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Factors associated with caregiver burden for mothers of children undergoing Acute Lymphocytic Leukemia (ALL) treatment

Published online by Cambridge University Press:  15 November 2019

Mansour Arab ,
Colleen Bernstein ,
Aboutaleb Haghshenas  and
Hadi Ranjbar Open the ORCID record for Hadi Ranjbar [Opens in a new window]
Mansour Arab
Affiliation:
Physiology Research Center, Kerman University of Medical Sciences, Kerman, Iran
Colleen Bernstein
Affiliation:
Department of Psychology, University of the Witwatersrand, Johannesburg, South Africa
Aboutaleb Haghshenas
Affiliation:
School of Nursing and Midwifery, Bam University of Medical Sciences, Bam, Iran
Hadi Ranjbar*
Affiliation:
Mental Health Research Center, Tehran Institute of Psychiatry – School of Behavioral Sciences and Mental Health, Iran University of Medical Sciences, Tehran, Iran
*
Author for correspondence: Hadi Ranjbar, Iran University of Medical Sciences, 1st Floor, Tehran Psychiatric Institute, No. 2, Shahid Mansouri St., Niayesh St., Satarkhan St., Tehran1445613111, Iran. E-mail: [email protected]
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Abstract

Objective

The present study examined the extent to which social support (SS) availability and satisfaction could predict the extent of caregiver burden (CB) among mothers of children with Acute Lymphocytic Leukemia (ALL).

Method

The study was a cross-sectional, descriptive-correlative study. It was conducted on a sample of 117 mothers whose children were undergoing treatment in a public hospital in Bam, Iran. The Norbeck Social Support Scale and the Caregiver Burden Scale were used to measuring study variables. The data were analyzed using Pearson's correlations, t-tests, ANOVAs, and linear regressions.

Results

Significant correlations were observed between CB and SS availability (r = −0.499, p < 0.001), SS satisfaction (r = −0.543, p < 0.001), the age of the child with cancer (r = −0.22, p = 0.01), and duration of treatment (r = 0.336, p < 0.001). Married mothers experienced less CB than those that were widowed or divorced. Within the regression equation, SS satisfaction, SS availability, marital status, and duration of treatment were the predictors of CB.

Significance of results

Based on the results of the current study, mothers who have less SS, especially those who are single mothers, with younger children, and who have taken care of their child for an extended duration should be given special attention. Furthermore, it appears that there are distinct cultural variations amongst Iranian mothers which suggest that culture may impact upon SS availability. Results also suggest a need for interventions that enhance nurses' ability to provide support to caregivers and the broader family unit as a whole. Nurses in cancer care need to have psychological competencies to help family members of cancer patients especially mothers and more so those that are single mothers. As integral members of the patient care experience, nurses may be uniquely positioned to provide this needed psychosocial support.

Keywords

CancerChemotherapyChildrenFamily caregiversMotherSocial support
Type
Original Article
Information
Palliative & Supportive Care , Volume 18 , Special Issue 4: Palliative and Supportive Care During The COVID-19 Pandemic , August 2020 , pp. 405 - 412
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Copyright
Copyright © Cambridge University Press 2019

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