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Models of disability, ideas of justice, and the challenge of full participation

Published online by Cambridge University Press:  05 February 2016

Giampiero Griffo
Giampiero Griffo*
Affiliation:
World Council, Disabled People's International
*
∗Email: [email protected]
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Abstract

The definitions of disability adopted in the UN Convention on the Rights of Persons with Disabilities (CRPD) necessitate an important change in the way disability is assessed and introduce a new idea of justice in relation to persons with disabilities. The article starts by reviewing the various ‘models of disability’ prevailing in the past and the respective ideas of justice underlying them. The charity model, for instance, was rooted in ideas of divine justice and human beneficence, where care for the disabled led in practice to their being segregated from the rest of society, while the medical model saw justice in terms of treatments or compensations for individual pathologies rather than of positive enablement for active living. The CRPD overturns these models and the related conceptions of justice by emphasising society's obligations towards persons with disabilities and, above all, their human right to full inclusion and participation in society. The key concepts are empowerment and capability. In Italy these concepts and this new conception of justice have started to be applied by the Osservatorio nazionale sulla condizione delle persone con disabilità, the body created to monitor the effective application of the CRPD in Italy, and they are included in the two-year action programme on disability, approved by the Italian government in October 2013.

Keywords

models of disabilityempowermentcapabilityinclusionparticipation
Type
Articles
Information
Modern Italy , Volume 19 , Issue 2: Disability rights and wrongs in Italy , May 2014 , pp. 147 - 159
Copyright
Copyright © Association for the study of Modern Italy 

