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Factors associated with feelings of reward during ongoing family palliative caregiving

Published online by Cambridge University Press:  17 April 2014

Anette Henriksson ,
Ida Carlander  and
Kristofer Årestedt
Anette Henriksson*
Affiliation:
Palliative Research Centre, Ersta Sköndal University College and Ersta Hospital, Stockholm, Sweden Capio Geriatrics, Palliative care unit, Dalens Hospital, Stockholm, Sweden Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden
Ida Carlander
Affiliation:
Palliative Research Centre, Ersta Sköndal University College and Ersta Hospital, Stockholm, Sweden Department of Learning, Informatics, Management and Ethics Medical Management Center, Karolinska Institutet, Stockholm, Sweden
Kristofer Årestedt
Affiliation:
Palliative Research Centre, Ersta Sköndal University College and Ersta Hospital, Stockholm, Sweden Department of Medical Health Sciences, Linköping University, Linköping, Sweden School of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden
*
Address correspondence and reprint requests to: Anette Henriksson, Palliative Research Centre, Ersta Sköndal University Collage and Ersta Hospital, Stockholm, Sweden. E-mail: [email protected]
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Abstract

Objective:

Of the few studies that have paid attention to feelings of reward in family palliative caregiving, most are retrospective and examine the experiences of bereaved family caregivers. Although feeling rewarded has been described as an influence that may facilitate the way family caregivers handle the caregiving situation, no study has sought to identify the factors associated with feelings of reward while providing ongoing family palliative care. The aim of this study, therefore, was to identify influential factors in feelings of reward experienced by family palliative caregivers.

Method:

Our study had a correlational cross-sectional design. Family caregivers (n = 125) of patients receiving specialized palliative care were consecutively recruited from four settings. These caregivers answered a questionnaire that included the Rewards of Caregiving Scale (RCS). This questionnaire included questions about demographic background and scales to measure preparedness for caregiving, feelings of hope, perceived health, and symptoms of anxiety and depression. Correlation and regression analyses were conducted to identify factors associated with rewards.

Results:

The results demonstrated that the more prepared caregivers with higher levels of hope felt more rewarded, while caregivers with higher levels of anxiety and those in a spousal relationship with the patient felt less rewarded by caregiving.

Significance of results:

It seems reasonable that feeling rewarded can be a significant contributor to the overall experience of providing ongoing palliative care. The situation of family caregivers has been shown to be multifaceted and complex, and such covariant factors as preparedness, anxiety, hope, and being in a spousal relationship with the patient to influence this experience.

Keywords

Palliative careFamily caregiversRewardsCaregivingAssociation
Type
Original Articles
Information
Palliative & Supportive Care , Volume 13 , Issue 3 , June 2015 , pp. 505 - 512
Copyright
Copyright © Cambridge University Press 2014 

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