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Needs for care among the relatives of long-term users of day care: A report from the Camberwell High Contact Survey

Published online by Cambridge University Press:  09 July 2009

B. MacCarthy*
Affiliation:
MRC Social Psychiatry Unit, Institute of Psychiatry, London; Hopital Louis-H Lafontaine, Montreal, Quebec, Canada; Department of Psychiatry, University of Leicester; Department of Social Policy, London School of Economics
A. Lesage
Affiliation:
MRC Social Psychiatry Unit, Institute of Psychiatry, London; Hopital Louis-H Lafontaine, Montreal, Quebec, Canada; Department of Psychiatry, University of Leicester; Department of Social Policy, London School of Economics
C. R. Brewin
Affiliation:
MRC Social Psychiatry Unit, Institute of Psychiatry, London; Hopital Louis-H Lafontaine, Montreal, Quebec, Canada; Department of Psychiatry, University of Leicester; Department of Social Policy, London School of Economics
T. S. Brugha
Affiliation:
MRC Social Psychiatry Unit, Institute of Psychiatry, London; Hopital Louis-H Lafontaine, Montreal, Quebec, Canada; Department of Psychiatry, University of Leicester; Department of Social Policy, London School of Economics
S. Mangen
Affiliation:
MRC Social Psychiatry Unit, Institute of Psychiatry, London; Hopital Louis-H Lafontaine, Montreal, Quebec, Canada; Department of Psychiatry, University of Leicester; Department of Social Policy, London School of Economics
J. K. Wing
Affiliation:
MRC Social Psychiatry Unit, Institute of Psychiatry, London; Hopital Louis-H Lafontaine, Montreal, Quebec, Canada; Department of Psychiatry, University of Leicester; Department of Social Policy, London School of Economics
*
1Address for correspondence: Dr B. MacCarthy, Academic Unit, St Bernard's Wing, Ealing Hospital, Uxbridge Road, Southall, Middlesex, UBI 3EU.

Synopsis

We report the results of a survey of the burdens and needs for items of care of 45 supporters of long-term users of psychiatric day care facilities in Camberwell. The supporters reported high levels of disturbed behaviour and low levels of self-care skills in the attenders. They were also subject to high levels of social and economic burden, not all of which could be attributed to the attenders' problems. The needs assessment identified a large number of unmet needs, although the supporters themselves were largely resigned to their situation and expressed little dissatisfaction with the services they were offered. The advantage of conducting this kind of assessment of supporters' needs as a routine part of clinical practice was discussed.

