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Palliative care for older South Asian migrants: A systematic review

Published online by Cambridge University Press:  08 July 2019

Jahan Shabnam Open the ORCID record for Jahan Shabnam [Opens in a new window] ,
Helle Timm ,
Dorthe S. Nielsen  and
Mette Raunkiaer
Jahan Shabnam*
Affiliation:
REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital and University of Southern Denmark, Denmark
Helle Timm
Affiliation:
REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital and University of Southern Denmark, Denmark
Dorthe S. Nielsen
Affiliation:
Migrant Health Clinic, Odense University Hospital: Center for Global Health, University of Southern Denmark and Health Sciences Research Center, University College Lillebaelt
Mette Raunkiaer
Affiliation:
REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital and University of Southern Denmark, Denmark
*
Author for correspondence: Jahan Shabnam, REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Vestergade 17, 5800Nyborg, Denmark. Email: [email protected]
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Abstract

Objective

South Asian migrants have a higher burden of life-threatening diseases and chronic diseases compared to other ethnic groups. Yet, knowledge gaps remain around their palliative care needs in the host countries. The aim of the review was to present results from a systematic literature review of available international evidence on experiences with and perspectives on palliative care among older South Asian migrants, relatives, and healthcare providers.

Methods

A systematic review in accordance with PRISMA guidelines was conducted in February 2018, searching PubMed, CINAHL, PsychINFO, and EMBASE databases. PROSPERO #CRD42018093464. Studies included empirical research, providing international evidence on experiences and perspectives on palliative care of South Asian migrants and were published between 2000 and 2018. Thematic synthesis was used to analyze data.

Results

A total of 30 articles were included: qualitative (24), quantitative (5), and mixed methods (1). Three main themes were discovered: 1) palliative care practice within the family, 2) trust as a precondition of palliative care, and 3) the importance of knowledge and cultural competency. All the themes, to a greater or lesser extent, are related to access to and use of palliative care services by South Asian migrant families.

Significance of results

Involvement of family members in palliative care decision making could improve the satisfaction of South Asian migrant families toward the service. For example, Advanced Care Planning involving family members could be a possible way to engage family members in palliative care decision making. Supportive interventions, e.g. providing knowledge, aimed at patients and their family members might improve knowledge and increase awareness among South Asian migrant families of palliative care. Knowledge gained from this review could be implemented with other ethnic minority groups.

Keywords

Palliative careend-of-life caretransients and migrantsSouth Asianethnic groups
Type
Review Article
Information
Palliative & Supportive Care , Volume 18 , Issue 3 , June 2020 , pp. 346 - 358
Copyright
Copyright © Cambridge University Press 2019

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