Hostname: page-component-586b7cd67f-2plfb Total loading time: 0 Render date: 2024-11-26T04:57:17.487Z Has data issue: false hasContentIssue false
  • English
  • Français

Experience of nurses who work with children with palliative care needs: A mixed-method systematic review

Published online by Cambridge University Press:  27 November 2019

Maha Atout Open the ORCID record for Maha Atout [Opens in a new window]
Maha Atout*
Affiliation:
Nursing School, Philadelphia University, Amman, Jordan
*
Author for correspondence: Maha Atout, Nursing School, Philadelphia University, Office 509, Jarash Road, PO Box 19392, Amman, Jordan. E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Objective

The importance of palliative care education for nurses has been recognized worldwide. The study aims to explore the experiences of nurses working with children with palliative care needs and to identify any related educational needs.

Methods

The electronic databases of CINAHL, Cochrane, PubMed, OVID, Social Care Online, Web of Science, Scopus, and ProQuest were searched for the period 2000–2015.

Results

Finding revealed that working with children with palliative care needs is an emotionally struggling job for nurses, especially when they try to manage the transition of pediatric patients from curative to palliative care. Staffing level and time constraints comprise a major obstacle in pediatric palliative care. Focusing on invasive treatment and technology in spite of the feelings that it will not improve patients' health status intensifies the feeling of guilt and helplessness for nurses. Finally, nurses asserted the importance of receiving pediatric palliative care education, especially how to communicate with children with palliative care needs and their families.

Significance of results

Further research is recommended with regard to nurses' experience in communication with children with palliative care needs. Nursing education in pediatric palliative care is significantly important, especially how to communicate with children with palliative care needs and their families.

Keywords

EducationExperienceNursesPediatricPalliative care
Type
Review Article
Information
Palliative & Supportive Care , Volume 18 , Special Issue 4: Palliative and Supportive Care During The COVID-19 Pandemic , August 2020 , pp. 473 - 485
Check for updates
Copyright
Copyright © Cambridge University Press 2019