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References

Alves, Ines, Fazzi, Luisa Bosisio, and Griffo, Giampiero. 2010. Human Rights, Persons with Disabilities, ICF and the UN Convention on the Rights of Persons with Disabilities: Training Toolkit. Lamezia Terme: Comunità.Google Scholar
Academic Network of European Disability Experts (ANED). 2009. Monitoring the Implementation of the UN Convention on the Rights of Persons with Disabilities in Europe: Principles for the Identification and Use of Indicators. Report prepared by Anna Lawson and Mark Priestley. Leeds: Human European Consultancy and University of Leeds.Google Scholar
Barbuto, Rita, Biggeri, Mario, and Griffo, Giampiero. 2011. “Life Project, Peer Counselling and Self-Help Groups as Tools to Expand Capabilities, Agency and Human Rights.” Alter: European Journal of Disability Research 5(3):192–205. doi: 10.1016/j.alter.2011.05.007.CrossRefGoogle Scholar
Barbuto, Rita, Ferrarese, Vincenza, Griffo, Giampiero, Napolitano, Emilia, and Spinuso, Gianna. 2006. Peer counselling. Da vittime della storia a protagonisti della vita. Lamezia Terme: Comunità.Google Scholar
Bickenbach, Jerome E. 1996. “Equity, Participation and the Politics of Disability.” Paper presented at the 18th World Congress of Rehabilitation International, Wellington, New Zealand, September 15–20.Google Scholar
Bickenbach, Jerome E., Chatterji, Somnath, Badley, E. M., and Üstün, T. B. 1999. “Models of Disablement, Universalism and the International Classification of Impairments, Disabilities and Handicaps.” Social Science & Medicine 48(9):1173–1187. doi: 10.1016/S0277-9536(98)00441-9.CrossRefGoogle Scholar
Biggeri, Mario, and Bellanca, Nicolò, eds. 2010. Ripensare le politiche sulla disabilità in Toscana attraverso l'approccio delle capability di Amartya Sen: From Cure to Care. Rapporto finale. Florence: Regione Toscana.Google Scholar
Biggeri, Mario, and Bellanca, Nicolò, eds. 2011. L'approccio delle capability applicato alla disabilità: dalla teoria dello Sviluppo Umano alla pratica. Arezzo: UmanaMENTE. Available online at: http://www.oxfamitalia.org/wp-content/uploads/2011/07/[email protected] Google Scholar
Biggeri, Mario, Bellanca, Nicolò, Tanzj, Lapo, and Bonfanti, Sara. 2010. “Sulle politiche per le persone con disabilità: il progetto di vita e la strategia a mosaico.” In Dalla relazione di cura alla relazione di prossimità. L'approccio delle capability alle persone con disabilità, edited by Biggeri, Mario and Bellanca, Nicolò, 165–187. Naples: Liguori.Google Scholar
Bonfiglio, Natale S., Renati, Roberta, and Farneti, Pietro M. 2012. La resilienza tra rischio e opportunità. Un approccio alla cura orientato alla resilienza. Rome: Alpes.Google Scholar
Castellani, Alessandro, La Malfa, Giampaolo, Manzotti, Sumire, Monchieri, Sergio, Nardocci, Franco, and Ruggerini, Ciro, eds. 2010. La promozione della salute mentale nella disabilità intellettiva. Consenso multidisciplinare e intersocietario. Trento: Erickson.Google Scholar
Centro Collaboratore italiano dell'OMS per la Famiglia delle Classificazioni Internazionali. 2010. Messa a punto di modelli di valutazione della disabilità basati sul modello biopsicosociale e la struttura descrittiva dell'ICF. Report finale n. 2 allegato 1. Udine: Regione Autonoma Friuli Venezia Giulia.Google Scholar
Chatterji, Somnath, Üstün, Bedirhan, and Bickenbach, Jerome E. 1999. “What is disability after all?” Disability and Rehabilitation 21(8):396–398. doi: 10.1080/096382899297549.CrossRefGoogle Scholar
Comitato Sammarinese di Bioetica. 2013. L'approccio bioetico alle persone con disabilità. San Marino: Republic of San Marino. Available online at: http://www.sanita.sm/on-line/home/comitato-bioetica/comitato-sammarinese-di-bioetica/documenti-csb.html Google Scholar
Di Lauro, Domenico. 2012. La resilienza. La capacità di superare i momenti critici e le avversità della vita. Milan: Xenia.Google Scholar
Fioranelli, Massimo. 2011. Il decimo cerchio. Appunti per una storia della disabilità. Rome–Bari: Laterza.Google Scholar
Goodey, C. F. 2011. A History of Intelligence and “Intellectual Disability”: The Shaping of Psychology in Early Modern Europe. Farnham: Ashgate.Google Scholar
Griffo, Giampiero. 2006. “L'empowerment, base del lavoro delle organizzazioni di persone con disabilità.” Notiziario AP 22(3). Inserto Empowerment, 1–2.Google Scholar
Higgins, Paul C. 1992. Making Disability: Exploring the Social Transformation of Human Variation. Springfield, IL: Thomas.Google Scholar
Nussbaum, Martha C. 2000. Women and Human Development: The Capabilities Approach. Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Nussbaum, Martha C. 2003. “Capabilities as Fundamental Entitlements: Sen and Social Justice.” Feminist Economics 9(2/3):33–59. doi: 10.1080/1354570022000077926.CrossRefGoogle Scholar
Nussbaum, Martha C., and Sen, Amartya, eds. 1993. The Quality of Life. Oxford: Oxford University Press.CrossRefGoogle Scholar
Oliver, Michael. 1990. The Politics of Disablement. London: Macmillan.CrossRefGoogle Scholar
Oliver, Michael. 2009. Understanding Disability: From Theory to Practice. 2nd ed. Basingstoke: Palgrave Macmillan.CrossRefGoogle Scholar
Osservatorio Nazionale sulla condizione delle persone con disabilità (Osservatorio). 2011. Note metodologiche per l'organizzazione del lavoro delle commissioni dell'Osservatorio Nazionale sulla condizione delle Persone con Disabilità. Rome: Ministero del Lavoro de delle Politiche Sociali. Available online at: http://www.lavoro.gov.it/AreaSociale/Disabilita/Documents/NotemetodologicheItalia.pdf Google Scholar
Osservatorio Nazionale sulla condizione delle persone con disabilità (Osservatorio). 2013. Programma di azione biennale per la promozione dei diritti e l'integrazione delle persone con disabilità. Rome: Ministero del Lavoro e delle Politiche Sociali. Available online at: http://www.osservatoriodisabilita.it/images/documenti/Programma_azione_disabilita.pdf Google Scholar
Palacios Barreiros, Agustina, and Cabrero, Javier Romañach. 2006. El Modelo de la Diversidad: La Bioética y los Derechos Humanos como herramientas para alcanzar la plena dignidad en la diversidad funcional. Santiago de Compostela: Ediciones Diversitas–AIES.Google Scholar
Ruggerini, Ciro, Vezzosi, Federica, and Vecchia, Annamaria Dalla. 2008. Prendersi cura della disabilità intellettiva. Coordinate OMS, buone prassi, storie di vita. Trento: Erickson.Google Scholar
Ruggerini, Ciro, Vezzosi, Federica, Solmi, Angela, and Manzotti, Sumire. 2008. “Narrative Based Medicine in Genetic Syndromes with Intellectual Disability.” In Life Span Development in Genetic Disorders: Behavioral and Neurobiological Aspects, edited by Verri, Annapia, 195–212. Hauppauge, NY: Nova Science.Google Scholar
Ruggerini, Ciro, Griffo, Giampiero, and Manzotti, Sumire. 2009. “Empowerment, famiglie, persone con disabilità intellettiva: modi nuovi di ‘prendersi cura’.” Servizi Sociali Oggi 2:45–48.Google Scholar
Ruggerini, Ciro, Manzotti, Sumire, Griffo, Giampiero, and Veglia, Fabio. 2013. Narrazione e disabilità intellettiva. Valorizzare le esperienze individuali nei percorsi educativi e di cura. Trento: Erickson.Google Scholar
Schianchi, Matteo. 2009. La terza nazione del mondo. I disabili tra pregiudizio e realtà. Milan: Feltrinelli.Google Scholar
Sen, Amartya. 1979. “Utilitarianism and Welfarism.” Journal of Philosophy 76(9):463–489.CrossRefGoogle Scholar
Sen, Amartya. 1985. Commodities and Capabilities. Oxford: Oxford University Press.Google Scholar
Sen, Amartya. 1992. Inequality Reexamined. Cambridge, MA: Harvard University Press.Google Scholar
Sen, Amartya. 1999. Development as Freedom. Oxford: Oxford University Press.Google Scholar
Sen, Amartya. 2005. “Human Rights and Capabilities.” Journal of Human Development 6(2):151–166.CrossRefGoogle Scholar
Singer, Peter. 2000. Writings on an Ethical Life. New York: Ecco Press.Google Scholar
Singer, Peter. 2011. Practical Ethics. 3rd ed. (first published 1980). Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Solipaca, Alessandro, Battisti, Alessandra, De Palma, Elena, and Sicuro, Lorella. 2009. “Revision of Italian Disability Statistics according to the ICF Conceptual and Semantic Framework.” Disability and Rehabilitation 31(1):22–39. doi: 10.3109/09638280903317914.CrossRefGoogle Scholar
Trabucchi, Pietro. 2007. Resisto dunque sono. Milan: Corbaccio.Google Scholar
WHO. 1980. International Classification of Impairments, Disabilities and Handicaps (ICIDH). Geneva: World Health Organization.Google Scholar
WHO. 1999. The World Health Report 1999: Making a Difference. Geneva: World Health Organization.Google Scholar
WHO. 2001. International Classification of Functioning, Disability and Health (ICF). Geneva: World Health Organization.Google Scholar