Hostname: page-component-cd9895bd7-8ctnn Total loading time: 0 Render date: 2024-12-22T22:22:41.115Z Has data issue: false hasContentIssue false

Balancing burden and benefit: Reflecting on interviews with individuals nearing the end of their lives

Published online by Cambridge University Press:  11 October 2023

Helena Kukla*
Affiliation:
Faculty of Human Sciences and Faculty of Medicine, Graduate School GROW – Gerontological Research on Well-being, University of Cologne, Cologne, Germany Faculty of Medicine and University Hospital, Department of Palliative Medicine, University of Cologne, Cologne, Germany
Rights & Permissions [Opens in a new window]

Abstract

Type
Essay/Personal Reflection
Copyright
© The Author(s), 2023. Published by Cambridge University Press.

Conducting interviews in the field of end-of-life care usually involves discussing sensitive topics that are “laden with emotion or which inspire feeling of awe or dread” (Lee Reference Lee1993). The benefits of research within this area must outweigh the risk of eventually burdening the participants, who may be emotionally vulnerable due to existential issues when nearing the end of their lives (Breitbart et al. Reference Breitbart, Gibson and Poppito2004; Neimeyer et al. Reference Neimeyer, Currier and Coleman2011). Consequently, health-care professionals, relatives, and next of kin try to avoid sources of unnecessary psychological distress and may limit or prevent access to eligible participants for research participation (Kars et al. Reference Kars, van Thiel and van der Graaf2016; Sharkey et al. Reference Sharkey, Savulescu and Aranda2010). This process is known as gatekeeping and can be mitigated if gatekeepers are involved in decision-making processes and can thus exert influence and ensure credibility and validity of the research procedure (Seidman Reference Seidman2013). Thus, gatekeepers play a protective role, and it becomes relevant to explore whether people nearing the end of life experience burden during research interviews or if such interviews can have positive effects (Dempsey et al. Reference Dempsey, Dowling and Larkin2016).

In the context of a dissertation project focusing on confronting one’s own end of life when nearing death due to age or disease, I conducted semi-structured interviews with 21 individuals aged 80 and over or with life-limiting diseases (Kukla et al. Reference Kukla, Herrler and Strupp2022). I would like to report on remarkable experiences during data collection, highlighting the significance of collecting data from first-order perspectives to understand the needs and wishes at the end of life, as well as the potential additional benefits of self-reflection and reordering of thoughts. In the following, I summarize experiences related to establishing contact, conducting interviews, and the shared effects of the conversation.

  1. (1) Encountering participants: To create a comfortable atmosphere for the conversation, I prioritized relationship-building and engaged in nonhierarchical discussions by sharing personal experiences and valuing the participants’ stories and insights. In most cases, a sense of closeness was established within the first 10 minutes, providing a solid foundation for the interview about one’s own end of life. The participants appeared at ease and some even initiated the research interview by inquiring about my objectives and how they could assist. Furthermore, I emphasized that participants were in control of deciding when to take breaks, when to end the interview, and how to best address their needs.

  2. (2) Conducting the interview: In some interviews, I played a minimal role in guiding the conversation as participants had already shared extensive content. In other cases, I posed several questions to delve deeper into the subject matter. It was easy for me to maintain a researcher’s role with empathetic distance. At the end of one interview, a participant spontaneously hugged me, which I allowed at the moment, but I refrained from further physical contact. While some participants became emotional during the interviews, all chose to continue, and none required the aftercare offer.

  3. (3) Effects of the conversations: The emotional intensity of the conversations varied. Some remained relatively superficial, while others were highly emotionally charged. The interview guide did not specifically inquire about direct effects, but some participants reported on how they felt afterward (Kukla et al. Reference Kukla, Herrler and Strupp2022): You start telling stories (Interview 10: pos. 153), I am enjoying this with the two of us, though I didn´t expected it (Interview 17: pos. 208), I liven up when I face someone like you to talk to (Interview 7: pos. 130). One participant mentioned the opportunity for action resulting from the interview: Maybe the interview is encouraging action (Interview 16: pos.153). The interviews appeared to have a therapeutic effect, allowing participants to relive emotions, reflect on past experiences, and re-evaluate their lives. A compassionate and empathetic conversation can encourage storytelling and can even result in a changed sense of self (Clyne et al. Reference Clyne, O’Neill and Nuzum2019; Dempsey et al. Reference Dempsey, Dowling and Larkin2016; Kruizinga et al. Reference Kruizinga, Scherer-Rath and Schilderman2018). Almost all participants felt much closer after the interview, and some even commented on their sense of closeness, with one participant stating: You feel like a friend after the interview (Interview 7: pos. 108), and another expressing: […] my daughter would not see me like you see me now (cries) (Interview 5: pos. 102).

