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Psychometric properties of the Korean version of the positive aspects of caregiving scale for family caregivers of people with amyotrophic lateral sclerosis

Published online by Cambridge University Press:  22 June 2020

Hyeon Sik Chu
Affiliation:
ALS/MND clinic, Hanyang University Seoul Hospital, Seoul, Republic of Korea
Young Ran Tak*
Affiliation:
School of Nursing, Hanyang University, Seoul, Republic of Korea
*
Author for correspondence: Young Ran Tak, School of Nursing, Hanyang University, 222, Wangsimni-ro, Seongdong-gu, Seoul 04763, Republic of Korea. E-mail: [email protected]

Abstract

Objective

Many caregivers report finding positive meanings in their caregiving roles and activities. The positive aspects of caregiving (PAC) scale was designed to measure positive appraisals of caregiving. This study assessed the reliability and validity of the Korean version of the PAC for family caregivers of people with amyotrophic lateral sclerosis (ALS).

Method

The instrument's content and semantic equivalence were established using translation and back translation of the PAC. A convenience sample of 127 family caregivers of patients with ALS in Korea was recruited. Content, construct, and convergent validity of the Korean PAC were evaluated. Cronbach's α was used to assess reliability. This study used secondary data; the primary study received approval from the Institutional Review Board of H Hospital, from where data were collected. The consent forms did not mention the future use of data. Therefore, we have applied for approval regarding this study's protocol and exemption from informed consent.

Results

The Cronbach's α was 0.92, and internal consistency was acceptable. Exploratory factor analysis supported the construct validity with a two-factor solution explaining 74.73% of the total variance. Regarding convergent validity, the Korean PAC score negatively correlated with caregiver burden and depression and positively with self-rated health status. We were unable to evaluate the suitability of the suggested structural dimensionality through confirmatory factor analysis. Furthermore, as we used secondary data, we could not assess retest reliability for the evaluation of the scale's stability.

Significance of results

The Korean PAC was found to be an applicable instrument with satisfactory reliability and validity and suitable for further use as a measure for positive appraisals of caregiving for family caregivers of people with ALS. It may be effective for measuring caregivers’ psychological resources.

Type
Original Article
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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References

