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Balancing Between Closeness and Distance: Emergency Medical Services Personnel’s Experiences of Caring for Families at Out-of-Hospital Cardiac Arrest and Sudden Death

Published online by Cambridge University Press:  20 March 2012

Anders Bremer*
Affiliation:
School of Health Sciences, University of Borås, Borås, Sweden School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden
Karin Dahlberg
Affiliation:
School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden
Lars Sandman
Affiliation:
School of Health Sciences, University of Borås, Borås, Sweden
*
Correspondence: Anders Bremer, RN, PEN, PhL School of Health Sciences, University of Borås Allégatan 1, Borås SE-501 90, Sweden E-mail: [email protected]

Abstract

Introduction: Out-of-hospital cardiac arrest (OHCA) is a lethal health problem that affects between 236,000 and 325,000 people in the United States each year. As resuscitation attempts are unsuccessful in 70-98% of OHCA cases, Emergency Medical Services (EMS) personnel often face the needs of bereaved family members.

Problem: Decisions to continue or terminate resuscitation at OHCA are influenced by factors other than patient clinical characteristics, such as EMS personnel’s knowledge, attitudes, and beliefs regarding family emotional preparedness. However, there is little research exploring how EMS personnel care for bereaved family members, or how they are affected by family dynamics and the emotional contexts. The aim of this study is to analyze EMS personnel’s experiences of caring for families when patients suffer cardiac arrest and sudden death.

Methods: The study is based on a hermeneutic lifeworld approach. Qualitative interviews were conducted with 10 EMS personnel from an EMS agency in southern Sweden.

Results: The EMS personnel interviewed felt responsible for both patient care and family care, and sometimes failed to prioritize these responsibilities as a result of their own perceptions, feelings and reactions. Moving from patient care to family care implied a movement from well-structured guidance to a situational response, where the personnel were forced to balance between interpretive reasoning and a more direct emotional response, at their own discretion. With such affective responses in decision-making, the personnel risked erroneous conclusions and care relationships with elements of dishonesty, misguided benevolence and false hopes. The ability to recognize and respond to people’s existential questions and needs was essential. It was dependent on the EMS personnel’s balance between closeness and distance, and on their courage in facing the emotional expressions of the families, as well as the personnel’s own vulnerability. The presence of family members placed great demands on mobility (moving from patient care to family care) in the decision-making process, invoking a need for ethical competence.

Conclusion: Ethical caring competence is needed in the care of bereaved family members to avoid additional suffering. Opportunities to reflect on these situations within a framework of care ethics, continuous moral education, and clinical ethics training are needed. Support in dealing with personal discomfort and clear guidelines on family support could benefit EMS personnel.

Type
Original Research
Copyright
Copyright Bremer © World Association for Disaster and Emergency Medicine 2012

