Hostname: page-component-cd9895bd7-gbm5v Total loading time: 0 Render date: 2024-12-29T17:40:32.629Z Has data issue: false hasContentIssue false
  • English
  • Français

Preferences for end-of-life care settings among the healthy population in Israel—Related socio-demographic variables

Published online by Cambridge University Press:  25 June 2021

Yaira Hamama-Raz Open the ORCID record for Yaira Hamama-Raz [Opens in a new window] ,
Yael Cohen  and
Menachem Ben-Ezra
Yaira Hamama-Raz*
Affiliation:
Ariel University, Ariel, Israel
Yael Cohen
Affiliation:
Ariel University, Ariel, Israel
Menachem Ben-Ezra
Affiliation:
Ariel University, Ariel, Israel
*
Author for correspondence: Yaira Hamama-Raz, Ariel University, Ariel, Israel. E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Objective

Preferences for end-of-life (EoL) care settings is of considerable interest for developing public health policy and EoL care strategies. Culture, the cause of illness, and background characteristics may impact preferences. The present study aimed to explore preferences for EoL care settings: homes, hospitals, and inpatient hospice units among the general healthy population in Israel. Possible associations between the setting preferences and socio-demographic characteristics were also examined.

Method

A cross-sectional survey was conducted among 311 healthy adults who were recruited through a representative internet panel of the Israeli population using the Israeli census sampling method. The sex ratio was almost 1:1 with 158 women (50.8%) and 153 men (49.2%). All participants completed self-report measures using an online survey system. The questionnaires assessed sociodemographics and preferences for EoL care settings.

Results

This survey revealed that 52.1% of the participants expressed preference for being cared for at home rather than in an inpatient hospice unit, 40.8% expressed being cared for at home rather than in a hospital, while 36.7% had no preference regarding being cared for in hospital or in a hospice unit. Among the socio-demographic variables, only age and gender were found to be significantly associated with preferences for EoL care settings.

Significance of results

The present study highlights the need to be cautious when regarding home as the preferred EoL care setting, as some individuals declared that they would prefer EoL hospice/hospital care. Age and gender should be considered when discussing and tailoring strategies regarding EoL preferences.

Keywords

Care settingsEnd of lifeHealthy populationPreferencesSocio-demographic variables
Type
Original Article
Information
Palliative & Supportive Care , Volume 20 , Issue 3 , June 2022 , pp. 383 - 388
Check for updates
Copyright
Copyright © The Author(s), 2021. Published by Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