In conclusion, based on these experiences, it can be summarized that no negative effects were reported but rather positive effects were observed in interviews conducted in the field of end-of-life care, which had beneficial effects on measures of comfort. It is assumed that the power of storytelling may enable the people to construct or reconstruct their framework of meaning in life (Kruizinga et al. Reference Kruizinga, Hartog and Jacobs2016). End-of-life interviews appear to initiate reflective processes and pave the way for life reflection. Considering the vulnerability of the participants when planning and conducting interviews is crucial to prevent harm, but qualitative research may also be empowering for participants (Gysels et al. Reference Gysels, Shipman and Higginson2008).

Therefore, this personal reflection can serve as a plea for sensitive interviewing and as a gate-opener for the potential inclusion of people nearing the end of their lives. It is not about disregarding the reasons for gatekeeping, as they may be justified and essential, but rather about encouraging potential gatekeepers to engage in reflective and individual decision-making processes.

Funding

This research received no specific grant from any funding agency, commercial, or not-for-profit sectors.

Competing interests

None.

Ethical approval

Ethical approval for the original study (Kukla et al. Reference Kukla, Herrler and Strupp2022) was obtained from the Ethics Committee of the University of Cologne (approval no. 19–1617).

References

Breitbart, W, Gibson, C, Poppito, SR, et al. (2004) Psychotherapeutic interventions at the end of life: A focus on meaning and spirituality. The Canadian Journal of Psychiatry 49(6), 366372. doi:10.1177/070674370404900605CrossRefGoogle ScholarPubMed
Clyne, B, O’Neill, SM, Nuzum, D, et al. (2019) Patients’ spirituality perspectives at the end of life: A qualitative evidence synthesis. BMJ Supportive & Palliative Care 12(4), e550e561. doi:10.1136/bmjspcare-2019-002016CrossRefGoogle ScholarPubMed
Dempsey, L, Dowling, M, Larkin, P, et al. (2016) Sensitive interviewing in qualitative research. Research in Nursing & Health 39(6), 480490. doi:10.1002/nur.21743CrossRefGoogle ScholarPubMed
Gysels, M, Shipman, C and Higginson, IJ (2008) Is the qualitative research interview an acceptable medium for research with palliative care patients and carers? BMC Medical Ethics 9, . doi:10.1186/1472-6939-9-7CrossRefGoogle ScholarPubMed
Kars, MC, van Thiel, GJ, van der Graaf, R, et al. (2016) A systematic review of reasons for gatekeeping in palliative care research. Palliative Medicine 30(6), 533548. doi:10.1177/0269216315616759CrossRefGoogle ScholarPubMed
Kruizinga, R, Hartog, ID, Jacobs, M, et al. (2016) The effect of spiritual interventions addressing existential themes using a narrative approach on quality of life of cancer patients: A systematic review and meta-analysis. Psycho-Oncology 25(3), 253265. doi:10.1002/pon.3910CrossRefGoogle ScholarPubMed
Kruizinga, R, Scherer-Rath, M, Schilderman, HJBAM, et al. (2018) Toward a fully fledged integration of spiritual care and medical care. Journal of Pain and Symptom Management 55(3), 10351040. doi:10.1016/j.jpainsymman.2017.11.015CrossRefGoogle Scholar
Kukla, H, Herrler, A, Strupp, J, et al. (2022) “My life became more meaningful”: Confronting one’s own end of life and its effects on well-being-a qualitative study. BMC Palliative Care 21(1), . doi:10.1186/s12904-022-00950-3CrossRefGoogle ScholarPubMed
Lee, RM (1993) Doing Research on Sensitive Topics. London: SAGE.Google Scholar
Neimeyer, RA, Currier, JM, Coleman, R, et al. (2011) Confronting suffering and death at the end of life: The impact of religiosity, psychosocial factors, and life regret among hospice patients. Death Studies 35(9), 777800. doi:10.1080/07481187.2011.583200CrossRefGoogle ScholarPubMed
Seidman, I (2013) Interviewing as Qualitative Research: A Guide for Researchers in Education and the Social Sciences, 4th edn. New York: Teachers College Press.Google Scholar
Sharkey, K, Savulescu, J, Aranda, S, et al. (2010) Clinician gate-keeping in clinical research is not ethically defensible: An analysis. Journal of Medical Ethics 36(6), 363366. doi:10.1136/jme.2009.031716CrossRefGoogle Scholar