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Recovery: beyond mere survival

Published online by Cambridge University Press:  02 January 2018

Liz Sayce
Affiliation:
Southwark and Lewisham Health Action Zone, 1 Lower Marsh, London SE1 7NT
Rachel Perkins
Affiliation:
South-West London and St George's NHS Trust, London
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Abstract

Type
The Columns
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution (CC-BY) license (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Copyright
Copyright © Royal College of Psychiatrists, 2000

Sir: David Whitwell (Psychiatric Bulletin, October 1999, 23, 621-622) argues that ‘recovery’ is a myth, promulgated by over-optimistic therapists of all persuasions. If ‘recovery’ means getting back to exactly how you were before (as he argues), then no doubt he is right, at least for many people with significant mental health difficulties. But the mental health world needs optimism — not over-optimism, that a person can rebuild a satisfying, hopeful life and contribute to society despite the continued presence of mental health problems. Indeed, this is precisely how recovery is defined in the now extensive American literature: there is no way back to life before problems started, but there is a way forward (Reference DeeganDeegan, 1988; Reference AnthonyAnthony, 1993; Reference Young and EnsingYoung & Ensing, 1999).

The experience of physical disability shows just how powerful this type of ‘recovery’ can be, even in the face of the most extreme impairment. After Jean-Dominique Bauby's massive stroke he could only move one eyelid, his sole means of communication. There is no doubt that he would have agreed with Whitwell's interviewee who said that ‘I will never be the same person again’. However, he was able to find some meaning and purpose, however, limited, in his highly restricted new life in ‘writing’ what the Financial Times described as, “one of the great books of the century” (Reference BaubyBauby, 1997).

As Patricia Deegan (Reference Deegan1988) puts it:

“Recovery does not refer to an end-product or result. It does not mean that my friend (with quadriplegia) and I were ‘cured’. In fact, our recovery is marked by an ever-deepening acceptance of our limitations. But now, rather than being an occasion for despair, we find that our personal limitations are the ground from which spring our own unique possibilities.”

Whitwell's interviewees at times seemed to be equivocal about whether they had, in fact, ‘recovered’ — an ambivalence from which Whitwell concluded that they did not think they had recovered. Here there seems to be some confusion between recovery as an ongoing process and ‘being recovered’ as an end-point. Deegan (Reference Deegan1988) makes precisely this point when she argues that recovery does not mean ‘cure’, it is not an end-point — ‘recovered’ — but a continuing journey:”…an ongoing process. It is a way of life. It is an attitude and a way of approaching the day's challenges” (Reference DeeganDeegan, 1992).

The challenge for service providers is how to reduce the barriers which impede the re-building of a person's life. How to help people to gain more opportunities: for work, income, friends and social networks. Whitwell also illustrates the importance of helping people to appreciate the “strength they have derived from the damage they have sustained and overcome”.

People ‘disabled’ by mental health problems can do more than just ‘survive’. If the Disability Rights Commission, coming into force in April 2000, succeeds in breaking down some of the barriers of discrimination faced by mental health service users; and if professionals follow the National Service Framework recommendation to support users in gaining social inclusion — then chances for recovery could increase. Not cure, but new meaning.

References

Anthony, W. A. (1993) Recovery from mental illness: the guiding vision of the mental health service system for the 1990s. Psychosocial Rehabilitation Journal, 12, 5581.Google Scholar
Bauby, J.-D. (1997) The Diving Bell and the Butterfly. London: Fourth Estate.Google Scholar
Deegan, P. E. (1988) Recovery: the lived experience of rehabilitation. Psychosocial Rehabilitation Journal, 11, 1119.CrossRefGoogle Scholar
Deegan, P. E. (1992) The independent living movement and people with psychiatric disabilities. Taking back control over our own lives. Psychosocial Rehabilitation Journal, 15, 519.Google Scholar
Young, S. L. & Ensing, D. S. (1999) Exploring recovery from the perspective of people with psychiatric disabilities. Psychosocial Rehabilitation Journal, 22, 219231.Google Scholar
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