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References

1.Atwood, C, Eisenberg, MS, Herlitz, J, Rea, TD. Incidence of EMS-treated out-of-hospital cardiac arrest in Europe. Resuscitation. 2005;67:7580.CrossRefGoogle ScholarPubMed
2.Nichol, G, Thomas, E, Callaway, CW, et al. Regional variation in out-of-hospital cardiac arrest incidence and outcome. JAMA. 2008;300:14231431.CrossRefGoogle ScholarPubMed
3.Nichol, G, Aufderheide, TP, Eigel, B, et al. . Regional systems of care for out-of-hospital cardiac arrest: a policy statement from the American Heart Association. Circulation. 2010;121:709729.CrossRefGoogle ScholarPubMed
4.Müller, D, Agrawal, R, Arntz, HR. How sudden is sudden cardiac death? Circulation. 2006;114:11461150.CrossRefGoogle ScholarPubMed
5.Lippert, FK, Raffay, V, Georgiou, M, Steen, PA, Bossaert, L. European Resuscitation Council Guidelines for Resuscitation 2010 Section 10. The ethics of resuscitation and end-of-life decisions. Resuscitation. 2010;81:14451451.CrossRefGoogle ScholarPubMed
6.Larkin, GL, Copes, WS, Nathanson, BH, Kaye, W. Pre-resuscitation factors associated with mortality in 49,130 cases of in-hospital cardiac arrest: a report from the National Registry for Cardiopulmonary Resuscitation. Resuscitation. 2010;81:302311.CrossRefGoogle Scholar
7.Herlitz, J, Engdahl, J, Svensson, L, Ängquist, KA, Young, M, Holmberg, S. Factors associated with an increased chance of survival among patients suffering from an out-of-hospital cardiac arrest in a national perspective in Sweden. Am Heart J. 2005;149:6166.CrossRefGoogle Scholar
8.Baskett, P, Steen, PA, Bossaert, L. European Resuscitation Council guidelines for resuscitation 2005. Section 8. The ethics of resuscitation and end-of-life decisions. Resuscitation. 2005;67:171180.CrossRefGoogle ScholarPubMed
9.Sandman, L, Nordmark, A. Ethical conflicts in prehospital emergency care. Nurs Ethics. 2006;13:592607.CrossRefGoogle ScholarPubMed
10.Heilicser, B, Stocking, C, Siegler, M. Ethical dilemmas in emergency medical services: the perspective of the emergency medical technician. Ann Emerg Med. 1996;27:239243.CrossRefGoogle ScholarPubMed
11.Bishai, D, Siegel, A. Moral obligations to families when there is a sudden death. J Clin Ethics. 2001;12:382387.CrossRefGoogle ScholarPubMed
12.Mohammed, S, Peter, E. Rituals, death and the moral practice of medical futility. Nurs Ethics. 2009;16:292302.CrossRefGoogle ScholarPubMed
13.Næss, AC, Steen, E, Steen, PA. Ethics in treatment decisions during out-of-hospital resuscitation. Resuscitation. 1997;33:245256.CrossRefGoogle ScholarPubMed
14.Marco, CA, Schears, RM. Prehospital resuscitation practices: a survey of prehospital providers. J Emerg Med. 2003;24:101106.CrossRefGoogle ScholarPubMed
15.Pepe, PE, Swor, RA, Ornato, JP, et al. . Resuscitation in the out-of-hospital setting: Medical futility criteria for on-scene pronouncement of death. Prehosp Emerg Care. 2001;5:7987.CrossRefGoogle ScholarPubMed
16.Morrison, LJ, Cheung, MC, Redelmeier, DA. Evaluating paramedic comfort with field pronouncement: development and validation of an outcome measure. Acad Emerg Med. 2003;10:633637.CrossRefGoogle ScholarPubMed
17.O’Brien, E, Hendricks, D, Cone, DC. Field termination of resuscitation: Analysis of a newly implemented protocol. Prehosp Emerg Care. 2008;12:5761.CrossRefGoogle ScholarPubMed
18.Eckstein, M, Stratton, SJ, Chan, LS. Termination of resuscitative efforts for out-of-hospital cardiac arrests. Acad Emerg Med. 2005;12:6570.CrossRefGoogle ScholarPubMed
19.Feder, S, Matheny, RL, Loveless, RS, Rea, TD. Withholding resuscitation: A new approach to prehospital end-of-life decisions. Ann Int Med. 2006;144:634640.CrossRefGoogle ScholarPubMed
20.Grudzen, CR, Timmermans, S, Koenig, WJ, et al. . Paramedic and emergency medical technicians views on opportunities and challenges when forgoing and halting resuscitation in the field. Acad Emerg Med. 2009;16:532538.CrossRefGoogle ScholarPubMed
21.Purves, Y, Edwards, S. Initial needs of bereaved relatives following sudden and unexpected death. Emerg Nurse. 2005;13:2835.CrossRefGoogle ScholarPubMed
22.Steen, E, Næss, AC, Steen, PA. Paramedics organizational culture and their care for relatives of cardiac arrest survivors. Resuscitation. 1997;34:5763.CrossRefGoogle Scholar
23.Smith-Cumberland, TH, Feldman, RH. Survey of EMTs’ attitudes towards death. Prehosp Disaster Med. 2005;20:184188.CrossRefGoogle ScholarPubMed
24.Smith-Cumberland, TL, Feldman, RH. EMT’s attitudes toward death and after a death education program. Prehosp Emerg Care. 2006;10:8995.CrossRefGoogle ScholarPubMed
25.Compton, S, Madgy, A, Goldstein, M, Sandhu, J, Dunne, R, Swor, R. Emergency medical service providers’ experience with family presence during cardiopulmonary resuscitation. Resuscitation. 2006;70:223228.CrossRefGoogle ScholarPubMed
26.Bremer, A, Dahlberg, K, Sandman, L. Experiencing out-of-hospital cardiac arrest: Significant others’ lifeworld perspective. Qual Health Res. 2009;19:14071420.CrossRefGoogle ScholarPubMed