REFERENCES

Abdollahpour, I, Nedjat, S and Salimi, Y (2018) Positive aspects of caregiving and caregiver burden: A study of caregivers of patients with dementia. Journal of Geriatric Psychiatry and Neurology 31(1), 3438. https://doi.org/10.1177/0891988717743590CrossRefGoogle ScholarPubMed
Andersen, PM, Abrahams, S, Borasio, GD, et al. (2012) EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS) — revised report of an EFNS task force. European Journal of Neurology 19(3), 360375. https://doi.org/10.1111/j.1468-1331.2011.03501Google ScholarPubMed
Aoun, SM, Bentley, B, Funk, L, et al. (2013) A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions. Palliative Medicine 27(5), 437446. https://doi.org/10.1177/0269216312455729CrossRefGoogle ScholarPubMed
Baglin, J (2014) Improving your exploratory factor analysis for ordinal data: A demonstration using FACTOR. Practical Assessment, Research, and Evaluation 19(1), 5.Google Scholar
Brooks, BR, Miller, RG, Swash, M, et al. (2000) El Escorial revisited: Revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders 1(5), 293299. https://doi.org/10.1080/146608200300079536CrossRefGoogle Scholar
Cartagena-Ramos, D, Fuentealba-Torres, M, Rebustini, F, et al. . (2018). Systematic review of the psychometric properties of instruments to measure sexual desire. BMC Medical Research Methodology, 18(1), 109. https://doi.org/10.1186/s12874-018-0570-2CrossRefGoogle ScholarPubMed
Catalan, MG, Ma, F, Huddleson, M, et al. . (2017). Ethnic differences in positive aspects of caregiving in dementia caregiver depression and burden. Innovation in Aging, 1, 139. https://doi.org/10.1093/geroni/igx004.558CrossRefGoogle Scholar
Chappell, NL, Dlitt, BH, Hollander, MJ, et al. (2004) Comparative costs of home care and residential care. The Gerontologist 44(3), 389400. https://doi.org/10.1093/geront/44.3.389CrossRefGoogle ScholarPubMed
Cho, MJ and Kim, KH (1993) Diagnostic validity of the CES-D (Korean version) in the assessment of DSM-III-R major depression. Journal of Korean Neuropsychiatric Association 32(3), 381399.Google Scholar
Chu, HS, Tak, YR and Kim, SH (2018) Factors influencing psychosocial well-being in family caregivers of people with amyotrophic lateral sclerosis. Journal of Korean Academy of Nursing 48(4), 454464. https://doi.org/10.4040/jkan.2018.48.4.454CrossRefGoogle ScholarPubMed
Hair, JF (2010) Multivariate Data Analysis, 7th ed. Upper Saddle River, NJ: Prentice Hall.Google Scholar
Han, HR, Choi, YJ, Kim, MT, et al. (2008) Experiences and challenges of informal caregiving for Korean immigrants. Journal of Advanced Nursing 63(5), 517526. https://doi.org/10.1111/j.1365-2648.2008.04746.xCrossRefGoogle ScholarPubMed
Holgado-Tello, FP, Chacón-Moscoso, S, Barbero-García, I, et al. (2010) Polychoric versus Pearson correlations in exploratory and confirmatory factor analysis of ordinal variables. Quality & Quantity 44(1), 153.CrossRefGoogle Scholar
Hughes, RA, Sinha, A, Higginson, I, et al. (2005) Living with motor neurone disease: Lives, experiences of services and suggestions for change. Health & Social Care in the Community 13(1), 6474.CrossRefGoogle Scholar
King, SJ, Duke, MM and O'Connor, BA (2009) Living with amyotrophic lateral sclerosis/motor neurone disease (ALS/MND): Decision-making about ‘ongoing change and adaptation’. Journal of Clinical Nursing 18(5), 745754.CrossRefGoogle ScholarPubMed
Las Hayas, C, López de Arroyabe, E and Calvete, E (2014). Positive aspects of caregiving in Spanish caregivers of individuals with acquired brain injury. Rehabilitation Psychology, 59(2), 193. https://doi.org/10.1037/a0035622CrossRefGoogle ScholarPubMed
Lee, E (2017). How does race/ethnicity impact caregiving experiences among family caregivers of patients with dementia? Alzheimer's and Dementia, 13(7), P837. https://doi.org/10.1016/j.jalz.2017.06.1171CrossRefGoogle Scholar
Lee, H, Kim, D, Ko, H, et al. (2004) Measurement of stress in the caregivers of dementia patients: Reliability and validity of the revised-memory and behavior problem checklist and the burden interview. Korean Journal of Clinical Psychology 23(4), 10291050.Google Scholar
Lou, VW, Lau, BHP and Cheung, KSL (2015) Positive aspects of caregiving (PAC): Scale validation among Chinese dementia caregivers (CG). Archives of Gerontology and Geriatrics 60(2), 299306. https://doi.org/10.1016/j.archger.2014.10.019CrossRefGoogle Scholar
