Hostname: page-component-586b7cd67f-2plfb Total loading time: 0 Render date: 2024-11-28T12:16:14.397Z Has data issue: false hasContentIssue false
  • English
  • Français

Multi-Informant Perception of Quality of Life and Adaptation in Chronic Schizophrenia

Published online by Cambridge University Press:  20 December 2013

Olga Gabaldón Poc ,
María Ruiz-Iriondo  and
Magdalena Bobowik
Olga Gabaldón Poc
Affiliation:
Red de Salúd Mental de Gipuzkoa (Spain)
María Ruiz-Iriondo*
Affiliation:
Universidad del País Vasco (Spain)
Magdalena Bobowik
Affiliation:
Universidad del País Vasco (Spain)
*
*Correspondence concerning this article should be addressed to Maria Ruiz-Iriondo. Facultad de Psicología, Avda. de Tolosa, 70. 20018. San Sebastian. (Spain). E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

The Quality of Life (QoL) in psychiatric patients is currently of great relevance. This study aims to examine, through a multi-informant approach, the QoL perception in schizophrenic patients, analyzing differences between the informants, as well as the relationship between negative symptoms and QoL. Participants were 32 schizophrenic patients, their caregivers (relatives or psychosocial educators; 25 and 3, respectively), and a team of four professionals of Outpatient Centers of Mental Health in Guipuzcoa, Spain. The assessment of patients’ QoL was obtained with application of Satisfaction with Life Domains Scale and Karnofsky Performance Status Scale. Self-informant QoL was assessed with Seville Quality of Life Questionnaire and Social Adjustment Scale Self-reported. The negative symptoms were measured with the Brief Psychiatric Rating Scale and the Scale for Assessment of Negative Symptoms. Patients showed an average high life satisfaction. There were significant discrepancies among informants’ reports, with the lowest evaluation given by the professional team and the highest by the patients. Evaluations made by caregivers and patients yielded similar results. These findings suggest that patients and their caregivers present a more optimistic perception of their QoL.

Keywords

satisfaction with lifequality of lifeschizophreniamulti-informant evaluation
Type
Research Article
Information
The Spanish Journal of Psychology , Volume 16 , 2013 , E106
Copyright
Copyright © Universidad Complutense de Madrid and Colegio Oficial de Psicólogos de Madrid 2013 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

Research Project was carried out with the support of Departamento de Sanidad del Gobierno Vasco (N. 131/2008).

