Hostname: page-component-78c5997874-v9fdk Total loading time: 0 Render date: 2024-11-18T13:16:46.243Z Has data issue: false hasContentIssue false
  • English
  • Français

Informational Requirements and Client-centred Disability Care: Issues, Problems and Prospects in Australia

Published online by Cambridge University Press:  04 July 2014

Ian McLoughlin ,
Sanaz Bayati-Bojakhi ,
Karthyeni Purushothaman  and
Amrik Sohal
Ian McLoughlin
Affiliation:
Department of Management, Monash University E-mail: [email protected]
Sanaz Bayati-Bojakhi
Affiliation:
Department of Management, Monash University E-mail: [email protected]
Karthyeni Purushothaman
Affiliation:
Department of Management, Monash University E-mail: [email protected]
Amrik Sohal
Affiliation:
Department of Management, Monash University E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Client and patient-centred care have become watchwords in policies to transform social and health care systems in both Australia and the UK. In this article we argue that much of the success of moves towards client-centred social care will rest on the creation of appropriate informational environments to support new conversations between clients and those who commission and provide care services. We draw upon original research within an existing state-level insurance-based scheme covering citizens who acquire a disability in transport accidents to illustrate the problems faced by the absence of such a framework. We highlight some of the insights emerging from our work concerning the challenge of developing appropriate informational environments to support client-centred care and indicate the potential of co-design when focused on new conversations of care.

