Hostname: page-component-cd9895bd7-mkpzs Total loading time: 0 Render date: 2024-12-23T00:20:25.607Z Has data issue: false hasContentIssue false

Attitudes of families to some aspects of Huntington's chorea

Published online by Cambridge University Press:  09 July 2009

Jeanne Barette
Affiliation:
Department of Neurology, Institute of Psychiatry, and King's College Hospital, London
C. D. Marsden*
Affiliation:
Department of Neurology, Institute of Psychiatry, and King's College Hospital, London
*
2Address for correspondence: Professor C. D. Marsden, Department of Neurology, Institute of Psychiary, De Crespigny Park, Denmark Hill, London SE5 8AF.

Synopsis

One hundred and fifty-three completed questionnaires received from families with a history of Huntington's chorea were analysed to discover their attitudes towards the disease. Of special interest were: (a) how and when they were first informed about their illness; (b) what effects the knowledge of the hereditary aspects of the disease had on them and on their children; and (c) their reaction to a possible future predictive test

Type
Research Article
Copyright
Copyright © Cambridge University Press 1979

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bateson, G., Jackson, D. D., Haley, J. & Weakland, J. 1956 Toward a theory of schizophrenia. Behavioural Science 1 251264CrossRefGoogle Scholar
Bruyn, G. W. 1968. Huntington's chorea: historical, clinical and laboratory synopsis In Handbook of Clinical Neurology Volume 6 (ed. Vinken, P. J. and Bruyn, G. W.), pp. 298378. North-Holland: Amsterdam.Google Scholar
Davenport, C. B. & Muncey, E. B. 1916 Huntington's chorea in relation to heredity and eugenics. The American Journal of Insanity 73, 195222.Google Scholar
Emery, A. E. H.Watt, M. S.Clack, E. 1973 Social effects of genetic counselling. British Medical Journal i, 724726.CrossRefGoogle Scholar
Festinger, L. 1957 A Theory of Cognitive Dissonance. Row, Peterson: New York.CrossRefGoogle Scholar
Heathfield, K. W. G. (1967) Huntington's chorea: investigation into the prevalence of this disease in the area covered by the N.E. Metropolitan Regional Hospital Board. Brain 90, 203232.CrossRefGoogle Scholar
Heathfield, K. W. G. 1973 Huntington's chorea: a centenary review Postgraduate Medical Journal 49 3245.CrossRefGoogle ScholarPubMed
House of Commons Official Report: parliamentary debates (Hansard) (1975). Huntington's chorea, Vol. 888, No. 92, Columns 18161826.Google Scholar
House of Commons Official Report: parliamentary debates (Hansard) (1978). Written answers: Huntington's chorea, vol. 945, Nos. 68, 69, Columns 43–44 and 191–192, 193–194 respectively.Google Scholar
Mattson, B. 1974 Huntington's chorea in Sweden: 11. Social and clinical data In Clinical Research from the Department of Psychiatry, University of Umeà Volume 2 (ed. Perris, C. and Mattson, B.). Acta Psychiatrica Scandinavica Suppl. 255, 221235.Google Scholar
Office of Population Censuses and Surveys (1974). The Registrar General's Statistical Review of England and Wales for the Year 1972, Part II, Tables, Population. HMSO: London.Google Scholar
Oliver, J. E. 1970 Huntington's chorea in Northamptonshire. British Journal of Psychiatry 116 241253.CrossRefGoogle ScholarPubMed
Pearson, J. S. 1973 Behavioural aspects of Huntington's chorea. In Advances in Neurology Volume I, Huntington's Chorea 1872–1972 (ed. Barbeau, A., Chase, T. N. and Paulson, G. W.), pp. 701712. Raven: New York.Google Scholar
Spillane, J. & Phillips, R. 1937 Huntington's chorea in South Wales Quarterly Journal of Medicine 30 403423.Google Scholar
Stern, R. & Eldridge, R. 1975 Attitudes of patients and their relatives to Huntington's disease Journal of Medical Genetics 12 217223.CrossRefGoogle ScholarPubMed
Sunday People (1970). 13 and 20 12. IPC Newspapers: London.Google Scholar