References

Andreasen, N. C., & Olsen, S. (1982). Negative v positive schizophrenia: Definition and validation. Archives of General Psychiatry, 39, 789–794. http://dx.doi.org/10.1001/archpsyc.1982.04290070025006 Google Scholar
Awad, A. G., Voruganti, L. N., & Helesgrave, R. J. (1997). Measuring quality of life in patients with schizophrenia. Pharmaeconomics 11, 32–47. http://dx.doi.org/10.2165/00019053-199711010-00005 Google Scholar
Baker, F., & Intagliata, J. (1982). Quality of life in the evaluation of community support systems. Evaluation and program planning, 5, 69–79. http://dx.doi.org/10.1016/0149-7189(82)90059-3 CrossRefGoogle ScholarPubMed
Becchi, A., Rucci, P., Placentino, A., Neri, G., & de Girolamo, G. (2004). Quality of life in patients with schizophrenia a comparison of self-report and proxy assessments. Social Psychiatry and Psychiatric Epidemiology, 39, 397–401. http://dx.doi.org/10.1007/s00127-004-0761-5 CrossRefGoogle ScholarPubMed
Bobes, J., Gonzalez, M. P., & Bousoño, M. (1995). Calidad de vida en las esquizofrenias [Quality of life in schizophrenia]. Barcelona, Spain: J. R. Proust.Google Scholar
Bobes, J., Gonzalez, M. P., Bascarán, M. T., Corominas, A., Adan, A., Sanchez, J., … Grupo de validación en español de la Escala de Adaptación Social (1999). Validación de la Escala de Adaptación Social en pacientes depresivos. [Spanish validation of the Social Adaptation Self-Evaluation Scale in depressive patients] Actas Españolas de Psiquiatría, 27, 71–78.Google Scholar
Bosc, M., Dubini, A., & Polin, V. (1997). Development and validation of a social functioning scale, the social adaptation self-evaluation scale. European Neuropsychopharmachology, 7, 57–70. http://dx.doi.org/10.1016/S0924-977X(97)00420-3 Google Scholar
Diener, E. (1984). Subjective well-being. Psychological Bulletin, 95, 542–75. http://dx.doi.org/10.1037/0033-2909.95.3.542 Google Scholar
Eack, S. M., & Newhill, C. E. (2007). Psychiatric symptoms and quality of life in schizophrenia: A meta-Analysis. Schizophrenia Bulletin, 33, 1225–1237. http://dx.doi.org/10.1093/schbul/sbl071 CrossRefGoogle ScholarPubMed
Fitzgerald, P. B., de Castella, A. R., Filia, K., Collins, J., Brewer, K., Williams, C. L., … & Kulkami, J. (2003). A longitudinal study of patient-and observed-rated quality of life in schizophrenia. Psychiatry Research, 119, 71–80.CrossRefGoogle Scholar
Garcia-Portilla, M. P., Bascarán, M. T., Sainz, P. A., Bousoño, M., & Bobes, J. (2006). Banco de instrumentos básicos para la práctica de la clínica [The bank of basic measures for clinical practice]. Barcelona, Spain: Ars Médica.Google Scholar
Giner, J., Ibañez, E., Baca, E., Bobes, J., Leal, C., & Cervera, S. (1995). Calidad de vida en enfermos esquizofrénicos. Desarrollo de un instrumento español para su evaluación: El cuestionario “Sevilla”. Fases Iniciales. [Quality of life in schizophrenic patients. Development of a Spanish measure for its evaluation: Sevilla quality of life questionnaire. Initial phase]. Anales de Psiquiatría, 11, 313–319.Google Scholar
Gladis, M. M., Gosch, E. A., Dishuck, N. M., & Crits-Christoph, P. (1999). Quality of life: Expanding the scope of clinical significance. Journal of Consulting and Clinical Psychology, 67, 320–331. http://dx.doi.org/10.1037//0022-006X.67.3.320 CrossRefGoogle ScholarPubMed
Glozman, J. M. (2004). Quality of life of caregivers. Neuropsychological Review, 14, 183–196. http://dx.doi.org/10.1007/s11065-004-8158-5 CrossRefGoogle ScholarPubMed
Harvey, P. D., Velligan, D. I., & Bellack, A. S. (2007). Performance-based measures of functional skills: Usefulness in clinical treatment studies. Schizophrenia. Bulletin, 33, 1138–1148. http://dx.doi.org/10.1093/schbul/sbm040 CrossRefGoogle ScholarPubMed
Heider, D., Angermeyer, M. C., Winkler, I., Schonerus, G., Bebbington, P. E., Brugha, T., ... & Tuomi, M. (2007). A prospective study of quality of life in three European countries. Schizophrenia Research, 93, 194–202. http://dx.doi.org/10.1016/j.schres.2007.03.005 Google Scholar
Ibañez, E., Giner, J., Cervera, S., Baca, E., Bobes, J., & Leal, C. (1997). El cuestionario sevilla de calidad de vida: Propiedades psicométricas [Sevilla quality of life questionnaire: Psychometric qualities]. Actas Luso-Españolas de Neurología, Psiquiatría y Ciencias Afines, 25, 24–31.Google Scholar
Karnoffsky, D. A., & Burchenal, J. H. (1949). The clinical evaluation of chemotherapeutic agents in cancer. In MacLedo, C. M. (Ed), Evaluation of chemotherapeutic agents (pp. 191–205). New York, NY: Columbia University Press.Google Scholar
