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How older people with incurable cancer experience daily living: A qualitative study from Norway

Published online by Cambridge University Press:  27 August 2014

Sigrid Helene Kjørven Haug ,
Lars J. Danbolt ,
Kari Kvigne  and
Valerie Demarinis
Sigrid Helene Kjørven Haug*
Affiliation:
Center for Psychology of Religion, Innlandet Hospital Trust, and The Norwegian School of Theology, Oslo, Norway
Lars J. Danbolt
Affiliation:
Centre for Psychology of Religion, Innlandet Hospital Trust, and The Norwegian School of Theology, Oslo, Norway
Kari Kvigne
Affiliation:
Hedmark University College, Department of Public Health, Institute of Nursing and Mental Health, Elverum, Norway, and Nesna University College, Institute for Nursing Education, Nordland, Norway
Valerie Demarinis
Affiliation:
Centre for Psychology of Religion, Innlandet Hospital Trust, and The Norwegian School of Theology, Oslo, Norway IMPACT Research Program, Public Mental Health Promotion Area, Uppsala University, Uppsala, Sweden
*
Address correspondence and reprint requests to: Sigrid Helene Kjørven Haug, Innlandet Hospital Trust, Centre for Psychology of Religion, P.B. 68, 2312, Ottestad, Norway. E-mail: [email protected]
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Abstract

Objective:

An increasing number of older people are living with incurable cancer as a chronic disease, requiring palliative care from specialized healthcare for shorter or longer periods of time. The aim of our study was to describe how they experience daily living while receiving palliative care in specialized healthcare contexts.

Method:

We conducted a qualitative research study with a phenomenological approach called “systematic text condensation.” A total of 21 participants, 12 men and 9 women, aged 70–88, took part in semistructured interviews. They were recruited from two somatic hospitals in southeastern Norway.

Results:

The participants experienced a strong link to life in terms of four subthemes: to acknowledge the need for close relationships; to maintain activities of normal daily life; to provide space for existential meaning-making and to name and handle decline and loss. In addition, they reported that specialized healthcare contexts strengthened the link to life by prioritizing and providing person-centered palliative care.

Significance of results:

Older people with incurable cancer are still strongly connected to life in their daily living. The knowledge that the potential for resilience remains despite aging and serious decline in health is considered a source of comfort for older people living with this disease. Insights into the processes of existential meaning-making and resilience are seen as useful in order to increase our understanding of how older people adapt to adversity, and how their responses may help to protect them from some of the difficulties inherent to aging. Healthcare professionals can make use of this information in treatment planning and for identification of psychosocial and sociocultural resources to support older people and to strengthen patients' life resources.

Keywords

CancerPalliative careAgingPhenomenologyExperience
Type
Original Articles
Information
Palliative & Supportive Care , Volume 13 , Issue 4 , August 2015 , pp. 1037 - 1048
Copyright
Copyright © Cambridge University Press 2014 

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