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Show Us the Data: The Critical Role Health Information Plays in Health System Transformation

Published online by Cambridge University Press:  01 January 2021

Jane Hyatt Thorpe ,
Elizabeth A. Gray  and
Lara Cartwright-Smith
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Abstract

Truly transforming the healthcare delivery and payment system turns on the ability to engage in the interoperable electronic exchange of patient health information across and beyond the care continuum. Achieving transformation requires a legal framework that supports information sharing with appropriate privacy and security protections and a trusted governance structure.

Type
Symposium Articles
Information
Journal of Law, Medicine & Ethics , Volume 44 , Issue 4: Health Reform: Assessing the Affordable Care Act and Moving Forward , Winter 2016 , pp. 592 - 597
Copyright
Copyright © American Society of Law, Medicine and Ethics 2016

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References

See, e.g., The Office of the National Coordinator for Health Information Technology, U.S. Department of Health and Human Services “Benefits of Health IT,” available at <https://www.healthit.gov/patients-families/benefits-health-it> (last visited November 7, 2016); Health Information Technology Initiative, Bipartisan Policy Center, Clinician Perspectives on Electronic Health Information Sharing for Transitions of Care (2012), available at <http://bipartisanpolicy.org/wp-content/uploads/sites/default/files/Clinician%20Survery_format%20(2).pdf> (November 7, 2016).+(last+visited+November+7,+2016);+Health+Information+Technology+Initiative,+Bipartisan+Policy+Center,+Clinician+Perspectives+on+Electronic+Health+Information+Sharing+for+Transitions+of+Care+(2012),+available+at++(November+7,+2016).>Google Scholar
The Office of the National Coordinator for Health Information Technology, U.S. Department of Health and Human Services, Connecting Health and Care for the Nation: A 10-Year Vision to Achieve an Interoperable Health IT Infrastructure (2014), available at <https://www.healthit.gov/sites/default/files/ONC10yearInteroperabilityConceptPaper.pdf> (last visited November 7, 2016).+(last+visited+November+7,+2016).>Google Scholar
Id., at 2-3.Google Scholar
Health Information Technology for Economic and Clinical Health (HITECH) Act, Pub. L. No. 111-5, 123 Stat. 115 (2009) (codified in scattered sections of 42 U.S.C.).Google Scholar
Patient Protection and Affordable Care Act of 2010 (ACA), Pub. L. No. 111-148, 124 Stat. 119 (2010) (codified in scattered sections of 42 U.S.C.).Google Scholar
HITECH Act, supra note 4 at § 4201.Google Scholar
The Office of the National Coordinator for Health Information Technology, U.S. Department of Health and Human Services, Adoption of Electronic Health Record Systems among U.S. Non-Federal Acute Care Hospitals: 2008-2014 (April 2015), available at <https://www.healthit.gov/sites/default/files/data-brief/2014HospitalAdoptionDataBrief.pdf> (last visited November 7, 2016): at 1.+(last+visited+November+7,+2016):+at+1.>Google Scholar
Walker, D., Mora, A., Demosthenidy, M. M., Menachemi, N., and Diana, M. L., “Meaningful Use of EHRs among Hospitals Ineligible for Incentives Lags behind That of Other Hospitals, 2009-13,” Health Affairs 35, no. 3 (2016): 495–501.Google Scholar
Medicare Payment Advisory Commission (MedPAC), “Medicare's Post-Acute Care: Trends and Ways to Rationalize Payments,” Report to Congress, March 2015, available at <http://www.medpac.gov/documents/reports/chapter-7-medicare's-post-acute-care-trends-and-ways-to-rationalize-payments-(march-2015-report).pdf?sfvrsn=0>..>Google Scholar
See, e.g., Agaku, I. T., Adisa, A. O., Aso-Yusuf, O. A., and Connolly, G. N., “Concern about Security and Privacy, and Perceived Control Over Collection and Use of Health Information Are Related to Withholding of Health Information From Health-care Providers,” Journal of American Medical Informatics Association 21, no. 2 (2014): 374–378.Google Scholar
Health Insurance Portability and Accountability Act of 1996 (HIPAA), Pub. L. No. 104-191, 110 Stat. 139 (1996) (codified as amended in scattered sections of 42 U.S.C.).Google Scholar
Privacy Act of 1974, Pub. L. No. 93-579, 88 Stat. 1896 (codified as amended at 5 U.S.C. § 552a).Google Scholar
45 C.F.R. Part 46, Subparts A-E (2015).Google Scholar
42 C.F.R. Part 2 (2015).Google Scholar
See HITECH Act, supra note 4 at § 13404 (mandating changes to HIPAA) and HIPAA Omnibus Rulemaking, 78 Fed. Reg. 17, 5566-702 (2013); Common Rule NPRM, 80 Fed. Reg. 173, 53933-54061 (2015); Part 2 NPRM, 81 Fed. Reg. 26, 6988-7024 (2016); Florida Medical Association v. U.S. Department of HEW, 947 F.Supp.2d 1325 (M.D. Fla. 2013) (changing application of Privacy Act/FOIA to Medicare provider-level claims data).Google Scholar
Health Information & the Law Project, Milken Institute School of Public Health, George Washington University, “Health Information & the Law,” available at <www.healthinfolaw.org> (last visited November 7, 2016) (summaries of state laws governing health information and 50-state comparative maps available online).+(last+visited+November+7,+2016)+(summaries+of+state+laws+governing+health+information+and+50-state+comparative+maps+available+online).>Google Scholar
See, e.g., Health Information & the Law Project, Milken Institute School of Public Health, George Washington University, “Disclosure of Mental Health Records Pursuant to a Court Order: 50 State Comparison,” available at <http://www.healthinfolaw.org/comparative-analysis/disclosure-mental-health-records-pursuant-court-order-50-state-comparison> (last visited November 7, 2016) and “Disclosure of Mental Health Records with Patient Consent: 50 State Comparison,” available at <http://www.healthinfolaw.org/comparative-analysis/disclosure-mental-health-records-patient-consent-50-state-comparison> (last visited November 7, 2016).+(last+visited+November+7,+2016)+and+“Disclosure+of+Mental+Health+Records+with+Patient+Consent:+50+State+Comparison,”+available+at++(last+visited+November+7,+2016).>Google Scholar
See, e.g., The Office of the National Coordinator for Health Information Technology, U.S. Department of Health and Human Services, Connecting Health and Care for the Nation: A Shared Nationwide Interoperability Roadmap, available at <https://www.healthit.gov/sites/default/files/hie-interoperability/nationwide-interoperability-roadmap-final-version-1.0.pdf> (November 7, 2016).+(November+7,+2016).>Google Scholar
See, e.g., NORC, University of Chicago, “Healthcare Information Interoperability” in VIable Solutions: Six Steps to Transform Healthcare Now, report for the Healthcare Leadership Council, February 17, 2016, at 18-27, available at <http://ndhi.org/files/6414/5565/8017/VIable_Solutions_Final_Report.pdf> (last visited November 7, 2016).+(last+visited+November+7,+2016).>Google Scholar