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Perception of pediatric oncology family care providers toward palliative care and its perceived barriers in Egypt

Published online by Cambridge University Press:  12 November 2021

Magda Aly Mohamed ,
Ateya Megahed Ibrahim Open the ORCID record for Ateya Megahed Ibrahim [Opens in a new window] ,
Hanaa Mohamed Ibrahim ,
Nabila Abdella  and
Reda Ibrahim Elmowafy
Magda Aly Mohamed
Affiliation:
Department of Family and Community Health Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt
Ateya Megahed Ibrahim*
Affiliation:
Department of Family and Community Health Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt
Hanaa Mohamed Ibrahim*
Affiliation:
Department of Pediatric Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt
Nabila Abdella
Affiliation:
Department of Pediatric Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt
Reda Ibrahim Elmowafy
Affiliation:
Department of Family and Community Health Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt
*
Author for correspondence: Ateya Megahed Ibrahim, Department of Family and Community Health Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt. Email: [email protected]
Author for correspondence: Ateya Megahed Ibrahim, Department of Family and Community Health Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt. Email: [email protected]
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Abstract

Background

Palliative care is comprehensive supportive care addressing the suffering, pain, discomfort, symptoms, and stress of cancer and any serious life-threatening disease. It is a key part of care for our children living with cancer and is an important source of support for their families. The study aimed to assess the perception of pediatric oncology family care providers toward palliative care and its perceived barriers in Egypt.

Method

Total number of 500 oncology children's family care providers was recruited. A descriptive research design was utilized. Researchers used three tools as Structured Interview Questionnaire to assess the participants' knowledge and perceived barriers, Attitude toward palliative care Likert Scale, and Reported Practices Observational Checklist. The study was conducted in outpatient cancer clinics affiliated with El-Nasr governmental hospital located at Port Said governorate.

Results

51.8% of the total oncology children's family care providers had sufficient knowledge, 78.6% had a positive attitude, while,76.8% of them had inappropriate Practice towards palliative care.

Significance of results

The pediatric oncology family care providers had sufficient knowledge and a positive attitude toward palliative care, but their practices were inappropriate. Also, the majority of participants identified Lack of family care providers training in pediatric palliative care and improper communication between the health team and family care providers as the main barriers to providing palliative care to children. Providing a palliative care training program for family caregivers through continuing professional development is highly recommended besides further research studies using large probability samples at different settings.

Keywords

AttitudeBarriersKnowledgeOncologyPalliative carePractice
Type
Original Article
Information
Palliative & Supportive Care , Volume 20 , Issue 1 , February 2022 , pp. 55 - 61
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Copyright
Copyright © The Author(s), 2021. Published by Cambridge University Press

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