REFERENCES

Bentur, N, Emanuel, LL and Cherney, N (2012) Progress in palliative care in Israel: Comparative mapping and next steps. Israel Journal of Health Policy Research 1(1), 9. doi:10.1186/2045-4015-1-9.CrossRefGoogle Scholar
Benyamini, Y, Blumstein, T, Lusky, A, et al. (2003) Gender differences in the self-rated health–mortality association: Is it poor self-rated health that predicts mortality or excellent self-rated health that predicts survival? Gerontologist 43, 396–405.CrossRefGoogle ScholarPubMed
Bodas, M, Siman-Tov, M, Kreitler, S, et al. (2017) Psychological correlates of civilian preparedness for conflicts. Disaster Medicine and Public Health Preparedness 11(4), 451–459.CrossRefGoogle ScholarPubMed
Brereton, L, Gardiner, C, Gott, M, et al. (2012) The hospital environment for end of life care of older adults and their families: An integrative review. Journal of Advanced Nursing 68(5), 981–993.CrossRefGoogle ScholarPubMed
Broom, A and Cavenagh, J (2010) Masculinity, moralities and being cared for: An exploration of experiences of living and dying in a hospice. Social Science & Medicine 71(5), 869–876.CrossRefGoogle Scholar
Cain, CL, Surbone, A, Elk, R, et al. (2018) Culture and palliative care: Preferences, communication, meaning, and mutual decision making. Journal of Pain and Symptom Management 55(5), 1408–1419.CrossRefGoogle ScholarPubMed
Calanzani, N, Higginson, IJ and Gomes, B (2013) Current and Future Needs for Hospice Care: An Evidence-Based Report. Commission into the Future of Hospice Care. https://pdfs.semanticscholar.org/1ff9/a586fa92fe0c1ce20528da07a9e8c3284acc.pdf.Google Scholar
Catt, S, Blanchard, M, Addington-Hall, J, et al. (2005) The development of a questionnaire to assess the attitudes of older people to end-of-life issues (AEOLI). Palliative Medicine 19(5), 397–401.CrossRefGoogle Scholar
Chung, RYN, Wong, ELY, Kiang, N, et al. (2017) Knowledge, attitudes, and preferences of advance decisions, end-of-life care, and place of care and death in Hong Kong. A population-based telephone survey of 1067 adults. Journal of the American Medical Directors Association 18(4), 367.e19.CrossRefGoogle Scholar
Collins, A, McLachlan, SA and Philip, J (2017) Initial perceptions of palliative care: An exploratory qualitative study of patients with advanced cancer and their family caregivers. Palliative Medicine 31(9), 825–832.CrossRefGoogle ScholarPubMed
Dai, YX, Chen, TJ and Lin, MH (2017) Branding palliative care units by avoiding the terms “palliative” and “hospice” - A nationwide study in Taiwan. INQUIRY: The Journal of Health Care Organization, Provision, and Financing 54, 1–6.Google Scholar
Donnelly, S, Prizeman, G, Coimín, DÓ, et al. (2018) Voices that matter: End-of-life care in two acute hospitals from the perspective of bereaved relatives. BMC Palliative Care 17(1), 117.CrossRefGoogle ScholarPubMed
Fegg, M, Lehner, M, Simon, ST, et al. (2015) Was beeinflusst Entscheidungen am Lebensende? Ergebnisse einer repräsentativen Umfrage in Deutschland [What influences end-of-life decisions? Results of a representative German survey]. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 58(10), 1118–1123.CrossRefGoogle Scholar
Foreman, LM, Hunt, RW, Luke, CG, et al. (2006) Factors predictive of preferred place of death in the general population of South Australia. Palliative Medicine 20(4), 447–453.CrossRefGoogle ScholarPubMed
Gabbay, E, McCarthy, ME and Fins, JJ (2017) The care of the ultra-orthodox Jewish patient. Journal of Religion & Health 56(2), 545–560.CrossRefGoogle ScholarPubMed
Gomes, B, Higginson, IJ, Calanzani, N, et al. (2012) Preferences for place of death if faced with advanced cancer: A population survey in England, Flanders, Germany, Italy, The Netherlands, Portugal and Spain. Annals of Oncology 23(8), 2006–2015.CrossRefGoogle ScholarPubMed
Gomes, B, Calanzani, N, Gysels, M, et al. (2013) Heterogeneity and changes in preferences for dying at home: A systematic review. BMC Palliative Care 12(1), 1–13.CrossRefGoogle ScholarPubMed
Gomes, B, Calanzani, N, Koffman, J, et al. (2015) Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study. BMC Medicine 13(1), 235.CrossRefGoogle ScholarPubMed
Hamano, J, Hanari, K and Tamiya, N (2020) End-of-life care preferences of the general public and recommendations of healthcare providers: A nationwide survey in Japan. BMC Palliative Care 19, 38. doi:10.1186/s12904-020-00546-9.CrossRefGoogle ScholarPubMed
