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Liminality as a dimension of the experience of living with terminal cancer

Published online by Cambridge University Press:  06 September 2018

Carla Willig*
Affiliation:
City University of London, London, United Kingdom
Luisa Wirth
Affiliation:
City University of London, London, United Kingdom
*
Author for correspondence: Carla Willig, City University of London, Northampton Square, London, UK EC1 V OHB. E-mail: [email protected]

Abstract

Objective

This paper is concerned with the phenomenology of death awareness within the context of being diagnosed with terminal cancer. The objective of the research presented here is to provide a deeper insight into terminally ill cancer patients’ engagement with their mortality.

Method

The analysis forms part of a wider project that involved conducting a metasynthesis of 23 phenomenological studies of the experience of living with the awareness of having terminal cancer published between 2011 and 2016.

Result

The metasynthesis identified four master themes that represent distinct experiential dimensions of living with terminal cancer. This paper focuses on one of these themes, liminality, to provide novel insights into the structure of death awareness whilst living with terminal cancer.

Significance of results

The results suggest that liminality describes an experiential space from within which terminal cancer patients encounter a new relationship with their existence. Liminality offers opportunities for both connection (e.g., with the natural world) as well as disconnection (e.g., from loved ones and others who still have a future) and therefore contains the potential for suffering and distress as well as for joy and a sense of fulfillment. This understanding of liminality can help healthcare professionals provide psychological support for this client group.

Type
Original Article
Copyright
Copyright © Cambridge University Press 2018 

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References

Arman, M and Backman, M (2007) A longitudinal study on women's experiences of life with breast cancer in anthroposophical (complementary) and conventional care, European Journal of Cancer Care 16, 444450.10.1111/j.1365-2354.2006.00773.xGoogle Scholar
Andrews, H and Roberts, L (2015) Liminality. International Encyclopedia of the Social & Behavioral Sciences, 2nd ed., vol. 14.10.1016/B978-0-08-097086-8.12102-6Google Scholar
Baggini, J (2005) End of life: The humanist view. The Lancet 366, 12351237.10.1016/S0140-6736(05)67486-7Google Scholar
Bentur, N, Stark, DY, Resnizky, S, et al. (2014) Coping strategies for existential and spiritual suffering in Israeli patients with advanced cancer. Israel Journal of Health Policy Research 3, 21.10.1186/2045-4015-3-21Google Scholar
Blake, W (1803) Auguries of innocence. The Poetry Foundation. Available from https://www.poetryfoundation.org/poems-and-poets/poems/detail/43650.Google Scholar
Bondas, T and Hall, EOC (2007) Challenges in approaching metasynthesis research. Qualitative Health Research 17, 113121.10.1177/1049732306295879Google Scholar
Coyle, N (2006) The hard work of living in the face of death. Journal of Pain and Symptom Management 32, 266274.Google Scholar
Dorff, EN (2005) End-of-life: Jewish perspectives. The Lancet 366, 862865.10.1016/S0140-6736(05)67219-4Google Scholar
Fine, AH (ed.) (2010) Handbook on animal-assisted therapy. Foundations and Guidelines for Animal-assisted Interventions, 3rd ed. San Diego: Academic Press,Google Scholar
Greenberg, J, Solomon, S, and Pyszcznyski, T (1997) Terror management theory of self-esteem and cultural worldviews: Empirical assessments and conceptual refinements. In Advances in experimental social psychology. Zanna, MP (ed.) San Diego: Academic Press.Google Scholar
Heidegger, M (1962) Being and time. Trans. Macquarrie, J and Robinson, E. Oxford: Basil Blackwell.Google Scholar
Kabat-Zinn, J (2013) Full catastrophe living: Using the wisdom of your body and mind to face stress, pain, and illness. New York: Bantam Dell.Google Scholar
Karlsson, M, Friberg, F, Wallgren, C, et al. (2014) Meanings of existential uncertainty and certainty for people diagnosed with cancer and receiving palliativeGoogle Scholar
Keown, D (2005) End of life: The Buddhist view. The Lancet 366, 952955.Google Scholar
La Cour, K and Hansen, HP (2012) Aesthetic engagements: “Being” in everyday life with advanced cancer. American Journal of Hospice & Palliative Medicine 29, 126133.10.1177/1049909111413117Google Scholar
Levy, A and Cartwright, T (2015) Men's strategies for preserving emotional well-being in advanced prostate cancer: An interpretative phenomenological analysis. Psychology & Health 30, 11641182.10.1080/08870446.2015.1040016Google Scholar
Little, M, Jordens, CFC, Paul, K, et al. (1998) Liminality: A major category of the experience of cancer illness. Social Science and Medicine 47, 14851494.10.1016/S0277-9536(98)00248-2Google Scholar
Little, M and Sayers, E-J (2004) The skull beneath the skin: Cancer survival and awareness of death. Psycho-Oncology 13, 190198.10.1002/pon.720Google Scholar
Ludvigsen, MS, Hall, EOC, Meyer, G, et al. (2015) Using Sandelowski and Barroso's metasynthesis method in advancing qualitative evidence. Qualitative Health Research 26, 110.Google Scholar
Markwell, H (2005) End-of-life: A Catholic view. The Lancet 366, 11321135.10.1016/S0140-6736(05)67425-9Google Scholar
Navon, L and Morag, A (2004) Liminality as biographical disruption: Unclassifiability following hormonal therapy for advanced prostate cancer. Social Science & Medicine 58, 23372347.10.1016/j.socscimed.2003.08.029Google Scholar
Nissim, R, Rennie, D, Fleming, S, et al. (2012) Goals set in the land of the living/dying: A longitudinal study of patients living with advanced cancer. Death Studies 36, 360390.10.1080/07481187.2011.553324Google Scholar
Ohlen, J, Gustafsson, CW, and Friberg, F (2013) Making sense of palliative treatment. Its significance to cancer care communication and information provision. Cancer Nursing 36, 265273.Google Scholar
Philip, J, Collins, A, Brand, CA, et al. (2014) “I'm just waiting…”: An exploration of the experience of living and dying with primary malignant glioma. Support Care Cancer 22, 389397.10.1007/s00520-013-1986-1Google Scholar
Saeteren, B, Lindstrom, UA, and Naden, D (2010) Latching on to life: Living in the area of tension between the possibility of life and the necessity of death. Journal of Clinical Nursing 20, 811818.10.1111/j.1365-2702.2010.03212.xGoogle Scholar
The Lancet (2005) Viewpoint: End of life, various articles. 366(9488, 9489, 9491, 9492).10.1016/S0140-6736(05)67456-9Google Scholar
Watkins, C (2013) The undiscovered country. Journeys among the dead. London: The Bodley Head.Google Scholar
Weed, M (2008) A potential method for the interpretive synthesis of qualitative research: Issues in the development of ‘meta-interpretation.’ International Journal of Social Research Methodology 11, 1328.10.1080/13645570701401222Google Scholar
Wiik, GB, Devik, S, and Hellzen, O (2011) Don't become a burden and don't complain: A case study of older persons suffering from incurable cancer and living alone in rural areas. Nursing Reports 1, 714.Google Scholar
Willig, C (2015) “My bus is here:” A phenomenological exploration of ‘living with dying.’ Health Psychology 34, 417425.Google Scholar
Willig, C and Wirth, L (2018) A metasynthesis of studies of the experience of living with terminal cancer. Health Psychology 37, 228237.Google Scholar