27.World Medical Association: World Medical Association declaration of Helsinki. Ethical principles for medical research involving human subjects. http://www.wma.net/e/policy/b3.htm. Accessed May 1, 2008.CrossRefGoogle Scholar
28.Ministry of Education and Cultural Affairs. The act concerning the ethical review of research involving humans. (2003:460, revised 2004:198). Vetting the ethics of research involving humans. http://www.epn.se/start/regulations.aspx. Accessed May 1, 2008.Google Scholar
29.Polit, D, Beck, C. Nursing Research: Principles and Methods. 7th ed.Philadelphia: Lippincott Williams & Wilkins, 2007.Google Scholar
30.Nolan, JP, Soar, J, Zideman, DA, et al. . on behalf of the ERC guidelines writing group. European Resuscitation Council guidelines for resuscitation 2010, Section 1. Executive summary. Resuscitation. 2010;81:12191276.CrossRefGoogle Scholar
31.Dahlberg, K, Dahlberg, H, Nyström, M. Reflective Lifeworld Research, 2nd revised ed. Lund, Sweden: Studentlitteratur, 2008.Google Scholar
32.Dahlberg, K. The essence of essences – the search for meaning structures in phenomenological analysis of lifeworld phenomena. Int J Qual Stud Health Well-being. 2006; 1:1119.CrossRefGoogle Scholar
33.Dahlberg, K, Dahlberg, H. Description vs. interpretation – a new understanding of an old dilemma in human science research. Nurs Philos. 2004;5:268273.CrossRefGoogle ScholarPubMed
34.Gadamer, HG (Weinsheimer, J, Marshall, D, trans.). Truth and Method. 2nd revised ed. New York: The Continuum Publishing Company, 19951960.Google Scholar
35.Nyström, M.Inadequate nursing care in an emergency care unit in Sweden – Lack of a holistic perspective. J Holistic Nurs. 2002;20:403417.CrossRefGoogle Scholar
36.Gadamer, HG (Dawson, C. trans.). Praise of theory. Speeches & essays. New Haven: Yale University Press, 19981983.Google Scholar
37.Walker, MU. Moral Understandings: A Feminist Study in Ethics. 2d edition. New York: Oxford University Press, 2007.Google Scholar
38.Damasio, AR. Descartes’ Error. Emotion, Reason and the Human Brain. New York: GP. Putnam’s Sons, 1994.Google Scholar
39.Svensson, O. Values, affect, and processes in human decision making: A differentiation and consolidation theory perspective. In: Schneider, SL, Shanteau, J (eds). Emerging Perspectives on Judgment and Decision Research. Cambridge, UK: Cambridge University Press, 2003:287326.CrossRefGoogle Scholar
40.Zajonc, RB. Feelings and thinking: Preferences need no inferences. Am Psychol. 1980;35:151175.CrossRefGoogle Scholar
41.Zaner, RM. Ethics and the Clinical Encounter. Lima: Academic Renewal Press, 2003.Google Scholar
42.Kavathatzopoulos, I. The use of information and communication technology in the training for ethical competence in business. J Bus Ethics. 2003;48:4351.CrossRefGoogle Scholar
43.Kälvemark Sporrong, S, Arnetz, B, Hansson, MG, Westerholm, P, Höglund, AT. Developing ethical competence in health care organizations. Nurs Ethics. 2007; 14:825837.CrossRefGoogle ScholarPubMed
44.Brytting, T. Att Vara som Gud? – Moralisk Kompetens i Arbetslivet. (To Be Like God? – Moral Competence in Work Life.) Malmö, Sweden: Liber, 2001 (in Swedish).Google Scholar
45.Jormsri, P, Kunaviktikul, W, Ketefian, S, Chaowalit, A. Moral competence in nursing practice. Nurs Ethics. 2005;12:582594.CrossRefGoogle ScholarPubMed
46.Höglund, AT.Inga Lätta Val. Om Riktlinjer och Etisk Kompetens vid Prioriteringar i Vården. En Studie i Empirisk Etik. (No Easy Choices. On Guidelines and Ethical Competence in Priority Setting in Health Care. A Study in Empirical Ethics.) Uppsala Studies in Faiths and Ideologies 15; Acta Universitatis Upsaliensis. Uppsala, Sweden: Uppsala University, 2005 (in Swedish).Google Scholar
47.Dahlberg, K, Segesten, K. Hälsa & Vårdande i Teori och Praxis. (Health & Caring in Theory and Practice). Stockholm, Sweden: Natur & Kultur, 2010 (in Swedish).Google Scholar
48.Hare, RM. Moral Thinking: Its Levels, Method, and Point. New York: Oxford University Press, 1981.CrossRefGoogle Scholar
49.Kuhse, H. Caring: Nurses, Women and Ethics. Maldon: Blackwell Publishers, 1997.Google Scholar
50.Norton, RL, Bartkus, EA, Schmidt, TA, Paquette, JD, Moorhead, JC, Hedges, JR. Survey of emergency medical technicians’ ability to cope with the deaths of patients during prehospital care. Prehosp Disaster Med. 1992;7:235242.CrossRefGoogle Scholar
51.van der Ploeg, E, Kleber, RJ. Acute and chronic stressors among ambulance personnel: predictors of health symptoms. Occup Environ Med. 2003;60:i4046.CrossRefGoogle ScholarPubMed
52.Jonsson, A, Segesten, K. The meaning of traumatic events as described by nurses in ambulance service. Accid Emerg Nurs. 2003;11:141152.CrossRefGoogle ScholarPubMed
53.Ågård, A, Herlitz, J, Castrén, M, Jonsson, L, Sandman, L. Guidance for ambulance personnel on decisions and situations related to out-of-hospital CPR. Resuscitation. 2011; Epub ahead of print. DOI: 10.1016/j.resuscitation.2011.07.028. Accessed November 23, 2011.Google ScholarPubMed