Huang, YL, Yates, P, Thorberg, FA, et al. (2019) Adults’ perspectives on cultural, social and professional support on end-of-life preferences. Collegian 26(6), 621–628.CrossRefGoogle Scholar
Hudson, P, Quinn, K, O'Hanlon, B, et al. (2008) Family meetings in palliative care: Multidisciplinary clinical practice guidelines. BMC Palliative Care 7(1), 12.CrossRefGoogle ScholarPubMed
Hughes, J (2015) UK: The best place in the world to die. BMJ 351, 5440.CrossRefGoogle ScholarPubMed
Lavee, Y and Katz, R (2003) The family in Israel. Marriage & Family Review 35(1–2), 193–217.CrossRefGoogle Scholar
O'brien, RM (2007) A caution regarding rules of thumb for variance inflation factors. Quality & Quantity 41(5), 673–690.CrossRefGoogle Scholar
Pradilla, HC, Ospina, OLC and Alonso-Babarro, A (2011) Preference for place of death and related factors of the elderly in the Mediterranean Isle of Ibiza. Colombian Journal of Anesthesiology 39(2), 174–188.CrossRefGoogle Scholar
Pyszczynski, T, Greenberg, J and Solomon, S (1999) A dual-process model of defense against conscious and unconscious death-related thoughts: An extension of terror management theory. Psychological Review 106(4), 835–845. doi:10.1037/0033-295X.106.4.835.CrossRefGoogle ScholarPubMed
Rainsford, S, Phillips, CB, Glasgow, NJ, et al. (2018) The ‘safe death’: An ethnographic study exploring the perspectives of rural palliative care patients and family caregivers. Palliative Medicine 32(10), 1575–1583.CrossRefGoogle ScholarPubMed
Rietjens, JA, van der Heide, A, Onwuteaka-Philipsen, BD, et al. (2006) Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making. Palliative Medicine 20(7), 685–692.CrossRefGoogle ScholarPubMed
Rosen, B, Waitzberg, R and Merkur, S (2015) Israel: Health system review. Health Systems in Transition 17(6), 1–212.Google ScholarPubMed
Schultz, M, Baddarni, K and Bar-Sela, G (2012) Reflections on palliative care from the Jewish and Islamic tradition. Evidence-Based Complementary and Alternative Medicine 2012, 1–8.CrossRefGoogle ScholarPubMed
Seaman, JB, Bear, TM, Documet, PI, et al. (2016) Hospice and family involvement with end-of-life care: Results from a population-based survey. American Journal of Hospice and Palliative Medicine 33(2), 130–135.CrossRefGoogle ScholarPubMed
Sharma, RK, Prigerson, HG, Penedo, FJ, et al. (2015) Male-female patient differences in the association between end-of-life discussions and receipt of intensive care near death. Cancer 121(16), 2814–2820.CrossRefGoogle ScholarPubMed
Shen, MJ and Wellman, JD (2019) Evidence of palliative care stigma: The role of negative stereotypes in preventing willingness to use palliative care. Palliative & Supportive Care 17(4), 374–380.CrossRefGoogle ScholarPubMed
Sholjakova, M, Durnev, V, Kartalov, A, et al. (2018) Pain relief as an integral part of the palliative care. Open Access Macedonian Journal of Medical Sciences 6(4), 739–741.CrossRefGoogle ScholarPubMed
Ullrich, A, Grube, K, Hlawatsch, C, et al. (2019) Exploring the gender dimension of problems and needs of patients receiving specialist palliative care in a German palliative care unit-the perspective of patients and healthcare professionals. BMC Palliative Care 18(1), 59.CrossRefGoogle Scholar
Waller, A, Sanson-Fisher, R, Zdenkowski, N, et al. (2018) The right place at the right time: Medical oncology outpatients’ perceptions of location of end-of-life care. Journal of the National Comprehensive Cancer Network 16(1), 35–41.CrossRefGoogle Scholar
Wilson, DM, Cohen, J, Deliens, L, et al. (2013) The preferred place of last days: Results of a representative population-based public survey. Journal of Palliative Medicine 16(5), 502–508.CrossRefGoogle ScholarPubMed
World Health Organization (2002) Palliative Care. Geneva: World Health Organization. https://www.who.int/cancer/palliative/definition/en/.Google Scholar
Wright, AA, Keating, NL, Balboni, TA, et al. (2010) Place of death: Correlations with quality of life of patients with cancer and predictors of bereaved caregivers’ mental health. Journal of Clinical Oncology 28(29), 4457–4464.CrossRefGoogle ScholarPubMed
Yun, YH, Kim, KN, Sim, JA, et al. (2018) Comparison of attitudes towards five end-of-life care interventions (active pain control, withdrawal of futile life-sustaining treatment, passive euthanasia, active euthanasia and physician-assisted suicide): A multicentered cross-sectional survey of Korean patients with cancer, their family caregivers, physicians and the general Korean population. BMJ Open 8(9), e020519.CrossRefGoogle Scholar