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Dying to talk: Unsettling assumptions toward research with patients at the end of life

Published online by Cambridge University Press:  27 September 2010

Kathleen McLoughlin
Kathleen McLoughlin*
Affiliation:
Milford Care Centre, Castletroy, Limerick, County Limerick, Ireland and Department of Psychology, National University of Ireland, Maynooth, County Kildare, Ireland
*
Address correspondence and reprint requests to: Kathleen McLoughlin, Milford Care Centre, Castletroy, Limerick, Ireland. E-mail: [email protected]
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Abstract

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Type
Essay/Personal Reflections
Information
Palliative & Supportive Care , Volume 8 , Issue 3 , September 2010 , pp. 371 - 375
Copyright
Copyright © Cambridge University Press 2010

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References

REFERENCES

Bell, C. & Newby, H. (1977). Doing Sociological Research. London: George Allen and Unwin.Google Scholar
Cannan, S. (1989). Social research in stressful settings; Difficulties for the sociologist studying the treatment of breast cancer. Sociology of Health and illness, 11, 62–77.CrossRefGoogle Scholar
Casarett, D. (2000). Are special ethical guidelines needed for palliative care research? Journal of Pain and Symptom Management, 20, 130–139.CrossRefGoogle ScholarPubMed
de Raeve, L. (1994). Ethical issues in palliative care research. Palliative Medicine, 8, 298–305.CrossRefGoogle ScholarPubMed
Donnelly, S.M. & Donnelly, C.N. (2009). The experience of the moment of death in a specialist palliative care unit (SPCU). Irish Medical Journal, 102, 143–146.Google Scholar
Ewing, G., Rogers, M., Barclay, S., et al. (2004). Recruting patients into a primary care based study of palliative care: why is it so difficult? Palliative Medicine, 18, 452–459.CrossRefGoogle Scholar
Fook, J. (2007). Practising Critical Reflection: A Resource Handbook. Maidenhead: Oxford University Press.Google Scholar
Hendon, M. & Epting, F.R. (1989). A comparison of hopsice patients with other recovering and iltients. Death Studies, 13, 567–578.CrossRefGoogle Scholar
Jordhoy, M.S., Kaasa, S., Fayers, P., et al. (1999). Challenges in palliative care research; recruitment, attrition and compliance: Experience from a randomized controlled trial. Palliative Medicine, 13, 299–310.CrossRefGoogle ScholarPubMed
Kellehear, A. (1989). Ethics and social research. In Doing Fieldwork: Eight Personal Accounts of Social Research, Perry, J. (ed.). Geelong: Deakin University Press.Google Scholar
Kellehear, A. (1999). Health Promoting Palliative Care. Melbourne: Oxford University Press.Google Scholar
Kelly, G.A. (1955). The Psychology of Personal Constructs. New York: Norton.Google Scholar
Kubler Ross, E. (1970a). On Death and Dying—What the Dying Have to Teach Doctors, Nurses, Clergy and their Own Families. Kubler Ross, E. (ed.). Oxford: Routledge.Google Scholar
Kubler-Ross, E. (1970b). Psychotherapy for the dying patient. Current Psychiatric Therapies, 5, 110–117.Google Scholar
Miller, D.K. & Chibnall, J.T. (2003). Strategies for recruiting patients into randomised trials of palliative care. Palliative Medicine, 17, 556–557.CrossRefGoogle ScholarPubMed
Monroe, B. (2003). Patient Particpation in Palliative Care: A Voice for the Voiceless. Oxford: Oxford University Press.CrossRefGoogle Scholar
Saunders, C. (1958). Dying of cancer. St. Thomas's Hospital Gazette 56, 37–47.Google Scholar
Steinhauser, K.E., Clipp, E.C., Hays, J.C., et al. (2006). Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. Palliative Medicine, 20, 745–754.CrossRefGoogle ScholarPubMed
United Nations. (1948). The Universal Declaration of Human Rights. http://www.udhr.org/UDHR/default.htm.Google Scholar
White, C. & Hardy, J.R. (2008). Gatekeeping from palliative care research trials. Progress in Palliative Care, 16, 167–172.CrossRefGoogle Scholar
Young, & Lee, (1996). Fieldworker feelings as data: ‘Emotion work’ and ‘feeling rules’ in the first person accounts of sociological fieldwork. In Health and the Sociology of the Emotions, James, V. & Gabe, J. (eds.). pp. 97–114. Oxford: Blackwell.Google Scholar