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Partnering to cope with pain: A pilot study of a caregiver-assisted pain coping skills intervention for patients with cognitive impairment and dementia

Published online by Cambridge University Press:  04 November 2021

Laura S. Porter Open the ORCID record for Laura S. Porter [Opens in a new window] ,
Debra K. Weiner ,
Katherine Ramos ,
Deborah E. Barnes ,
Kenneth E. Schmader ,
Lisa Gwyther ,
Christine S. Ritchie  and
Francis J. Keefe
Laura S. Porter*
Affiliation:
Department of Psychiatry & Behavioral Sciences, Duke University School of Medicine, Durham, NC
Debra K. Weiner
Affiliation:
Geriatric Research Education and Clinical Center, VA Pittsburgh Healthcare System, Pittsburgh, PA
Katherine Ramos
Affiliation:
Department of Psychiatry & Behavioral Sciences, Duke University School of Medicine, Durham, NC
Deborah E. Barnes
Affiliation:
University of San Francisco, UCSF Weill Institute for Neurosciences, San Francisco, CA
Kenneth E. Schmader
Affiliation:
Department of Medicine, Duke University School of Medicine and GRECC, Durham VA Medical Center, Durham, NC
Lisa Gwyther
Affiliation:
Department of Psychiatry & Behavioral Sciences, Duke University School of Medicine, Durham, NC
Christine S. Ritchie
Affiliation:
Department of Medicine, Massachusetts General Hospital and Harvard Medical School, Boston, MA
Francis J. Keefe
Affiliation:
Department of Psychiatry & Behavioral Sciences, Duke University School of Medicine, Durham, NC
*
Author for correspondence: Laura S. Porter, DUMC Box 90399, Durham, NC 27710, USA. E-mail: [email protected]
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Abstract

Objective

To develop a new caregiver-assisted pain coping skills training protocol specifically tailored for community-dwelling persons with cognitive impairment and pain, and assess its feasibility and acceptability.

Method

In Phase I, we conducted interviews with 10 patient–caregiver dyads to gather feedback about intervention content and delivery. Phase II was a single-arm pilot test to evaluate the intervention's feasibility and acceptability. Dyads in the pilot study (n = 11) completed baseline surveys, received five intervention sessions, and then completed post-intervention surveys. Analyses focused on feasibility and acceptability.

Results

Dyads responded positively to the pain coping skills presented in the interviews; their feedback was used to refine the intervention. Findings from the pilot study suggested that the intervention was feasible and acceptable. 69% of eligible dyads consented, 82% completed all five intervention sessions, and 100% completed the post-treatment assessment. Caregivers reported high satisfaction ratings. They also reported using the pain coping skills on a regular basis, and that they found most of the skills helpful and easy to use.

Significance of results

These preliminary findings suggest that a caregiver-assisted pain coping skills intervention is feasible and acceptable, and that it may be a promising approach to managing pain in patients with cognitive impairment.

Keywords

CaregiverCognitive behavioral therapyDementiaPain management
Type
Original Article
Information
Palliative & Supportive Care , Volume 20 , Issue 6 , December 2022 , pp. 785 - 793
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Copyright
Copyright © The Author(s), 2021. Published by Cambridge University Press

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