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Amery, JM, Rose, CJ, Byarugaba, C, et al. (2010) A study into the children's palliative care educational needs of health professionals in Uganda. Journal of Palliative Medicine 13, 147–153.CrossRefGoogle ScholarPubMed
Beck, Strand and Rawle, (2010) Paediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life care. American Journal of Critical Care 19, 543–52.Google Scholar
Borhani, F, Abbaszadeh, A, Mohsenpour, M, et al. (2013) Lived experiences of pediatric oncology nurses in Iran. Iranian Journal of Nursing and Midwifery Research 18, 349.Google ScholarPubMed
Brooten, D and Youngblut, JM (2006) Nurse dose as a concept. Journal of Nursing Scholarship 38, 94–99.CrossRefGoogle ScholarPubMed
Cavaye, J and Watts, JH (2012) End-of-life education in the pre-registration nursing curriculum: Patient, carer, nurse and student perspectives. Journal of Research in Nursing 17(4), 317–326.CrossRefGoogle Scholar
Chen, CH, Huang, LC, Liu, HL, et al. (2013) To explore the neonatal nurses’ beliefs and attitudes towards caring for dying neonates in Taiwan. Maternal and Child Health Journal 17, 1793–1801.CrossRefGoogle ScholarPubMed
Citak, EA, Toruner, EK and Gunes, NB (2013) Exploring communication difficulties in pediatric hematology: Oncology nurses. Asian Pacific Journal of Cancer Prevention 14(9), 5477–5482.CrossRefGoogle ScholarPubMed
Clarke, J and Quin, S (2007) Professional carers’ experiences of providing a pediatric palliative care service in Ireland. Qualitative Health Research 17, 1219–1231.CrossRefGoogle ScholarPubMed
Cochrane, H, Liyanage, S and Nantambi, R (2007) Palliative Care Statistics for Children and Young Adults. Health and Care Partnerships Analysis. London: Department of Health.Google Scholar
Contro, NA, Larson, J, Scofield, S, et al. (2004) Hospital staff and family perspectives regarding quality of pediatric palliative care. Pediatrics 114, 1248–1252.CrossRefGoogle ScholarPubMed
Cook, KA, Mott, S, Lawrence, P, et al. (2012) Coping while caring for the dying child: Nurses’ experiences in an acute care setting. Journal of Pediatric Nursing 27(4), e11–e21. doi:10.1016/j.pedn.2011.05.010CrossRefGoogle Scholar
Cooper, H, Cuthbertson, L and Fleming, S (2013) Neonatal palliative care nursing: Working with infants on the cusp of life – a thematic review. Neonatal, Paediatric and Child Health Nursing 16, 2.Google Scholar
Costello, J and Trinder-Brook, A (2000) Children's nurses’ experiences of caring for dying children in hospital. Paediatric Care 12, 28–32.CrossRefGoogle Scholar
D'antonio, J (2017) End-of-life nursing care and education: End-of-life nursing education past and present. Journal of Christian Nursing 34(1), 34–38.CrossRefGoogle ScholarPubMed
Davies, B, Sehring, SA, Partridge, JC, et al. (2008) Barriers to palliative care for children: Perceptions of pediatric health care providers. Pediatrics 121, 282–288.CrossRefGoogle ScholarPubMed
De Vlieger, M, Gorchs, N, Larkin, PJ, et al. (2004) Palliative nurse education: Towards a common language. Palliative Medicine 18(5), 401–403.CrossRefGoogle ScholarPubMed
Engler, AJ, Cusson, RM, Brockett, RT, et al. (2004) Neonatal staff and advanced practice nurses’ perceptions of bereavement/end-of-life care of families of critically ill and/or dying infants. American Journal of Critical Care 13(6), 489–498.CrossRefGoogle ScholarPubMed
Epstein, EG (2008) End-of-life experiences of nurses and physicians in the newborn intensive care unit. Journal of Perinatology 28, 771–778.CrossRefGoogle ScholarPubMed
Gallagher, K, Cass, H, Black, R, et al. (2012) A training needs analysis of neonatal and paediatric health-care staff in a tertiary children's hospital. International Journal of Palliative Nursing 18(4), 197–201.CrossRefGoogle Scholar
Granek, L, Bartels, U, Scheinemann, K, et al. (2015) Grief reactions and impact of patient death on pediatric oncologists. Pediatric Blood & Cancer 62(1), 134–142.CrossRefGoogle ScholarPubMed
Hannes, K, Lockwood, C and Pearson, A (2010) A comparative analysis of three online appraisal instruments’ ability to assess validity in qualitative research. Qualitative Health Research 20, 1736–1743.CrossRefGoogle ScholarPubMed
Henderson, V (1964) The nature of nursing. The American Journal of Nursing 64(8), 62–68.Google ScholarPubMed
Johnston, B and Smith, LN (2006) Nurses’ and patients’ perceptions of expert palliative nursing care. Journal of Advanced Nursing 54, 700–709. doi:10.1111/j.1365-2648.2006.03857.xCrossRefGoogle ScholarPubMed
Kain, V (2011) Exploring the barriers to palliative care practice in neonatal nursing: A focus group study. Neonatal, Paediatric and Child Health Nursing 14, 9.Google Scholar
Keenan, P and Mac Dermott, C (2016) How nurses grieve for children who die in their care. Learning Disability Practice 19(3), 16.10.7748/ldp.19.3.16.s20CrossRefGoogle Scholar
Khalaf, IA, Al-Dweik, G, Abu-Snieneh, H, et al. (2017) Nurses’ experiences of grief following patient death: A qualitative approach. Journal of Holistic Nursing 36(3), 228–240.CrossRefGoogle ScholarPubMed
Lee, KJ and Dupree, CY (2008) Staff experiences with end-of-life care in the pediatric intensive care unit. Journal of Palliative Medicine 11, 986–990. doi:10.1089/jpm.2007.0283CrossRefGoogle ScholarPubMed
Li, SP, Chan, CW and Lee, DT (2002) Helpfulness of nursing actions to suddenly bereaved family members in an accident and emergency setting in Hong Kong. Journal of Advanced Nursing 40, 170–180.CrossRefGoogle Scholar
Long, A, Godfrey, M, Randall, T, et al. (2002) Developing evidence based social care policy and practice. Part 3: feasibility of undertaking systematic reviews in social care. Project Report, University of Leeds, Nuffield Institute for Health, Leeds.Google Scholar
Lucas, PJ, Baird, J, Arai, L, et al. (2007) Worked examples of alternative methods for the synthesis of qualitative and quantitative research in systematic reviews. BMC Medical Research Methodology 7, 4.CrossRefGoogle ScholarPubMed
Malloy, P, Sumner, E, Virani, R, et al. (2007) End-of-life nursing education consortium for pediatric palliative care (ELNEC-PPC). MCN: The American Journal of Maternal/Child Nursing 32, 298–302.Google Scholar
Papadatou, D, Martinson, IM and Chung, PM (2001) Caring for dying children: A comparative study of nurses’ experiences in Greece and Hong Kong. Cancer Nursing 24, 402–412.CrossRefGoogle ScholarPubMed
Papadatou, D, Bellali, T, Papazoglou, I, et al. (2002) Greek nurse and physician grief as a result of caring for children dying of cancer. Pediatric Nursing 28(4), 345–353.Google ScholarPubMed
Peng, NH, Chen, CH, Huang, LC, et al. (2013) The educational needs of neonatal nurses regarding neonatal palliative care. Nurse Education Today 33(12), 1506–1510.CrossRefGoogle ScholarPubMed
Tubbs-Cooley, HL, Santucci, G, Kang, TI, et al. (2011) Pediatric nurses’ individual and group assessments of palliative, end-of-life, and bereavement care. Journal of Palliative Medicine 14(5), 631–637.CrossRefGoogle ScholarPubMed
Yam, B, Rossiter, JC and Cheung, K (2001) Caring for dying infants: Experiences of neonatal intensive care nurses in Hong Kong. Journal of Clinical Nursing 10, 651–659.CrossRefGoogle ScholarPubMed
Supplementary material: File

Atout supplementary material

Atout supplementary material

Download Atout supplementary material(File)
File 10.6 KB