Keywords

Client-centred careco-designinformational requirementsdisability sector
Type
Themed Section on Hiding in plain sight or Disappearing in the rear view mirror?: Whatever happened to the revolution in information for Health and Social Care – Learning from England and Australia
Information
Social Policy and Society , Volume 13 , Issue 4 , October 2014 , pp. 609 - 621
Copyright
Copyright © Cambridge University Press 2014 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Access Economics (2009) The Economic Cost of Spinal Cord Injury and Traumatic Brain Injury in Australia, Victoria: The Victorian Neurotrauma Initiative.Google Scholar
Australian Bureau of Statistics (2009) Disability, Ageing and Carers: Summary of Findings, Canberra: ABS, http://www.abs.gov.au/AUSSTATS/[email protected]/Lookup/4430.0Main+Features12009?OpenDocument.Google Scholar
Australian Bureau of Statistics (2012) Disability, Ageing and Carers: Summary of Findings, Canberra: ABS, http://www.abs.gov.au/ausstats/[email protected]/Lookup/3A5561E876CDAC73CA257C210011AB9B?opendocument.Google Scholar
Australian Commonwealth Government (2013) National Disability Insurance Scheme Act 2013, Canberra: Commonwealth of Australia.Google Scholar
Australian Productivity Commission (2011) Disability Care and Support, Melbourne: Commonwealth of Australia.Google Scholar
Baker, G. R. and Denis, J. L. (2011) A Comparative Study of Three Transformative Healthcare Systems: Lessons for Canada, Ottawa: Canadian Health Services Research Foundation.Google Scholar
Chan, J., Parmenter, T. and Stancliffe, R. (2009) ‘The impact of traumatic brain injury on the mental health outcomes of individuals and their family carers’, Australian e-Journal for the Advancement of Mental Health, 8, 2, 155–64.Google Scholar
Cortis, N., Meagher, G., Chan, S., Davidson, B. and Fattore, T. (2013) Building an Industry of Choice: Service Quality, Workforce Capacity and Consumer-Centered Funding in Disability Care, Sydney: Social Policy Research Centre, The University of New South Wales.Google Scholar
Fattore, T., Evesson, J., Moensted, M. and Jakubauskas, M. (2010) ‘An examination of workforce capacity issues in the disability services workforce: increasing workforce capacity’, unpublished final report, Community Services and Health Industry Skills Council.Google Scholar
Gillingham, P. (2011) ‘Computer based information systems and human service organizations: emerging problems and future possibilities’, Australian Social Work, 64, 3, 299–312.CrossRefGoogle Scholar
Gillingham, P. (2013) ‘The development of electronic information systems for the future: practitioners, “embodied structure” and “technologies-in-practice”’, British Journal of Social Work, 43, 3, 430–45.CrossRefGoogle Scholar
Howcroft, D. and Wilson, M. (2003) ‘Paradoxes of participatory practices: the Janus role of the systems developer’, Information and Organization, 13, 1, 1–24.CrossRefGoogle Scholar
Iivari, J. and Iivari, N. (2011) ‘Varieties of user-centeredness: an analysis of four systems development methods’,’ Information Systems Journal, 21, 2, 125–53.CrossRefGoogle Scholar
Kensing, F. and Blomberg, J. (1998) ‘Participatory design: issues and concerns’, Computer Supported Cooperative Work, 7, 3–4, 167–85.CrossRefGoogle Scholar
Kodner, D. L. and Spreeuwenberg, C. (2002) ‘Integrated care: meaning, logic, applications, and implications – a discussion paper’, International Journal of Integrated Care, 2, October–December, 1–8.Google ScholarPubMed
Martin, M. (2011) ‘Informing self-directed care: a discussion’, unpublished paper, KITE Research Centre, University of Newcastle upon Tyne Business School.Google Scholar
Martin, M. (2014) ‘e-health and Me: the implications of the Net for health care relationships’, in Gaddi, A., Capello, F. and Manca, M. (eds.), e-Health Care and Quality of Life, Milan: Springer-Verlag Italia, pp. 69–78.CrossRefGoogle Scholar
McCormack, B. and McCance, T. V. (2006) ‘Development of a framework for person-centered nursing’, Journal of advanced Nursing, 56, 5, 472–9.CrossRefGoogle Scholar
McLoughlin, I. P. and Wilson, R. (2013) Digital Government at Work: A Social Informatics Perspective, Oxford: Oxford University Press.CrossRefGoogle Scholar
Needham, C. (2011) ‘Personalization: from story-line to practice’, Social Policy and Administration, 45, 1, 54–68.CrossRefGoogle Scholar
NDS (2012) Victorian Disability Services Transition Plan 2012–2016: The Report, Melbourne: National Disability Service.Google Scholar
Nous Group (2011) Strategies to Build Disability Sector ICT Capacity and Enable the National Disability Insurance Scheme, Melbourne, National Disability Services Victoria.Google Scholar
Sawyer, A.-M. and Green, D. (2013) ‘Social inclusion and individualised service provision in high risk community care: balancing regulation, judgment and discretion’, Social Policy and Society, 12, 2, 299–308.CrossRefGoogle Scholar
Sohal, A., McLoughlin, I. P., Cooke, F., Prajogo, D., Cooney, R., Ying, L., Purushothaman, K. and Bayati Bojakhi, S. (2013) New Models of Care: Developing a Better Coordinated, High Quality System of Care for People with Disabilities, Research report No: C-M-13-065, Melbourne, Institute for Safety, Compensation and Recovery Research.CrossRefGoogle Scholar
Stewart, J. and Williams, R. (2005) ‘“The wrong trousers?” Beyond the design fallacy: social learning and the user’, in Rohracher, H. (ed.), User Involvement in Innovation Processes: Strategies and Limitations from a Socio-technical Perspective, Munich: Profil-Verlag.Google Scholar
TAC (2009) TAC 2015: Outcomes, Experience, Viability, Melbourne, Victorian Transport Accident Commission.Google Scholar
Walsh, S., Wilson, R., Baines, S. and Martin, M. (2012) ‘“You’re just treating us as informants!” Roles, responsibilities and relationships in the production of children's services directories’, Local Government Studies, 38, 5, 661–8.CrossRefGoogle Scholar
Whalan, A., Acton, P. and Harmer, J. (2014) A Review of the Capabilities of the National Disability Insurance Agency, Canberra: National Disability Insurance Scheme, http://www.ndis.gov.au/sites/default/files/documents/capability_review_2014_3.pdf.Google Scholar
Yin, R. K. (2009) Case Study Research: Design and Methods, 5th edn, Hills, Beverly, CA: Sage Publications.Google Scholar
Ylvisaker, M., Feeney, T. and Capo, M. (2007) ‘Long-Term community supports for individuals with co-occurring disabilities after traumatic brain injury: cost effectiveness and project-based intervention’, Brain Impairment, 8, 3, 276–92.CrossRefGoogle Scholar