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Measuring social support in patients with advanced medical illnesses: An analysis of the Duke–UNC Functional Social Support Questionnaire

Published online by Cambridge University Press:  09 September 2014

Rebecca Saracino ,
Elissa Kolva ,
Barry Rosenfeld  and
William Breitbart
Rebecca Saracino*
Affiliation:
Department of Psychology, Fordham University, Bronx, New York Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York
Elissa Kolva
Affiliation:
Department of Psychology, Fordham University, Bronx, New York
Barry Rosenfeld
Affiliation:
Department of Psychology, Fordham University, Bronx, New York Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York
William Breitbart
Affiliation:
Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York
*
Address correspondence and reprint requests to: Rebecca Saracino, Fordham University, 226 Dealy Hall, 441 East Fordham Road, Bronx, New York 10458. E-mail: [email protected]
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Abstract

Objective:

To date, no measure of social support has been developed specifically for either palliative care or oncology settings. The present study examined the psychometric properties of the Duke–University of North Carolina Functional Social Support Questionnaire (DUFSS) in order to (1) assess the adequacy of the scale in the context of severe medical illness and (2) evaluate whether a brief subset of items might generate roughly comparable utility.

Method:

The 14-item DUFSS was administered to 1,362 individuals with advanced cancer or AIDS. Classical test theory (CTT) and item response theory (IRT) analyses were utilized to develop an abbreviated version of the DUFSS that maintained adequate reliability and validity and might increase the feasibility of its administration in a palliative care setting. The reliability and concurrent validity of the DUFSS-5 were evaluated in a separate validation sample of patients with advanced cancer.

Results:

Analyses generated a five-item version of the DUFSS (the DUFSS-5) that collapsed response levels into only three options, instead of five. Correlations between the DUFSS-5 and measures of depression, quality of life, and desire for hastened death, as well as regression models testing the main-effect and buffering models of social support, provided support for the utility of the DUFSS-5.

Significance of results:

Both the DUFSS and the abbreviated DUFSS-5 appear to have adequate reliability and validity in this setting. Moreover, the DUFSS-5 represents a potentially important option for healthcare researchers, particularly for those working in palliative care settings where issues of patient burden are paramount. Such analyses are critical for advancing the development and refinement of psychosocial measures, but have often been neglected.

Keywords

Social supportPalliative careItem response theory
Type
Original Articles
Information
Palliative & Supportive Care , Volume 13 , Issue 5 , October 2015 , pp. 1153 - 1163
Copyright
Copyright © Cambridge University Press 2014 

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