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A scoping review of bereavement service outcomes

Published online by Cambridge University Press:  29 June 2016

Donna M. Wilson ,
Nurin Dhanji ,
Robyn Playfair ,
Sahana Srinivas Nayak ,
Gideon L. Puplampu  and
Rod Macleod
Donna M. Wilson*
Affiliation:
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada
Nurin Dhanji
Affiliation:
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada
Robyn Playfair
Affiliation:
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada
Sahana Srinivas Nayak
Affiliation:
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada
Gideon L. Puplampu
Affiliation:
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada
Rod Macleod
Affiliation:
HammondCare and Department of Palliative Care, University of Sydney, Sydney, New South Wales, Australia
*
Address correspondence and reprint requests to Donna M. Wilson, Faculty of Nursing, University of Alberta, Edmonton, Alberta, CanadaT6G 1C9. E-mail: [email protected].
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Abstract

Objective:

This scoping literature review, through finding and assessing researched bereavement service outcomes, sought to determine the state of bereavement services evaluation, to catalogue service types, and to identify which service or services, if any, demonstrate clear evidence of effectiveness.

Method:

Our methods included: (1) a literature search for published English-language research articles from 2005–2015; (2) critical appraisal of articles to identify findings; (3) compilation of findings; and (4) determination of the relevance of our findings.

Results:

Some 38 papers were found, and all were retained to identify the outcomes researched and research findings. Many different outcomes were studied in the 18 quantitative, 11 qualitative, and 9 mixed-methods investigations undertaken worldwide. Ten studies focused on level of grief, six on stress/distress level, six on grief knowledge, six on level of depression, and five on somatization or physical symptoms. Most commonly, a group of bereavement services was evaluated as a whole, followed by group therapy, individual counseling, written information, and other less common services. No group of services or individual service was determined to yield clear and convincing evidence of effectiveness. Regardless, all but one service were shown to have value—most often related to gaining grief information and/or emotional support. Until high-quality research studies have repeatedly revealed evidence of effectiveness, it is possible that the positive outcomes of bereavement services will be largely based on bereaved people receiving helpful educational information and emotional support from organizations and people prepared to help them.

Significance of results:

This project outlines existing bereavement service types and the state of science in relation to determination of outcomes. It offers suggestions to advance the state of science to validate or refine bereavement services. It brings to light the issue that bereavement service outcomes need to be carefully researched so that evidence can drive service refinement and expansion. It also highlights the importance of effective bereavement services.

Keywords

Bereavement servicesOutcomesEvaluationGrief and mourningLiterature review
Type
Review Article
Information
Palliative & Supportive Care , Volume 15 , Issue 2 , April 2017 , pp. 242 - 259
Copyright
Copyright © Cambridge University Press 2016 

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Footnotes

*

All the authors contributed to this manuscript.