Malhotra, R, Chei, CL, Menon, EB, et al. (2018) Trajectories of positive aspects of caregiving among family caregivers of stroke-survivors: The differential impact of stroke-survivor disability. Topics in Stroke Rehabilitation 25(4), 261268. https://doi.org/10.1080/10749357.2018.1455369CrossRefGoogle ScholarPubMed
Mock, S and Boerner, K (2010) Sense making and benefit finding among patients with amyotrophic lateral sclerosis and their primary caregivers. Journal of Health Psychology 15(1), 115121. https://doi.org/10.1177/1359105309344897CrossRefGoogle ScholarPubMed
Nunnally, JC and Bernstein, IH (1994) Psychometric Theory, 3rd ed. New York, NY: McGraw-Hill.Google Scholar
Osborne, JW, Costello, AB and Kellow, JT (2008). Best practices in exploratory factor analysis. In Osborne, J.W. (ed.), Best Practices in Quantitative Methods. Thousand Oaks, CA: Sage Publishing, pp. 205213.CrossRefGoogle Scholar
Pagnini, F, Rossi, G, Lunetta, C, et al. (2010) Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis. Psychological Health and Medicine 15(6), 685693. https://doi.org/10.1080/13548506.2010.507773CrossRefGoogle ScholarPubMed
Rabin, R and de Charro, F (2001) EQ-SD: A measure of health status from the EuroQol Group. Annals of Medicine 33(5), 337343. https://doi.org/10.3109/07853890109002087CrossRefGoogle Scholar
Revelle, W (2019). psych: Procedures for Psychological, Psychometric, and Personality Research. [R package]. Available at: https://cran.r-project.org/package=psych.Google Scholar
Roth, DL, Dilworth-Anderson, P, Huang, J, et al. (2015) Positive aspects of family caregiving for dementia: Differential item functioning by race. Journals of Gerontology Series B: Psychological Sciences and Social Sciences 70(6), 813819. https://doi.org/10.1093/geronb/gbv034CrossRefGoogle ScholarPubMed
Sandstedt, P, Littorin, S, Cröde Widsell, G, et al. (2018) Caregiver experience, health-related quality of life and life satisfaction among informal caregivers to patients with amyotrophic lateral sclerosis: A cross-sectional study. Journal of Clinical Nursing 27(23–24), 43214330. https://doi.org/10.1111/jocn.14593CrossRefGoogle ScholarPubMed
Siow, JYM, Chan, A, Østbye, T, et al. (2017) Validity and reliability of the positive aspects of caregiving (PAC) scale and development of its shorter version (S-PAC) among family caregivers of older adults. The Gerontologist 57(4), e75e84. https://doi.org/10.1093/geront/gnw198Google ScholarPubMed
Tarlow, BJ, Wisniewski, SR, Belle, SH, et al. (2004) Positive aspects of caregiving: Contributions of the REACH project to the development of new measures for Alzheimer's caregiving. Research on Aging 26(4), 429453. https://doi.org/10.1177/0164027504264493CrossRefGoogle Scholar
Terwee, CB, Mokkink, LB, Knol, DL, et al. (2012) Rating the methodological quality in systematic reviews of studies on measurement properties: A scoring system for the COSMIN checklist. Quality of Life Research 21(4), 651657. https://doi.org/10.1007/s11136-011-9960-1CrossRefGoogle ScholarPubMed
The jamovi Project (2019). jamovi (version 1.0) [Computer Software]. Available at: https://www.jamovi.org.Google Scholar
van Es, MA, Hardiman, O, Chio, A, et al. (2017) Amyotrophic lateral sclerosis. Lancet 390(10107), 20842098. https://doi.org/10.1016/s0140-6736(17)31287-4CrossRefGoogle ScholarPubMed
Weisser, FB, Bristowe, K and Jackson, D (2015) Experiences of burden, needs, rewards and resilience in family caregivers of people living with motor neurone disease/amyotrophic lateral sclerosis: A secondary thematic analysis of qualitative interviews. Palliative Medicine 29(8), 737745.CrossRefGoogle ScholarPubMed
World Health Organization (2015). Process of translation and adaptation of instruments. Available at: https://www.who.int/substance_abuse/research_tools/translation/en/.Google Scholar
Xue, H, Zhai, J, He, R, et al. (2018) Moderating role of positive aspects of caregiving in the relationship between depression in persons with Alzheimer's disease and caregiver burden. Psychiatry Research 261, 400405. https://doi.org/10.1016/j.psychres.2017.12.088.CrossRefGoogle ScholarPubMed
Yu, H, Wu, L, Chen, S, et al. (2016) Caregiving burden and gain among adult-child caregivers caring for parents with dementia in China: The partial mediating role of reciprocal filial piety. International Psychogeriatrics 28(11), 18451855. https://doi.org/10.1017/S1041610216000685.CrossRefGoogle ScholarPubMed