Type
Original Articles
Copyright
Copyright © Cambridge University Press 1989

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References

Brewin, C. R. & Wing, J. K. (1988). MRC Needs for Care Assessment Manual. Medical Research Council: London.Google Scholar
Brewin, C. R., Wing, J. K, Mangen, S. P., Brugha, T. S. & MacCarthy, B. (1987). Principles and practice of measuring needs in the long-term mentally ill: the M RC Needs for Care Assessment. Psychological Medicine 17, 971981.CrossRefGoogle Scholar
Brewin, C. R., Wing, J. K., Mangen, S. P., Brugha, T. S., MacCarlhy, B. & LeSage, A. (1988). Needs for care among the long-term mentally ill: a report from the Camberwell High Contact Survey. Psychological Medicine 18, 457468.CrossRefGoogle ScholarPubMed
Brown, G. W., Bone, M., Dalison, B. & Wing, J. K. (1966). Schizophrenia and Social Care. Maudsley Monograph No. 17. Oxford University Press: Oxford.Google Scholar
Brugha, T. S., Wing, J. K., Brewin, C. R., MacCarthy, B., Mangen, S., Lesage, A & Mumford, J. (1988). The problems of people in long-term psychiatric care. An introduction to the Camberwell High Contact Survey. Psychological Medicine 18, 443456.CrossRefGoogle Scholar
Cheadle, A. J., Freeman, H. L. & Korer, J. (1978). Chronic schizophrenic patients in the community. British Journal of Psychiatry 132, 221227.CrossRefGoogle Scholar
Clausen, J. A. & Yarrow, M. R. (1955). The impact of menial illness on the family. Journal of Social Issues 11, 364.CrossRefGoogle Scholar
Creer, C., Sturt, E. & Wykes, T. (1982). The role of relatives. In Long Term Community Care: Experience in a London Borough. (ed. Wing, J. K.) Psychological Medicine Monograph Supplement 2.Cambridge University Press: Cambridge.Google Scholar
Fadden, G., Bebbington, P. & Kuipers, L. (1987). Caring and its burdens: a study of the spouses of depressed patients. British Journal of Psychiatry 151, 660667.CrossRefGoogle ScholarPubMed
Gibbons, J. S., Horn, S. H., Powell, J. M. & Gibbons, J. L. (1984). Schizophrenic patients and their families. A survey in a psychiatric service based on a DGH unit. British Journal of Psychiatry 144, 7077.CrossRefGoogle Scholar
Gilhooley, M. L. M. (1986). Senile dementia: factors associated with caregivers' preferences for institutional care. British Journal of Medical Psychology 59, 165171.CrossRefGoogle Scholar
Gilleard, C. J. (1984). Living with Dementia. Community Care of the Elderly Mentally Infirm. Croom Helm: London.Google Scholar
Grad, J. & Sainsbury, P. (1968). The effects that patients have on their families in a community care and a control psychiatric service–a two year follow-up. British Journal of Psychiatry 114, 265278.CrossRefGoogle Scholar
Greenley, J. R. (1979). Family symptom tolerance and rehospitalisation experiences of psychiatric patients. Research in Community and Mental Health 1, 357386.Google Scholar
Henderson, S., Byrne, D. G., & Duncan-Jones, P. (1981). Neurosis and the Social Environment. Academic Press: Australia.Google Scholar
Hoenig, J. & Hamilton, M. W. (1969). The Desegregation of the Mentally III. Routledge and Kegan Paul: London.Google Scholar
Kuipers, L. & Bebbington, P. B. (1986). Relatives as a resource in the management of functional illness. British Journal of Psychiatry 147, 465470.CrossRefGoogle Scholar
Leff, J. P. & Vaughn, C. E. (1985). Patterns of response in high EE and low EE relatives of psychiatric patients. In Expressed Emotion in Families: Its Significance for Mental Illness. (ed. Vaughn, C. E. and Leff, J. P.), pp. 6474. Guilford Publications: New York.Google Scholar
Lefley, H. P. (1987). Aging parents as caregivers of mentally ill adult children: an emerging social problem. Hospital and Community Psychiatry 38, 10631070.Google ScholarPubMed
MacCarthy, B., Kuipers, L., Harper, R., Hurry, J. and Lesage, A. (1988). Counselling the relatives of the long-term adult mentally ill. i. Evaluation of the impact on relatives and patients. British Journal of Psychiatry, (in the press).Google Scholar
Pitkeathley, J. (1987). The needs of carers. Times Health Supplement 03 7.Google Scholar
Rawnsley, K, Loudon, J. & Miles, H. (1962). The attitudes of relatives of patients in mental hospital. British Journal of Preventive Social Medicine 16, 115.Google Scholar
Smith, J. & Birchwood, M. (1987). Specific and non-specific effects educational interventions with families of schizophrenic patients. British Journal of Psychiatry 150, 645652.CrossRefGoogle Scholar
Stevens, B. C. (1972). Dependence of schizophrenic patients on elderly relatives. Psychological Medicine 2, 1732.CrossRefGoogle ScholarPubMed
Tarrier, N. & Barrowclough, C. (1986). Providing information to relatives about schizophrenia: some comments. British Journal of Psychiatry 149, 458463.CrossRefGoogle ScholarPubMed
Thompson, E. H. & Doll, W. (1982). The burden of families coping with the mentally ill: an invisible crisis. Family Relations 07, 379388.CrossRefGoogle Scholar
Vaughn, C. E. & Leff, J. P. (1976 a) The measurement of expressed emotion in families of psychiatric patients. British Journal of Social & Clinical Psychology 15, 157165.CrossRefGoogle ScholarPubMed
Vaughn, C. E. & Leff, J. P. (1976 b). The influence of family and social factors on the course of psychiatric illness. British Journal Psychiatry 129, 125137.CrossRefGoogle ScholarPubMed
Wing, J. K., Brugha, T. S., Brewin, C. R., MacCarthy, B., Mangen, S. & LeSage, A. (1988). The clinical characteristics of long-term users of day-hospital and day-care in Camberwell. (In preparation.)Google Scholar