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Translation, cultural adaptation, and validation of the Brazilian Portuguese version of the End-of-Life Professional Caregiver Survey

Published online by Cambridge University Press:  27 November 2019

Ana Cláudia Mesquita Garcia Open the ORCID record for Ana Cláudia Mesquita Garcia [Opens in a new window] ,
Vivian Marina Calixto Damasceno Spineli ,
Aline Helena Appoloni Eduardo ,
Everson Meireles ,
Guilherme Antonio Moreira de Barros  and
Mark Lazenby
Ana Cláudia Mesquita Garcia*
Affiliation:
School of Nursing, Federal University of Alfenas, Alfenas, Brazil
Vivian Marina Calixto Damasceno Spineli
Affiliation:
School of Nursing, University of São Paulo, São Paulo, Brazil
Aline Helena Appoloni Eduardo
Affiliation:
Nursing Department, Federal University of São Carlos, São Carlos, Brazil
Everson Meireles
Affiliation:
Health Sciences Center, Federal University of Recôncavo da Bahia, Cruz das Almas, Brazil
Guilherme Antonio Moreira de Barros
Affiliation:
Medical School, São Paulo State University – UNESP, Botucatu, Brazil
Mark Lazenby
Affiliation:
School of Nursing, University of Connecticut, Storrs
*
Author for correspondence: Ana Cláudia Mesquita Garcia, School of Nursing, Federal University of Alfenas (UNIFAL-MG), Rua Gabriel Monteiro da Silva, 700 - Centro, Alfenas/MG, CEP 37130-001, Brazil. E-mail: [email protected]
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Abstract

Objectives

The aim of this study was to translate, culturally adapt, and psychometrically evaluate the Brazilian version of the “End-of-Life Professional Caregiver Survey” (BR-EPCS).

Method

This is an observational cross-sectional study. The sample was composed of 285 Brazilian healthcare professionals who work or worked in the palliative care area. A minimum number of 280 participants were established, following the recommendation of 10 subjects for each instrument item. The European Organisation for Research and Treatment of Cancer — Quality of Life Group Translation Procedure protocol was used for the translation and the cultural adaptation. For the precise/reliable evaluation of factors measured by the BR-EPCS, Cronbach's alpha (α) and composite reliability coefficients were used. The factorial analyses were made by means of the exploratory structural equation modeling methods and confirmatory factor analysis. We have conducted a multiple linear regression analysis to evaluate the sociodemographic variables' capabilities in the result prediction measured by BR-EPCS factors.

Results

The factorial analysis showed the relevance of two factors: Factor 1 — “Given care effectiveness” (18 items; Cronbach's α = 0.94; Composite Reliability = 0.95) and Factor 2 — “Mourning and ethical and cultural values” (10 items; Cronbach's α = 0.89; Composite Reliability = 0.88). Multiple linear regression analyses revealed that the working time, sex, palliative care training, and its own advance directives are predictors of the constructs assessed by the BR-EPCS.

Significance of results

The BR-EPCS is a reliable, valid, and culturally appropriate tool to identify the educational needs of healthcare professionals who work with palliative care. This instrument can be used for educational and research reasons.

Keywords

Educational measurementEnd-of-life carePalliative carePsychometricsQuestionnaire design
Type
Original Article
Information
Palliative & Supportive Care , Volume 18 , Issue 5 , October 2020 , pp. 569 - 574
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Copyright
Copyright © Cambridge University Press 2019

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Footnotes

†

Deceased.

References

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