References

REFERENCES

Aho, A.L., Astedt-Kurki, P. & Kaunonen, M. (2013–2014). Peer supporters' experiences of a bereavement follow-up intervention for grieving parents. Omega, 68(4), 347–366.CrossRefGoogle ScholarPubMed
Arksey, H. & O'Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.CrossRefGoogle Scholar
Armstrong, R., Hall, B.J., Doyle, J., et al. (2011). “Scoping the scope” of a Cochrane review. Journal of Public Health, 33(1), 147–150.CrossRefGoogle ScholarPubMed
Asukai, N., Tsuruta, N. & Saito, A. (2011). Pilot study on traumatic grief treatment program for Japanese women bereaved by violent death. Journal of Traumatic Stress, 24(4), 470–473.CrossRefGoogle ScholarPubMed
Barlow, C.A., Schiff, J.W., Chugh, U., et al. (2010). An evaluation of a suicide bereavement peer support program. Death Studies, 34(10), 915–930.Google Scholar
Boyden, P., Freeman, A. & Offen, L. (2010). Setting up and running a loss and bereavement support group for adults with learning disabilities. British Journal of Learning Disabilities, 38(1), 35–40.Google Scholar
Brewer, J. & Sparkes, A.C. (2011). Parentally bereaved children and posttraumatic growth: Insights from an ethnographic study of a UK childhood bereavement service. Mortality, 16(3), 204–222.CrossRefGoogle Scholar
Bugge, K.E., Hauqstvedt, K., Rokholt, E.G., et al. (2012). Adolescent bereavement: Embodied responses, coping and perceptions of a body awareness support programme. Journal of Clinical Nursing, 21(15–16), 160–169.CrossRefGoogle ScholarPubMed
Daigle, M.S. & Labelle, R.J. (2012). Pilot evaluation of a group therapy program for children bereaved by suicide. Crisis, 33(6), 350–357.CrossRefGoogle ScholarPubMed
Darbyshire, P., Cleghorn, A., Downes, M., et al. (2013). Supporting bereaved parents: A phenomenological study of a telephone intervention programme in a paediatric oncology unit. Journal of Clinical Nursing, 22(3–4), 540–549.Google Scholar
Davies, B., Collins, B., Steele, R., et al. (2007). Parents' and children's perspectives of a children's hospice bereavement program. Journal of Palliative Care, 23(1), 14–23.CrossRefGoogle ScholarPubMed
deJong-Berg, M.A. & Kane, L. (2006). Bereavement care for families, part 2: Evaluation of a paediatric follow-up programme. International Journal of Palliative Nursing, 12(10), 484–494.Google Scholar
Donovan, L.A., Wakefield, C.E., Russell, V., et al. (2015). Hospital-based bereavement services following the death of a child: A mixed study review. Palliative Medicine, 29(3), 193–210.CrossRefGoogle Scholar
Duncan, F., Findlayson, R. & Wilson, P. (2004). An evaluation of a hospice memorial service. Bereavement Care, 23(1), 8–10.CrossRefGoogle Scholar
Gallagher, M., Tracey, A. & Millar, R. (2005). Ex-clients' evaluation of bereavement counseling in a voluntary sector agency. Psychology and Psychotherapy: Theory, Research and Practice, 78(1), 59–76.CrossRefGoogle Scholar
Grimby, A. & Johansson, A.K. (2007). Does early bereavement counseling prevent ill health and untimely death? The American Journal of Hospice & Palliative Care, 24(6), 475–478.CrossRefGoogle ScholarPubMed
Guldin, M.B., Vedsted, P., Jensen, A.B., et al. (2013). Bereavement care in general practice: A cluster-randomized clinical trial. Family Practice, 30(2), 134–141.CrossRefGoogle ScholarPubMed
Hawton, K., Sutton, L., Simkin, S., et al. (2012). Evaluation of a resource for people bereaved by suicide. Crisis, 33(5), 254–264.CrossRefGoogle ScholarPubMed
He, L., Tang, S., Yu, W., et al. (2014). The prevalence, comorbidity and risks of prolonged grief disorder among bereaved Chinese adults. Psychiatry Research, 219(2), 347–352.CrossRefGoogle ScholarPubMed
Holland, J.M., Currier, J.M. & Gallagher-Thompson, D. (2009). Outcomes from the Resources for Enhancing Alzheimer's Caregiver Health (REACH) program for bereaved caregivers. Psychology and Aging, 24(1), 190–202.CrossRefGoogle ScholarPubMed
Kang, H.Y. & Yoo, Y.S. (2007). Effects of a bereavement intervention program in middle-aged widows in Korea. Archives of Psychiatric Nursing, 21(3), 132–140.CrossRefGoogle ScholarPubMed
Kersting, A., Dolemeyer, R., Steinig, J., et al. (2013). Brief internet-based intervention reduces posttraumatic stress and prolonged grief in parents after the loss of a child during pregnancy: A randomized controlled trial. Psychotherapy and Psychosomatics, 82(6), 372–381.CrossRefGoogle ScholarPubMed
Luecken, L.J., Hagan, M.J., Sandler, I.N., et al. (2010). Cortisol levels six years after participation in the Family Bereavement Program. Psychoneuroendocrinology, 35, 785–789.Google Scholar
Lyndon, A., Hennings, J. & Woolley, B.R. (2010). Evaluation of a British child bereavement service: The user's perspective. Palliative & Supportive Care, 8, 297–303.CrossRefGoogle Scholar
Maruyama, N. & Atencio, C. (2008). Evaluating a bereavement support group. Palliative & Supportive Care, 6(1), 43–49.CrossRefGoogle ScholarPubMed
Michelson, K.N., Blehart, K., Hochberg, T., et al. (2013). Bereavement photography for children: Program development and health care professionals' response. Death Studies, 37(6), 513–528.Google Scholar