Kemmler, G., Holzner, B., Neudorfer, C., Meise, C., & Hinterhuber, H. (1997). General life satisfaction and domain-specific quality of life in chronic schizophrenic patients. Quality of Life Research, 6, 265–273.Google Scholar
Koivumaa- Honkanen, H. T., Honkanen, R., Antikainen, R., Hintikka, J., & Viinamaki, H. (1999). Self-reported life satisfaction and treatment factors in patients with schizophrenia, major depression and anxiety disorder. Acta psychiatrica scandinavica, 99, 377–384. http://dx.doi.org/10.1111/j.1600-0447.1999.tb07244.x CrossRefGoogle ScholarPubMed
Kurtz, M. M., & Tolman, A. (2011). Neurocognition, insight into illness and subjective quality of life in schizophrenia: What is their relationship?. Schizophrenia Research, 127, 157–162. http://dx.doi.org/10.1016/j.schres.2010.12.004 CrossRefGoogle ScholarPubMed
Lehman, A. F. (1997). Instruments for measuring quality of life in mental illnesses. In Katsching, H., Freeman, H., & Sartorius, N. (Eds), Quality of life in mental disorders (pp. 80–94). Chichester, UK: Wiley.Google Scholar
Li, J., Lambert, C. E., & Lambert, V. A. (2007). Predictors of family caregivers’ burden and quality of life when providing care for family members with schizophrenia in the people’s Republic of China. Nursing and Health Sciences, 9, 192–198. http://dx.doi.org/10.1111/j.1442-2018.2007.00327.x Google Scholar
Narvaez, J. M., Twamley, E. W., McKibbin, C. L., Heaton, R. K., & Patterson, T. L. (2008). Subjective and objective quality of life in schizophrenia. Schizophrenia Research, 98, 201–208. http://dx.doi.org/10.1016/j.schres.2007.09.001 Google Scholar
Overall, J. E., & Gorham, D. R. (1962). The brief psychiatric rating scale. Psychological Reports, 10, 799–812. http://dx.doi.org/10.2466/PR0.10.3.799-812 CrossRefGoogle Scholar
Packer, S., Husted, J., Cohen, S., & Tomlinson, G. (1997). Psychopathology and quality of life in schizophrenia. Journal of Psychiatry Neurosciences, 22, 231–234.Google Scholar
Pinikahana, J., Happel, B., Hope, J., & Keks, N. A. (2002). Quality of life in schizophrenia: A review of the literature from 1995 to 2000. International Journal of Mental Health Nursing, 11, 103–111. http://dx.doi.org/10.1046/j.1440-0979.2002.00233.x CrossRefGoogle ScholarPubMed
Querejeta, M. (2004). Discapacidad/Dependencia: Unificación de criterios de valoración y clasificación [Incapacity/Dependence: Unification of assessment and classification criteria]. Madrid, Spain: Ministerio de Trabajo y Asuntos Sociales.Google Scholar
Richieri, R., Boyer, L., Reine, G., Loudou, A., Auquier, P., Lançon, C., & Simeoni, M. C. (2011). The schizophrenia caregiver quality of life questionnaire (S-CGQOL): Development and validation of an instrument to measure QoL of caregivers of individuals with schizophrenia. Schizophrenia Research, 126, 192–201.CrossRefGoogle ScholarPubMed
Salonkas, R. K. R., Honkonen, T., Stengard, E., & Koivisto, A. M. (2006). Subjective life satisfaction and living situations of persons in Finland with long-term schizophrenia. Psychiatric Services, 57, 373–381.Google Scholar
Stainfort, F., Becker, M., & Diamond, R. (1996). Judgments of quality of life of individuals with severe mental disorders: Patient self-reports versus provider perspectives. American Journal of Psychiatry, 153, 497–502.Google Scholar
Ueoka, Y., Tomotake, M., Tanaka, T., Kaneda, Y., Taniguchi, K., Nakataki, M., … Ohmori, T. (2011). Quality of life and cognitive dysfunction in people with schizophrenia. Progress in Neuro-Psychopharmacology & Biological Psychiatry, 35, 53–59. http://dx.doi.org/10.1016/j.pnpbp.2010.08.018 Google Scholar
Voruganti, L. N., Helesgrave, R., Awad, A. G., & Seeman, M. V. (1998). Quality of life measurements in schizophrenia: Reconciling the quest for subjectivity with question of reliability. Psychological Medicine, 28, 165–172. http://dx.doi.org/10.1017/S0033291797005874 CrossRefGoogle ScholarPubMed
World Health Organization (1996). CIE-10. Trastornos mentales y del comportamiento. Décima revisión de la clasificación internacional de las enfermedades. Descripciones clínicas y pautas para el diagnóstico [ICD 10: International statistical classification of diseases and related health problems]. Ginebra, Switzerland: World Health Organization.Google Scholar
Wisniewski, S. R., Whitehead, R., Ali, M., Jin, N., Kim, E., Mylas, M., … Ying, Y. (2009). Patients assessed QoL versus clinician assessment: A post hoc analysis of a trial of aripripazole in adolescent patients with schizophrenia. Value in Health, 12, 173.Google Scholar