modelo de culpabilidad.

Keywords

intersexualityfamilyhermaphroditismpsychological supportintersexualidadfamiliahermafroditismoapoyo psicológico
Type
Articles
Information
The Spanish Journal of Psychology , Volume 11 , Issue 2 , November 2008 , pp. 573 - 580
Copyright
Copyright © Cambridge University Press 2008

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References

Bussey, K., & Bandura, A. (1999). Social cognitive theory of gender development and differentiation. Psychological Review, 106, 676–713.CrossRefGoogle ScholarPubMed
Colapinto, J. (2001). Sexo trocado: a história real do menino que criaram como menina. São Paulo: Ediouro.Google Scholar
Diamond, M. (1996). Prenatal predisposition and the clinical management of some pediatric conditions. Journal of Sex & Marital Therapy, 22, 139–147.CrossRefGoogle ScholarPubMed
Diamond, M. (1997). Sexual identity and sexual orientation in children with traumatized or ambiguous genitalia. Journal of Sex Research, 34, 199–211.CrossRefGoogle Scholar
Diamond, M. (2004). Sex, gender, and identity over the years: A changing perspective. Child and Adolescent Psychiatric Clinics of North America, 13, 591–607.CrossRefGoogle Scholar
Diamond, M. (2006). Biased-interaction theory of psychosexual development: How does one know if he is male or female? Sex Roles, 55, 589–600.CrossRefGoogle Scholar
Diamond, M., & Beh, H. G. (2005). The right to be wrong. Sex and gender decisions. Intersex & Ethics, 103–113.Google Scholar
Diamond, M., & Sigmundson, H. K. (1997a). Sex reassignment at birth: Long-term review and clinical implications. Archive of Pediatric and Adolescent Medicine, 151, 298–304.CrossRefGoogle ScholarPubMed
Diamond, M., & Sigmundson, H. K. (1997b). Management of intersexuality: Guidelines for dealing with persons with ambiguous genitalia. Archive of Pediatric and Adolescent Medicine, 151, 1046–1050.CrossRefGoogle ScholarPubMed
Guerra-Júnior, G. (2002). Hermafroditismo verdadeiro. In Maciel-Guerra, A. T. & Guerra-Júnior, G. (Eds.), Menino ou Menina? Os Distúrbios da Diferenciação do Sexo (pp. 53–57). São Paulo: Editora Manole.Google Scholar
Hester, J. D. (2004). Intersex(es) and informed consent: How physicians' rhetoric constrains choice. Theoretical Medicine, 25, 21–49.Google ScholarPubMed
Holmes, M. (2002). Rethinking the meaning and management of intersexuality. Sexualities, 5, 159–180.CrossRefGoogle Scholar
Maciel-Guerra, A. T., & Guerra-Júnior, G. (2002a). Ambigüidade genital: classificação. In Maciel-Guerra, A. T. & Guerra-Júnior, G. (Eds.), Menino ou menina? Os distúrbios da diferenciação do sexo (pp. 31–36). São Paulo: Editora Manole.Google Scholar
Maciel-Guerra, A. T., & Guerra-Júnior, G. (2002b). Diagnóstico das ambigüidades genitais: Avaliações clínica e laboratorial. In Maciel-Guerra, A. T. & Guerra-Júnior, G. (Eds.), Menino ou menina? Os distúrbios da diferenciação do sexo (pp. 165–173). São Paulo: Editora Manole.Google Scholar
Martin, C. L., Ruble, D. N., & Szkrybalo, J. (2002). Cognitive theories of early gender development. Psychological Bulletin, 128, 903–933.CrossRefGoogle ScholarPubMed
Meyer-Balhburg, H. F. L. (1999). Gender assignment and reassignment in 46, XY pseudohermaphroditism and related conditions. Journal of Clinical Endocrinology and Metabolism, 84, 3455–3458.CrossRefGoogle Scholar
Money, J. (1994a). The concept of gender identity disorder in childhood and adolescence after 39 years. Journal of Sex & Marital Therapy, 20, 163–177.CrossRefGoogle Scholar
Money, J. (1994b). Biographies of gender and hermaphroditism in paired comparisions. Amsterdam: Elsevier.Google Scholar
Money, J., Hampson, J. G., & Hampson, J. L. (1955). An examination of some basic concepts: The evidence of human hermaphroditism. Bulletin of Johns Hopkins Hospital, 97, 301–319.Google ScholarPubMed
Moore, K.L., & Persaud, T.V.N. (1998). The developing human: Clinically oriented embryology (6th ed.). Philadelphia: Saunders. [Translation: Embriologia básica. Rio de Janeiro: Guanabara Koogan, 2000.]Google Scholar
Reiner, W. G. (1997a). To be male or female: That is the question. Archive of Pediatric and Adolescent Medicine, 151, 224–225.CrossRefGoogle ScholarPubMed
Reiner, W. G. (1997b). Sex assignment in the neonate with intersex or inadequate genitalia. Archive of Pediatric and Adolescent Medicine, 151, 1044–1045.CrossRefGoogle ScholarPubMed
Santos, M.M. R. (2000). Desenvolvimento da identidade de gênero em crianças com diagnóstico de intersexo: Casos específicos de hermafroditismo verdadeiro, pseudo-hermafroditismo masculino e feminino. Master's dissertation, University of Brasília.Google Scholar
Santos, M. M. R., & Araujo, T. C. C. F. (2003). A clínica da intersexualidade e seus desafios para os profissionais de saúde. Psicologia: Ciência e Profissão, 23, 26–33.Google Scholar
Slijper, F. M. E., Drop, S. L. S., Molenaar, J. C., & De Muinck Keizer-Schrama, S. M. P. F. (1998). Long-term psychological evaluation of intersex children. Archives of Sexual Behavior, 27, 125–144.CrossRefGoogle ScholarPubMed
Valsiner, J., Branco, A. U., & Dantas, C. M. (1997). Co-construction of human development: Heterogeneity within parental belief. In Grusec, J. E. & Kuczynski, L. (Eds.), Parenting and children's internalization of values: A handbook of contemporary theory (pp. 283–304). New York: Wiley.Google Scholar
Walsh, F. & McGoldrick, M. (2004). Living beyond loss: Death and the family (2nd ed.). New York: Norton. [Translation: Morte na família: Sobrevivendo às perdas. Porto Alegre: Artes Médicas, 1998.]Google Scholar
Zucker, K. J. (1999). Intersexuality and gender identity differentiation. Annual Review of Sex Research, 10, 1–69.Google ScholarPubMed