Middleton, W., Burnett, P., Raphael, B., et al. (1996). The bereavement response: A cluster analysis. The British Journal of Psychiatry, 169(2), 167–171.CrossRefGoogle ScholarPubMed
Mueller, J., Alie, C., Jonas, B., et al. (2011). A quasi-experimental evaluation of a community-based art therapy intervention exploring the psychosocial health of children affected by HIV in South Africa. Tropical Medicine & International Health, 16(1), 57–66.Google Scholar
Nam, I.S. (2015). Effects of psychoeducation on helpful support for complicated grief: A preliminary randomized controlled single-blind study. Psychological Medicine, 22, e1–e7.Google Scholar
Onrust, S., Willemse, G., van den Bout, J., et al. (2010). Effects of a visiting service for older widowed individuals: A randomized clinical trial. Death Studies, 34(9), 777–803.CrossRefGoogle ScholarPubMed
Parliamentary Committee on Palliative and Compassionate Care (2011). Not to be forgotten: Care of vulnerable Canadians. Available from http://pcpcc-cpspsc.com/wp-content/uploads/2011/11/ReportEN.pdf.Google Scholar
Raitio, K., Kaunonen, M. & Aho, A.L. (2015). Evaluating a bereavement follow-up intervention for grieving mothers after the death of a child. Scandinavian Journal of Caring Sciences, 29(3), 510–520.Google Scholar
Redshaw, S., Harrison, K., Johnson, A., et al. (2013). Community nurses' perceptions of providing bereavement care. International Journal of Nursing Practice, 19(3), 344–350.Google Scholar
Roberts, A. & McGilloway, S. (2008). The nature and use of bereavement support services in a hospice setting. Palliative Medicine, 22(5), 612–625.Google Scholar
Roberts, A. & McGilloway, S. (2010). Bereavement support in a hospice setting: The role of a bereavement information evening. Bereavement Care, 29(1), 14–18.CrossRefGoogle Scholar
Roberts, A. & McGilloway, S. (2011). Methodological and ethical aspects of evaluation research in bereavement. Bereavement Care, 30(1), 21–28.CrossRefGoogle Scholar
Rolls, L. & Payne, S. (2004). Childhood bereavement services: Issues in UK service provision. Mortality, 9(4), 300–328.Google Scholar
Rolls, L. & Penny, A. (2011). Mapping evaluation of UK childhood bereavement services. Bereavement Care, 30(1), 43–47.Google Scholar
Roose, R.E. & Blanford, C.R. (2011). Perinatal grief and support spans the generations: Parents' and grandparents' evaluations of an intergenerational perinatal bereavement program. The Journal of Perinatal & Neonatal Nursing, 25(1), 77–85.Google Scholar
Schoenfelder, E.N., Tein, J., Wolchik, S., et al. (2015). Effects of the family bereavement program on academic outcomes, educational expectations and job aspirations 6 years later: The mediating role of parenting and youth mental health problems. Journal of Abnormal Child Psychology, 43(2), 229–241.Google Scholar
Schut, H. & Stroebe, M. (2011). Challenges in evaluating adult bereavement services. Bereavement Care, 30(1), 5–9.CrossRefGoogle Scholar
Shah, S.M., Carey, I.M., Harris, T., et al. (2013). Initiation of psychotropic medication after partner bereavement: A matched cohort study. PLoS One, 8(11), 1–10.Google Scholar
Shear, M.K., Simon, N., Wall, M., et al. (2011). Complicated grief and related bereavement issues for DSM–5. Depression and Anxiety, 28(2), 103–117.Google Scholar
Siddaway, A.P., Wood, A.M., Schulz, J., et al. (2015). Evaluation of the CHUMS Child Bereavement Group: A pilot study examining statistical and clinical change. Death Studies, 39(2), 99–110.Google Scholar
Thamuku, M. & Daniel, M. (2013). Exploring responses to transformative group therapy for orphaned children in the context of mass orphaning in Botswana. Death Studies, 37, 413–447.CrossRefGoogle ScholarPubMed
Trickey, D. & Nugus, D. (2011). Evaluation of a therapeutic residential intervention for traumatically bereaved children and young people. Bereavement Care, 30(1), 29–36.CrossRefGoogle Scholar
Vlasto, C. (2010). Therapists' views of the relative benefits and pitfalls of group work and one-to-one counselling for bereavement. Counselling & Psychotherapy Research, 10(1), 60–66.Google Scholar
Walsh, T., Foreman, M., Curry, P., et al. (2008). Bereavement support in an acute hospital: An Irish model. Death Studies, 32(8), 768–786.Google Scholar
Whittemore, R. & Knafl, K. (2005). The integrative review: Updated methodology. Journal of Advanced Nursing, 52(5), 546–553.Google Scholar
Wilson, D.M. & Playfair, R. (2016). Bereavement programs and services in the province of Alberta: A mapping report. Canadian Journal on Aging, 35(2), 273–278. Epub ahead of print Apr 21.Google Scholar
Wintermeyer-Pingel, S.A., Murphy, D. & Hammelef, K.J. (2013). Improving a grief and loss program: Caring for patients, families, and staff. Omega, 67(1/2), 233–239.CrossRefGoogle ScholarPubMed
World Health Organization. (2015). The top 10 causes of death. Available from www.who.int/mediacentre/factsheets/fs310/en/index2.html.Google Scholar
Zhang, B., El-Jawahri, A. & Prigerson, H.G. (2006). Update on bereavement research: Evidence-based guidelines for the diagnosis and treatment of complicated bereavement. Journal of Palliative Medicine, 9(5), 1188–1203.Google Scholar